We recently learned about the "Caring in America" podcast that has been producing weekly episodes since 2023. The episodes are for #caregivers and care recipients. Many of the episodes are interviews with experts on care resources. www.buzzsprout.com/2171086/about

Blood P-tau217’s New Frontiers: Primary Care, Test-at-Home With one plasma p-tau217 test being approved just last May by the U.S. Food and Drug Administration and others likely to follow suit this year... www.alzforum.org/news/confere... #alzheimers

Dementia Follows a Different Course in Men — Men had higher mortality than women after #dementia diagnosis www.medpagetoday.com/neurology/de...

One in three Americans may have metabolic syndrome. UK researchers have found an association between metabolic syndrome and Parkinson's. www.medpagetoday.com/neurology/pa...

Why promising dementia treatments succeed in mice but fail in humans Stanford researchers reviewed over 400 therapy evaluations and discovered a crucial mismatch: Mouse studies test disease prevention, while human trials test treatment of existing disease. news.stanford.edu/stories/2025...

A part of #HealthyAging is taking charge of your brain health! Engage in activities like learning a new skill, breaking a sweat, or eating healthier foods, which can have a positive impact on your brain health. Learn more healthy habits for your brain at alz.org/healthyhabits.

As a retired Board certified Neurologist and Transplant Psychiatrist, [brain donation] is invaluable. Not only does this clarify diagnosis but allows banking and sharing of tissue, clinical trials for future treatments, discussion of genetic risk and does not delay funerals. Libby P. 7/18/25

Alzheimer's Genetic Risk May Be Effectively Countered With Diet — Adhering to a Mediterranean diet modulated #dementia-related metabolites in APOE4 carriers www.medpagetoday.com/neurology/al...

Did you know FTD can steal away your words? When conversations stop making sense — it’s not forgetfulness, it could be FTD. 🌎 Learn more: https://bit.ly/4p5c5DT ⬇️ Comment below how FTD first affected your loved one's ability to communicate.

That Dirty Air? It May Worsen Alzheimer’s and Lewy Body Pathology The September 8 JAMA Neurology reports that two decades of autopsies reveal a pattern: People who lived amid higher levels of fine-particle pollution died with a heavier load of plaques and tangles. www.alzforum.org/news/researc...

Cats develop dementia in a similar way to humans with Alzheimer's disease, leading to hopes of a breakthrough in research, according to scientists. www.bbc.com/news/article... #dementia

In honor of FTD Awareness Week 2025, the Penn FTD Center staff has put together a series of videos to share tips and information! Nurse Practitioner Gillian Bradley provides caregiver strategies for symptom management. Click on the link in our bio to watch now! #endFTD

This Sunday was World Alzheimer's Day! This day commemorates a year-long global effort to raise awareness and reduce challenges around #Alzheimer's disease and other dementia. Read more: www.brainsupportnetwork.org/category/alz...

It's World FTD Awareness Week! The theme for 2025 is “What If It's FTD?” which aims to raise awareness about the symptoms and impact of frontotemporal dementia. Learn more about #FTD so we can help raise awareness together: www.brainsupportnetwork.org/category/ftd/

“Learn how to ‘stand in the neutral middle’ between your feelings, needs, and worries on one side and your partner’s reactions and behavior on the other.” – Terri Pease, author #caregiving

RSVP TODAY! Dr. Michael Okun Addressing PD Prevention and PD Treatment Three events in our local area: 9/24 Channing House, Palo Alto 9/25 The Villages, San Jose 9/25 Little House, Menlo Park RSVP: [email protected], phone/text 408-206-6522 parkinsonsblog.stanford.edu/2025/09/dr-m...

Xiaolin (Lindsay) Huang, PhD is exploring the neurochemistry behind dopamine and sleep, generating new knowledge to guide future therapies that treat PD-associated sleep disruption. 🔬 Learn more about Dr. Huang and her research: Parkinson.org/blog/research/meet-xiaolin-huang

Dementia Care Partner Talk Show with Teepa Snow The Fall Paradox: When Safety Measures Increase the Risk of Falling Dementia care educator Teepa Snow explains why attempting to restrict movement for fall prevention often backfires and results in more injuries. www.youtube.com/watch?v=ZfYY...

‘There are times I feel I hate them’: how siblings can clash over end-of-life care for elderly parents New research reveals the anxiety around the care of Australia’s ageing population, and what happens when families love deeply but plan poorly www.theguardian.com/lifeandstyle...

Brain Donation - Eligibility Today, brain banks focused on neurodegenerative diseases are interested in brain donation from persons with diagnoses such as Early Onset Alzheimer’s Disease, #Parkinson’s Disease, LBD, FTD, PSP, MSA, CBD, etc. Learn more: www.brainsupportnetwork.org/brain-donati...

NEXT WEEK! Dr. Michael Okun Addressing PD Prevention and PD Treatment at Three Local Venues Wednesday, 9/24, 3:30-5pm Channing House, Palo Alto Thursday, 9/25, 10-11:30am The Villages, San Jose Thursday, 9/25, 3-4:30pm Little House, Menlo Park parkinsonsblog.stanford.edu/2025/09/dr-m...

Understanding Medicare and disability benefits can be challenging, especially when living with Parkinson’s. This informative session breaks down the essentials of Medicare, including what’s covered (& what’s not), how it supports people with PD, & how to navigate gaps in care: youtu.be/a_6Om1sgxzU

BSN handled my wife's brain donation to Mayo Clinic, who confirmed advanced Alzheimer's. The brain donation was handled well and quickly. Ralph Y. 7/17/25

California Families Will Face Major Care Challenges as Baby Boomers Age timesofsandiego.com/health/2025/...

