#RaceToBeatPOTS 👩🏼‍🦽‍➡️🎗️🩵 I will attempt to self-propel the 1 mile course this weekend 👩🏼‍🦽‍➡️ Today I went 1.15 miles in 40 minutes 🌟 I’m awaiting my custom manual chair, so I’ll still be using my standard for the @dysautonomia.bsky.social event! #POTS #Disabled #Disability #WheelchairUser #Dysautonomia

!EXTRA, EXTRA! #BookGiveaway Do you read books? Do you like queer romance? Do you love when the A in #LGBTQIA+ is represented and relatable? Do you like dissociating from The Horrors? Enter @lucymason217.bsky.social’s giveaway!! #BookSky #AmReading #Queer #Sapphic #Fantasy #Romance #Romantasy

Month so far (as of EOD on the 24th): 🤕 7/10 average daily pain 🥱 8/10 average daily fatigue 👩🏻‍⚕️ 16 dr appts 📚 30 books completed ☎️ 38 medical phone calls I am so tired 😭 #Disabled #Disability #EhlersDanlosSyndrome #EDS #MECFS #ChronicIllness #AmReading #AmReadingSFF #SFF #SciFi #Fantasy #BookSky

Unfriendly reminder that you can deeply, deeply love someone WITHOUT wanting to kiss them, sleep with them, or date them. They can be your whole world without being your romantic or sexual partner. Queerplatonic relationships are so important and under-represented.

Don’t tell somebody to “just give it time” bc they “just haven’t met the right person, yet”. Love isn’t inherently sexual or romantic. Platonic relationships are so, so important. People can live great lives with only platonic relationships in their life. #LoveIsLove #QueerSky #AroAce #LGBTQIA+

We can do hard things!! Do it scared!! Speak even if your voice shakes. You deserve to take up space 💫

Anybody wanna guess how many of the books I have checked out are about space (and also how many are space-adjacent)?? #AmReading #BookSky #SupportYourLocalLibrary #Libby #Audiobooks #TheFutureIsAccessible #VisuallyImpaired #LowVision #InclusionMatters #Disabled #Disability #ChronicIllness #Spoonie

I *finally* read The Keeper of Lonely Spirits by @elizmanderson.com! I haven’t read many cozy fantasies, but this book was a delight! Fantastic work by the author and the narrator! Can’t believe I left it TBR for so long! #ReaderSky #AmReading #AmReadingFantasy #Fantasy #CozyFantasy #BookSky

Wore my “sometimes I stroll, sometimes I roll” shirt to my ortho appt and somebody in the parking garage said they liked my shirt 🥺 #AmbulatoryWheelchairUser #Disability #Disabled #Wheelchair #MobilityAid #AmbulatoryWheelchairUsersExist #ChronicIllness #Spoonie #FND #EDS #HEDS #NEISVoid

Sending good vibes, low pain, and extra spoons to those who need them ❤️‍🩹 🪄 ✨ 💖 ✨ 🥄 ✨ #NEISVoid #Disabled #Disability #ChronicIllness #ChronicallyIll #Spoonie #Tubie #FeedingTube #Gastroparesis #Zebra #EDS #EhlersDanlosSyndrome #NotTooRareToCare #MobilityAids #POTS #Migraine #ChronicPain #Pain

I promise this is an amazing supportive space even if you aren’t a fiber artist! It’s a phenomenal community of humans AND you get to be astonished by the crafts they share 🧶

A friendly reminder as it gets warmer: don’t tell people with visible medical devices to “cover up”. We deserve comfort, too. Don’t shame us for the medical devices keeping us alive. #Disabled #Disability #ChronicIllness #NEISVoid #EDS #MCAS #POTS #Gastroparesis #Spoonie #Tubie #FeedingTube

“You’re lucky you don’t have to work,” is often said to disabled people. My guy,, I have NINE drs appts this week!! 9 appts in 5 days. 6 last week. 4 next week. I wish I could work. I can’t. Being disabled is not a vacation. #NEISVoid #Disabled #Disability #Spoonie #Tubie #Gastroparesis #EDS

I have 8 books out right now. A book I placed a hold for is now available. If I check it out, I’ll be at 9 books…. HOWEVER, I’m 61% finished with my current read, so that one basically doesn’t count. So if I accept the book, it’s really only 8… right? #GirlMath #AmReading #BookSky #Libby #Books

Today’s choice of Fahlo friends include Plover the whale shark, Bishaaro the giraffe, Foxe the polar bear, and Calypso the sloth 💙💙 🐋 🦒 🐻‍❄️ 🦥

I’ve lived with chronic illnesses my entire life. When I was in elementary school, my mom told me to do all my hw the day it was assigned (even if the deadline was several days away). You never know how you’re gonna feel, tomorrow might be worse… and then your grades suffer, too ): #Disability

