Today, our CEO @avrilbdaly.bsky.social, as President of @eurordis.bsky.social, is joining leaders across Europe to push for a stronger, more connected research & innovation ecosystem for rare diseases. Key discussions are highlighting the power of ERNs. #HLMRare #RareDiseases #ERN_EYE #Innovation

For World Sight Day this year, our priority is to #KeepPatientsVoting. We are proud to launch our campaign, Patient Voices: Deciding Our Futures. Learn more: https://ow.ly/s3X250X7MoU#KeepPatientsVoting #WorldSightDay #PatientVoices #WSD2025

Have you registered for our free World Sight Day webinar, The Patient Voice and Innovation: 🗓️ Date: October 9 ⏱️ Time: 1:30 PM UK | 2:30 PM CET | 8:30 AM EDT ⌛ Duration: 1 hour us06web.zoom.us/meeting/regi... #Webinar #WSD2025 #FreeEvent #Ophthalmology #PatientVoice

We're looking forward to a great day of #clinicaleducation & #eyecare service delivery discussion at #EyeCareinFocus25 View programme eyedoctors.ie/eyecareinfoc... #myopia #glaucoma #cataract #eyecareteam #optometrist #optometry #eyenurse #GP #orthoptist #orthoptics #eyedoctor #ophthalmology

Are you a young person living with a retinal condition? Register today for the Retina International Youth World Conference! Saturday, September 27 at 4pm CET> us06web.zoom.us/meeting/regi... #Conference #Science #Retina #RetinaYouth

Re-Vana is pleased to announce that our CEO, Michael O’Rourke, will present at Ophthalmology Futures Forums Retina 2025 (Panel 3: Neovascular AMD) and at the EURETINA Innovation Spotlight 2025 (Rapid Fire Panel Presentation and Discussion) on Wed, Sept 3 in Paris. #OFF2025 #EIS2025

We're excited to attend @euretina.bsky.social! ➡️ Our abstract details: “Can large language models improve the readability of online patient education materials on retinal diseases?” 📍 6th September 2025 🕤 10:00 – 10:06 📌Speakers' Corner 18 @avrilbdaly.bsky.social @nabinpaudel.bsky.social

Join us at @euretina.bsky.social! We will be presenting our latest work, "Can large language models improve the readability of online patient education materials on retinal diseases?” 🗓 Speakers’ Corner 18: Miscellaneous ⏰ 09:30–10:30 CEST | Dr. Nabin Paudel speaking 10:00–10:06 #EURETINA #RI

Save the date! Our Head of Research, Dr. @nabinpaudel.bsky.social will speak at #EURETINA2025 on AI and clearer patient info for retinal diseases. - Sept 6, 10:00 CEST. #Ophthalmology #AI #EURETINA25 @euretina.bsky.social

Exciting news! Our colleague Dr. @nabinpaudel.bsky.social will present at @euretina.bsky.social #EURETINA25 on using AI to improve the readability of online patient education materials on retinal diseases. Save the date! Sept 6 at 10:00 CEST #AIinHealthcare retina-international.org/ri-euretina-...

Congrats to Prof. José-Alain Sahel, Co-chair of our SMAB, on receiving the @arvoinfo.bsky.social Proctor Medal for his pioneering work in retinal research. This is one of the highest honors bestowed by ARVO - and so well deserved. #ProctorMedal #ARVO #Award #RetinalResearch #Retina #Research

Thanks to all who joined our #ARVO #SIG on #GA trial endpoints yesterday - great insights from regulators, industry, academia & the patient community. More multistakeholder conversations to come!

Our @arvoinfo.bsky.social #SIG on GA trial endpoints is today. Join global experts + patient voices to rethink what meaningful outcomes look like. Last chance to register! www.arvo.org/education/sp... @avrilbdaly.bsky.social @nabinpaudel.bsky.social #GeographicAtrophy #ClinicalTrials

Our @arvoinfo.bsky.social #SIG on #GeographicAtrophy endpoints is just 2 weeks away. Join us on June 10 to help shape more meaningful trial outcomes. 🔗 Register today! www.arvo.org/education/sp... @avrilbdaly.bsky.social @nabinpaudel.bsky.social @ema.europa.eu #GeographicAtrophy #ClinicalTrials

Retina International welcomes this step forward for our community. We thank @rarediseasesint.bsky.social for its leadership in bringing together patient reps from around the world and for ensuring that our voices are heard loud and clear at the global level. #Resolution4Rare #RareEyeDiseases #IRDs

Huge achievement for all in the #global #raredisease community & an example that successful collaboration across borders, cultures, languages and systems, is absolutely possible if we listen & learn from each other. Well done to everyone involved! #HealthforaAll #Resolution4Rare #UHC #WHA78

