did i share that i did have some carrots? and nice hummus? ethical! that’s the word and it was so good and i was so glad but also so much work to eat haha i forgot how much

Happening now! ✨ Jump in to learn more about how these conditions are caused, symptoms and pathways, testing and possible treatments! 🩸

i realized recently that i have completely forgotten about this and i’ve been cutting the whole top off for a long while aww it will be ok. but it sucks forgetting things like this all the time, and not being able to have habits. it’s like every bad crash my brain resets

i shouldn’t go because 1. i spent a lot of energy on stuff like cutting my hair and i had a bad week so i need rest 2. i forgot but it would cost money to go this time bc i don’t have a ride and i haven’t gotten to pay day yet 3. chiro and acu tucker me out and i’m already tired 😅

people at work said i was so helpful yay i am being a good file librarian on this job and sorting the things well and explaining

Raised $90 yesterday, thank you so much!! 🥹🥹♥️♥️ I am so grateful for every share, every donation and everyone who cares! Still lots of debt and lots of needs and bills. Please share and share some more, it’s a HUGE help! Donate only if able! Thank you! ♥️ #MutualAidRequest #HelpSky #HelpFolksLive2026

am i able to go to chiro to fix the EDS problems making me hurt or do i not go and rest to try to fix the other things i really want to go but i don’t think i can today 🥲

Happy Friday the 13! and also Pi day is tomorrow! 3.14

ok i am enjoying my hair after the hair cut hehe yay curly hair

i have an orange hair tie now so that’s the irish flag colors! tiny joys heh i texted my friend the things during my worse times and the word “green” and we had fun with colors. color stims are the best haha still feeling awful but my meds helped!! so glad so so so glad

Can anyone that is able help Bex, please? I've donated $30, and if anyone can match that it will go a long way.

watching sub par anime bc i hurt a lot and it’s just filler noise and the right animes for filler noise isn’t always the best quality anime we do what pain brain wants

why tf is it only now occur to me taking back up bad day pain meds jeez it’s hurting so bad and the tears and the bad and the just and i not even thinking until now for some help more help

hehe smiling about this still pretty sure i’ve watched her add columns in spreadsheets before i am glad we got to connect briefly

connected with work bestie today lol she asked to call me for help adding a column in a spreadsheet. i am pretty sure she knows how to do that but i said of course yes and helped her and then we caught up, she was so excited to share how work has been and ask me about my work hehe yay

I'm running out of time for raising food funds. If I can't raise enough for groceries tonight- $150 minimum for 2-3 weeks- then I have to shift focus back to rent. PLEASE help me restock? I can only stretch what's left for a short time. I'm already cutting out meals.

it’s hard feeling really awful and missing bestie. i know space is best but then, when i feel awful and really out of it i just want comfort and relief, and it’s difficult to impossible to remember anything i should consider. and even when i can remember, i still want comfort.

an anime thing i like: when gross / gruesome stuff is colorful like blood is neon pink and other neon colors or throwing up is rainbow sparkles a game thing i like: when creepy things like bugs can be turned into something else in the settings, like teddy bears or dust.

i’ve felt so emotional with this weather change, including sad and nostalgic and overwhelmed and lonely. i wanted some wins, so i put on a cute festive PJ outfit, cleaned up my bed a bit by making a new medicine box, and cut my hair. it is helping a lot hehe but also that’s a lot of activity 😅

PLEASE GIVE MONEY TODAY. STALLED AND $200 BEHIND. HELP PLEASE. DISABLED AND CANNOT WORK. 160/1000 #MAV #MutualAid #HelpSky #StalledMA #HelpFolksLive2026 #TransCrowdfund #DisabledMA 💕💸

so uh i cut my hair haha 😅 i know it’s a lot of energy i did it as efficiently as i could and it was kind of a thing where suddenly i wanted to. and didn’t care if i had a good plan or not. so i just… got up, got the scissors and chopped.

