Visionary Online Session - Join NEW, FREE event for Visionary members: 18 Nov, 11AM to 12PM Charles Bonnet Syndrome (CBS) and the paediatric pathway – Where does CBS sit? With Judith Potts and Nina Chesworth at Esme's Umbrella #Children #YoungPeople Register: https://www.visionary.org.uk/events/

As part of our 10th anniversary and CBS Awareness Day this November, we’re joining Beacon Vision for a Breath & Sensory Meditation Workshop on 20 Nov. 🌿 Free sessions at 2.30pm & 4.30pm — come unwind and feel the difference a deep breath can make. ✨

REMINDER 🔔 Tomorrow evening (Thursday 9th October, 7pm) our founder Judith Potts will be speaking about Charles Bonnet Syndrome at the UKISOP webinar, “Supporting Adults and Children with Sight Loss.” Register here: www.ukiscrs.org.uk/ukisop-webinar

Layla Edey is skydiving on 19 Oct in memory of her Nan, Olwen Belcher, who lived with Charles Bonnet Syndrome. Please donate or share to power support for people affected by CBS (UK: tick Gift Aid)

⏰ The deadline for the 2025 CBS Essay Prize is almost here! ⏰ Open to UK medical students in all years of study. Submit up to 1000 words by 1st October 2025, 11.59pm for the chance to win £500. More info: tinyurl.com/CBS-Prize-2025

“Cuddle Up” is out now! ✨ Created by @peter-marsh.bsky.social (Peter Marsh) for Esme’s Umbrella, the song raises awareness of CBS in children & young people. Huge thanks to Peter & @annemcivor.bsky.social. 🎧 Listen on iTunes here: music.lnk.to/KSQIwa and youtube here: www.youtube.com/watch?v=Ex_i...

The next @rnib.bsky.social CPD-certified online session takes place Mon 1 Sept, 14:00–14:45. A great opportunity for professionals & anyone supporting people with sight loss. ✨ Book here: www.eventbrite.co.uk/e/rnib-intro...

Are you 18+ with a visual impairment? UCL is running a study on perception, emotion, and well-being. Take a 40-min online survey and enter a £25 prize draw. Questions? Email [email protected]. Take part here: qualtrics.ucl.ac.uk/jfe/form/SV_...

It was a pleasure for Nina and Judith to chat with Amelia on @rnib.bsky.social Connect Radio, sharing an update on our campaign to support children and young people living with Charles Bonnet Syndrome (CBS).🎧 Listen here: lnkd.in/evmc8a_p

@JustGiving - please read this. www.nationalworld.com/opinion/just...

Please will someone from @justgiving.bsky.social respond to my email. The reference is JGA0194855 (#1775425)

🎉 We are pleased to announce the 2025 iteration of the CBS essay prize! 🎉 The prize is open to UK medical students in all years of study, including intercalating students. Entries are limited to 1000 words for this year's prize. We will be accepting entries until 1st October 2025 at 11.59pm. ✏️

The Sheffield Star was among the @nationalworldpub.bsky.social titles to use the piece about receiving a Times Sternberg Award, written by our Founder, Judith Potts. Picture shows the page from the newspaper.

We’re thrilled to announce that Esme’s Umbrella has been nominated for the Community Organisation Award at the National Diversity Awards 2025! 🏆 Vote for us here: www.nationaldiversityawards.co.uk/awards-2025/...

We're proud to announce that our founder, Judith Potts, has been awarded a Times Sternberg Active Life Award in recognition of her work with Esme’s Umbrella. Presented at 11 Downing Street—an incredible honour.👏

Become an Esme’s Umbrella member and help support awareness and research into Charles Bonnet Syndrome. Membership is completely free and gives you access to our newsletter and the opportunity to take part in future research efforts.

Esme’s Umbrella & @henshaws.bsky.social invite families with children and young people to a free event with crafts, refreshments and peer support in a friendly space. Saturday 24 May, 10:30–2:30, Walthew House, 112 Shaw Heath RSVP: [email protected] / [email protected]

Our Founder Judith Potts writes for @nationalworld.bsky.social about the millions of people caring for aging parents or children, and the urgent need for more support. She also highlights @carents.bsky.social as a key resource. Read the full article here: app.nationalworld.com/story/507342...

