Home Sweet Home: Tailoring Spaces for Every Phase of Lewy Body Dementia This webinar explores how to transform your home into a supportive space that caters to the unique needs of those living with Lewy body dementia #LBD. www.youtube.com/watch?v=t6bM...

BSN Brain Donation Process: The Pathology Specialist The pathology specialist (pathologist’s assistant, pathology technician, autopsy technician, or diener) performs the actual brain recovery. Sometimes, a pathologist might perform this work. Learn more: www.brainsupportnetwork.org/brain-donati...

NextAvenue: A Global Study To Find a Cure for Parkinson's Disease The Parkinson’s Progression Markers Initiative (PPMI) is collecting data from thousands of volunteers to learn more about the disease's origins to lead to new treatments. www.nextavenue.org/a-global-stu...

We had heard that the logopenic variant of primary progressive aphasia was mostly related to AD pathology, so we weren't surprised when my dad's brain donation report came back as AD, rather than FTD. My dad's brother died of ALS so perhaps that was just a crazy coincidence. Cathryn S. 10/29/25

Parkinson’s disease can affect a whole social and familial network, whether everyone lives in the same house as the loved one with PD or on another continent. 🌍 This Caregivers Month, check out our list of “virtual errands” you can do from a distance. ⬇️ Explore more at Parkinson.org/CaregiversMonth

BSN Case Study: RICHARD KEMMERER Rich was a smart, kind, funny, and loving man. He was a PhD chemist and a company executive. Rich loved to travel and try new foods. He was an avid golfer and runner. Read more: www.brainsupportnetwork.org/brain-donati... #FTD #frontotemporaldementia

Get REAL Compassion: Building Sustainable Skills of Compassion and Presence Register Today: events.zoom.us/ev/AkzTgvgEi... #lewybodydementia #lbd #caregiving

Thank you, Veterans! We honor you and your service. - Brain Support Network

ALZForum: Taking Steps to Ward Off Tangles Dust off those walking shoes. According to a paper in Nature Medicine on November 3, treading upwards of 7,500 steps per day may slow progression of #Alzheimer’s disease. www.alzforum.org/news/researc...

“More help = more self care.” – Local Support Group Member

Finding out you have Parkinson's can be a lengthy process. 🥼 Explore how a Parkinson's diagnosis is made and what type of diagnostic tools are used: Parkinson.org/understanding-parkinsons/getting-diagnosed

What the Air You Breathe May Be Doing to Your Brain Studies increasingly find links between higher concentrations of certain pollutants and the prevalence of #dementia. www.nytimes.com/2025/11/01/h...

New Evidence Ties Dementia Risk to Brain's Waste Clearance System — Glymphatic system markers predicted #dementia over 5 years www.medpagetoday.com/neurology/de...

This Friday, Nov. 14: AFA Fireside Chat Sundown Syndrome: Signs, Symptoms, and Steps to Help Friday, November 14 | 1 PM ET alzfdn.org/event/sundow... #dementia

Today marks the start of #NationalFamilyCaregiversMonth — a time to honor the incredible strength, compassion and commitment of those caring for loved ones with Alzheimer’s and other dementia. 💜 Share a tribute to a caregiver in your life at alz.org/honor. #ENDALZ

ALZ Talks: Living Well with a New Diagnosis - @alzassociation.bsky.social Receiving a diagnosis of Alzheimer’s or another form of dementia can be overwhelming and life-changing. www.youtube.com/watch?v=1FFe...

BSN's Third Mission: Caregiver Support Group We convene semi-quarterly caregiver support group meetings in Northern California. These meetings are for family #caregivers only and focus on the four Atypical Parkinsonisms (LBD, PSP, MSA, CBD). Learn more: www.brainsupportnetwork.org/about-bsn/mi...

