Days 5 of being in indescribable pain, which indescribably, is hard to decribe because of it's indescribablity. Because it's an open wound, my mouth smells as though something has crawled into my maw and promptly died. #indescribablepain #pain #morepain #andyetmorepain #surgery #openwound

Me about every pain I've ever experienced - "Surely it can't get any worse than this!" Throat surgery - "Hold my beer..." It seriously feels as though my throat has been hacked with a serrated blade that's been held over the burning flames of Hades before being dipped in acid. #surgery #pain

I am so unbelievably bored with this life.

I can't say that I'm depressed but there's an overwhelming feeling of sadness that won't go away. I don't feel like I'm under a dark cloud. There's no feeling as though there's a vapid hole in my chest. No 'Big Black Dog' nestling down beside me. Just a deep deep sadness. #chronicillness #sadness

I felt quite offended when my bloods came back as "unremarkable." Not that I want it to be remarkable in a "you've got an incurable disease," way. But maybe they could have typed it as, "although unremarkable, her haemoglobins were very pleasant." #chronicillness #spooniesky #nicebloodyougotthere

Friends, I have borne witness to a miraculous event! Like a rainbow coloured Unicorn frolicking amidst the joy of playful fairies, like dragons taking to a sunburnt sky & like Kim Kardashian being fully clothed, I never thought such a thing existed. #chronicillness #mcas #spooniesky #allergies

Why do some people insist on working with members of the public when they have no people skills whatever? Trying to explain my symptoms and could this nurse look anymore bored? Biatch actually yawned half way through and then looked away like I was inconveniencing her by being ill!

MRI on Saturday but I can't help feeling what's the point? Whether they find something or not doesn't take away from the fact that my life is still 50 Shades of shit. A new diagnosis isn't going to eradicate the old conditions and the old conditions aren't going anywhere. So again, what's the point?

Yay! I've finally been discharged from the head & neck cancer pathway! But there's still lymphoid tissue on the posterior nasopharyngeal wall, tongue base and cobblestoning of the pharyngeal walls & a small area of cystic appearance at the interarytenoid space. Just awaiting my 2nd MRI. #spooniesky

'Issue 5' of my mock Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness #fibromyalgia #chronicillness #spooniesky #nocureforstupid

#mockmagazinecover #brainfog #unsolicitedadvice #chronicillness

"By now I was hunched over like a wizened old crone, the pain no longer allowing me to stand upright." *Originally titled "Adventures in Laundering." #chronicfatigue #chronicpain #spooniesky themighty.com/topic/chroni...

Oh the life of an invalid. It's 1:30 am & I'm literally stuck in bed. Left leg is on strike so I can't walk & my shoulders/neck/back have decided that they will not be used for their intended purposes. So here I lie, heat pad wrapped around neck contemplating my existence #chronicillness #spooniesky

Continuing my Horror book covers/posters, created to present REAL quotes that delve into the minds of those that perpetuate misinformation, pseudo psychology and quack diagnosis regarding the cause & potential cure for chronic illness. #chronicillness #spooniesky #ohthehorror

Starmer says targeting #disabilitybenefits is about fairnes but what's fair about forcing those with long-term health conditions into further poverty? PIP fraud was 0.2% compared to the estimated £60 million in underpayments caused by DWP and yet we, the chronically disabled, are being penalised.

"But it's hard to trust the Doctor paid to heal you when they seem more intent on causing you harm." #medicalgaslighting #anappleadaykeepsthedoctorawayifyouthrowithardenough moresleeppleaseblog.wordpress.com/2025/03/12/d...

So Temu Tory Keir Starmer, wants to cut #DisabilityBenefits for those who can't work. That's 'CAN'T' work, not 'won't' work. Cutting off people's only means of financial help, is not going to suddenly cure them of their long-term/life-long disabilities. As if life isn't hard or scary enough as it is

“I find myself incredibly #disabled & yet limited to only #FreshFood that can be prepared & eaten right away. It’s exhausting. Many days it’s impossible & I either don’t eat or have to rely on someone else to prepare my food for me": buff.ly/3XZoRHj by @Broadwaybabyto.bsky.social #MCAS #NEisVoid

"You don’t want to feed them, But they’re waiting to feed you. Don’t you understand? They won’t let you die; Who will starve for you then? It’s just one of those nights.": buff.ly/3S76zCP #ChronicPain #MentalHealth #steroids #painsomnia #poem

Dr investigating recent seizures - "And how long have you had mental health problems?" Me - "Always." Dr - "Well it could be..." Me giving the 'I dare you to say it's all in your head', death stare. Dr looking scared - "er...um...let's refer you back to neurology." Me - "yeah, let's. #chronicillness

Proof how our symptoms are dismissed and downplayed. I called 111, who in turn called the emergency services about my seizures. And this is what was sent to my doctor, who by the way, retired almost 2 years ago. #chronicillness #spooniesky #medicalgaslighting

Day 2 of tempers, tantrums & tremors. Told the EMT they were pissing me off because they kept talking over me & not TO me. Told the doctor to "not go there," when she tried to blame my pre-existing conditions & finally told them all to fuck off because they weren't being of any use. #chronicillness

Issue 3 of ridiculously misguided real-life quotes, and useless advice, on chronic pain and illness.

