To learn more about the annual LGMD Awareness Day, visit: www.lgmd-info.org/awareness-day/

Your generosity fuels education, resources, and hope through lgmd-info.org. Thank you for helping us uplift & empower the LGMD community. We invite you to continue helping us raise awareness and support those living with LGMD. 💚 Donate Today: lgmd-info.org/donate/

November is Caregiver Awareness Month! 💚 Check out this new Guide For Caregivers from MDA. This great resource can be downloaded at www.mda.org/.../2024/01/...? #LGMDawareness #TogetherWeAreStronger

For more information, visit: lgmd-info.org

The LGMD Advocacy Bundle project bridges the gap between clinicians and patients through advocacy support while supplying helpful tools and resources for staff and patients. www.lgmd-info.org/knowledge-ba...

#LGMDawareness can spread much faster with more individuals, from all parts of the world, through re-posts, likes, and shout outs on social media! There is great strength in awareness, understanding and unity.

Please share to help raise awareness! 💚 To learn more about LGMD and access resources, visit our website www.lgmd-info.org #LgmdAwareness #TogetherWeAreStronger

Living with LGMD presents unique challenges, both physically and financially. This link to our LGMD Grant Opportunities page serves as a valuable resource, offering detailed information on various grants and programs tailored to assist those with LGMD. www.lgmd-info.org/knowledge-ba...

Thank you all for another successful LGMD Awareness Day! #togetherwearestronger

Today is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Help raise awareness by sharing our posts! To learn more about LGMD, please visit our website: lgmd-info.org #LGMDawareness #LgmdDay2025

🌍💜Desde la RER-CSIC Hoy nos unimos al #LGMDawarenessDay para dar visibilidad a la Distrofia Muscular de Cinturas. Recordamos que la investigación es clave para avanzar en el diagnóstico y el futuro de quienes conviven con estas patologías #EnfermedadesRaras @csic.es @lgmdawareness.bsky.social

There is still time to submit your entry for our coloring contest! For contest info, rules and the entry form, visit: www.lgmd-info.org/toolkit/#toc... Thank you to Dooley & Associates for sponsoring our coloring contest this year!

Tuesday, Sept. 30 is LGMD Awareness Day! Have you completed tasks from our toolkit to help EDUCATE others about LGMD? There is still time! Visit: www.lgmd-info.org/toolkit/

Thank you, Governor Maura Healey for the proclamation declaring September 30, 2025, as Limb-Girdle Muscular Dystrophy Awareness Day throughout the State of Massachusetts! We also thank LGMD Ambassador, Keisha L Greaves, for requesting this proclamation. #LgmdDay2025

We love seeing you share our content! We're so inspired by your creativity. To help us keep our brand looking its best, we ask that you please not edit our logos, photos or graphics. A consistent look helps our community recognize us. thank you for your understanding & support!

Join the LGMD Awareness Foundation in our mission to shine a global spotlight on LGMD & champion the cause for improved access to diagnosis, care & treatment for those living with this condition. Our Toolkit is designed to empower and engage our community. lgmd-info.org/toolkit/

Help spread awareness by downloading and using our specially designed LinkedIn banners and Facebook timeline covers—invite your network to join the movement! Find them here: www.lgmd-info.org/toolkit/

Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: www.LGMD-Info.org #LGMDday2025 #LgmdAwareness #LgmdFacts #TogetherWeAreStronger

Limb-Girdle Muscular Dystrophy (LGMD) can affect the heart and muscles necessary for breathing. To learn more about LGMD, please visit our website: www.LGMD-Info.org #LGMDday2025 #LgmdAwareness #LgmdFacts #TogetherWeAreStronger

Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives. To learn more, please visit: www.LGMD-Info.org

Time is running out to submit state proclamations for Limb Girdle Muscular Dystrophy Awareness Day. The following states have been committed to: CT, IL, IN, KS, MA, MI,NJ,NY,NC,OH,OK, PA,SC, TN,TX, WI If your state isn't listed, we need your help! www.lgmd-info.org/aware.../ini...

If you plan on submitting an application for your state, please comment on this post and let us know the state. Time is running out to request a proclamation from your State Governor or other public representatives. We have resources that can help. Learn more at www.lgmd-info.org/aware.../ini...

Help ADVOCATE by sending a press release about LGMD Awareness Day to your local media outlets prior to the event. Your voice can help garner attention and support from the broader community. Our sample press release is available at www.lgmd-info.org/toolkit/ #LGMDDay2025

Help raise awareness in YOUR state! It is time to begin requesting a proclamation from your State Governor or other public representatives. Please help us spread awareness in every state! Plus, we have resources that can help you. Learn more at www.lgmd-info.org/aware.../ini...

Limb-Girdle Muscular Dystrophy (LGMD) is known to occur among all ethnic groups. LGMD occurs in all parts of the world and can be diagnosed in women and men. Symptoms can first appear at any age – childhood, teens, adulthood. To learn more about LGMD, please visit our website: www.LGMD-Info.org

Know the FACTS about Limb-Girdle Muscular Dystrophy (LGMD) & help raise awareness! 💚 To learn more about LGMD, please visit our website: www.LGMD-Info.org #LGMDday2025 #LgmdAwareness #LgmdFacts

Help spread awareness by downloading and using our specially designed LinkedIn banners and Facebook timeline covers—invite your network to join the movement! Find them here: www.lgmd-info.org/toolkit/ #LGMDDay2025

LGMD is progressive, meaning that persons affected with this disability have muscles which continue to become weaker throughout their lives. It’s not yet possible to predict the course of LGMD in an individual. To learn more about LGMD, please visit: www.LGMD-Info.org

Most forms of LGMD do not affect the brain, intellect or the senses. Most people diagnosed w/LGMD can think, see, hear & feel sensations as well as those w/o MD. LGMD2S is one of the rare forms in which some cognitive impairments have occurred. To learn more, please visit: www.LGMD-Info.org

#WellnessWednesday: Clinical studies in some LGMDs showed that moderate exercise, contrary to extreme exercise or no exercise, helps maintain muscle strength and therefore quality of life. This conclusion is in line with the feedback of people with LGMD.

Use Promo Code "Girdie" and save 10 percent until July 1st www.lgmd-info.org/shop/

Being cold is in part often related to decreased mobility and the fact that the muscles are not contracting as much therefore resulting is reduced circulation of blood. To learn more about LGMD, please visit our website: www.LGMD-Info.org #LgmdAwareness #LgmdFacts #TogetherWeAreStronger

Individuals living with Limb-Girdle Muscular Dystrophy (LGMD) may be sensitive to temperature changes and struggle with being cold. To learn more about LGMD, please visit our website: www.LGMD-Info.org

Help shine a light on LGMD Awareness: 📷 Share a photo of you and your Girdie sticker on social media on or around September 30. 📷 Include your location, #LGMDawareness, and tag @LGMDawareness so we can see where Girdie is spreading LGMD awareness! lgmd-info.org

Welcome to our new Blue Sky page! We hope to connect with LGMD community!