A buddy once asked me to help him shave a mullet before we drove down to Iowa for a Gopher-Hawkeyes game. Never having done this before, I accidentally shaved off the majority of one sideburn. We did have the wherewithal to make them match, much to my friend's regret.

Here’s your action item for today. Click this link and it will populate a pre-addressed, pre-written email to FOX, Shopify, the NFL and the FCC, demanding accountability for Kanye West’s Super Bowl commercial. Tinyurl.com/kanyesuperbowlad

During President Donald Trump’s first term, the Education Department held DEI training. Now, in the opening days of Trump’s second term, dozens of employees who attended that diversity program have been placed on leave because of it.

In 2 weeks, I head to DC for Rare Disease Week. I'll spent one day on Capitol Hill before heading to the NIH campus where I'm set to speak on Rare Disease Day. I feel ill-prepared. Like, I don't even know where to begin. And by then, it could all be worse. #rarediseasemonth

for pity’s sake, I am BEGGING university leaders to stop framing this issue in terms of what this will cost the university. people dont care! EXPLAIN WHAT THIS WILL COST THE PUBLIC: closed hospitals and clinics, skipped treatments, loss of access to experimental drugs, unemployment, recession

not paying indirect costs for research is like only paying the players in the Super Bowl. can't have a Super Bowl without coaches, referees, security, janitors, announcers, stadium staff, and a stadium - and you can't have research without supporting people and facilities

It’s Rare Disease Month! Let me tell you about mine! It’s called Dermatomyositis associated with Antisynthetase Syndrome and the NIH estimates that less than 50,000 people in the US have it. I always wanted to be special. 🤣 #raredisease

Shared some great insights on how you can ACTUALLY be impactful rn that came across my desk today. On my Substack (free, duh) because it’s too long for here. Thanks for being the resistance. Really. open.substack.com/pub/leslielo...

I was invited by the FDA and the NIH to speak at Rare Disease Day next month. If that doesn’t happen, I’m still going to give my speech. I will stream it and I expect you all to come.

I heard a rumor this place is like old-school Twitter. Take me back to the Good Old Days, bluesky. 💙 #newhere 👋👋👋