It's a double-release! In this week's 2-part episode, hear from a mum of a son with a rare #epilepsy and a neurologist who helps improve the quality of life of families affected! With #Dravet Syndrome (and other epilepsies) there's so much more than seizures to consider! youtube.com/playlist?lis...

What could the global epilepsy community achieve if no country had to work alone? 🌍🤔 In this trailer 👇, Prof. Nicola Specchio 🤩🇮🇹 explains why evidence, training and advocacy must be shared to create a global minimum standard for epilepsy care! 💜 👉 shorturl.at/7WodS #epilepsy #globalhealth

That’s the question 👇! On the podcast today, Prof. Nicola Specchio shares the challenges currently faced re inequality of access to quality care and how he’s going to address it - in his new role as Chair of ILAE (International League Against Epilepsy) - Europe! Watch here 👇! 🎬 youtu.be/eWXWNjL2FGw

📖 Could clearer communication transform the epilepsy journey for families? 🌟 Great minds have poured their souls into new book - providing practical info about #epilepsy diagnoses, morbidities (e.g. #depression, #anxiety), cerebral palsy, & confidence! Watch here 👉 youtu.be/bHhtMfNxErw

Which parts of #epilepsy care are being overlooked? 🤔 Cheryl Tveit 🤩 🇺🇸 & Dr. Charbel El Kosseifi 🤩 🇺🇸 break down the journey, inc. first aid, driving, careers, morbidities (eg mental health), and how clear communication can transform outcomes! 👇 🎙️ Podcast shorturl.at/H5jEA 🎬 YouTube shorturl.at/FBZJ9

🤔 What happens when clear info about epilepsy finally reaches the those who need it most? 💡 We hear about a powerful new book 📖 for people with an #epilepsy, families, and even clinicians & educators! Think diagnosis, morbidities, quality of life! 👇🏻 youtu.be/bHhtMfNxErw @mackeithpress.bsky.social

👏 Congratulations to FutureNeuro Investigator Dr @dowlingjk.bsky.social at @rcsi.bsky.social awarded €791,428 by the @researchireland.ie Frontiers for the Future Programme to investigate Arginase-2 as a novel therapeutic target for epilepsy. Read more: futureneurocentre.ie/futureneuro-...

Epilepsy: what happens when the Blood-Brain Barrier (BBB) leaks?! 🩸🧠 Dr. Claire Behan 🤩🇮🇪 & Dr. Chris Greene 🤩🇮🇪 reveal fascinating insights into how issues with the BBB can lead to seizures and #epilepsy! Availalbe now on the Epilepsy Sparks Insights podcast! 👉 youtu.be/rBpI_-daWjw #neurology

How does the blood-brain barrier influence epilepsy? 🤔🧠 Join Dr. Claire Behan 🤩🇮🇪 & Dr. Chris Greene 🤩🇮🇪 on the podcast to hear all about it as they chat with Torie!👇 🎬 youtu.be/rBpI_-daWjw #epilepsyawareness #epilepsyresearch #bloodbrainbarrier #epilepsysurgery #epilepsyawarenessmonth

Great to see our researcher @chrisgreene.bsky.social & Dr Claire Behan discuss their latest research with @torierobinson.bsky.social on the @epilepsysparks.bsky.social Sparks podcast — exploring how blood-brain barrier dysfunction links to epilepsy & future therapies. 🎧 youtu.be/rBpI_-daWjw

“We have to protect one area of the brain & remove another.” - Dr. Ricardo Morcos 🤩 🇬🇧! A hopeful, very educational chat about the epilepsy surgery journey 🔪🧠 - clear, empowering, & informative! Watch the full episode here! 👇 youtu.be/QzIoLlRG1Lw #epilepsysurgery #epilepsy #neurosurgery

Approx. 30% of people with an epilepsy don’t respond well to meds – so what happens next? 🧠 On #Epilepsy Sparks Insights🎙️, Torie Robinson chats with Dr. Ricardo Morcos 🤩🇬🇧 about the #epilepsysurgery pathway – from EEGs & MRIs to MDT meetings & life after surgery! 👇 🎬 Watch here: youtu.be/QzIoLlRG1

🧑‍🤝‍🧑 Our fellow humans in prison ⛓️ - are not getting the epilepsy care or even the prescriptions they need - because they're in prison. This isn't only impacting quality of life but increasing risk of #SUDEP! Check out our trailer for this week's podcast here 👇! 🎬 YouTube shorturl.at/qNwkX #epilepsy

