We’ve been thrilled by the interest of so many lymphoma #WM #HL #FL clinicians and consumer groups in Applifying the Patient Voice globally. #iwmf

MyLymphoma App Alliance officially launched at #ICML2025: 3 mobile apps to collect patient experiences during and after lymphoma treatment. #lymsm @judithtrotman.bsky.social @janfalconer.bsky.social learn more at myhodgkinmyhealth.com

First session of #18ICML: MyLymphoma apps to collect disease, treatment and patient-reported outcomes directly from patients. WhiMSICAL set the stage in WM, now with MyHodgkin MyHealth and FOLLowed for Life. #lymsm @judithtrotman.bsky.social @icmlugano.bsky.social

Spreading the word about MyHodgkin MyHealth: Our interview with @normanswan on ABC Radio’s Health Report. MHMH is open now in Australia for any HL survivors to join abc.net.au/listen/program… @janfalconer

Celebrating #IWD2025 with @ABloodyGr8Cause who hosted Superintendant Christine McDonald an inspiring local leader. All to raise $ for blood disease research! #MyHodgkinMyHealth @JudithTrotman1

Support #HodgkinLymphoma research by contributing survivorship data. Live in Australia now on App & Google Play Stores. International version coming soon! 166 registrations & counting! myhodgkinmyhealth.com #MyHodgkinMyHealth @judithtrotman.bsky.social @janfalconer.bsky.social

Such a beautiful energy @womeninlymphoma.bsky.social @judithtrotman.bsky.social and plans for the next WiL projects #lymsm #ASH24

Great work by John Radford using database linkage to obtain LTFUP in HL after UK-RAPID. Let’s amend our trials to prospectively consent patients to LTFUP and find lower cost methods to follow patients in the long term. #ASH24 #lymsm

Patient-entered data in Waldenstrom’s: WhiMSICAL delivers real world outcomes and empowers patients to be partners in research. Congrats Ryan Low, @judithtrotman.bsky.social IMWF, WMozzies #ASH24 #ASHKudos

Great example of patient-centred research - a study that will reduce clinical trial waste, reduce non-evaluable patients and improve patient experience on trials by questioning the norm. “Urine-free response criteria” in myeloma #ASH24

An incredibly inspiring talk by Dr Narla on #SCD showing the power of persistence and caring deeply for your patients

So important to report CIPN results in detail. Great work HD21/ALLGHD10. We can’t wait to provide long term follow up data on neuropathy with MyHodgkin MyHealth

Also, check out these real-world PFS curves from WhiMSICAL. No difference between 1L BTKi or BR, but significantly worse PFS with DRC and R mono as compared to BTKi. #ASH24 #lymsm