🎉 BREAKING NEWS FROM GENEVA! 🎉 The Resolution on Rare Diseases has officially been adopted at the 78th World Health Assembly (WHA78)! 🌍✅ #WHA78 #RareDiseases #HealthForAll #Equity #UHC #Resolution4Rare

Our CEO @avrilbdaly.bsky.social, in her role as President of @eurordis.bsky.social, opened the EURORDIS Membership Meeting 2025 in Riga 🇱🇻 #EMM2025 The theme: Maximising our impact - Strengthening the voice of the rare disease community in decision-making. #RareDiseases #EURORDIS #PatientVoice

How do we make GA clinical trials more patient-focused? Join our virtual @arvoinfo.bsky.social SIG session: June 10, 9-10:30am EDT. Hosted by @retinaint.bsky.social - open discussion encouraged! 🔗 Register: www.arvo.org/education/sp... #GeographicAtrophy #RetinaResearch #ClinicalTrials #AMD

ENGAGED is a joint project run between @tcddublin.bsky.social and @dublincityuni.bsky.social funded by the National Open Research Forum (NORF), a Government of Ireland initiative, funded by the Dept of Further and Higher Education, Research, Innovation and Science #OpenResearch #PublicEngagement

We warmly welcome the @ema.europa.eu CHMP’s positive opinion on the first targeted therapy for Thyroid Eye Disease (TED). 🔗 Read more: retina-international.org/ted-press-re... #RareDisease #TED #RetinaInternational #VisionHealth #InnovationInSight @amgen.bsky.social @avrilbdaly.bsky.social

We're delighted to have had such a productive few days at #ARVO2025 @arvoinfo.bsky.social this year. Dr @nabinpaudel.bsky.social & @avrilbdaly.bsky.social presented work that demonstrates our commitment to patient-driven, evidence-based innovation. So many interesting discussions! More to follow!

Attending @arvoinfo.bsky.social #ARVO2025? Don't miss our Head of Research & Programmes Dr @nabinpaudel.bsky.social: Accuracy and readability of ChatGPT-4o responses to patient queries on AMD. 📌Large language models in Ophthalmology 📅 May 6, 2025 | 3:30PM - 5:15PM 📍 Posterboard Number: 3952 - B0489

Productive day for us @arvoinfo.bsky.social - our CEO @avrilbdaly.bsky.social presented her work on #GA and Dr @nabinpaudel.bsky.social will present on Tuesday. At ARVO? Come find us to chat more about our work: ℹ️ www.linkedin.com/posts/retina... #ARVO2025 #ARVO #EyeResearch #Ophthalmology

At Retina International, our newsletter isn’t just news, it’s a global connection. A place where patients, researchers, advocates, and allies come together to share, learn, and lead change in retinal health. ➡️ Read our April edition here: bit.ly/4cNCvUU. ➡️ Subscribe here: bit.ly/4cGXVmt #RetinaIntl

Late-stage #AMD isn’t just a health issue, it’s an economic one. New research led by Dr. @Nabin Paudel @retinaint.bsky.social, shows massive costs in 🇧🇬 🇩🇪 🇺🇸, with lost well-being & productivity driving the burden. Early action matters. Read more: 🔗 www.ophthalmologytimes.com/view/economi... #DMAE

Retina International is gearing up for @arvoinfo.bsky.social where Avril Daly and Dr. Nabin Paudel will present two important poster sessions on: - Patient-driven insights into Geographic Atrophy - Using ChatGPT-4o to support AMD patient education 📅 May 4 & May 6 #PatientPerspectives #AIinHealthcare

Today, on @who.int #WorldHealthDay, we’re highlighting inherited retinal diseases in maternal and newborn care. Early diagnosis = healthier futures. #HealthForAll #GeneticTesting #WHO #RetinaInternational #EyeHealth #VisionResearch #Ophthalmology #ScienceResearch #WorldHealthDay

Why support #Resolution4Rare? Because rare diseases aren’t rare — 7,000+ conditions affect 300M people worldwide. PLWRD face unique challenges in diagnosis, treatment & care. Let’s make rare diseases a global health priority! #WHA #RareDisease #UHC #HealthForAll

Retina International se complace en formar parte de Unidos en Visión 2026, que combina la Conferencia VISIONS de la Fundación para la Lucha contra la Ceguera con nuestro Congreso Mundial. 10 al 13 de junio de 2026 en Fort Worth, Texas. ¡Reserve la fecha! www.FightingBlindness.org/VISIONS2026

Retina International is excited to be part of United in Vision 2026, combining the Foundation Fighting Blindness VISIONS Conference and our World Congress. Join us from June 10-13, 2026, in Fort Worth, Texas. Save the date! Learn more: www.FightingBlindness.org/VISIONS2026

The Retina International Perspectives #Podcast is now on Spotify! Retina International shares expert insights, personal stories, and the latest research in inherited retinal diseases. Tune in and subscribe: 🎧 Listen here: open.spotify.com/show/39wshES... #RetinaInternational #IRDCommunity