Who knew that #epilepsy was soooo much more common in prisons⛓️? Up to 4 times as many people in prison have an epilepsy compared to the regular public 🫨! Learn about why this is and what can be done to sort things out! 👇 🎙️ shorturl.at/sywif 🎬 shorturl.at/qNwkX #prisonhealth #neurology

❗️Are they just disregarded? Not valued? #Epilepsy is up to FOUR TIMES more common in prisons ⛓️. People are way more likely to have had Traumatic Brain Injury, have substance misuse, mental health illnesses and more. Check out this week’s episode all about it! 👉🏻 youtu.be/2yKOxliR1pY

Interactive, self-paced & global - the ILAE Academy is transforming clinician education in the epilepsies! 🎓 Hear from Prof. Gagandeep Singh 🤩 🇮🇳. 🎙️ Podcast shorturl.at/QdjMR 🎬 YouTube shorturl.at/4gvmM #EpilepsyEducation #ILAEAcademy #Neurology @ilae-epilepsy.bsky.social

How is the ILAE Academy reshaping epileptology training worldwide? 🌍 Hear from Prof. Gagandeep Singh 🤩 🇮🇳 on Torie’s show! 🎙️ Podcast shorturl.at/QdjMR 🎬 YouTube shorturl.at/4gvmM 📄 Show notes shorturl.at/c8SyD 👤 Gagandeep profile shorturl.at/48lSb @ilae-epilepsy.bsky.social @uclh.bsky.social

Snapshots of the fun mini docu about the International Epilepsy Congress in Lisbon 🇵🇹! All by Landis Weidner 🤩🇺🇸 - host of the What The EF podcast about the epilepsies! Check it out here: youtu.be/8jDWeFI_gAw?... #epilepsy #neurology #whattheef #seizures

What can it *really* be like to care for someone with an epilepsy? 🤔 Dr. Florien Boele 🤩🇳🇱🇬🇧 shares why carers’ wellbeing must not be overlooked - and how to take part in her research all about it! 👇 🎬 shorturl.at/7iv2e #EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch

Unpaid carers save the UK £184B a year - but at what cost to their health? 🤯 Dr. Florien Boele 🇳🇱🇬🇧 talks with Torie Robinson about quality of life, stress, & why carers matter. Check out the episode here 👇. 🎬 shorturl.at/7iv2e #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch

Who are carers really - and why do they matter so much in the epilepsies? 💜🤔 Dr. Florien Boele 🤩 🇳🇱🇬🇧 joins Torie Robinson to talk about unpaid carers & their £184B 😮 contribution…! 🎬 shorturl.at/7iv2e 🎙 shorturl.at/ttH16 #EpilepsySparks #EpilepsyAwareness #Carers #HealthResearch #EpilepsyResearch

New podcast episode! 📑 Dr Ewan Nurse 🤩🇦🇺 joins Torie to discuss his research re: 〰️ Missed seizures… 〰️ Flawed diaries 🤦‍♀️ 〰️ Improving reporting for better care 👊 Watch/listen/read the Epilepsy Sparks Insights episode 👇 🎙️ shorturl.at/BsOVW 🎬 shorturl.at/SJLxN 📄 shorturl.at/RK1vL #epilepsy #seizurediary

🔥 New Ep! 🔥 Harvard’s Dr Phillip Pearl 🤩🇺🇸 (Chief of Epilepsy at Boston Children’s Hospital & Prof at Harvard) on: ⚡ Why advocacy matters 🧬 Rare epilepsy & gene therapy 💜 SUDEP & mental health Catch it here 👇 🎙️ shorturl.at/LbjyF 🎬 shorturl.at/z7VzU 📄 shorturl.at/PDSag #Epilepsy #Neurology #SUDEP

🎬 Podcast trailer drop! Dr Phillip Pearl 🤩🇺🇸 shares the incredible story of Vitamin B6-dependent epilepsy 😱 - a rare condition where seizures can be treated with a vitamin 💊 - & how it opened the door to modern gene therapy! 👇 🎙️ Podcast mcdn.podbean.com/mf/web/fskua... 🎬 YouTube youtu.be/yJ31k_6xNNg

UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity (seizures) and impair hippocampal rhythms (memory). This new model may explain cognitive challenges beyond seizures and open avenues for better treatments. Read more: https://bit.ly/41O86BE

🧬 New Epilepsy Sparks Insights podcast! 🎧🎬 Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital & Harvard explains inherited metabolic epilepsies, Vitamin B6 dependency, & the future of gene therapy! Watch/listen/read, here 👇! 🎙️ Podcast mcdn.podbean.com/mf/web/fskua... 🎬 YouTube youtu.be/yJ31k_6xNNg

