Addressing inequalities in access to epilepsy care! It’s the Epilepsy Sparks Insights podcast with Prof. Nicola Specchio 🤩🇮🇹 who speaks of: • delays to diagnosis • earlier interventions • improve standards • precision medicine, biomarkers & neuroimaging Watch here: youtu.be/eWXWNjL2FGw #epilepsy

New paper “Epilepsy and mental health disorders: current challenges and potential solutions”. “Seizure control alone doesn’t equal quality of life...” Writing about this isn’t easy when you draw on lived experience, but it’s worth it. 👇🏻 www.cambridge.org/core/journal... #epilepsy #mentalhealrth

🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?! Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻 🎬 youtu.be/rBpI_-daWjw

🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸! Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!

🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹! Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!

😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝. How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life. Watch here 👉🏻 shorturl.at/SJLxN #Epilepsy

Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re: 〰️ Metabolic epilepsies & the future 〰️ Patients we can’t yet help 😞 〰️ Advocacy, gene therapy, SUDEP & mental health Listen/watch, here 👇🏻! 🎙️ shorturl.at/LbjyF 🎬 shorturl.at/z7VzU #epilepsy #neurology #podcast

The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were: - Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and; - The Sacrifices & Benefits of a Hemispherectomy”. Check them out here 👇🏻! youtu.be/u6Sjsh5TuDo

😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻 🎙️ Podcast shorturl.at/5entK 🎬 YouTube shorturl.at/ghltc

Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹! And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand! #epilepsy #neurology #IEC2025

Meeting in person really makes a difference! 😀 I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran 🤩 🇮🇪 face to face for the first time! 😀😀 Along with upcoming guest Claire Behan 🇮🇪! All the at International Epilepsy Congress in Lisbon 🇵🇹! #IEC2025 #epilepsy

Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights! Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment! Watch here 🎬 youtu.be/hyLxVtc6ud8

🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more! #epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology

Lisbon icons - at sunset! 🌅: 🏰 Castelo de São Jorge 🗽 The Cristo Rei statue 🌉 The Ponte 25 de Abril suspension bridge 🌅 Lovely sunset #lisbon #castle #portugal

Gorgeous, utterly fresh seafood 🐟🐙 in Lisbon! Fish doesn’t smell fishy - because it’s FRESH! #lisbon #seafood #Portugal #foodlover #foodgasm #fish

Day 2 at the International Epilepsy Congress in Lisbon! Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki! Join us!! #epilepsy #iec2025

👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!” Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)! #epilepsy

🥳 Reetta Kalviainen led the fab session about Epilepsy Experience Experts/Consultants and how researchers can and should work with them! Great questions and conversation had between Reetta, Jacqueline, Eli Cripps, I, & the audience at the International Epilepsy Congress in Lisbon! #IEC2025 #epilepsy

Thank you so much to João Ferreira & Miguel França for a brilliant NEUROSENSE EU summit in Porto 🇵🇹! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sándor Beniczky, Jose Angel Aibar, and Prof. Torbjörn Tomson. #epilepsy #sudep

Join us today in Porto 🇵🇹 at the NEUROSENSE EU summit where we hear all about the project, our results so far, and the potential to predict and help prevent #SUDEP! #epilepsy #neurotech #neurology

🎙️ Just released a new Epilepsy Sparks episode: “They Aren’t FAKE! Non-Epileptic Events” with Dr Parthvi Ravat 🤩 - a brill chat about #FND & #DissociativeSeizures / #NonEpilepticEvents, and the overlap with #epilepsy! Real symptoms. Real science. Real hope. 👇🏻 🎧 shorturl.at/iiRc1 🎬 shorturl.at/dzczm

Exciting Announcement‼️ Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy 🤩 ⭐️ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" 🤩 📅 May 6-8, 2026, in Køge, Denmark 🇩🇰 #DICE2026 @torierobinson.bsky.social

The fabulous neurologist Tissa Wijeratne and I at the #Helsinki - for the European Academy of Neurology conference 2025! Check out Tissa’s QR code for the World Federation of Neurology 👇🏻! #ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain

Descending into #Helsinki - for the European Academy of Neurology conference 2025! #ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia

See you soon #Helsinki 🇫🇮! Can’t wait to be at, speak at, and moderate at the European Academy of Neurology Congress! #epilepsy #ean2025 #neurology

Hear why neuroscientists 🧠🧑‍🔬 should be valued, globally 🗺️! Prof Helen Scharfman 🤩 explains to us her #epilepsy research using mossy cells and the potential understanding them further may bring to people with anepilepsy and #anxiety! 👇🏻 ▶️ YouTube youtu.be/KHBqEYT1ThY 🎙️ Podcast shorturl.at/e7XWY

🧑‍⚕️📺 For ~30 years, Dr. Zarine Mogal 🤩 has been a force in epilepsy care & awareness in Pakistan 🇵🇰 - even using TV ads to fight stigma and encourage diagnoses & treatment! Zarine’s story is inspiring. Watch/listen/read her inspiring story 👇🏻! 📹 YouTube youtu.be/zHio3etPTt0 🎙️ Podcast shorturl.at/fDgYs

🚨 People with an #epilepsy face a much higher risk of #suicide—yet it’s rarely spoken of. Psychiatrist Prof. Andrea Cipriani joins us on Epilepsy Sparks Insights 🎙️ to explore why lived experience, neurology & #psychiatry must unite. 👇🏻 🎧 shorturl.at/Wh3RF 📹 youtu.be/J8P-irnBiQc ✍️ shorturl.at/Eh41T

So pleased to moderate the talk by star neurologist @rkalviainen.bsky.social 🤩 who was talking about rapid early seizure termination ( #REST) and the Finnish 🇫🇮 epilepsy care pathway model; inc collab of clinicians & patient orgs to improve care! #UCBEpilepsySummit2025 #neurology #epilepsy

🔊 He and his research group identified the very first gene 🧬 mutation ever associated with type of #epilepsy! Neurologist and scientist Prof. Sam Berkovic 🤩 - joins us on this week’s Epilepsy Sparks Insights podcast!! Join us via the links below! 👇🏻

Managing SUDEP risk - and it’s not just about medications! Tune in via these links for “How To Minimise SUDEP Risk” - with Dr Sanja Gluscevic! 👇🏻 🎙️ Podcast shorturl.at/VWF94 📹 YouTube youtu.be/KpFmXT8MZow ✍️ Show notes shorturl.at/XECuO #SUDEP #epilepsy #depression #anxiety #mooddisorder

#SUDEP - Sudden Unexpected Death in EPilepsy - who’d have thought we could be smiling when talking about it? Well, it’s because neurologist Sanja Gluscevic and I were talking about: 〰️ Minimising risk 〰️ Improving mental health 〰️ Improving Quality of Life! Watch/listen here! youtu.be/KpFmXT8MZow

This conf is for you if you’re interested in #neuroscience! We’ll have heaps of neuroscientists doing talks + people-mingling & games for inspiration - between laypersons, clinicians, & scientists. It’s the #BNA2025 conf (27 - 30 April)! Reg here👇🏻 meetings.bna.org.uk/bna2025 youtu.be/uXHs1mIqaFY

Podcast: one of the loveliest convos ever - & I found out Prof. Graeme Jackson 🇦🇺 had helped with my own care! We chat: 🧠 1 MRI to diagnose #epilepsy 💭 #Mentalhealth ⏳ 20+ yr waits for surgery 🌱 Real global change So hopeful. So human. 🥰 👇🏻 🎙️Podcast shorturl.at/daYnh 📹 YouTube shorturl.at/0rUcK

Join me in 4 weeks at the #BNA (British Neuroscience Association) conf 2025! Reg today for the standard ticket (price increases after 7th April)! People from all over 🗺️ welcome!! meetings.bna.org.uk/bna2025 There are social activities, some amazing speakers, posters, & more! #BNA2025 #neuroscience

Child neurologist Matthias De Wachter 🤩 and I are chatting on the podcast 🎙️ re the often-overlooked aspects of #epilepsy 😮! We explore: 🔹 Symptoms beyond seizures 🔹 Lifestyle impacts 🔹 Paediatric to adult care 🔹 Drug repurposing 🔹 Research on rare epilepsies Links in next post below 👇🏻!

