I was initially a bit uneasy about the autistic Barbie doll having a fidget spinner because of the stereotypes and distasteful memes but now I find out that it ACTUALLY SPINS?? NEVER MIND IDGAF ABOUT STEREOTYPES IT FUCKING SPINS

hearing from sources that Amelia Bedelia has been arrested in connection with the water-pouring assault. "but it was ICE headquarters," she said

I’ve had consistent nasal congestion each night following my new med, prazosin, so I know it’s doing something but it’s NOT PREVENTING MY FUCKING PTSD NIGHTMARES I just had a long horrible one at 6 AM and woke up to a dissociative seizure (I think, I can’t really remember it) and can no longer sleep

It’s so funny to be like “this is when women were WOMEN”

I was mid mental breakdown tweeting on my private X/Twitter account when the entire site apparently had an outage so I’m here now

Anyone else with #OrthostaticHypotension on Prazosin? It’s contraindicated I know but it’s seemingly my last hope for getting my PTSD nightmares and therefore sleep under control. And my dysautonomia specialist said up to 4mg should be okay as long as it’s nighttime only use. #NEISVoid

I’ve been eating chocolate almost every day even though my MCAS reacts fairly significantly to it because I just can’t. I can’t give it up man. It’s chocolate. How could you

It’s weird to think about how an FND diagnosis is so invalidating and incorrect for so much of the communities I’m in like with ME/CFS but was so validating and a huge relief for me. Like yes it is in my head, I have a brain problem and it’s not my fault and I’m not imagining it

Twitter is making me irrationally angry today and I don’t want to flare again so trying to be more active here. How are my chronically ill friends (or non-friends)?

Hi guys how are you all? Today I'm loving going to the doctor and getting worse from travel alone

Also I can’t remember if I posted I got diagnosed with Small Fiber Neuropathy, it was confirmed via skin biopsy, very grateful to have better answers

Sorry for my sudden inactivity again I’ve been having a lot of dissociative episodes on a daily basis. Physical health has been up and down, my neurogenic orthostatic hypotension is improving with treatment, I started Mestinon in addition to the two other dysautonomia drugs which has helped a lot

Hi guys, things kinda suck right now but I’m alive, how are you all?

Feeling really dissociated and floaty and kind of hallucinating after eating my favorite brand of pickle flavored potato chips which I just discovered has citric acid in the ingredients

I’m so nauseous and brain fogged and weak. I thought I could handle going to the mall if I paced myself to two hours limit + use of electric wheelchair but I was already having a migraine and extreme tachycardia from anxiety by the time I got to the bus stop (at least I learned how to use the bus)

Content warning: mentions of sex trafficking, pedophilia, CSA Hi can we not do posts like this? Not only is it bad for screen readers due to the lack of alt text/censored text that screws up even my screen reader which can read images, it’s impossible to mute the post via word muting, so those 🧵

Does anyone have tips for using a bedpan without spilling when rolling off of it and/or tips for cleaning yourself afterwards? #ME/CFS #MECFS #NEISVoid

Bruh even breathing deeply makes my joints pop

I’ve had a migraine all day and now for some godforsaken reason I’m seriously craving apple pie. I can’t even have apples or cinnamon or high glycemic index foods like pie 

I hate scheduling so much I’m genuinely getting worse care because of it. I should talk to my doctor about my constant chest pain, but I’m pretty sure it’s benign, probably costochondritis, but I’ve been putting off scheduling sleep specialty, optometry, endodontist, etc. and IDK what to do first

It was uncomfortable but it went well. All just intake stuff this time. My mom actually let me talk for more than a couple minutes which was very surprising

Going to family counseling with my mom in about an hour, which I haven’t done in months, we’re starting with a new counselor, one that’s covered by insurance thank god. I’m hoping to eventually discuss my mom’s strong belief that my illnesses are all psychosomatic and caused by my dad. Wish me luck

Not saying who but I had a recent falling out with an online friend and I ended up crashing because of it. It feels so stupid to get that upset over someone who apparently never cared about me and I only knew online but they had a lot of my same conditions and I thought we connected over that. 1/

Made it through the dentist today. I think I’m gonna cry. My new dentist is so kind and caring and doesn’t gaslight me and is so gentle and I’m realizing just what a shitty dentist/endodontist my last one was. He botched a root canal, leaving a piece of metal in my tooth, and had the audacity to- 1/