🌟 NEW PODCAST 🌟 Dr Phillip Pearl 🤩🇺🇸 explains inherited metabolic epilepsies(!), how they cause more than seizures, & how vitamin B6 💊 & diets 🥩 paved the way for gene therapy! Watch/listen/read here 👇! 🎙️ Podcast shorturl.at/5entK 🎬 YouTube shorturl.at/ghltc 📄 Show notes shorturl.at/nIFpn #epilepsy

The mighty @epilepsysparks.bsky.social Torie is up now! Talking patient education and seizure management, how to improve quality of life

Neurologist. Patient. Writer. Dr Jim Morrow 🇬🇧 shares his extraordinary story in our latest Epilepsy Sparks Insights podcast👇! 🎙️ Podcast youtu.be/T7P1-flyzpY 🎬 YouTube mcdn.podbean.com/mf/web/zihpz... 📄 Show notes www.torierobinson.com/epilepsy-spa... #Epilepsy #NeurologyPodcast #EpilepsyResearch

Challenge in #epilepsy care: supernatural beings like “demons” 👹 and “witches” 🧙+ 70 different languages!! See the trailer with paediatric neurologist Dr Yanin Rivera 🇲🇽 in today’s Epilepsy Sparks Insights trailer!! 👇🏻 🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x... 🎬 YouTube youtu.be/l7CWytytUoc

✨ New Epilepsy Sparks Insights 🎧! 👉 youtu.be/l7CWytytUoc Paediatric neurologist Dr Yanin Rivera 🇲🇽 shares how cultural beliefs, 93 Epilepsy Centres 😮 & telemedicine are transforming epilepsy care! 👇 🎬 YouTube youtu.be/l7CWytytUoc 🎙️ Podcast mcdn.podbean.com/mf/web/i7s8x... #epilepsy #mexico

🎬 Trailer! 🎬 Sexual health & epilepsy & our talk in Lisbon! With Drs Brad Kamitaki 🇺🇸 & Lucas Orellana 🇦🇷. For patients AND clinicians! Watch/listen/read, here!! 👇 🎬 YouTube youtu.be/sPS7r0yc2mI 🎙️ Podcast mcdn.podbean.com/mf/web/rdmpx... #Epilepsy #SexualHealth #ClinicianEducation

🚨 New Ep! 🚨 Sexual health & epilepsy – why it matters & how clinicians can talk about it. 💜 With Drs & Epileptologists Brad Kamitaki 🤩 🇺🇸 & Lucas Orellana 🤩🇦🇷. Watch/listen 👇! 🎬 YouTube youtu.be/sPS7r0yc2mI 🎙️ Podcast mcdn.podbean.com/mf/web/rdmpx... #EpilepsyAwareness #SexualHealth #Neurology

🎙️ New Episode: “Epilepsy & Suicide: Breaking the Silence” w/ clinical psychologist Milena Gandy 🤩🇦🇺 & epileptologist Heidi Munger Clary 🤩🇺🇸 Let’s talk patient-centred care & clinicians confident to talk about #mentalhealth & #suicide. 👇 🎬 youtu.be/zJuQvPkOt8U #epilepsy #IEC

📢 @epilepsyireland.bsky.social has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy. 🔗 Learn more and submit your Expression of Interest by September 26: www.epilepsy.ie/content/appl...

🎙️New episode! “They Aren’t FAKE! Non-Epileptic Events” w/ Dr Parthvi Ravat 💜 Real symptoms, real science, real hope. Watch/listen/read, right here! 👇 🎙️ Podcast shorturl.at/iiRc1 🎬 YouTube shorturl.at/dzczm 📄 Show notes shorturl.at/Xicyt #epilepsy #FND #PNES

🗣️ Have YOUR say about consciousness during seizures!! Takes 5 mins! Type in this link! www.surveymonkey.com/r/epilepsytalk

🤯 Migraine or seizure – or both? Dr. Lucas Orellana 🤩🇦🇷 joins us on Epilepsy Sparks Insights 🎙️🎬 to explore: ⚡ Why many have both #epilepsy & #migraine 🧬 Meds that help both, & key triggers 🧠 Why personalised care matters more than ever 👇👇 🎙️ Podcast: shorturl.at/kv4N2 🎬 YouTube: shorturl.at/710iW

