I'm suffering, with rare, fatal diseases, in a #NursingHome. My life depends on #Medicaid, #SocialSecurity, et. al. I spent excruciating energy, incl w @meactnet.bsky.social💙, begging #Senators to oppose the budget. My life didn't matter to these, 10 Dem Senators either. @everylifeorg.bsky.social

#PresidentialAddress #PresidentialAddress2025 ⚠️⚠️⚠️ #Medicaid #HHS #Disability #DisabilityRights #NursingHome #NursingHomes #SaveMedicaid #RareDisease @dorismatsui.bsky.social @amyklobuchar.com @adamschiff.com @alexpadilla4ca.bsky.social @msnbc.com @maddow.msnbc.com @allinwithchris.bsky.social

⚠️SAVE MEDICAID & HHS: SAVE MY LIFE.⚠️ I'm bedridden, with comorbid, rare, fatal diseases, in a #NursingHome, paid by #Medicaid (as is true of 2/3 of all US nursing-home patients). If Medicaid is cut, I will be homeless & die. Contact info. for key Senators is in my posted letter. #SaveMedicaid

As International #WomensDay approaches, a reminder for the US: It wasn't #witches who were burned, drowned, & tortured; it was #women. & we are repeating history. There are times in history to gather #magic for common cause. #witch #witchsky #WitchesofBluesky #Salem #SalemWitchTrials #RoeVWade

After the #NIH- #FDA #RareDiseaseDay event ☠️, & slashing of #HHS depts, I ask the #RareDiseaseCaucus to address the #RareDisease community. Letters asking Sen Wicker & Rep Bilirakis to resign their Caucus chairs are in my feed. @amyklobuchar.com @dorismatsui.bsky.social @everylifeorg.bsky.social

28 FEB, 2025 #RareDiseaseDay & Economic Blackout Day Please donate the boycott $$$ you save to the medical-support fundraisers of rare-disease patients. About: instagram.com/p/DGkuU5IxuvA/?igsh=MzRlODBiNWFlZA==

28 FEB is #RareDiseaseDay. There are 30,000,000 rare-disease patients in the US. NIH & FDA cuts stopped our clinical trials & treatments. Now, Medicaid cuts will kill us. When boycotting on 2/28, please give the $ you save to the fundraisers of rare-disease patients. www.yahoo.com/news/no-amaz...

URGENT: SAVE MEDICAID TO SAVE MY LIFE: I live in a skilled nursing home, with comorbid, rare, fatal diseases, on Medicaid. If the House Rep budget passes, cutting #Medicaid, I will be homeless & dead. Please call NOW, & ask Republican Reps to read my letter & SAVE MY LIFE.

⚠️URGENT: MEDICAID,⚠️ DISABILITY, & NURSING HOMES: I am severely disabled, with rare, fatal diseases, in a skilled nursing home. ⚠️If Medicaid is cut, I will be immediately HOMELESS & DEAD.⚠️ PLEASE SAVE MEDICAID, & SAVE MY LIFE: Call & write to House Representatives before votes on 2/24-2/25.

⚠️URGENT: MEDICAID,⚠️ DISABILITY, & NURSING HOMES: I am severely disabled, with rare, fatal diseases, in a skilled nursing home. ⚠️If Medicaid is cut, I will be immediately HOMELESS & DEAD.⚠️ PLEASE SAVE MEDICAID, & SAVE MY LIFE: Call & write to your House Representative before votes on 2/24-2/25.

#RareDiseaseDay 28 FEB, 2025, ...after confirmation of #RFK to #HHS,... 🧵1/3 @nordrare.bsky.social @everylifeorg.bsky.social @amyklobuchar.com @adamschiff.com @alexpadilla4ca.bsky.social @joyannreid.bsky.social @aoc.bsky.social @alexwags.bsky.social @maddow.msnbc.com @lawrenceodonnell.msnbc.com

Just a point of order: @maddow.msnbc.com tonight: "In all likelihood, you don't have a family crest." My mother's family name was #Davies. 😕🤦🏼‍♀️ #FamilyCrest On a more serious note: I'll try to post my letter to Senators to vote NO on #RFK tonight. I'm #disabled, in a #NursingHome, on #Medicaid.

Please don't forget the #disabled as a historic target & casualty.

How many of these do we have?

Can you please #help me pay for #surgery, #medical care, & to return #home?: 💔GoFundMe.com/HOPE-for-a-RareDisease-Patient #NursingHome #RareDisease #Fundraiser #Donate #Share #DonateorShare #HelpingOthers #Neurosurgery #OrthopedicSurgery #EhlersDanlosSyndrome #MadelungsDeformity #AddisonsDisease

My contention since the 110th Congress: All persons with a penis living or traveling in the US must be required to have a vasectomy. Temporary reversal may be applied for and adjudicated by panels of qualified persons with a uterus. Until then, I believe that Lysistrata had it right all along.

I love that so many are advocating for libraries on my TL. If you don't know already, you can connect your library card to Libby, which allows you to read books on the Kindle store for FREE. #Booksky

I’m guessing I’m in some sort of starter pack about COVID, Long COVID and or masking & mitigations. I have gained over a 1k followers and and somewhat overwhelmed. Thank you to whoever included me. I’ll try to live up to your recommendation. Masks Keep Us Safe. xo