As Christmas approaches, we are reminded hope can come in many forms. For some, choosing to donate your brain for dementia research can be a deeply meaningful final gift. The UK Brain Bank Network offers information about what brain donation involves ukbbn.brainsfordementiaresearch.org/public/en/

Many thanks to the Belfast branch of Soroptimist International for their generous donation of £1,062. Their president Emily Wilson BEM is a supporter of the Lewy Body Society as her husband had Lewy body dementia. #ThankYouThursday #Lewybodydementia #dementia @soroptimistbelfast

Are you a paid or unpaid carer? Researchers need your help. #Dementiacarers #Lewybodydementia #dementiareseach

People in London, fancy something new for the New Year? Free singing and songwriting sessions for people living with dementia and their carers from Turtle Song. Find out more: [email protected] #Lewybodydementia #turtlesong #dementia

Our Christmas cards sold out in record time this year - thank you for your support! You can still grab some of our very talented founder Ashley's artwork inour 2026 Calendar still available in our online shop: www.lewybody.org/product/2026-lewy-body-society-calendar-includes-pp/ #Lewybodydementia

Just 3000 miles of the Atlantic between Tom Skinner and the next time he will step on dry land... This extraordinary feat is to raise funds for the Lewy Body Society: www.givewheel.com/fundraising/6509/solo-atlantic-row/ Calm seas, Tom! #worldstoughestrow #lewybodydementia #dementiaawareness

2026 is going to be HUGE. We will be setting the bar high from the very beginning at THE Reform Club! 🌍 World Lewy Body Day 🗓 Wed 28 Jan 2026 | 🕕 6-8pm 📍 The Reform Club, Pall Mall, London 🎟 Tickets available here: www.eventbrite.co.uk/e/world-lewy... #WorldLewyBodyDay #LewyBodySociety #London

AAIC Neuroscience Next 2026 is live! 🧠 Global hybrid conference 📍 Manchester Hub: 26 Feb 🎓 Abstract deadline: 22 Oct (ISTAART: 26 Oct) 🎟️ Free to attend Submit your work, nominate mentors, and join the conversation. #AAICNeuro #NeuroscienceNext #DementiaResearch #Biomarkers #ECRsUnite Register 👇

People who have Lewy body dementia in their lives can be under pressures others cannot comprehend - they are also some of the most resilient people in the world too. How do you take care of your mental health? What are you doing/not doing to help you cope? #WorldMentalHealthDay #Lewybodydementia

🧠 Not all dementias are the same. 🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s. 👉 Learn more: www.lewybody.org #LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters

People with dementia, MS, MND & carer’s. Have you had a social care needs assessment & can you help us with important research about these please? 🙏 contact details on poster @denpru-qm.bsky.social @age-uk.bsky.social @alzheimerssoc.bsky.social @mssocietyuk.bsky.social @lewybodysociety.bsky.social

The Dementia Explorer, the world's first dementia boardgame to help children understand more about the disease 1 in 3 people born today can expect to develop in their lifetime. Proudly co-produced with @liverpooluni.bsky.social Exclusively available: www.lewybody.org/shop/ #Dementia #innovation

NEW @arcnwc.bsky.social #CommunityOfPractice event: #SocialCare in #Dementia Including: - Lived experience - A Dementia care navigator perspective @merseycarenhs.bsky.social - Latest social care and dementia research 📅 Tuesday 16th October 2-3.30pm (Online) Register here: tinyurl.com/t4cedtc4

Lewy body dementia isn't like other dementias, and because of that it can get missed as a diagnosis. If you think you or a loved one might have some or all of these symptoms, please go to your GP. ☎️ Admiral dementia nurses: 0800 888 6678. #lewybodydementia #dementia #dementiasymptoms

One week to go until the #GreatNorthRun. This new banner and I will be on the Camden St bridge cheering on Team @lewybodysociety.bsky.social and everyone else.

💥 For a small charity, we make a BIG impact - and we are making a bigger one every year! With Lewy body dementia so misunderstood, no wonder families are turning to us for help. #Lewybodydementia #Dementiasupport #Dementia

Board meetings with @lewybodysociety.bsky.social are always invigorating. Exciting plans coming for 2026…

We are delighted Emma Cunniffe has agreed to become a Lewy Body Society ambassador. Welcome aboard, Emma! #Lewybodydementia #Dementia #Ambassador

Great to see our Special Advisory Committee member Anto P Rajkumar Rajamani, Clinical Associate Professor in old age psychiatry at the University of Nottingham, at Alzheimer's Association International Conference 2025 in Toronto #AAIC #AAIC2025 #Dementia #Lewybodydementia

Booth 1046💙

We are ready to go at #AAIC2025 Booth 1046 #Lewybody #AwarenessMatters 💙

@lewybodysociety.bsky.social #LewyBody#AwarenessWeek

@lewybodysociety.bsky.social #LewyBodyAwarenessWeek From #AAIC2023

@amrc-uk.bsky.social charities - of which we are one - are major contributors to UK medical research, investing in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers www.amrc.org.uk/2025-our-sectors-footprint #CharityImpact #lewybodydementia

It is Lewy Body Awareness Week! And we have big news: www.lewybody.org/lewy-body-aw... #LewyBodyAwarenessWeek #Lewybodydementia #Dementia