🚨 New episode! 🎙️🎬 Could keyrings help in epilepsy emergencies?! 🧠🔑 Dr. Daniel Goldenholz’s 🤩 3D-printable keyrings provide seizure first aid info & raise awareness globally! Watch/listen here 👇! 🎙️ Podcast shorturl.at/GPt6b 🎬 YouTube shorturl.at/oFxCj #epilepsy #seizures #3Dprinting #safesteps

New pod! 🎧 “Flaccid? Dry? Disinterested? There’s Help!” w/ Epilepsy Specialist Nurse Jenny Edwards on sexual health & #epilepsy. Break the taboo! 🎙️ Podcast shorturl.at/egtLB 🎬 YouTube shorturl.at/HwE08 📄 Show notes shorturl.at/Ba8lA #EpilepsyNurse #ESN #Sexlife #Epilepsy

Mood, seizures, SUDEP, sex & more 💬 Epilepsy nurses Patty & Ludivine talk it all & why YOU should join the IEC 2025 Nursing Section in Lisbon! 🎉🧠 Listen via the “Epilepsy Sparks Insights” podcast!! #IEC2025 #EpilepsySparks #EpilepsyNurses #epilepsy @ilae-epilepsy.bsky.social

🎙️ New Epilepsy Sparks Insights podcast out! ESNs Ludivine Rohrer & Patty Shefer share how #epilepsy nurses support patients, families & clinicians. 💜 🎬 YouTube youtu.be/UllIuSQE_EI 🎙️ Podcast mcdn.podbean.com/mf/web/exua2... 📄 Show notes www.torierobinson.com/epilepsy-spa... #neurology

Meet the 2025 BRIDGE Summer Interns! These outstanding students are spending the summer immersed in epilepsy research and clinical work. Learn more about the 2025 interns: 🔗 buff.ly/TIPUHOD #EpilepsyResearch #BRIDGEInterns #FutureLeaders #AES2025 #EpilepsyAwareness

Do you say “awareness” or “consciousness” re seizures? Have your say in this short survey! 👇 Hear why it matters for patient care 💜 on the #Epilepsy Sparks Insights podcast 🎙️. Links here! 👇 🗒️Survey shorturl.at/71cKI 🎙️ Podcast shorturl.at/1GSee 📹 YouTube shorturl.at/LC7WL #neurology

🎬 New Epilepsy Sparks Insights trailer! “What is consciousness in seizures?” 🧠💥 YOUR input can improve #epilepsy care! 💜 Full episode and study 👇 🎙️ Podcast shorturl.at/1GSee 📹 YouTube shorturl.at/LC7WL ✍️ Show notes shorturl.at/P95KD 🗒️Survey shorturl.at/71cKI #EpilepsySparks

🎙️ New Epilepsy Sparks Insights podcast 👇! We chat with Scientist Helen Scharfman re #mossycells (of the temporal lobe), their role in #epilepsy & #anxiety, & a potential prevention!! 🧠⚡She also highlights PPI + global collaborations! 🌐 ▶️ YouTube youtu.be/KHBqEYT1ThY 🎙️ Podcast shorturl.at/e7XWY

It’s #NationalEpilepsyWeek! We are part of a group of other amazing #epilepsy organisations (listed below!) and together we work together to improve the lives of people affected by the epilepsy via education 📚, support 🤗, and research 🔬! Learn more about the epilepsies at www.epilepsysparks.com 💜

What do data, quality of life, & real patient voices have in common? Psych Andrea Cipriani joins us to talk: 🔹 GALENOS & #mentalhealth 🔹 Personalised psychiatry 🔹 Community care From evidence to empathy, it’s all here! 🎧 Tune in here 👇! 🎙️ Podcast shorturl.at/wmND5 📹 YouTube youtu.be/jO1UzzAc4U8

🌟 New episode! 🎙️ 📢 - #MentalHealth! Psychiatrist Prof Andrea Cipriani speaks of personalised psychiatry & how his project is using living data to revolutionise treatments for #depression, #anxiety, and #psychosis!! 👇 📹 YouTube youtu.be/jO1UzzAc4U8 🎙️ Podcast shorturl.at/wmND5 #epilepsy

🔊🗣️ We need more research 🔬 into psych disorders in people with an #epilepsy & a holistic approach to care. Prof Andrea Cipriani 🤩 of @ox.ac.uk calls for research, a biopsychosocial approach, & neuro & psych collab.👇 🎙️ shorturl.at/Wh3RF 📹 youtu.be/J8P-irnBiQc #MentalHealthAwarenessMonth #suicide