Just a few days to go! ⌛ This Sunday, Jade Marshall-Walker runs the Kew Half Marathon for Esme’s Umbrella. There’s still time to support—every donation helps raise awareness for CBS and those affected. 👉 Donate here: www.justgiving.com/page/jade-ma...

We’re excited to partner with @carents.bsky.social — a digital hub and supportive community for 40,000+ adults caring for elderly relatives. Connect, share, and find expert advice and support

Judith Potts shares her CBS advocacy with @nationalvoices.bsky.social. revealing how people living with CBS are dismissed, misdiagnosed, and left without support. Despite its widespread impact, CBS continues to be overlooked. It’s time for change. Read more: www.nationalvoices.org.uk/blogpost/ado...

A huge ‘thank you’ to Jade Marshall-Walker, who will be running the Kew Half Marathon for Esme’s Umbrella on 30 March. To find out why - and to donate - this is the link www.justgiving.com/page/jade-ma...

As the Six Nations unfolds, we’re proud to have Alex Lowe—The Times rugby correspondent and Esme’s Umbrella Ambassador—helping raise awareness of Charles Bonnet Syndrome. #SixNations #CharlesBonnetSyndrome #EsmesUmbrella

A huge ‘thank you’ to Jade Marshall-Walker, who will be running the Kew Half Marathon for Esme’s Umbrella on 30 March. To find out why - and to donate - this is the link www.justgiving.com/page/jade-ma...

We are so grateful to have @rebeccalowetv as our US Ambassador! 💜 Her support means the world as we raise awareness for Charles Bonnet Syndrome and ensure no one facing CBS feels alone. Rebecca, thank you for using your voice to shine a light on our work. We’re so lucky to have you by our side! 💫

📢 Study Opportunity for Those with Charles Bonnet Syndrome (CBS)! UCL and Moorfields Eye Hospital are exploring blood markers in CBS. Led by Prof. Mariya Moosajee and Dr. Lee Jones, the study invites individuals 18+ with CBS (1+ hallucination/week) to participate.

Now with audio description! 🗣️ Say hello to Em, the CBS monster from Esme’s Umbrella! 🧡 Em is here to help children and young people understand Charles Bonnet Syndrome (CBS) and how to manage it. Watch the video here: youtu.be/MdBBoPRStmE

Judith Potts, joined Shaimond Foye on the Charles Bonnet Syndrome Podcast to share how her mother’s experience with CBS inspired her to create Esme’s Umbrella. Listen now to hear her mission to raise awareness, offer support, and fund research for CBS. 🎙️ 🎧 Podcast: open.spotify.com/episode/2H6r...

Judith Potts is very much looking forward to speaking at this important Conference.

Invitation to Take Part in Research on Visual Imagination and Sight Impairment Researchers at Cardiff University are studying visual imagination in people with sight impairment to better understand why some experience visual hallucinations (Charles Bonnet Syndrome) after sight loss.

Jade Marshall-Walker is running the Kew Half Marathon on 30th March 2025 to raise awareness and funds for Esme’s Umbrella 🌟 👉 Donate here: www.justgiving.com/.../jade-mar....

Charles Bonnet Syndrome causes visual hallucinations after sight loss. Learn about symptoms, coping strategies, and where to find help if you or a family member is affected - carents.co.uk/healthcare/s... #CBS #CharlesBonnetSyndrome @charlesbonnetsyndrome.uk

I am a clinical psychologist with 20 years experience working with sight impaired folks. It is not rare. I observed one in three having Charles Bonnet syndrome. Find someone who is blind and ask them.

Welcome to Esme’s Umbrella on Bluesky! We’re here to raise awareness about Charles Bonnet Syndrome (CBS) - a condition causing visual hallucinations after sight loss. Our mission is to support those affected, their loved ones, and to advocate for greater understanding and research.