It's Reetta Kälviäinen 🇫🇮: "Beyond the Myoclonus: Recognizing the Clinical Face of PMEs (Progressive Myoclonic Epilepsy) EPM1 epilepsy" Reetta shared how the best epilepsy research is done with patients and families. And not just with the usual "awareness" activities it's research collaboration. 1/

Amazing panel discussion and notes: What defines a DEE? How "severe" must symptoms be? Is it a matter of association of clinical and EEG findings above a certain aetiogy? Is it a pathophysiological rather than a clinical concept? Is it not a static but dynamic concept? 1/

😀 Second day of the #DICE2026 epilepsy conference in Denmark! First speakers are: 〰️ Nicola Specchio 🇮🇹: "DEE: Classification and Current Concepts" 〰️ Lieven Lagae 🇧🇪: "Challenges in the Current Classification of DEEs" 1/2

At the London Marathon supporting Epilepsy Action! #epilepsy #londonmarathon2026

Many people's brain scans look normal - despite them having seizures. 🧠⚡️ Christos Papadelis 🤩 talks about combining MEG with high-density EEG & AI to identify where seizures start!👇🏻 🎬 youtu.be/KQGjwVdYUBs This episode is presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy

Laughs, friendships, a touch of seriousness, pizza 🍕, and the cutest 🐶 ever (who snarls when he likes you). Thank you so much to Landis Wiedner for being such a great host, and Wilson Kukla and Ivana Garcia for being equally splendid. #chicago #pizza #epilepsy

In prep for the UCB EpilepSEE conference in Chicago! We start tomorrow, with some incredible global collaborators - the start of a new project to improve the lives of those affected by epilepsy. Global experts inc. Prof. Reetta Kalviainen, Landis Wiedner, Alison Kukla, & Ivana Garcia. #epilepsy

Thank you to the Epilepsy Foundation 🧠🇺🇸 for the Research Ambassador Keynote Speaker award. I'm honoured. Not possible without EF leaders Jacqueline French, Caitlin Grzeskowiak, Renisha Jones, and Eva Childers. More is coming. Stay tuned y'all.... #epilepsy #neurology

Thank you to such a cool audience for being with me for a 55min keynote talk about how they can become involved/leaders in #epilepsy research - using their Epilepsy Experience Expertise. Thank you to Prof. Jacqueline French and Caitlin Grzeskowiak of the Epilepsy Foundation for the invitation.

Tremendous presentation about medtech devices used to help try and control epileptic seizures (they often have other benefits too though) - by star scientist Benjamin H Brinkmann PhD, FACNS FAES - at the Epilepsy Foundation Research Ambassador Program 🇺🇸! #epilepsy #medtech #eeg #neurology

See you soon Epilepsy Foundation of America - in Minneapolis 🇺🇸. I'll be sharing some pics of my talks - and those of others - over the next few days. Beautiful Delta Air Lines A330-900 LHR-MSP. ✈️ #epilepsy

🥳 New, fun podcast episode! Epilepsy; it's just not sexy, is it?! Hear how we need to improve education and marketing for epilepsy so that we can get greater acceptance and funding for research! All with intellectual disability nurse Jay Price 🤩🇬🇧! 👇🏻 🎬 youtu.be/-pMjMXnYKKM #epilepsy #purpleday

Our latest podcast episode - now out!! 🥳 👇🏻 #epilepsy #dataset #AI

Want to hear something exciting? 🥳 In this week's podcast, @konradwagstyl.bsky.social shares how he is using AI & datasets to identify previously unidentifyable (on MRI) brain lesions!! 🧠 Watch! 👇🏻 youtu.be/3qj5If0RdqM Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH. #epilepsy #MRI

🥳 Speaking to MedTech about #epilepsy, #depression, #Parkinsons & #Alzheimers and our #PPIE work at the international Advanced Research & Invention Agency (ARIA) neurotech summit with tremendous colleagues Jon Nelson, Kuhan Pushparatnam, and Trevor Salomon 🤩🤩🤩! At the National Space Centre! 🚀

