Shelley
@shelley55.bsky.social
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📥 520
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retired teacher, cat and dog lover, patient advocate 💙🐈⬛, RA & fibro
reposted by
Shelley
CreakyJoints®
about 1 month ago
GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss. Awareness saves sight.
#GCAAwarenessDay
#ChronicIllnessCommunity
#InvisibleIllness
#AutoimmuneWarrior
#CreakyJoints
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I’m doing a trial of YouTube TV and there is Moments of Zen channel. ☮️✌️😌
about 2 months ago
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If you have psoriatic arthritis, please complete this survey from
@creakyjoints.bsky.social
#psa
#psoriaticarthritis
add a skeleton here at some point
about 2 months ago
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I sat down to read for a moment. Now I have an oversized lapdog and my cat negotiating territory.
#Caturday
4 months ago
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POV: Your dogs swore they were gardening, but came back lookin’ like they just did the Hot Cheeto Challenge.
#dogsofbluesky
4 months ago
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reposted by
Shelley
CreakyJoints®
5 months ago
Today is Chronic Disease Day — a reminder that 1 in 3 adults worldwide lives with a chronic illness. For many, these conditions are invisible, lifelong, and misunderstood. They deserve care that listens, systems that work, and a world that doesn’t ask them to prove their pain. We see you.
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Such a pleasure to talk with Dr. Ted Mikuls about the Rheumatoid Factor (RF) test
add a skeleton here at some point
5 months ago
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Let the new neighbors know who’s in charge. Meow
#catsofbluesky
5 months ago
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Happy 2nd birthday to Miss Elaine Benes!
#catsofbluesky
#cats
5 months ago
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reposted by
Shelley
CreakyJoints®
6 months ago
LGBTQ+ patients living with chronic illness deserve to see themselves represented—in advocacy, in media, and in medicine. 🌈 Read this powerful reflection on identity, health, and why representation matters: 🔗
ghlf.org/chronic-illn...
#PrideMonth
#LGBTQHealth
#ChronicIllness
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Why LGBTQ+ Representation Matters to Me: Celebrating Diversity and Inclusion in Health Care
In honor of LGBTQ+ Pride Month, members of our chronic illness community share why representation of the LGBTQ+ community is crucial for achieving health equity.
https://ghlf.org/chronic-illness/why-lgbtq-representation-matters-to-me/
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Happy Caturday Elaine’s favorite toy
#Caturday
#Catsofbluesky
6 months ago
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reposted by
Shelley
CreakyJoints®
7 months ago
🧑⚕️ We're recruiting patients for a paid advisory board! Do you still experience gout flares? Your voice can help improve care for others. Apply here 👉
www.research.net/r/GOUTADVISOR
#PatientVoice
#Gout
#ChronicIllness
#GoutAwareness
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reposted by
Shelley
CreakyJoints®
7 months ago
Clinical trials could offer new hope for lupus patients — but we know they can feel overwhelming. That’s why we created the Lupus Help Center — your go-to resource for learning about clinical studies, hearing real patient stories, and finding support. Explore more:
www.lupushelpcenter.org
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Lupus Help Center
Ready to explore clinical trials, ask questions, or hear patient stories? The Lupus Help Center has the support and info you need.
https://www.lupushelpcenter.org
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reposted by
Shelley
CreakyJoints®
8 months ago
Today is IgG4-Related Disease Awareness Day 🧬 This rare autoimmune condition can affect multiple organs & is often misdiagnosed as IBS, cancer, pancreatitis & more. Diagnosis is often delayed. Awareness can change that. 💙
#IgG4RD
#RareDisease
#CreakyJoints
#GHLF
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reposted by
Shelley
CreakyJoints®
8 months ago
No one should feel alone in their health journey, and every patient deserves care that is both effective and affirming. Michael’s journey with PsO and PsA as an LGBTQ+ person here:
creakyjoints.org/psoriasis/li...