I do feel better, after wound care and changing shirts to a fresh one! And my basketball shorts are green too! I love using ribbons to secure my central line to my shirt, and keep it from tugging at the bandage as an extra precaution. being festive feels cute! #NEISvoid

there’s an anime trope of “a really overpowered person who is not valued by his team is kicked out bc they say he sucks, and then the team realizes how awesome he was while the OP protagonist lives his best life with kind people who call out how exceptional he is” and i get a kick out of them lol

Bex needs to pay the minimum to get care in the hospital for their troubling cancer treatment reactions. they haven’t posted in a while but their needs remain!! when they are released they will need a ride home, food, and bills. so please share and donate if you can! we keep them alive!! 💛💫

i’m so frustrated by so many tv shows using DID as a trope as in, “the evil murderer had multiple personalities that’s why we didn’t know who it was” or similar it’s so ableist and awful.

waking up has been really hard and it’s taking me hours to stabilize myself. and it stresses me out when my sleep schedule does not align with when i need to be at work so it’s been a lot lately. yeah. but i look thematically cute again so there’s that haha

i need to do a lot of chores when i get paid i need to buy some things and i need to finish my taxes now that i know my stuff yeah

i feel awful and need food and want stuff from the fridge. when @ommerdraven.unitedsyncretic.org gets here they can help me and bring me food from the kitchen since i am basically bedridden and have limited function to get up or move at all they could have helped cut a box in half for me too!

weather changes hit me so hard they’re painful. my brain swells. and i get all emotional about everything. #NEISvoid

ok enough crying my MCAS is going to wreck me if i don’t stop lol distract and focus on other things now i do feel a bit better. i did a bandage change and wound care, and changed into a white shirt and green basketball shorts and my green ribbon tying my central line for security!

in my previous life plan before i got sick i would have been going to get my baby foster care license some time around now i never got married or found a man to start a family with. so, i decided to become a foster parent. except i got MECFS and a traumatic brain injury instead lol

there’s a lot of anime about outcast kids who find new friend families and turn out ok sometimes they’re formulaic and badly written and sometimes they show me some reflection of my own life that makes me think “the weakest tamer began a journey to pick up trash” is really amazing

i’m having a hard time lately and idk why it feels so hard i miss my friend which is always a sign i’m not doing great i’m going to change into my green basketball shorts and a new white shirt not new new just like clean and it’s white and hope i feel better from that and the holiday colors

someone made a thing similar to an idea i had a 3D printed pill dispenser my idea would let you pre load the whole bottle and dispense one pill at a time tho, like a gum ball machine this is cool tho youtube.com/shorts/5AHz8...

today is kinda hard and my sleep schedule is SO OFF right now which is bad but omg i love my medicine box so much and the other half is self care items and i love that too it’s so nice some organized so nice ☺️ and right now the star sun beams are nice

i’m so frustrated in @fancypants723.bsky.social ‘s situation and i wish i could help but i can’t right now i wish i could give them $20 right now so they can get some new sheets which they dearly need. so i’m sharing, and hoping that you share, and donate if you can so they can get a needs met 💛💫

Help needed 👇 so please share if you can, and donate if able to! 💛💫

hehe tiny success box of meds i think making the origami box for my friends birthday helped me get to this point it unlocked something that allowed me to do this

my tiny box for medicines is so nice and compact and they are altogether n.n part of me is like why didn’t i do this way sooner? and of course the answer is bc i couldn’t lol i was too sick and i am very weak

period products should be free. and also, healthy allergy-free period products should be The Norm, and available for everyone

i have feelings about anime that are not words just feelings in my head that words cannot describe

when i have a bad crash, a large one like last week, it’s like my mind is wiped blank i forget what i was doing or why i have to re figure out what i was doing all over again, and start all over sometimes it’s very interrupting.

i changed to green ribbons to be festive hehe but, trans flag colors were so cute! so here it is if you missed it!

i missed bestie and, sure enough i was overdue for my next pain meds i always miss him when it’s bad. i get better about it, and over time after we separate it takes a worse “bad” for me to miss him, but it still does happen more during bad times. luckily i can fix this one.

i’m sad that i live in a world where this is true, but… i am so relieved that i’m well enough to #AuDHD mask again. i get better care, have more friends, and life at work is easier.

oh and thank you to whatever former roommate left their lighter here because i have used it to seal the ends of my ribbons

i have a box of my gathered up cromolyn and, when i passed by it i saw an open half used box! so i tipped it over and emptied them into the bigger box and now i have a medicine box lol yay! the cromolyn box already had many free floating packs in there it’s ok

i got some green ribbons! for to tie my central line to my shirt with! because st patrick’s day! i need to change my shirt soon and also my patch. my central line cleaning. so u can do that, then change shirts to a green one!! with a heart cut out! hehe yay

one time at work another job we had to do a presentation and i was to make it. my first time making something to present there. so i took it very seriously. and i made this entire castle animated in power point, piece by piece, in a loop haha. it was so cool. it was also way over the top heh

i’ve been feeling the urge to draw again and, lately i’ve been able to sometimes! the birthday box for my friend and some coloring just some colors and it had me thinking how important it is for me, as nearly bedridden, to feel those textures. #NEISvoid #MECFS #POTS #CSFLeak