Podcast! Mental health illnesses are symptoms of epilepsy and they can even precede seizure onset! 😯 Hear from global lead epileptologist Dr. Andres Kanner 🤩 🇺🇸 Watch/listen👇🏻 🎬 youtu.be/2BZaqboYIpQ This episode is presented in partnership with EASEE® by Precisis GmbH. #epilepsy #mentalhealth #adhd

Addressing inequalities in access to epilepsy care! It’s the Epilepsy Sparks Insights podcast with Prof. Nicola Specchio 🤩🇮🇹 who speaks of: • delays to diagnosis • earlier interventions • improve standards • precision medicine, biomarkers & neuroimaging Watch here: youtu.be/eWXWNjL2FGw #epilepsy

New paper “Epilepsy and mental health disorders: current challenges and potential solutions”. “Seizure control alone doesn’t equal quality of life...” Writing about this isn’t easy when you draw on lived experience, but it’s worth it. 👇🏻 www.cambridge.org/core/journal... #epilepsy #mentalhealrth

🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?! Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻 🎬 youtu.be/rBpI_-daWjw

🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸! Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!

🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹! Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!

😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝. How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life. Watch here 👉🏻 shorturl.at/SJLxN #Epilepsy

Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re: 〰️ Metabolic epilepsies & the future 〰️ Patients we can’t yet help 😞 〰️ Advocacy, gene therapy, SUDEP & mental health Listen/watch, here 👇🏻! 🎙️ shorturl.at/LbjyF 🎬 shorturl.at/z7VzU #epilepsy #neurology #podcast

The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were: - Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and; - The Sacrifices & Benefits of a Hemispherectomy”. Check them out here 👇🏻! youtu.be/u6Sjsh5TuDo

😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻 🎙️ Podcast shorturl.at/5entK 🎬 YouTube shorturl.at/ghltc

Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹! And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand! #epilepsy #neurology #IEC2025

Meeting in person really makes a difference! 😀 I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran 🤩 🇮🇪 face to face for the first time! 😀😀 Along with upcoming guest Claire Behan 🇮🇪! All the at International Epilepsy Congress in Lisbon 🇵🇹! #IEC2025 #epilepsy

Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights! Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment! Watch here 🎬 youtu.be/hyLxVtc6ud8

🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more! #epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology

Lisbon icons - at sunset! 🌅: 🏰 Castelo de São Jorge 🗽 The Cristo Rei statue 🌉 The Ponte 25 de Abril suspension bridge 🌅 Lovely sunset #lisbon #castle #portugal

Gorgeous, utterly fresh seafood 🐟🐙 in Lisbon! Fish doesn’t smell fishy - because it’s FRESH! #lisbon #seafood #Portugal #foodlover #foodgasm #fish

Day 2 at the International Epilepsy Congress in Lisbon! Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki! Join us!! #epilepsy #iec2025

👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!” Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)! #epilepsy

🥳 Reetta Kalviainen led the fab session about Epilepsy Experience Experts/Consultants and how researchers can and should work with them! Great questions and conversation had between Reetta, Jacqueline, Eli Cripps, I, & the audience at the International Epilepsy Congress in Lisbon! #IEC2025 #epilepsy

Thank you so much to João Ferreira & Miguel França for a brilliant NEUROSENSE EU summit in Porto 🇵🇹! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sándor Beniczky, Jose Angel Aibar, and Prof. Torbjörn Tomson. #epilepsy #sudep

Join us today in Porto 🇵🇹 at the NEUROSENSE EU summit where we hear all about the project, our results so far, and the potential to predict and help prevent #SUDEP! #epilepsy #neurotech #neurology

🎙️ Just released a new Epilepsy Sparks episode: “They Aren’t FAKE! Non-Epileptic Events” with Dr Parthvi Ravat 🤩 - a brill chat about #FND & #DissociativeSeizures / #NonEpilepticEvents, and the overlap with #epilepsy! Real symptoms. Real science. Real hope. 👇🏻 🎧 shorturl.at/iiRc1 🎬 shorturl.at/dzczm