Did you miss #RareDiseaseDay2025 at @europarl.europa.eu? Our CEO, @avrilbdaly.bsky.social, President @eurordis.bsky.social, called for an EU Action Plan for Rare Diseases; faster diagnoses, better treatments & holistic support. Watch/listen back to Avril here: shorturl.at/wsEkw #RareDiseases #EU

¿Cómo se relaciona la salud mental con las enfermedades oculares raras? Nuestro último podcast con David Sanchez, @avrilbdaly.bsky.social, y Matt Bolz-Johnson, @eurordis.bsky.social, explora el impacto emocional, los desafíos políticos y el poder del apoyo comunitario. youtu.be/7d7RxQEGeHU #Podcast

How does mental health intersect with rare eye diseases? Our latest podcast with David Sanchez, @avrilbdaly.bsky.social, and Matt Bolz-Johnson @eurordis.bsky.social explores the emotional impact, policy challenges, and the power of community support. Listen here: youtu.be/7d7RxQEGeHU

Another fantastic #EducationHub session: We discussed the role of patients in research & regulation, with expert insights from NCPE & @ema.europa.eu. Patients are not just participants - they’re decision-makers. More: shorturl.at/QK1mG #RetinaInternational #PatientAdvocacy #HTA #RegulatoryAffairs

Retina International stands with @eurordis.bsky.social and @eupatientsforum.bsky.social. Weakening patient representation in CHMP & PRAC is a step backwards for patient-centred healthcare. EU Member States must uphold meaningful patient involvement. Full statement: www.eurordis.org/epf-eurordis...

Our board member, David Sanchez, joins experts like Dr. Jaume Català & Dr. Carmen Ayuso to discuss Hereditary Retinal Dystrophies, including #UsherSyndromeType1. Listen here: open.spotify.com/episode/4XHv... #RareDiseaseResearch #RetinalDystrophies #UsherSyndrome #PatientCommunity #VisionResearch

Nuestro miembro de la junta David Sanchez participa en el último episodio de La Ciencia de lo Singular sobre distrofias hereditarias de la retina. ¡Escúchalo ahora! 🔗 open.spotify.com/episode/4XHv... #InvestigaciónEnEnfermedadesRaras #DistrofiasRetinianas #SíndromeDeUsher #ComunidadDePacientes

We're hiring a Postdoc Researcher to lead groundbreaking studies on mental health and vision loss due to retinal degenerative diseases. This is a unique opportunity to contribute to patient-centred research that drives real-world impact. Learn more: www.linkedin.com/jobs/view/41... #RetinalResearch

As Co-Chair of Retina International’s SMAB, Dr. Jacque Duncan’s work in retinal research is truly innovative. Congratulations on her Oberdorfer Award in Low Vision Research. We are excited to hear more about this work at the 2025 ARVO Annual Meeting lecture. #VisionResearch #Ophthalmology #ARVO2025

Retina International are delighted to announce our latest publication in Frontiers Medicine #RIWC24 #Patient #Value #UnmetNeeds #Therapies www.frontiersin.org/journals/med...

Happy #RareDiseaseDay 2025 300 million affected globally, 70-80% children, majority causing #disability, 80%, 5% have treatments. Now more than ever we must support #research in #Diagnosis #Care & #Treatment @retinaint.bsky.social @rareireland.bsky.social #Eurordis @rarediseasesint.bsky.social

🚨 We’re Hiring! 🚨 Postdoctoral Researcher – Retina International www.linkedin.com/jobs/view/41... #Postdoc #ResearchJobs #MedicalResearch #Retina #JoinOurTeam

🌍 A Milestone for the Rare Disease Community! 🌍 10 February marked a pivotal moment for rare diseases worldwide. The 156th WHO EB has recommended the adoption of the #Resolution4Rare to the 78th WHA in May 2025.🔗 Read our full statement here: www.rarediseasesinternational.org/wp-content/u...

Friday, February 28th is Rare Disease Day and RI will mark the day with a Webinar focusing on the issue of Mental Health and Rare Eye Disease, Friday Feb 21 at 12PM CET Register by emailing [email protected] #RareDiseaseDay #RareEyeDisease #MentalHealth #Policy #Diagnostics

Congratulations to FARPE on their 35th anniversary. As part of the celebration, they are organizing various activities to raise public awareness and continue driving scientific progress to improve prognosis and treatment of these diseases. youtube.com/shorts/teTjU... #RetinaResearch #IRD #35years

Our colleagues in Retina New Zealand are hosting the Innovation in Retina Research Australasia event this coming Friday and Saturday. Registration details can be found in the following link retina.org.nz/front-page-p... #RetinaResearch #Innovation #AMD #IRD