On Int #MECFSAwarenessDay, we launch: The Hidden Harm of “Trying Harder” focused on PEM. PEM is real and not the same as fatigue. It can deeply impact every part of a person’s life. It is widely misunderstood, dismissed, or reduced to simply being “tired. Access our PEM resources: zurl.co/3eeVl

Not only do kids get infection-associated chronic illnesses, there's a spike in diagnoses of #MECFS ages 10-19. Two vital resources: #MEAction Pediatric Pacing and Management Guide, found here: www.meaction.net/resource/pac... Pediatric Primer for #MECFS: pubmed.ncbi.nlm.nih.gov/28674681/

Always #SorryDay

Until we honour the history that First Nations people carry, we’re not truly sharing this land - we’re just standing on it.

We must recommit to truth telling and treaty for First Nations people since the government dropped the ball. #Indigenousrights #NationalSorryDay #ReconciliationWeek

18-year-old Emily-May Stephenson contracted COVID in August 2021, which led to long COVID, ME/CFS, and POTS. As a result, she struggled with basic tasks like climbing stairs, couldn’t engage in her hobbies, and saw her career end before it began. Source: archive.md/3ztPQ

via @longcovidjustice.org "A governmental meeting on April 15-16 is likely to decide whether the 2025 Covid Novavax vaccine is approved. Please add a public comment in support (scroll to the blue button that says “Comment”)Commenting closes TODAY so get it in! www.regulations.gov/docket/CDC-2...

Australia: "Scourge of coronavirus is still killing the vulnerable." "20 more Australians are dying each day than before the pandemic due to Covid. It sits 5 times higher than the annual road toll, and 10 times higher than seasonal flu deaths." Source: archive.md/TSEHU

"What we are now experiencing, especially in the United States, is a rejection of the belief in abundance and cooperation. It is an uprising against the premise that many groups can gain at once — a cynical, contagious us-or-them attitude, spreading across countries, communities and families"

Growing Up Sick. “A healthy [child] wants a thousand things, a sick [child] only wants one.” - Confucius Source: www.linkedin.com/pulse/growin... Paywall free link: archive.md/L1Izy

#ACTUALNEWS Statement by the members of the European Council on the occasion of International Holocaust Remembrance Day “Never again is NOW.”

'The Holocaust endures as the ultimate historical example of where prejudices, violence and indifference lead' #internationalHolocaustRemembranceDay

Antiracist instructional video from 1943. "Remember that when you hear this kind of talk: somebody's going to get something out of it, and it isn't going to be you." m.youtube.com/watch?v=vGAq...

Australia is the only colonial nation to celebrate it's national day on the anniversary of the invasion by colonisers.

15/15 Solidarity with all those standing against fascism, settler colonial violence, and state repression this Invasion Day. Invasion day rallies below - show up!

New AI-Based Blood Test Detects Long COVID in Children with 93% Accuracy. “This work demonstrates incontrovertibly that Long COVID, also in pediatric age, is an organic immune-mediated disease, for which new funding is needed to study the best therapeutic approaches"

Long COVID Impairs Exercise Capacity and Cognition for Years. "A study of nearly 1,000 people with post-COVID-19 syndrome (PCS) revealed that two-thirds still experienced significant symptoms, including reduced exercise capacity and cognitive performance, two years after infection."

Japan: "Researchers from the Institute of Science Tokyo and Osaka Medical and Pharmaceutical University said that they have developed a peptide that can bind to the spike proteins of SARS-CoV-2 to prevent COVID-19 infections." Source: archive.md/X3yVw

RIP David Lynch Remember this?🤣

Study: link.springer.com/article/10.1...

NIH study finds cases of ME/CFS increase following SARS-CoV-2 "Dr. Vernon and her team determined that new incidence cases of ME/CFS were 15 times higher than pre-pandemic levels" "These findings provide additional evidence that infections, including those caused by SARS-CoV-2, can lead to ME/CFS"

154 New COVID-19 Outbreaks Reported in Aged Care Facilities Last Week. "Since the onset of the pandemic in 2020, there have been 236,889 cumulative cases among residents and 125,628 cases among staff. A total of 7,244 residents have lost their lives to COVID-19." hellocare.com.au/154-new-covi...

Pretty much there already. Fiona Katauskas' cartoon today: How will #Trump put himself on the map?

Getting ill doesn't strengthen you. Getting ill weakens you. Why is that so hard to understand.

Do you get migraines? Are you considered at all overweight? Have asthma? Arthritis? Allergies? Slightly high blood pressure or cholesterol? Well-managed thyroid condition? Psoriasis or eczema? Sleep apnea? Acid reflux? ...Depression? Congratulations, you have an "underlying health condition."

Trump: "I'm the only person who can bring peace in Ukraine" Also Trump: "Let's invade Greenland. And Panama."

Brilliantly researched piece on the 'ocean of grief' I have experienced myself as a parent about the ability of people with ME like my son and with long covid to have children.

For all those wanting and asking me about Novavax availability in Australia: Novavax have yet to submit their application to the TGA for their JN.1 vaccine. They’ve told me they’re working towards an approval and supply for the “Australian 2025 winter.” Six months away. #novavax #Covid

The Parliamentary Friends of #mecfs meeting in Canberra has opened with the Minister for Health and Aged Care. He recognised that a clinical guideline that is more than 20 years old is inadequate, and his government is proud to have supported its update. There are 170 people watching online.

Don't miss this if you're concerned about the need for recognition and support for #MECFS in Australia