Dr. Ian M. MacDonald's new book, Our Hope for Gene Therapy, shares the story of the research, collaboration, and perseverance behind advances in CHM research and Canada's first experimental gene therapy trial for choroideremia in 2015. Learn more: a.co/d/00MIQ2CV

In case you missed it, the recording of our webinar with Dr. Jogin Desai of EyeStem is now available on YouTube. Learn about the latest developments in RPE cell replacement therapy and its potential applications for CHM. youtu.be/EqCzNBCT6X0

Through the Penn Medicine Orphan Disease Center's 2026 Million Dollar Bike Ride, Team CHM cyclists have already raised more than $10,000 toward our $15,000 goal to support choroideremia research. It's not too late to give! Donations will be accepted through June 30. secure.qgiv.com/event/mdbr2026

UPCOMING WEBINAR: Careers in Tech: Is It for You? Thursday July 9, 2026 | 2:00PM - 3:30PM ET Join the Blind Institute of Technology for an overview of its nationally recognized workforce development programs. Register below to join: secure.qgiv.com/for/careersi...

CRF was honored to attend the combined Retina International World Congress and Foundation Fighting Blindness (FFB) “United in Vision 2026” conference on June 12–13 in Fort Worth, Texas, and host a booth throughout the event.

CRF was honored to attend the combined Retina International World Congress and Foundation Fighting Blindness (FFB) “United in Vision 2026” conference on June 12–13 in Fort Worth, Texas, and host a booth throughout the event.

ARVO 2026: CHM Research, Community & Hope | CRF at the World's Largest Eye Research Conference youtu.be/s1J2MmdJGb4?...

Purdue University computer science student Tanish Misra created Candle, a patient-developed choroideremia (CHM) resource hub that brings clinical trials, scientific literature, and an AI-powered Ask feature together in one place. www.einpresswire.com/article/9184...

Register to join us on June 23 from 9:00–10:15 AM ET for the New Developments in RPE Cell Replacement webinar with Dr. Jogin Desai, Founder and CEO of EyeStem. secure.qgiv.com/for/ndwrcrw/...

The Choroideremia Research Foundation (CRF) is now accepting applications for its upcoming research grant cycle, with submissions due June 30, 2026. www.einpresswire.com/article/9152...

Congratulations to Tim Galvin, a member of the CHM community, on being named a winner of the 2025/2026 CARTA Image Competition! idia.ac.za/2026/05/22/a...

First-ever Canada CHM Patient & Family Meeting took place May 9 at the Sandman Signature Toronto Airport Hotel. Co-hosted by CRF and CRFC, it brought together CHM families, researchers, and advocates for connection and learning.

Association for Research in Vision & Ophthalmology (ARVO) meeting in Denver, CO. Grateful for the opportunity to connect with researchers, clinicians, companies & advocates. Exciting to see advancements in vision research & technology shaping the future of eye care. #ARVO2026 #VisionResearch

Help power the future of CHM research. Your gift goes twice as far with a $50,000 match supporting early-career researchers. Give today: curechm.org/donation-form/ Select “Peter G. Boone Endowment Fund” in the dropdown. #Choroideremia #CHM #RareDisease #VisionResearch

New article introduces post-visual diagnosis distress (PVDD)—a term describing the common emotional response (fear, grief, overwhelm) after a vision-threatening diagnosis. Full article: link.springer.com/article/10.1...

Charles Bonnet Syndrome (CBS) – Seeing More When Seeing Less youtu.be/SSzbMTEM_PM?...

For International Guide Dog Day, we’re honoring the trust behind every guide dog partnership. CHMer Jim Coulter shares his journey. What starts as uncertainty becomes something powerful: two beings moving as one. Read more: docs.google.com/document/d/e...

What if making a difference didn’t mean giving more, just spending differently? Skipping one small, unnecessary purchase each week can add up to real impact for families affected by choroideremia. Become a monthly donor of $100 or more and receive a CRF Swag Pack. curechm.org/donation-form

Congratulations to Jean Bennett, Albert Maguire (Ophthalmology) & Katherine High (@childrensphila.bsky.social), recipients of the 2026 Breakthrough Prize in Life Sciences in recognition of their pioneering work developing gene therapy for inherited blindness! tinyurl.com/3n5k57ye

We are incredibly grateful to our Team CHM runners who participated in the @parismarathon.bsky.social this past Sunday, April 12! #curechm #teamchm #RunForACause

Victorien Faure and Théo Leleu are preparing for their first Paris marathon, for a good cause. www.midilibre.fr/2026/03/31/v...

Have you or a loved one experienced visual hallucinations after vision loss? You’re not alone. This important webinar on April 2 (2:30PM EDT | 7:30PM BST) sheds light on Charles Bonnet Syndrome (CBS). Learn why it happens and what can help. Register to join: secure.qgiv.com/for/virtuale...

The Choroideremia Research Foundation (CRF) is pleased to announce its latest round of scientific research funding, awarding four new grants to advance understanding and treatment options for choroideremia (CHM). www.einpresswire.com/article/8983...

