I put together a short video on body confidence and chronic illness — not polished reflections, just some early thoughts. I’d really love to hear how others experience and think about these issues if anyone feels up to sharing. #chronicillness #bodyconfidence #mecfs

#chronicillness #wheelchairusers #mecfs #ambulatorywheelchairuser #energylimitingchronicillness #disability

“Just out here channeling my inner island vibes.” 🏝️🌴🐶 #chihuahua

"By spending your life, you are buying it...At the end of our lives, the quality of our #memories comes from the meaning we have created out of all the little #moments over the years.": buff.ly/XcMMJDH #QualityOfLife #MondayBlogs #LifeLesson

Has anyone experienced any benefits from using a red light therapy device? I recently purchased a unit (that can be used whilst lying down with googles) and have been using it intermittently. I think it has been helping with my facial pain and stiffness. #chronicillness #redlighttherapy #mecfs

Bringing the beach party to the living room. 🐕🌴🌞

Making the most of the summer sunshine. ☀️

can I interest you in the ambience of a woodland pond in summer

“Ah, my cooling blanket — proof that burrito life chose me.”

All dressed up for a day out… but I’m actually the guest of honour at a blanket burrito convention. #chihuahua #chronicillness #mecfs

“Being hopeful is really just an understanding that you can do a little something good today, and a little something good tomorrow, and the day after, and that, together, these things will accumulate relentlessly. This is do-it-yourself hope” (George). www.theguardian.com/lifeandstyle...

“Those of us with #chronicpain have something unique to offer, not in spite of our pain, but because of it. It's okay to grieve the losses of chronic illness. It's okay to be broken; everyone is in some way. Just because we're unfixable doesn't mean we're worthless.” — Allison Alexander

I live in a universe where coffee pretends to help, and naps are holy rituals. #chronicillnesslife #mecfs #disability

Does anyone else with a chronic illness feel that their life experiences are largely shaped by challenges, making it difficult to socialise with non-disabled people? Even when I have the energy for it, maintaining the positivity often expected in these interactions can feel alienating. #spoonie

As Rosmarie Garland-Thomson points out, one of the greatest challenges in encounters between disabled and non-disabled people is the assumption that “disability cancels out other qualities, reducing the complex person to a single attribute” (Garland-Thomson, Extraordinary Bodies 12). #disability

This hedgehog didn’t choose the onesie life—the onesie life chose them. [Photographer unknown].

It’s tempting to believe we can be exceptions to structural discrimination. In social interactions, I often hope—perhaps vaguely—that others will recognise that disability shapes my experiences and identity without defining my entire life. #chronicillness #disability

I think vulnerability is powerful in its own way — it connects us, grounds us, reminds us we’re human. In many ways, recognition of our own vulnerabilities requires a certain strength. But, as disabled people, there are days when life doesn’t let us rest in that softness. #disability #chronicillness

Hello and welcome, I’ve lived with ME/CFS for many years and am a wheelchair user. I created this page to share my experiences with chronic illness and, most importantly, to connect with people who have shared experiences. #chronicillness #MECFS #spoonie #chronicillnesscommunity #wheelchairuser