Expert Briefing: Complementary Therapies & Functional Medicine in Parkinson's Care Wednesday, November 12, 10am Speaker: Britt A. Stone, MD, Vanderbilt University Medical Center, Nashville, TN Host: @parkinsondotorg.bsky.social secure.parkinson.org/site/Calenda... #parkinsons

A miracle pill for Parkinson's is 50 years old. Why can't most of the world get it? Ray and I wrote a new Op-Ed on www.pdplan.org Subscribe to our new substack column here: cutt.ly/2r6Rc1AT Link to statnews.com Op-Ed out that dropped this morning: www.statnews.com/2025/11/04/p...

Unaddressed caregiver strain progresses into caregiver burnout, which can include extreme fatigue unrelated to sleep, unusual frustration and anger, feeling “cloudy” or “foggy,” and other physical symptoms that may manifest as a result of emotional stress. (1/2)

I read about Brain Support Network in Emma Heming Willis's new book about caregiving for her husband Bruce Willis. I didn't know that brain donation was possible even though my husband hasn't participated in any research. Thank you for helping us put plans in writing. Sharon L. 10/26/25

Join AFTD’s next Healthcare Professional Webinar on Nov. 18 to learn how individual therapy can help care partners navigate the unique emotional challenges of FTD caregiving. Led by Stephanie M., MSW, RSW, this session offers strategies, insights, & CEC credit. Register now: https://bit.ly/42Tbiwk

Did you know that engaging in regular exercise can help reduce stress while benefiting your brain health? Get moving and learn more healthy habits for your brain at alz.org/healthyhabits. #NationalStressAwarenessDay

Music and Parkinson’s Tuesday, November 11, 4pm Part of the “Conversations with a Doc” quarterly speaker series. Speaker: Alexander Pantelyat, MD, Johns Hopkins, Baltimore, MD Host: Maryland Association for Parkinson Support (MAPS) www.marylandparkinsonsupport.org/events/conve... #parkinsons

National Caregivers Month is celebrated every November to recognize #caregivers and raise awareness about caregiving, education, issues, and support for those who provide care for clients, family, friends, and neighbors. Learn about BSN's Support Groups: www.brainsupportnetwork.org/support-group/

"A pill that costs pennies should not be a luxury. And a life that can be restored should never be left to wither." Read this op-ed co-written by Dr. Michael Okun, National Medical Advisor of the Parkinson's Foundation, and Dr. Ray Dorsey: www.statnews.com/2025/11/04/p...

PSPA Podcast Series Three: The Benefit of Movement In episode three of the PSPA Podcast, we talk to Laura Douglas from Neuro Heroes. Laura highlights what you might expect from any physiotherapy appointments you are referred for. www.pspassociation.org.uk/wp-content/u... #PSP #Parkinsons

November is the month to highlight the importance of early detection and diagnosis of Alzheimer's disease, as well as supporting our caregivers, families, and researchers all working to promote brain health. Read through BSN's collection on Alzheimer's: www.brainsupportnetwork.org?s=Alzheimer%...

Iron is not a 'villain' just rusting the brain, it may be trying to heal it. Check out this 2025 update on brain iron in Parkinson’s, Alzheimer’s and beyond. Their work reframes iron not just as a villain, but also as an essential player in brain health whose imbalance can be damaging.

“I have joined several support groups – one for caregivers-only, one for the particular disorder I’m coping with, and one for dementia caregivers. Each is helping me.” – Local Support Group Member

Parkinson’s Basics: What You Need to Know Wednesday, November 5, 10am Speaker: Kristen Matulis, DNP Host: @parkinsondotorg.bsky.social secure.parkinson.org/site/Calenda...

The Lived Experience of FTD: Anosognosia from @theaftd.bsky.social Anosognosia is the inability to recognize or perceive one’s illness and its limitations. Also referred to as “lack of insight,” it is a hallmark symptom of #FTD, especially behavioral variant. www.theaftd.org/posts/help-a...