Finally said fuck it and got a bedpan and had my caregiver/dad assist with it. Most uncomfortable experience of this week and it took forever for me to push past the mental barrier that I’m not on the toilet so it was super frustrating trying to get the stream going but I did it eventually thank god

Update: I’m now seemingly reacting to strawberries. Part of the exact same breakfast I have every single morning because I’m autistic and like it that way. FUCKING WHY

Good afternoon today my brain fog made me wrap up a used pantiliner/pad in toilet paper and attempt to throw it in the toilet. How are you all doing? #NEISVoid #ME/CFS

Think I discovered a new MCAS trigger and it’s lumpia AKA Filipino spring rolls AKA my favorite food ever. Aside from this graph I also feel like shit and can’t process anything. Yeah I’d like to die now (not serious). #NEISVoid #ME/CFS #MCAS

Just another ME-day #LongCovid, #ME/cfs

So tired can barely type. Realized a lot of my crashes lately are from me falling asleep midday without my CPAP on, sometimes I don’t even realize it. I wake up feeling like my blood is made of concrete and my muscles are gone #NEISVoid #MECFS

Update: I made it through finals okay, the crash ended earlier than expected and the extension was enough. Very happy I got it all done

How long does everyone’s Visible armband last? I got mine in January and it’s been falling apart the last month or so. The buckle/fastener on mine keeps getting caught on the velcro bit that’s lifted up in a weird way, making it hard to remove #visiblearmband #visiblepacing #ME/CFS #MECFS #NEISVoid

I hate this condition so much I can barely think anymore and I have finals due tomorrow around noon. I’m so light sensitive and sound sensitive there’s no way I’m opening my laptop to do them right now. My accommodations don’t allow past 2 days of extensions on assignments and this crash will take 7

I’ve been crying on and off for hours because I think I’ve finally decided I’m not enrolling for classes this summer. My ME/CFS has gotten that bad. I’m upset because this feels like the end of my education and I failed to get my high school diploma even with 4 extra years to do so #MECFS #NEISVoid

Noted: ICE agents can be warded off with black bear self defense techniques

I was going to make a more elaborate post but I’m literally too tired sorry

Happy pride month

I’m 21 today! It’s gonna be a hard birthday this year now that my ME/CFS is possibly the worst it’s ever been, but I’m hopefully going to a cat cafe today which should be nice #MECFS #NEISVoid

Happy Mother’s Day stress was so bad my Fitbit finally did the thing I bought it for #NEISVoid #MECFS

I tried recording a video for my chronic illness YouTube channel, but I lost my words so bad due to Aphasia from my migraine and/or dissociation That it took me two minutes to finish the first two sentences, and I gave up 🫠

Tried using my electric wheelchair today to go back to in person college classes And I feel so accomplished! Unfortunately, my heart rate was spiking the whole time because I was anxious. So I have a killer migraine right now. I’m still so happy I got to go out though. #NEISVoid #MECFS 

Day 3 Valtrex/valacyclovir for ME/CFS: so far no side effects but no benefit either. Only on 500mg daily right now though. Taking a cautious approach the first week especially since I suspect my kidneys wouldn’t like the full 1g right away #NEISVoid #MECFS

Officially starting Valtrex/valacyclovir for my ME/CFS. I have no idea what to expect aside from one person in a documentary saying that antivirals helped her immensely for a very short time. Kinda nervous. Wish me luck 🍀 #MECFS #myalgicencephalomyelitis #chronicfatiguesyndrome

I love this bird pic I took for my photography class a while back. I presented it and we all had a good laugh at it

CW // NSFW If God as the Bible defines Him is real why the fuck did He give me a high libido and ME/CFS at the same time? Am I just that one character in the Sims that He decided to torture just for fun? “Raspberry why are you crashing today?” “I was jorkin it last night” LIKE BITCH I CAN’T SAY THAT

I finally got my electric wheelchair!!! #NEISVoid #MECFS #ChronicFatigue 

A shitty poem, by me. In the bathroom, I am sitting On the toilet, I am shitting. Vagus nerve gets stimulated When I am constipated. Now I am lightheaded Standing up post-shit is dreaded. So 30 minutes I must wait On this fucking throne I hate. #ibs #NEISVoid #mecfs

where is groudon

Update: hahaha I’m so screwed. Had fun though

Oh my god shut up I haven’t even gone out yet