#lgbtqhealth
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Living with Psoriasis and Psoriatic Arthritis as an LGBTQ+ Person: Michael’s Story
The Right Doctor Can Make All the Difference in Your Psoriasis and PsA Journey
https://creakyjoints.org/psoriasis/living-with-psoriasis-and-psoriatic-arthritis-as-an-lgbtq-person-michaels-story/
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reposted by
Shelley
T.G.I.S. Thank God it’s Severance day
#Severance
10 months ago
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I hope Elaine is making me cookies.
8 months ago
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reposted by
Shelley
CreakyJoints®
9 months ago
Busting
#PsoriaticArthritis
and
#Psoriasis
Myths with Jody Quinn and our host
@shelley55.bsky.social
Whether you're living with PsA or supporting someone who is, this episode offers valuable insights to help you navigate the condition with confidence. Tune in now:
creakyjoints.org/psoriatic-ar...
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The Psoriatic Arthritis Club
Through personal chats with psoriatic arthritis experts and PsA patients, the Psoriatic Arthritis Club podcast explores the ups & downs of navigating PsA.
https://creakyjoints.org/psoriatic-arthritis-club/#s3e02
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It’s here—
#Caturday
9 months ago
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reposted by
Shelley
Dutchy Patrick
9 months ago
They're not ashamed, they also stole money from a children's cancer charity. They are barbarians, downright evil barbarians....
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reposted by
Shelley
Peter Morley ♿️
10 months ago
Thank goodness for the American Medical Association. Here is their YouTube page. Please share far and wide. Right now bird flu is spreading throughout our country and most people have no clue. Please stay updated and bookmark this page for your health and well-being.
www.youtube.com/@americanmed...
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T.G.I.S. Thank God it’s Severance day
#Severance
10 months ago
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Hoping this round of Rituxan (Truxima—biosimilar) gets me moving faster and with less pain.
#rheumatoidarthritis
10 months ago
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Question for physicians out there— How often do you update your education about the medical field after receiving your medical license? Do you choose what you want to learn more about or is a particular program that you have to go through for updates in medicines?
10 months ago
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Is this the new kitchen cabinet trend? Child locks won’t stop Elaine from trying to break into cabinets all through the night. I thought tape would keep them shut but she’s a master burglar
10 months ago
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Elaine wants the gecko on the ceiling. Her mom here is about to have a heart attack watching her scale the wall. Happy Caturday.
11 months ago
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Took my dog to the groomer and she sent back these pictures
12 months ago
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We bought a new chair. I haven’t sat in it yet, but Elaine seems really happy.
#caturday
12 months ago
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reposted by
Shelley
Papa Woof und Krampus und Bleaken
12 months ago
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This tree needs something. There—fixed it.
12 months ago
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I’m thankful for
@bsky.app
and all of you on here.
12 months ago
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reposted by
Shelley
Dr. Glaucomflecken
12 months ago
Got a fire in the fireplace, turkey in the oven, parade on tv, I deleted twitter, family gathered around, cinnamon rolls for breakfast…
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I promise they are playing. Truly playing. They are best buds.
12 months ago
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Excellent advice!
add a skeleton here at some point
12 months ago
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Don’t let that adorable, innocent-looking cat face fool you. The moment I look away, Elaine takes the trash out of the garbage can and runs away with it.
about 1 year ago
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reposted by
Shelley
Campfire Creations🔥
about 1 year ago
🌲🌲🌲Peace🌲🌲🌲
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This year for
#ACR24
I authored both a patient perspective poster about using a systematic search process to research my rheumatoid arthritis and comorbidities AND a clinical poster about PMR.
creakyjoints.org/acr-2024/sys...
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How Systematic Research Helped One Patient Manage RA
How a systematic literature review transformed one patient's approach to understanding and managing rheumatoid arthritis and gut health.
https://creakyjoints.org/acr-2024/systematic-literature-review-my-ra/
about 1 year ago
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Elaine thinks she’s a dog—I’m sure of it.
about 1 year ago
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Trying to stay hopeful
about 1 year ago
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Meet Elaine. She’s a bad dancer but she’s hilarious.
about 1 year ago
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