We need to recognise that seizures are just one symptom of epileptogenesis. It’s crazy for anyone to think that such significant changes of a brain cause solely seizures.

I love Indian 🇮🇳 culture, so it was fab to chat with Dr. Bindu Menon! She’s tackling #epilepsy care in rural India, sharing: 💰 Barriers to treatment 📱 Her Epilepsy Help app 💪 Stigma & sexism for women Check it out👇 📹 Vid youtu.be/77R_M3HXsuc 🎙️Podcast shorturl.at/e1oaE 📖 Transcript shorturl.at/aBXZn

💜 New 🎙️ Episode! I speak with Dr. Simona Giorgi from Dravet Syndrome Foundation Spain about research, advocacy & the DANCE questionnaire - a tool to detect neuropsych challenges in #Dravet! 🧠💡 Listen/watch 👇🏻! 🎙️ Podcast shorturl.at/xqUlC 📹 YouTube shorturl.at/r5dVN #rareepilepsy #epilepsy

This #BrainAwarenessWeek we’re celebrating @ucl research in brain sciences, including shining a light on tackling the global challenge of neurodegenerative diseases. Explore our research stories to learn more buff.ly/U8VDAvs #UCLBrainSciences #BAW2025

It’s Brain Awareness Week! 🧠 Relating just a tad to #epilepsy and #mentalhealth! Learn more, here 👇🏻! www.epilepsysparks.com/march/brain-...

Within a couple of mins I knew this was the rare genetic #epilepsy #TSC! Anyone interested in medicine; check out this fab channel (@chubbyemu). youtu.be/UR3bM5qHBtY?...

I made it to 99 miles (target 50!) for Epilepsy Action! If you have a spare coupla quid it’d be amazing! Thank you for your support! Link: shorturl.at/Xf99g Thank you so much to everyone who has already donated - you know who you are! 💜 #epilepsy

Imagine laughing whilst talking about epilepsy and intellectual disability! 😁 Check out this week’s @epilepsysparks.bsky.social Insights podcast to hear how docs can work better with people with ID, how similar they are to those of us without(!) and how to think beyond seizure control! Links 👇🏻.

🎉 It’s our latest Epilepsy Sparks Insights podcast 🎙️ episode - with neuroscientist Tobias Engel 🤩 🇮🇪, whose ultra-cool #epilepsy research could transform how we approach #TraumaticBrainInjury injury outcomes! Links to podcast, video, transcription, and more about Tobias, below👇🏻! 1/2

It's #InternationalEpilepsyDay! For this, please check out a brief video interview I did with João Ferreira and Miguel França from the Neurosense project! We talk about #medtech for #epilepsy, epilepsy awareness, and Sudden Unexpected Death in Epilepsy! youtu.be/FD_lzEj9GNU?... #SUDEP

I owe so much to epilepsy research. When I was first diagnosed all those years ago there were only three anti-convulsives, and I was allergic to two of them: Dilantin and phenobarbital. And then to experience post-op seizure freedom so many years later is truly living the dream.

✨🧠 Cutting-Edge Epilepsy Research! 🧠✨ Trés cool!! Here’s what happens when you combine donated brain tissue 🧠🙏, an ultra-powerful 11.7 😱 Tesla MRI, and some of the brightest minds in neuroscience: groundbreaking insights into #epilepsy…! New podcast episode on Epilepsy Sparks Insights 🎙️ Links 👇🏻.

At the Centre for Global Epilepsy Launch!! With star lead @ox.ac.uk epileptologist Arjune Sen 🤩 and Pretola Global Health CEO Tolu Olaniyan 🤩!! #epilepsy

🔬 It's our new Podcast Episode: Exploring the Role of MMP-9 🧬 in #epilepsy 🧠⚡!! With neurobiologist Leszek Kaczmarek 🇵🇱🤩, we examine his groundbreaking research on MMP-9 🧬 - a critical enzyme involved in brain plasticity and its connection to seizure activity Links below👇🏻! #genetics #mmp9