I am looking for women of color, particularly BIPOC, to interview about early Alzheimer’s diagnosis — That is, diagnosis before symptoms progressed significantly and how it has changed how you live your life. 1/3

The Supreme Court just ruled to protect mail-in ballots. This is a big win for voters with disabilities, who often rely on vote by mail because of the multitude of barriers that can occur when voting in person. www.aapd.com/american-ass...

I get the impulse for autistic people to want to respond by saying that they DID go to college or play baseball or date and work. But that still plays into ableist narratives. Even if an #ActuallyAutistic person does none of these, they still have worth.

Truly awful. Our SPED students are already at so many disadvantages. Putting the leadership of their care in the hands of these eugenicist ghouls is a nightmare.

Moving special education to the Department of Health and Human Services will not help students with disabilities. It will not help families. It will not help teachers. It will send us back, 50 years if not more. This will re-segregate students with disabilities. www.aapd.com/ed-transfer-...

Medicaid work requirements were always going to be cruel. Then, the White House intervened (likely) and made the definition of who can be exempt based on disabilities/health much stricter. This is going to kill people. New from me at @motherjones.com. www.motherjones.com/politics/202...

“There are going to be so many disabled people and chronically ill people who lose access to their health care and other kinds of supports that Medicaid provides,” said @mariatown.bsky.social, the President and CEO of @aapd.com.

“Despite Congress’ promises that people with disabilities will be exempt from these requirements, not all people with disabilities are exempt. Disabled people will lose access to Medicaid” - @mariatown.bsky.social @aapd.com #ProtectMedicaid www.disabilityscoop.com/2026/06/03/m...

By tightening an exception for people with serious illnesses, more of them may lose coverage. www.nytimes.com/2026/06/01/u...

CMS will publish interim final rule on Medicaid work and community engagement requirements. This is a part of the changes and cuts ushered into Medicaid via HR 1 last year. There will be a comment period through July 31st. Work requirements cut people off of healthcare. www.aapd.com/work-require...

“You shouldn’t need to be a high-visibility person to get a response when an airline breaks your mobility device or something you rely on to go about your day.” @mariatown.bsky.social , on constant, blithely neglectful wheelchair+ damage by airline personnel: www.usatoday.com/story/travel...

Advocacy works! The Attorney General of Indiana has dropped out of the lawsuit against the Section 504 disability nondiscrimination healthcare regulations. Great news to share on 504 day. The force is with us.

Starting May 1, many people covered by Medicaid in Nebraska have to prove they are working. It's a requirement most states will have to implement under President Trump's budget law, beginning in January. n.pr/48BKnrP

I seem to have a bunch of new followers—hello, all! I hope that you’ll check out a report that @ksavin.bsky.social, @calliefreitag.bsky.social, and I wrote about how it’s gotten even harder to claim disability benefits under Trump 2.0 and DOGE. The thread below sums up key points. Thx for reading!

In this new report, @ksavin.bsky.social, and @calliefreitag.bsky.social and I explain how Trump 2.0 and DOGE built up new barriers to the already-difficult process of getting disability benefits. Let's talk about what we found, and what we recommend to address the issues. 🧵

You can condemn Trump without making the incorrect insinuation that evilness is associated with aging/mental illness.

Hundreds of immigrants have been arrested at immigration courthouses. It is unclear whether the federal government's admission could lead to some of those arrests being overturned. n.pr/4t3NCzU

"Many disabled people in media, myself included, owe a debt of thanks to Alice, whether she helped us personally or indirectly by fundamentally reshaping the culture around us." Very much agree with these words by @sesmith.lol on Alice Wong. disabilityvisibilityproject.com/celebration-...

In case anyone is wondering, many US Presidents likely had dyslexia and other learning disabilities. I’m not saying that having these conditions makes someone a better or worse leader, but it certainly does not preclude someone from seeking and ultimately being successful in the office. #Disability

If you purchase a countertop with little or no silica, you can save a life. Hundreds of young men are developing silicosis, exposed as the cut, grind and polish artificial stone slabs to make your kitchen countertops. @celinegounder.com explains the way to prevent it - buy the safer product.

it is snowing in DC yesterday was 80

🕯️Today is Disability Day of Mourning, when our community remembers disabled people lost to filicide. Join us tonight 6pm ET for ASAN’s virtual vigil: youtu.be/HeF3LrHTuBM #DDoM2026

Very few people will get me to leave my warm, comfy bed and go outside in this icy snow; @mariatown.bsky.social & @lachimusic.bsky.social did! Thrilled I got to spend the evening listening to their conversation on all things disability, including Lachi's new book "I identify as blind."

I have not been able to leave my apartment since Friday, January 23rd. While the sidewalk next to me has been cleared, the curb cut is an extreme winter sports event course, as are the three other curb cuts at the intersection.