And if I’m *not* at home, I’m at a drs appt 🫠 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EhlersDanlosSyndrome #EDS #Gastroparesis #FeedingTube #Tubie #POTS

#Painsomnia is at it again 😭 😭 It’s 12:40 in the morning and my #GTube has decided even breathing makes the site pain worse. I wish I could curl into a ball, fall asleep, and wake to my abdomen having done a forced factory reset. Imagine! Functioning organs, no more scar tissue ✨ ✨ #NEISVoid

I only slept four hours last night, but I’m staying up until 2am so I can take more acetaminophen. I’m in so much pain right now ( #Painsomnia ), but Ik if I don’t stay up, I’ll be in even worse pain come the morning 🤕 #NEISVoid #Disabled #Disability #Insomnia #ChronicPain #EDS #Fibromyalgia

I’m up to 13 medical phone calls for the week and there’s still one more day to go. Being disabled takes so, so much time and energy… energy that we often lack as a side effect of being, ya know, disabled 🫠 #Disability #Disabled #ChronicIllness #ChronicallyIll #Spoonie #NEISVoid #EDS #TubeFed

Don’t worry, I only have 7 appts scheduled for this week and another 7 next week 🫠 AND!! Only 6 phone call so far this week…not sure how many portal messages though 😥 At least I have my audiobooks and podcasts 🎧 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #EDS #POTS

It’s rude of my disabilities to disable me, but at least I have my eight (8) library books to keep me company 🙂‍↕️ #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #WheelchairUser #EDS #EhlersDanlosSyndrome #AmReading #BookSky #LibraryKid #Libby #AmReadingFantasy

Disabled life means waking up to lab results, MyChart messages, appointment reminder calls, and more 🫠 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS #Dysautonomia #POTS #PosturalOrthostaticTachycardiaSyndrome

I’m cold. It’s 11pm. The heat goes down to 64 during the night. I want to curl up in my heated blanket, but I need to do tube care first. Doing tube care means exposing my abdomen to The Cold 🥶 #NEISVoid #Gastroparesis #Spoonie #Tubie #FeedingTube #Disabled #Disability #ChronicIllness #HEDS #MCAS

I have to use silver nitrate to treat granulation tissue around my #GTube. I hate doing this because it’s sooo painful and then the tissue keeps coming back 😭 #NEISVoid #FeedingTube #Tubie #Spoonie #ChronicIllness #Disabled #Disability #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS

cw: blood My #GTube site HURTS and I’m so v tired of this #ChronicPain. My #JTube has its own issues, but my G site is /bleeding/ and restricts movement. It feels like I’m being stabbed with an electrified poker 😭 #NEISVoid #Gastroparesis #TubeFed #Tubie #ChronicIllness #Disabled #Spoonie #EDS

cw: discussion of body size People leave comments wishing for a condition that causes them to be skinny. #Gastroparesis is not fun or worth the pain. A common side effect is weight loss because we can’t get enough nutrition. We’re skinny because we’re starving. We don’t want this. #NEISVoid

Soooo many yellows and injuries in this opener between @bostonlegacyfc.com and @gothamfc.bsky.social ⚽️ Gotham pulls it out with a 1-0 win 🏆 #NWSL #GothamFC #BostonLegacy #WomensSoccer #Soccer

First game of the season for @nwslsoccer.com team @gothamfc.bsky.social ⚽️ I’m excited to go to their home opener next week, but watching them play the new Boston Legacy team is also fun 😁 #NWSL #GothamFC #BostonLegacy #Soccer #RoseLavelle #LillyReale #JaedynShaw #EmilySonnett #MidgePurce

Finally purchased some finger joint supports and compression gloves for my poor hands 🙌 I can’t invest in Nice Ones yet because ya girl has no money, but I’m hoping even these aids help 🍀 #hEDS #Hypermobility #Arthritis #Fibromyalgia #Disabled #Disability #ChronicPain #ChronicIllness #Spoonie

#G-tube replacement #surgery went much better than my #J-tube exchange last month. Abdomen HURTS (but I went from a #PonskyTube to a button). *Really* hoping this change helps me turn a corner for the better in terms of health ❤️‍🩹 #DisabilitySky #Disabled #FeedingTube #Gastroparesis #EDS #Spoonie

G-tube replacement surgery tm! This tube was placed last year and despite it being good at its job (venting my stomach that won’t digest food),, something from that surgery caused my health to severely decline and has caused A Lot of pain. I’m begging the universe for even a 5% pain reduction 🪄

Are you on @thestorygraph.com and looking for a nice book challenge for the year? Look no further than this Reading Rick Riordan and the Percy Jackson Universe challenge: app.thestorygraph.com/reading_chal... #BookSky #AmReading #PercyJackson #PJO #HOO #RickRiordan #MarkOshiro #Fantasy #MG #YA