SHARE this post to help educate your family, friends, and community about Choroideremia (CHM) and why awareness matters! Make a difference this Rare Disease Day: secure.qgiv.com/for/choroide... #Choroideremia #CureCHM #RareDiseaseAwareness

Today is Rare Disease Day! 🌍 Over 300M people live with a rare disease. CHM affects just 1 in 50K–100K. Support the ultra-rare CHM community & fund sight-saving research: secure.qgiv.com/for/choroide... #RareDiseaseDay #CureCHM #SightSavingResearch

Choroideremia (CHM) is an ultra-rare inherited retinal disease many providers may never encounter. Because so few families are affected, CHM receives far less awareness and research attention. That’s why Rare Disease Day matters. Help support progress: curechm.org

As Rare Disease Day (Feb 28th) approaches, we celebrate the CHM community & CRF’s work!
"It’s been awhile since I looked at CHM/CRF… I would strongly encourage all members to TAKE A LOOK!!! Worth it!" – CHM carrier
 Annual Report:
drive.google.com/file/d/1flEj... #RareDiseaseDay #Choroideremia

2026 Rare Disease Week on Capitol Hill 🏦 #CureCHM #RareDiseaseCommunity #RareDC2026

Rare Disease Day is February 28! Help shine a light on choroideremia (CHM). On Saturday, share a post and tag @curechm to grow awareness and support sight-saving research. Make a difference today: secure.qgiv.com/for/choroide... #RareDiseaseDay #RareDiseaseAwareness #Choroideremia #CureCHM

The Canada CHM Patient & Family Meeting is a free chance to connect with others who understand the choroideremia journey. With 30+ already registered, now is the time to save your spot. May 9th | Sandman Signature Toronto Airport Hotel Register: secure.qgiv.com/for/canadach...

Eric Hartman, Director of Advocacy, is heading to Rare Disease Week on Capitol Hill to represent the CRF and raise our collective voice for those living with choroideremia. Don’t miss Rare Disease Day on Feb 28. Donate: curechm.org

For rare diseases like Choroideremia (CHM), awareness does more than educate — it drives research, funding, and support. When more people understand CHM: • Families find help sooner • Researchers gain visibility • Communities become more inclusive Support CRF today: secure.qgiv.com/for/choroide...

Looking to connect with the CHM community this Low Vision Awareness Month? Join our virtual chats for CHMers, families, and friends. Upcoming schedule: www.facebook.com/CureCHM/events

CRF’s 2024–2025 Annual Report highlights research funding, patient initiatives, advocacy, events, and financial transparency—showing how your support advances the CHM community. drive.google.com/file/d/1flEj...

SHARE for Low Vision Awareness Month: Choroideremia (CHM) is a rare genetic eye disease that causes progressive vision loss, often starting with night blindness and narrowing side vision. Awareness helps families find support and fuels research. Support CHM research: secure.qgiv.com/for/choroide...

Advancing ACE-tRNA Therapy for Choroideremia (CHM) Congrats to CRF-funded researchers Drs. Joe Porter & John Lueck on a new publication advancing ACE-tRNA technology to address nonsense mutations by engineering a smaller, safer delivery method. academic.oup.com/nar/article/...

February is Low Vision Awareness Month, a time to recognize and support people living with vision loss, including the Choroideremia (CHM) community. We honor the strength of individuals and families and remain committed to research, resources, and hope.

Advanced #CHM or RP can permanently destroy photoreceptors. Researchers are developing vision-restoration strategies like #Optogenetics. In an interview study patients are invited to talk about their expectations, needs & rehab/assistive gaps. lindnerlab.de/index.php/ne... #RareDisease #GeneTherapy

Make it a weekend in Toronto! 🇨🇦 In town for the Canada CHM Patient & Family Meeting? Enjoy festivals, Blue Jays baseball, theatre, dining, and more before or after the event. May 9, 2026 | 9 AM – 5 PM Sandman Signature Toronto Airport Hotel Full agenda + register: secure.qgiv.com/for/canadach...

The first-ever Canada CHM Patient & Family Meeting is happening May 9 in Toronto—and the agenda is live! This free, in-person event is open to individuals with CHM, families, and friends. Explore the agenda: secure.qgiv.com/for/canadach...

Choroideremia Research Foundation (CRF) Acquires Spark Therapeutics, Inc., CHM Gene Therapy Assets, Advances Data Analysis www.einpresswire.com/article/8852...

January is for turning good intentions into lasting impact. Even $5/month makes a difference. Become a monthly donor to CRF and provide steady support for sight-saving research, patient programs, and the CHM community—all year long. Join today. curechm.salsalabs.org/donate

Adam Dubis, PhD, is driving advances for artificial intelligence in eye care and vision research. healthcare.utah.edu/moran/news/2...

Save the Date! Canada CHM Patient & Family Meeting is May 9th, 2026 | 9am–5pm | Sandman Signature Toronto Airport Hotel. Free, in-person event with CHM research updates, expert speakers, and time to connect with other CHM families. More details soon! #Choroideremia #CHM #RareDisease #CanadaCHM

The Peter G. Boone Endowment Fund supports early-career scientists advancing choroideremia research. A $50,000 MATCH is doubling gifts right now. Give today and make an impact: curechm.salsalabs.org/donate (Enter “Boone Fund” in the “to notify” box)

As 2025 wraps up, we’re grateful for the generosity & hope within the CHM community. Your support this year has pushed research forward & strengthened connections. If you’re considering a year-end gift, your contribution helps bring us closer to a cure. Give Today: curechm.salsalabs.org/donate

For the 13th year in a row, the Laudenbach family laced up for Run For A Reason, running in honor of Matthew and the CHM community.

Thank you to everyone who supported the CRF this GivingTuesday! Because of your generosity and a dollar-for-dollar match from two incredible anonymous donors, we raised just over $50,000! If you haven’t had a chance to give yet, there’s still time: curechm.salsalabs.org/donate

The Choroideremia Research Foundation (CRF) announces the first cycle of 2026 research grants, with applications due by December 31, 2025. www.einpresswire.com/article/8726...

Joanna, Matt, & Michelle took on the Alicante Marathon in Spain, & Joanna proudly sported her Team CHM shirt on race day! While this wasn’t a fundraiser, every moment of visibility helps raise awareness for choroideremia (CHM). #teamchm #curechm #marathon #Alicante #choroideremia