🗞️📰 We at TSF have some BIG news to share… www.pcori.org/research-res...

We don’t let our diagnoses stop us from doing what we love - DANCING! 💃🏽🕺🏼 Happy #NMOSD & #MOGAD awareness months

#MedSky Vaccines play a crucial role in protecting immunocompromised patients & help prevent the spread of diseases. Join us on March 25th for a discussion led by Dr. @esotirchos.bsky.social To register, visit us02web.zoom.us/webinar/regi...

Reunited with my Saudi brothers & collaborators, @drsaljarallah.bsky.social and Dr. Ahmad AlMutlaq. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍 #INIC25

阖家平安，巳巳如意。蛇🐍年兴旺，幸福绵长！🧧 🇨🇳❣️#lunarnewyear #springfestival

#NeuroSky / #MedSky - follow @neurotutto.bsky.social from Roma 🇮🇹! Dr. Raffaele Iorio is a neurologist with great expertise in autoimmune neurological diseases including #NMOSD, #MOGAD, #myastheniagravis and more. Welcome Raffaele! 🦋

“Like many with illnesses, I mourned the life I knew, my abilities and my body. After years of struggle with #NMOSD and now in remission, I am dancing again—differently but miraculously. Never give up, believe in yourself—endless possibilities await.” - Sumaira #TSF_moveforNMOG

🌎 How common is #MOGAD worldwide? This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄 For more research summaries, visit www.sumairafoundation.org/research-summaries

TSF is pleased to welcome Dr. Eoin Flanagan from Mayo Clinic to join TSF’s international Medical Advisory Board. He has expertise in #AE, myelitis, #MS, #NMOSD, #MOGAD & paraneoplastic neurologic disorders. To learn more about Dr. Flanagan: www.sumairafoundation.org/welcome-dr-e... #NeuroSky

#NeuroSky / #MedSky - please join me in welcoming 🇧🇪 @drbwillekens.bsky.social, neurologist and researcher passionate about #MS and CNS rare neuroimmunological disorders from the Antwerp University Hospital! Welcome to Bluesky, Barbie 🩷🦋

Beautiful artwork from the children of TSF Italia (and Elia Sechi 😝) from our Patient Day in Verona! 🇮🇹🌺🖍️ #NMOSD #MOGAD

What a great day organized today in Verona by @saramariotto.bsky.social ! All about central and peripheral nervous system autoimmunity! Learned so much! eolocongressi.it/wp-content/u...

🇮🇹 🌺 Il 2° Giornata per pazienti dedicata a #NMOSD e #MOGAD a Verona di TSF Italia è in corso 🩷🧡💛

T 💚 S 🤍 F ❤️

What a gift to work with people you love 💗 congratulations @saramariotto.bsky.social on another successful meeting! 🧪 🇮🇹 🧬 🧫 #NeuroSky #NMOSD #MOGAD

#NeuroSky / #MedSky follow @amykunchok.bsky.social; she has entered the chat! Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on #NMOSD and #MOGAD. I also did my first CME with Amy 🤗 Welcome to Bluesky, Amy! 🦋

We’re thrilled to be in📍 Verona, Italy 🇮🇹 for the Update on Neuroimmunological Disorders meeting organized by @saramariotto.bsky.social & Dr. Sergio Ferrrari! As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽 #NeuroSky

Sumaira's 10-year journey living with #NMOSD is featured in @iheartradio.bsky.social's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira. Check it out: podcasts.apple.com/us/podcast/c... #NeuroSky #neuromyelitisoptica

🏃🏿‍♀️ This #Thanksgiving, we're spotlighting Marion, #NMOSD patient, TSF Ambassador of Illinois, marathoner & believer. Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let #NMO defeat her: sumairafoundation.org/one-diagnosi... #NeuroSky

Leaving Paris feeling proud of @thesumairafdn.bsky.social France 🇫🇷 for organizing another impactful weekend for the #NMOSD / #MOGAD community. Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾 May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛

#MedSky / #NeuroSky, follow @drsaljarallah.bsky.social ! 🇸🇦Dr. Aljarallah is a neuroimmunologist (trained at Hopkins) + an Assistant Professor at King Saud University in Riyadh in the Kingdom of Saudi Arabia focused on #NMOSD, #MOGAD, #AE, #MS & other rare neuroimmune conditions. مرحبا سلمان! 🙌🏽

#MedSky / #NeuroSky, follow @antojm.bsky.social ! 🇫🇷Antony is the Head of Association Management (Congrex) & #ECTRIMS Executive Manager. ECTRIMS is the largest global annual meeting dedicated to #MS, #NMOSD, #MOGAD & other demyelinating conditions. See you in Barcelona 🇪🇸 September 24-26, 2025 🧠

#MedSky / #NeuroSky, follow @saramariotto.bsky.social! 🇮🇹Dr. Sara Mariotto is an internationally-recognized neuroimmunologist + researcher, leading the most prominent research lab in Italy dedicated to diagnosing #NMOSD, #MOGAD, #AE & other rare neuroimmune disorders at the University of Verona 🧪 🧫 🥼

#MedSky / #NeuroSky, follow @marignierro.bsky.social! 🇫🇷Prof. Marignier is a globally-recognized neuroimmunologist, specializing in #MOGAD & #NMOSD, and head of the French adult referral center for rare inflammatory diseases of the spinal cord & brain 🧠 Welcome to the bright (and right) side, Romain!

🌺 Merci à tous ceux qui ont soutenu et participé au 2ème week-end des patients et aidants de la #NMOSD & de la #MOGAD à Paris. Ce fut un week-end magnifique, marquantet émouvant, d'apprentissage et de connexion. A l'année prochaine à Lyon !

I’m so happy to find you on here! I’ve followed your story since my own diagnosis in January. ♥️

Time to strike the label “Lupus Myelitis” … Forever ✅ What say you, #MedSky #RheumSky #NeuroSky? 🧠🎙️ Neurology Podcast: Dr. @esotirchos.bsky.social discusses the underlying etiologies of myelitis in patients with rheumatologic disease. Listen now: bit.ly/48VRPwC

It's great to be on #Bluesky. We're The Sumaira Foundation aka TSF🌺 dedicated to #NMOSD, #MOGAD and related conditions. We raise awareness, build community, support research/fellowships/publications and advocate on behalf of patients. Looking forward to illuminating our diseases with you all!

Ever wonder how to set your home assistant (Alexa, Echo, etc) or car to automatically play the Neurology Podcast 🧠🎙️or the Neurology Minute Daily Briefing 🧠⏱️? Wonder no more 👇 Practical, Useful, Relevant - and what you learn may just save a patient’s life 🧪🩺💊❤️ youtu.be/sH8jmp0dt6M?...

We need the science-medicine-patient communicators/liaisons to complete the translational science circle - Essential! 🧬 💃🏻🕺🏼👩🏽‍🦼‍➡️👨‍🦼🏃🏽‍♀️‍➡️🪢

Hi #MedSky / #NeuroSky! 👋🏾 My name is Sumaira and I have been living with #NMOSD / #neuromyelitisoptica for 10 years. I started The Sumaira Foundation (TSF) 2 months after my DX & really excited to connect and collaborate with while learning from experts around the world on this platform! 🌏 🌎 🌍

#Medsky It must be official - Patient Advocate Extraordinaire @sumairaflower.bsky.social is here… Bring the Patients to this better place, Sumaira - Make it so! ❤️🧠💪 #Neurology #NMOSD #MOGAD