Doc: I’ve been here 10 years and never seen that before (Regarding how my feeding tube is broken) Story of my life 😭 #NEISVoid #FeedingTube #Gastroparesis #Disabled #Disability #ChronicIllness #Spoonie #JTube #GTube

Omw to the hospital for an emergency tube change. Happy #FeedingTubeAwarenessWeek to me ))))): #FTAW2026 #FeedingTube #Gastroparesis #JTube #GTube #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EDS #EhlersDanlosSyndrome #MCAS #MastCellActivationSyndeome #EosinophilicEsophagitis #EOE

I’m #Disabled and have many #Health #Conditions, #Medications, and #Symptoms. @guavahealth.bsky.social makes tracking easy! My photos show some features from the app! I HIGHLY recommend this for members of the #Disability & #ChronicIllness community ❤️‍🩹 #NEISVoid #GuavaHealth #Spoinie #EDS #POTS

We are still working to bring Issue 16 of @wishbonewords.bsky.social to life! If you are #Disabled, #ChronicallyIll, #Neurodivergent, a #Spoonie, or a #CareGiver please consider submitting #Poetry, #Prose, #Hybrid, #Art, or #Photography during our next submission window 💌 #WriterSky #AmWriting

Due to unforeseen health issues impacting our team, the release of Wishbone Words Issue 16 is delayed until May 2026. We fully expect to return to our regular publishing schedule with Issue 17. P.S. The call for Issue 17 cover art submissions is still open! forms.gle/HLSsi8uJC1hh...

#NEISVoid what are your wildness tricks for dealing with #Nausea? I take several meds and have a #G-tube and a #J-Tube for #Gastroparesis. I have #GERD, #MCAS, #FoodAllergies, and #EosinophilicEsophagitis. Liquids are difficult, but small flushes of peppermint tea through my #FeedingTube can help❤️‍🩹

To those who live with #Gastroparesis, #GERD, #Reflux, or #Nausea, have you found peppermint tea helpful? I have #FeedingTubes, but I’m curious if putting a little bit of (cooled) peppermint tea through my #G-tube might help with the nausea (I’m maxed out on meds) 🤔 #Disability #Disabled #NEISVoid

I am so happy to have books playing in my ears again 🎧 📚 I love reading, but I live with #Depression, #MentalHealth, and neurological conditions. I hadn’t been reading for months even though books bring me joy. Currently making my way through Gregor and the Prophecy of Bane 💛 #BookSky #AmReading

My favorite quote came near the end of #GregorTheOverlander “Even if times got bad, he would never again deny himself the possibility that the future might be happy even if the present was painful. He would allow himself dreams.” #BookSky #AmReading #Fantasy #Audiobooks #SuzanneCollins #Hope

I finally escaped my reading drought! My health prevented me from reading for two months. I started Gregor the Overlander before tube care. Now it’s nearly 3 in the morning, but I had to finish it 📚💙 #BookSky #AmReading #SuzanneCollins #GregorTheOverlander #Disabled #Disability #NEISVoid #Spoonie

I hope everybody stays safe with this winter storm! A PSA that if the power goes out and you have a generator, please reach out to any disabled neighbors who might need to charge medical devices! #Disabled #Disability #WinterStormFern #ChronicIllness #FeedingTube #Oxygen #ElectricWheelchair

I’m begging this #Gastroparesis flare to pleaasseeee go away 😭 I’m not even tolerating sips of water or ginger ale /: I’m also not tolerating my usual rate or volume of tube feeds. It’s especially Struggle City because I’m having issues getting in all my meds ): #NEISVoid #Disability #Spoonie

I'd rather slam my head into the wall than ask AI for help on this creative problem, Thanks

#NEISVoid I’ve already had seven (7) different appointments this week and it’s only Wednesday. I have at least two (2) more appts scheduled for the remainder of the week, but it’s always possible another one might pop up. I’m sick and tired of being sick and tired 😭 #Gastroparesis #EDS #Disabled

I did meds while out of the house and took out my tube caddy and supplies to pause feeds and administer syringe meds. A kid asked “what’s that?” Their guardian said “everybody gets nutrition differently and this person uses formula through a feeding tube”! 🌟 A+ PARENTING 🌟 #Disabled #NEISVoid

Support a #queer, #disabled creator this #BlackFriday, #SmallBusinessSaturdsy, & #CyberMonday 🏳️‍🌈 ♿️ 25% off Nowhalle.Etsy.com 🛍️ #Stickers, #MedicalAlert & #Awareness #Buttons for #ChronicIllness #Gastroparesis #EDS #POTS #MCAS #MentalHealth #Spoonie #Disability #CreatorLift #ArtistLift #EtsySeller