Public Policy & The Parkinson’s Plan Wednesday, November 5 1pm ET / 10am PT In a special one-time broadcast, APDA is bringing together an extraordinary panel of #Parkinson’s champions www.apdaparkinson.org/events/publi...

It's very cool that so many of the brain conditions listed in my mother's autopsy report were discovered through brain donation. We have learned a lot but have so much more to learn! Emily S. 10/17/25 #braindonation

The Lewy Body Dementia Association (LBDA) is proud to present 'Home Sweet Home: Tailoring Spaces for Every Phase of Lewy Body Dementia'. www.youtube.com/watch?v=t6bM... #LewyBodyDementia

The Parkinson's Foundation YouTube channel has an expansive library of archived webinars, workout tutorials, and educational materials. 🎥 Explore our videos today: www.youtube.com/ParkinsonDot...

Many people are turning to marijuana for medical purposes and it may help for some. But older adults, should be aware of the risks to their health, #Stanford Medicine experts caution. Read the article in Stanford Medicine News and watch the 90-second video. med.stanford.edu/news/insight...

The same brain chemicals that affect movement in Parkinson's disease can also impact emotions and behavior. 🧠 Stress, isolation, life’s ups and downs & coping with PD also play a role. Learn the causes and treatments of mental health challenges in PD: Parkinson.org/library/fact-sheets/mental-health

CurePSP: Financial Impact of PSP, CBD and MSA Survey We hope to better understand the financial and economic impact that progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) have on individuals and their families. www.surveymonkey.com/r/YXWG6WK

Let’s Keep Moving With APDA: Selecting the Right Walking Aide Staying active and mobile is key to living well with #Parkinson’s disease, and sometimes a walking aide can make all the difference. www.youtube.com/watch?v=UeMk...

America's Caregiving Crisis Is Getting Worse U.S. family #caregivers are doing more than ever before — with less www.nextavenue.org/americas-car...

ALZ Talks: Home Safety to Support Independence Oct 30, 2025 08:00 AM in Pacific Time (US and Canada) Home safety needs can change over time for people living with #Alzheimer's disease or another dementia. alz-org.zoom.us/webinar/regi...

AFTD: Planning for Legal, Financial, and Health Insurance Issues It is important to address legal, financial, and insurance considerations as quickly as possible so that the person diagnosed can make their wishes known and participate in planning. www.theaftd.org/living-with-...

“If you feel like you can’t do this another day on your own, you probably needed help six months ago.” – Local Support Group Member

The Lived Experience of FTD: The Benefits of Pets "One of my favorite activities is throwing the squeaky ball in the yard and laughing while my sweet Tilly girl takes off after it like a speeding train with her brother, Buliwyf taking off after her! It www.theaftd.org/posts/help-a...

"You take the good, and you seize it" ❤️ Michael J Fox opens up about the physical challenges of living with Parkinson's in an exclusive interview with People magazine people.com 👉 Find out more here buff.ly/FL3dgUj #michaeljfox #parkinson #parkinsons #parkinsonsdisease#futureboy

This Saturday is our virtual Parkinson's Disease Patient and Family Symposium! This program will feature experts discussing how to build an exercise routine for PD, research and clinical treatment updates, and autonomic dysfunction & PD. Register for free: Parkinson.org/events/2025/Northwestern2025

Excerpt from a New York Times article: "Mr. Whitney, 76, is a scientific unicorn with potential to provide answers about one of the world’s most devastating diseases. www.nytimes.com/2025/10/07/h... #alzheimers

PSPA Carers Wellbeing Hub A hub of wellbeing information and resources for carers. This UK hub houses information and resources to help support you in your role as a carer or family member of someone living with #PSP or #CBD. www.pspassociation.org.uk/information-...

Vertigo & Dizziness in PD Dizziness and vertigo are commonly reported symptoms in people with #Parkinson’s disease (PD). Dizziness is a term used to describe a range of sensations, such as being on the verge of fainting, feeling woozy, weak or unsteady. www.youtube.com/watch?v=CjyA...