Exciting Announcement‼️ Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩 ⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩 📅 May 6-8, 2026, in Køge, Denmark 🇩🇰 #DICE2026 @torierobinson.bsky.social

The fabulous neurologist Tissa Wijeratne and I at the #Helsinki - for the European Academy of Neurology conference 2025! Check out Tissa’s QR code for the World Federation of Neurology 👇🏻! #ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain

Descending into #Helsinki - for the European Academy of Neurology conference 2025! #ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia

See you soon #Helsinki 🇫🇮! Can’t wait to be at, speak at, and moderate at the European Academy of Neurology Congress! #epilepsy #ean2025 #neurology

Hear why neuroscientists 🧠🧑‍🔬 should be valued, globally 🗺️! Prof Helen Scharfman 🤩 explains to us her #epilepsy research using mossy cells and the potential understanding them further may bring to people with anepilepsy and #anxiety! 👇🏻 ▶️ YouTube youtu.be/KHBqEYT1ThY 🎙️ Podcast shorturl.at/e7XWY

🧑‍⚕️📺 For ~30 years, Dr. Zarine Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment! Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻! 📹 YouTube youtu.be/zHio3etPTt0 🎙️ Podcast shorturl.at/fDgYs

🚨 People with an #epilepsy face a much higher risk of #suicide—yet it’s rarely spoken of. Psychiatrist Prof. Andrea Cipriani joins us on Epilepsy Sparks Insights 🎙️ to explore why lived experience, neurology & #psychiatry must unite. 👇🏻 🎧 shorturl.at/Wh3RF 📹 youtu.be/J8P-irnBiQc ✍️ shorturl.at/Eh41T

So pleased to moderate the talk by star neurologist @rkalviainen.bsky.social 🤩 who was talking about rapid early seizure termination ( #REST) and the Finnish 🇫🇮 epilepsy care pathway model; inc collab of clinicians & patient orgs to improve care! #UCBEpilepsySummit2025 #neurology #epilepsy

🔊 He and his research group identified the very first gene 🧬 mutation ever associated with type of #epilepsy! Neurologist and scientist Prof. Sam Berkovic 🤩 - joins us on this week’s Epilepsy Sparks Insights podcast!! Join us via the links below! 👇🏻

Managing SUDEP risk - and it’s not just about medications! Tune in via these links for “How To Minimise SUDEP Risk” - with Dr Sanja Gluscevic! 👇🏻 🎙️ Podcast shorturl.at/VWF94 📹 YouTube youtu.be/KpFmXT8MZow ✍️ Show notes shorturl.at/XECuO #SUDEP #epilepsy #depression #anxiety #mooddisorder

#SUDEP - Sudden Unexpected Death in EPilepsy - who’d have thought we could be smiling when talking about it? Well, it’s because neurologist Sanja Gluscevic and I were talking about: 〰️ Minimising risk 〰️ Improving mental health 〰️ Improving Quality of Life! Watch/listen here! youtu.be/KpFmXT8MZow

This conf is for you if you’re interested in #neuroscience! We’ll have heaps of neuroscientists doing talks + people-mingling & games for inspiration - between laypersons, clinicians, & scientists. It’s the #BNA2025 conf (27 - 30 April)! Reg here👇🏻 meetings.bna.org.uk/bna2025 youtu.be/uXHs1mIqaFY

Podcast: one of the loveliest convos ever - & I found out Prof. Graeme Jackson 🇦🇺 had helped with my own care! We chat: 🧠 1 MRI to diagnose #epilepsy 💭 #Mentalhealth ⏳ 20+ yr waits for surgery 🌱 Real global change So hopeful. So human. 🥰 👇🏻 🎙️Podcast shorturl.at/daYnh 📹 YouTube shorturl.at/0rUcK