Homeless women face unique health challenges with few dedicated resources. And as the number of women experiencing homelessness in Los Angeles continues to grow, Dr. Mary Marfisee hopes to bring them lifesaving resources.

This was my big concern with RFK Jr.'s fearmongering about autism: That it would lead to the rationalization of draconian quack "treatments" for autism. arstechnica.com/health/2026/...

You've probably been following the story about fraud in MN. I wrote about the people who provide services who are being driven into bankruptcy, thanks to the Walz' administration decision to hire Optum AI to screen all payments. It's a disaster.

... that’s Step Three in the autocrat's playbook. In our democracy, actions of this magnitude and decisions about what happens next, must go through Congress - not be dictated by a president who admires authoritarians and rules like one.

Foreign policy is not the personal domain of a president. Congress has a constitutional role to serve as the voice of the people and a restraint on power. One of the oldest moves in the authoritarian playbook is to sideline the legislature and strip away checks and balances...

Nicolás Maduro is a brutal dictator who has caused immense suffering. However, the way to fight authoritarianism abroad is not to embrace it at home.

“I’m honored to be your ancestor and believe that disabled oracles like us will light the way to the future. Don’t let the bastards grind you down. I love you all.”

For my hero of 2025 at @motherjones.com, I wrote about the late great disabled disability justice oracle Alice Wong, including her work with Disability Visibility Project, Crips for eSims for Gaza, and #CripTheVote. www.motherjones.com/politics/202...

Some work I’m proud of from this year (all of the links are gift links)… I joined street-medicine teams in Phoenix in July as they tried to help unhoused people cope with increasingly extreme heat:

Bob Kafka was an organizer with ADAPT (American Disabled for Attendant Programs Today), a group which advocates for policy change to support people with disabilities. n.pr/4pWshr5

The caregiving industry could not survive without immigrants. But a third of the staff at one Miami nursing home lost their jobs after the Trump administration ended the programs letting them work legally. www.notus.org/immigration/...

Also worth noting that it doesn't seem to account for family caregivers, e.g. a parent who may have left the workforce, and is not at school, in order to care for another family member!

Critiquing social programs and thinking about how they can do better is good, actually. NM is clearly moving toward making this program more inclusive and easier to access over time. I hope that those involved in implementation are thinking about how to incorporate disablity into the future.

I want to be clear that I'm not saying this program is bad, or that the state is acting in bad faith, or that other states shouldn't take this example and run with it. I AM saying that anyone advocating for universal childcare needs to be thinking about how it connects with disablity.

The other is the work/school requirements. This kind of means testing in general isn't great. NM waives in some settings (such as grandparents or housing unstable families), but there does not appear to be a carveout for disabled parents, who I guess don't exist or matter.

One is the fact that some disabled children need medical daycare, which is a really scarce resource. Some childcare facilities will also exclude disabled children even when they don't need specialized care because they're worried about liablity. I'm not seeing much discussion on addressing this!

Not to be That Person but watching the discourse around New Mexico's universal free childcare program, which, to be clear, is a really good start, I don't see a lot of engagement with two pretty significant disablity issues...

BREAKING: Federal judge rules that the Trump administration likely illegally suspended SNAP benefits, ruling that at least reduced distribution is required to go forward under law using the $6 billion reserve fund. Judge gives the Trump admin until Monday to respond as to whether it will act.

“Given how many people with disabilities rely on benefits from government programs, this shutdown is especially harmful for the disability community” - @mariatown.bsky.social, @aapd.com #DisabilityJustice www.disabilityscoop.com/2025/10/28/g...

Judge Indira Talwani acknowledged this will leave millions of people without assistance starting Saturday. Two dozen Democratic-led states had sued over the administration's decision to suspend SNAP. n.pr/3JxdjHW

BREAKING: Judges order the federal government to use contingency funds for SNAP food aid payments during the shutdown.

2026 Applications for the Paul G. Hearne Emerging Leaders Award close TOMORROW at 5 PM ET! Recipients receive $25,000 for leadership development and to advance a bold idea for people with disabilities. Go to our website to apply and learn more: www.aapd.com/paul-g-hearn...

This week on The State of Belief: Rev. @raushenbush.bsky.social is joined by @thecelinafactor.bsky.social, CEO of @lwvus.bsky.social!

The programs will continue to receive grant funding, but only for one year. “It is still a disruption to families,’’ Lisa McConachie of the Oregon DeafBlind Project said. “It creates this mistrust, that you are gone and back and gone and back.”

This seems troubling. It’s not a situation like when the physician payment formula was in flux in 2015 & all Medicare physician claims were temporarily held (or paid at lower rates and then later reprocessed). Most payments should flow normally with only certain telemedicine/other claims held.