At the recent 2025 AAIC conference in Toronto, Laura Baker of Wake Forest University and "colleagues unveiled top-line results from U.S. POINTER, a two-year, multisite study that asked whether lifestyle changes can affect cognitive performance in older adults. www.alzforum.org/news/confere...

We recently came across this website that evaluates Medicare-certified skilled nursing facilities. Let us know your experience! www.care.watch

“I try to ask myself, ‘Was it a bad day? Or was it a bad five minutes that I milked all day?’ There are so many ‘bad five minutes’ in caregiving.” – Local Support Group Member

Making Your Home Safe for Someone With Dementia Caregivers are advised to establish routines, keep loved ones engaged and eliminate risks throughout the living spaces www.nextavenue.org/making-your-...

"Public health experts have warned of the perils of falls for older people for decades. In 2023...more than 41,000 Americans over 65 died from falls, an opinion article in JAMA Health Forum pointed out last month. www.nytimes.com/2025/09/07/h...

Caregiver Storyteller: A storytelling podcast about Alzheimer's and dementia caregiving. www.caringkindnyc.org/podcast/

This is an important study out of the University of Pennsylvania, showing that air pollution is tied to #Alzheimer's pathology and cognitive function. The study shows the importance of brain donation, which is one of Brain Support Network's missions. www.medpagetoday.com/neurology/al...

How sleep affects mental health (and vice versa): What the science says Stanford Medicine researchers explain how sleep influences our moods and the ‘bidirectional’ nature of that relationship — plus how we can repair broken slumber to improve our mental health. med.stanford.edu/news/insight...

This is a Washington Post book review of Emma Heming Willis's new book about caregiving and her husband Bruce Willis's journey with frontotemporal dementia. www.washingtonpost.com/books/2025/0...

We were in the process of making arrangements to donate my father's brain to a research facility. That facility decided at the last minute that they could not accept his brain donation because he’s been on morphine. If his brain could help with research, we want to make that work. Jesse G. 7/15/25

Existential debates in the minivan what my dad's dementia has taught me about non-attachment and the "self" courtney.substack.com/p/existentia... #dementia

There's an interesting essay in today's New York Times about the environment and Parkinson's. Excerpt: "Some 90,000 cases of #Parkinson’s are now diagnosed each year in the United States, about one every six minutes on average. www.nytimes.com/2025/09/08/o...

Hard Seasons and Wild Hearts - Brené Brown "My mom died on Christmas morning. Our family has spent a lot of time together over the past few weeks, holding tight to each other and our shared memories, assuring one another that everything is going to be OK... brenebrown.com/articles/202...

“It took me a long time to realize that my husband watching TV all day wasn’t depression, but apathy due to the changes in his brain. It took a village to get him moving again.” – Local Support Group Member

The Toughest Decision I've Ever Made A Personal Journey I sat at a picnic table in a local park with my daughter and a friend whose father had Alzheimer’s Disease and was living in a six-bed care home run by a retired nurse. We were four months into the pandemic. agingwell.news/p/no-good-so...

Looking for a great read? We’ve rounded up some of the best new releases about Parkinson’s – from inspirational memoirs to invaluable advice, it’s all here. We’d also love to hear about any Parkinson books you’ve enjoyed and would recommend! Check out the list here: buff.ly/PNIIBqQ

We understand that care management can be tough. This September Care Management Monday, we are sharing tips on cognitive examinations. 📍Check out our website for more information on Support & Resources

The clue to unlocking Parkinson’s may be all around us. In his NY Times opinion piece that dropped today, Nick Kristof highlights how environmental exposures are shaping the world’s fastest growing neurodegenerative disease. He describes how the book,The Parkinson’s Plan, changed his behavior.

Dr. Michael Okun Addressing PD Prevention and PD Treatment at Three Local Venues 9/24, Channing House, Palo Alto 9/25, The Villages, San Jose 9/25, Silverado Memory Care, Belmont Learn more: parkinsonsblog.stanford.edu/2025/09/dr-michael-okun-addressing-pd-prevention-september-2025/

Tony Luciani was testing out a new camera when his 91-year-old mother, Elia, snuck into the background of his photos. The spontaneous images that resulted sparked a years-long collaboration, Luciani documenting his mom's life and spirit as she lived with dementia. www.youtube.com/watch?v=kBBm...

Brain Donation - FAQs Read through our FAQs to answer the top questions about brain donation, such as: How much does it all cost? Why should you donate a loved one’s brain? Do I have to pre-register? And more. Read the FAQs here: brainsupportnetwork.org/brain-donation/brain-donation-faq/

To some degree, cognitive impairment affects many people with Parkinson's. 🧠 The same brain changes that lead to motor symptoms can also result in slowness in memory and thinking. Learn how to manage cognitive changes in PD: Parkinson.org/understanding-parkinsons/non-movement-symptoms/cognitive

🌎 World FTD Awareness Week 2025 is almost here! From 9/21-9/27, we’ll join the global FTD community in asking: “What if it’s FTD?” This year’s campaign will highlight daily prompts, resources, and other ways for you to get involved and raise awareness. 🔗 Learn more: https://bit.ly/4g6Txij

Our family would like our mother's journey with FTD to help bring awareness to the importance of early diagnosis and brain donation. Without early diagnosis, the family is left wandering in the dark, looking for answers. Tom G. 7/11/25

AI Plumbs the Genome for Ties to AD, Pulls Up New Associations In a haystack of 250,000 genetic variants lurking in the genomes of more than 40,000 people, find the ones that associate with #Alzheimer’s disease either alone or in combination. www.alzforum.org/news/researc...

These scientists found Alzheimer's in their genes. Here's what they did next People who inherit two copies of a gene variant called APOE4 have a 60% chance of developing #Alzheimer's by age 85. www.npr.org/sections/sho...