Lewy Body Society are one of the charity supporters of Carers Week. We asked them why Caring about Equality matters to them @lewybodysociety.bsky.social

Northern Ireland's Deputy First Minister Emma Little Pengelly with our ambassador, Les Magee, who was representing the Lewy Body Society at the Carers Week event at Stormont earlier this week. We are proud to be a partner organisation of Carers Week. #CarersWeek #NorthernIreland #dementiacarers

This Carers Week, Lewy Body Society ambassador Karen Young shares her experience of becoming a carer for her husband Alan, a former chartered civil engineer. We think her thoughts will resonate with a lot of people. #CarersWeek #dementiacarers #lewybodydementia @carers-week.bsky.social

Today is the first day of Carers Week 2025. As the only dementia charity officially part of Carers Week, we are delighted Lewy Body Society supporter Paul Stone has shared his story as a carer in the Carers Week report 2025: Caring About Equality. #CarersWeek #DementiaCarers #Lewybodydementia

Delighted article co-authored by our chief exec Jacqui Cannon on Challenges of dementia care in the UK, published in the @bmj.com Editorials. www.bmj.com/content/389/... #Lewybodydementia #dementia

The ‪‪@liverpooluni.bsky.social‬ is conducting a research project looking at the general public's knowledge and awareness of dementia subtypes. Start the survey: lancasteruni.eu.qualtrics.com/jfe/form/SV_... Queries? Contact [email protected] #Dementiaresearch #lewybodydementia #dementia

Thank you to all the amazing bakers of the Dementia Research Group at the Institute of Population Health at @liverpooluni.bsky.social yesterday. 🎂🍰🧁🥮 They raised £477 for Lewy Body Society and our friends at Dementia UK for Dementia Action Week. #dementiaactionweek #lewybodydementia #liverpool

It is Dementia Action Week! We are pleading with the government and the NHS to take action and not to let Lewy body dementia continue being the “forgotten dementia”. They must prioritise early AND accurate diagnosis for ALL dementias. #lewybodydementia #DAW2025 #DementiaActionWeek

This Mental Health Awareness Week is all about celebrating community, and how it supports our mental health and wellbeing. We are the Lewy body community, we couldn't think of better people to be with. #MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia

This message was left by Lindsay, a daughter who cared for her mum while she had Lewy body dementia, after she signed our Lewy List petition. Please join Lindsay in adding your name to our Lewy List: www.change.org/p/sign-the-lewy-list #dementiacarers #Lewybodydementia

I know we have people on here who have strong feelings about social care needs assessments. Please do get in touch with [email protected] or [email protected] #dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social

What a gorgeous day to be at the EquaDem Network Plus Annual Conference in Liverpool today! #Equadem #lewybodydementia #dementia #Liverpool

Proud to have funded this vital research into Lewy body dementia by @drrachaellawson.bsky.social. #Lewybodydementia #dementiaresearch

Phew! That was a scorcher! Well done to Charlotte Hewitt-Dedman and all our other runners for taking part in such challenging conditions and raising more than £10,000 for vital Lewy body dementia research. #Lewybodydementia #LondonMarathon2025

Well done! We are so proud of you and thank you to everyone who has sponsored you. Without donations, we could not continue our vital work. #Lewybodydementia #LondonMarathon2025

Good luck to Charlotte Hewitt-Dedman, Tara Adams, Julian Searle, George Henry and Ben Brookshaw all running the TCS London Marathon for Lewy Body Society on Sunday. #LondonMarathon2025 #Lewybodydementia Sponsor here: 2025tcslondonmarathon.enthuse.com/pf/charlotte...

Very proud to have been nominated as Charity of the Year in the Wigan Borough Business Awards! #Wigan #CharityoftheYear

What a woman! Wendy Cordier, who only learned front crawl last summer, will be swimming 2km in the Arctic Circle to raise money for the Lewy Body Society. Read more about her year of open-water swimming fundraising. #lewybodydementia #openwaterswimming #coldwaterswimming

With just over two weeks to go, our official London Marathon runner Charlotte Hewitt-Dedman is tapering down towards the big day but the fundraising efforts are still going full throttle. Let's try and get her over the line! #LondonMarathon2025 #Lewybodydementia

📣 The earnings limit for Carer’s Allowance increased yesterday 📣 You can earn £45 more a week without losing your entitlement. You may also be able to claim for the first time if your earnings are below the new limit. More information from @carers-uk.bsky.social: www.carersuk.org/help-and-adv...

🎨 The 2025 Dementia Community National Art Competition is open! 🖼️ We invite people living w/ #dementia & carers to submit paintings, drawings or sketches: buff.ly/zWu7hSz 🎟️Tickets for the Creative Dementia Conference (3/6, 2025, Bristol): buff.ly/PHcYzKN

Congratulations to Drs Clarissa Giebel, Kerry Hanna and Hilary Tetlow for being shortlisted in @liverpooluni.bsky.social Staff Awards and Innovation of the Year for the #DementiaInequalitiesGame co-produced with @lewybodysociety.bsky.social. 👏 Now available: www.lewybody.org/product/deme...

April is #StressAwarenessMonth. Caring for a loved one with #Lewybodydementia can be one of the hardest things you will ever do. You may feel you never get a moment or enough sleep. Ensure you take care of yourself too - even when it seems impossible. www.lewybody.org/information-...