EULAR PARE is offering up to 10 World Arthritis Day (WAD) bursaries of up to EUR 5,000 each to support national activities that raise awareness of #RMDs. 📅 Open until 31 March 2026 ✅ Open to EULAR member organisations and scientific affiliates Apply now 🔗 https://pulse.ly/k6znsqnhz2

Apply for a travel bursary to support your attendance at the EULAR European Congress of Rheumatology. ✔️ Free EULAR 2026 registration (+On-Demand access) ✔️ 3 nights’ hotel accommodation (3–6 June 2026) ✔️ €350 towards travel & living expenses Apply here: https://pulse.ly/m2cokv4vzp

Sky News: Danish PM Mette Freideriksen’s note in the visitors book when she visited UK today

As we wrap up another year of progress and collaboration in rheumatology, we extend our heartfelt thanks to our incredible community of patients, healthcare professionals, researchers, and partners. 🙌 Here’s to continued progress together in 2026! 🔬 #StrongerTogether

Our incredible @eular.org International PARE Working Group! Uniting the voices of the global patient community with RMDs beyond Europe. #pare2025

Opportunities like this week are critical for bringing together patient organisation CEOs to learn, listen, and grow together! #pare2025 @eular.org

Our wonderful @eular.org PARE Committee and Young PARE Working Group! Proud to know and work with everyone. 💙 #pare2025

Wrapping up and summarising our key reflections on managing multiple priorities as volunteers - be kind to yourself, and clear with boundaries #pare2025

We must not underestimate the importance of stepping back and reflecting, which is why our @eular.org PARE training programme is so critical for our volunteers. So much self-reflection taking place! #pare2025

Time for coffee and networking! LOVE hearing so many ideas and experiences being shared. #pare2025

A productive morning for our new volunteers in their ‘communicating impactful messages’ training! #pare2025

We see the importance of investing in all members of our @eular.org PARE community, which is why our annual training programme is vital so no volunteer is left behind! #pare2025

Stay tuned across platforms this week for updates from @eular.org #pare2025!

PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement

The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!

Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology

You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴 Collect stamps on your Brain Health Bingo card for a chance to win a prize! #BrainHealthMission #ean2025 #Neurology @EANeurology

Excited to be in Helsinki for the next few days at @ean.org #ean2025! Please say hello if you’re attending!

🙌Thank you for attending the #EULAR2025 Congress! We hope you had a memorable experience! 📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k ✈️We Look forward to seeing you at #EULAR2026 in London! #EULAR #EULAR2025 #Rheumatology

🦋Impossible to summarise all #EULAR2025 has meant for us. While we prepare more content to share scientific highlights, here’s a short video with some special, human moments. From this energy & passion come projects like #LupusGPT  🙏 Thanks to all who make all this possible

Best picture of the entire Congress 🤣 #eular2025

💥 The 3 “Move Together” sessions were a great success at #EULAR2025! Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs. A huge thank you to all who joined us! posted by thomasdavergne.bsky.social

#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social

😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide. A great example of how co-creation with patients leads to🔝innovation! #EULAR2025

Very happy to see again #PARE highlights in the closing session of #EULAR2025. Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵

Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025

"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org

Some nice recommendations and useful toolkit to help young people with RMDs to navigate the workplace! Find out more here: arthritispatient.ca/en/arthritis... #eular2025

Natasha Trehan @capa-aca.bsky.social highlights the worries young people have about getting into employment with an RMD #eular2025

Young people with RMDs find it difficult to access school accommodations - they want the education system to make it easier for them to get the support they need - something @raiiseuk.bsky.social takes seriously #eular2025

Having an RMD can disrupt financial planning, increase debt risk, and cause uncertainty about retirement #eular2025

The cost of living with an RMD is often hidden beneath the surface #eular2025

Important research from Arthritis Ireland - arthritis costs an average of €3500 per person per year, when thinking about all the additional needs due to an RMD diagnosis #eular2025

We need to be thinking of early adopters, early/late majority, and laggards when it comes to digital health technology, AND those who are off bounds and require alternative methods of engagement #eular2025

We have a great opportunity here to influence organisational health literacy, leveraging the expertise of patient organisations to inform and guide healthcare systems to make healthcare more accessible #eular2025

The health literacy dilemma - the disconnect between risk factors and development of disease is evident #eular2025

We really need to get better at proactive strategies to prevent disease / worsening symptoms within this ‘window of opportunity’ #eular2025

Health literacy is a shared responsibility - small steps to improving accessibility can have an enormous impact on health and wellbeing outcomes #eular2025

Health literacy needs to be improved on both an individual and organisational level - the latter including plain language materials that meet different learning styles and preferences #eular2025

Sofie Bech Vestergaard reminding clinicians that the health system is often too complex for patients to navigate - it's a system problem, not the fault of patients or families #EULAR2025 and all healthcare professionals have a role in supporting patients through the process... and making it easier.

Tailored and graded physically activity may help many people with an RMD but differential diagnosis (such as being guided by post-exertional malaise) may be important to define about the type and intensity of physical activity #eular2025

The message is clear - start asking patients about their fatigue and work together to try and improve it #eular2025

Despite the @eular.org recommendations saying fatigue should be routinely assessed, the reality tells a different story… what’s the implementation gap? #eular2025

We need to get better at focusing on fatigue in RMDs and helping to address this particularly burdensome symptom #eular2025

Some personal coping strategies for managing fatigue from Souzi Makri, incoming @eular.org VP PARE #eular2025

Fatigue has a considerable impact on the daily lives of people living with RMDs and their families #eular2025

We need to be thinking about sleep in RMDs, and what we can do to manage sleep disturbances while also improving sleep hygiene #eular2025

Sleep has so many roles in optimal brain function, from memory consolidation to creativity and longevity #eular2025

Chronic pain has an influence on the brain proportional to the years of pain duration #eular2025