And so, there I lay, semi-clad as the blanket pooled around my waist, writhing under the gaze of the 2 men stood before me...okay, the 2 men where paramedics and I was alternating between Tonic and Myoclonic seizures. But still, imagine the possibilities...😜 #chronicillness #seizures #spooniesky

The second installment of my mock horror posters/book covers, showcasing ridiculously misguided real-life quotes on chronic pain and illness. Oh and some useful advice, like this next one. #chronicillness #chronicpain #fibromyalgia #nocureforstupid

Man flu is among us, or the plague or ebola, as they call it. The Womb-fruit is currently "close to death" & might "not make it." Meanwhile, I've fed th cat, cooked lunch, tidied, mopped. swept, wiped down, loaded & unloaded, folded, put away and all whilst also being ill and in pain #chronicillness

Stoopid Brainfog: No876 Me counting how many hours since I last fed the furball- "Monday, Tuesday Wednes......no..wait...what? No that's not counting."

I'm flabbergasted by the terrible articles & comments I've read regarding the causes & potential cures for illness. Seriously, my flabber is truly gasted! So I've used these quotes via mock up of horror books/posters entitled, "TWISTED TALES." I know, how original. All quotes are real.

As a child, I used to bash my head against the pillow repeatedly or turn my head from side to side in order to get to sleep.That all stopped when I became an adult & met my ex. He already found it weird that I would move my feet from side to side in a repetitive motion & rocking myself to sleep

Oh dear. It seems that the "Never Own A Disease" meme has offended some. A meme that's a parody of all those memes that give out unsolicited advice on how to cure chronic illnesses...posted on a page about chronic illness by a woman who is chronically ill with chronic illnessess.

This was a difficult one to write. "Nobody talks about the loss of everything that you’ve spent a huge portion of your life, pouring your heart into. Your hopes, your dreams, your plans for the future." moresleeppleaseblog.wordpress.com/2025/02/28/l...

That's right, ignore your illness, turn your back on your pain. Give your disabilities the middle finger. Send it to Coventry & never speak to it again, and soon, we will all be cured. Don't know why I didn't think of it before. #chronicillness/pain #disability #spooniesky

Today's mood...

It's been an arduous battle. One fraught with defeat and disappointment. But finally, he has conquered his mountain. Who knows what the future may bring. Today, the top of the door. Tomorrow, THE WORLD! Not sure why this pic looks like it was taken in Hades.

"It isn’t just about cleaning, it’s about loss. Not being able to tidy is a daily reminder of yet one more thing that’s been taken away." themighty.com/topic/chroni...

In 2024, a Conservative election candidate dismissed the social model of disability as “discredited” and “wokeness gone mad.” Now do those who used the term "woke," actually know what it means? Because I don't think it means what they think it means. moresleeppleaseblog.wordpress.com/2025/02/25/i...

Women's health had long been ignored and misunderstood in western medicine. My latest Substack is about greensickness and hysteria, both of which were ways of pathologizing women and girls who didn't behave as men thought they should. open.substack.com/pub/vulgarhi...

Ah, to be this cat. (He's a git) Always striving to reach his goal & never giving up, or giving in to the obstacles that surrounds him. (My furniture) Always hopeful, tenacious & determined, he finally reaches the summit of life (the boiler) and is victorious in defeating his enemy. (Me)

Scary stories for the chronically ill. Be afraid...Be very afraid... #chronicillness #spooniesky #Ireallydoneedtogetalife

It comes to something when even the postman is offering health advice. Had I tried exercising? (Holds hand to mouth & gasps in fake shock horror) Why no Mr Postman, I hadn't. But I get enough exercise when ducking and diving from unsolicited advice. It really is an exhausting workout #chronicillness

Writing prompt. The question,"What bores you?" The answer, "Me." "I mourned myself, hated life but more then that, I hated the person that I had become. Who was she? I no longer knew." #chronicillness #spooniesky #Iusedtobeme moresleeppleaseblog.wordpress.com/2025/02/22/me/

'Being in a shit ton of pain' and 'not being able to sleep', sold separately.

3 more conditions added to my list of 'what doesn't kill you, drives you insane'. Dysphagia, Dysphonia and Plantar Fasciiatis. My mum's response? "You're so greedy. Stop hogging all the illnesses and let other people have a chance." Considerate as always mum #Dysphagia #Dysphonia #PlantarFasciiatis

I'm sick sick. It's been well over a week & I'm still recovering from Mongolian swine Chupacabra flu virus, or whatever this thing is. I've not been able to speak for a week, much to the delight of the Womb-fruit and even the fur-ball has the sniffles. #chronicillness #sicksick #mysteryvirus

Sitting here laughing at my own foolishness. I suffer from Cybernetic Social Awkwardness. Ok, I made that up, but it explains perfectly how I feel on social media because whilst I'm am an extrovert in real life, online, I crumble like a crumbly thing that crumbles in a crumbling way #neurodivergent