Sumaira 🤍
@sumairaflower.bsky.social
📤 247
📥 34
📝 21
🌺 Founder of The Sumaira Foundation (TSF)👸🏽 Miss Bangladesh-USA 2015 🇧🇩 views are my own
reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
10 months ago
🗞️📰 We at TSF have some BIG news to share…
www.pcori.org/research-res...
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A Comparative Clinical Effectiveness Trial of Rituximab versus Ravulizumab, Inebilizumab, Satralizumab and Eculizumab To Prevent Relapses in Neuromyelitis Optica Spectrum Disorder
https://www.pcori.org/research-results/2025/immunotherapies-prevent-relapse-neuromyelitis-optica-spectrum-disorder
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We don’t let our diagnoses stop us from doing what we love - DANCING! 💃🏽🕺🏼 Happy
#NMOSD
&
#MOGAD
awareness months
add a skeleton here at some point
11 months ago
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
11 months ago
#MedSky
Vaccines play a crucial role in protecting immunocompromised patients & help prevent the spread of diseases. Join us on March 25th for a discussion led by Dr.
@esotirchos.bsky.social
To register, visit
us02web.zoom.us/webinar/regi...
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Welcome! You are invited to join a webinar: Immunizations for the Immunocompromised. After registering, you will receive a confirmation email about joining the webinar.
Vaccines play a crucial role in protecting immunocompromised patients, as their weakened immune systems make them more vulnerable to infections. Vaccines also help prevent the spread of contagious dis...
https://us02web.zoom.us/webinar/register/WN_YBRveNnWQ3qL1IFyDnx0XA
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Reunited with my Saudi brothers & collaborators,
@drsaljarallah.bsky.social
and Dr. Ahmad AlMutlaq. Excited for all of what we will achieve in KSA & beyond! 🇸🇦🌍
#INIC25
12 months ago
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
阖家平安,巳巳如意。蛇🐍年兴旺,幸福绵长!🧧 🇨🇳❣️#lunarnewyear
#springfestival
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#NeuroSky
/
#MedSky
- follow
@neurotutto.bsky.social
from Roma 🇮🇹! Dr. Raffaele Iorio is a neurologist with great expertise in autoimmune neurological diseases including
#NMOSD
,
#MOGAD
,
#myastheniagravis
and more. Welcome Raffaele! 🦋
about 1 year ago
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
“Like many with illnesses, I mourned the life I knew, my abilities and my body. After years of struggle with
#NMOSD
and now in remission, I am dancing again—differently but miraculously. Never give up, believe in yourself—endless possibilities await.” - Sumaira
#TSF_moveforNMOG
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
🌎 How common is
#MOGAD
worldwide? This study in evaluated prior medical literature to determine how commonly MOGAD occurs and how widespread it is worldwide 🦄 For more research summaries, visit
www.sumairafoundation.org/research-summaries
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
TSF is pleased to welcome Dr. Eoin Flanagan from Mayo Clinic to join TSF’s international Medical Advisory Board. He has expertise in
#AE
, myelitis,
#MS
,
#NMOSD
,
#MOGAD
& paraneoplastic neurologic disorders. To learn more about Dr. Flanagan:
www.sumairafoundation.org/welcome-dr-e...
#NeuroSky
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#NeuroSky
/
#MedSky
- please join me in welcoming 🇧🇪
@drbwillekens.bsky.social
, neurologist and researcher passionate about
#MS
and CNS rare neuroimmunological disorders from the Antwerp University Hospital! Welcome to Bluesky, Barbie 🩷🦋
about 1 year ago
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Beautiful artwork from the children of TSF Italia (and Elia Sechi 😝) from our Patient Day in Verona! 🇮🇹🌺🖍️
#NMOSD
#MOGAD
about 1 year ago
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reposted by
Sumaira 🤍
Anastasia Zekeridou
about 1 year ago
What a great day organized today in Verona by
@saramariotto.bsky.social
! All about central and peripheral nervous system autoimmunity! Learned so much!
eolocongressi.it/wp-content/u...
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https://eolocongressi.it/wp-content/uploads/2024/10/Dep-Update_Neuroimmunological-Verona-dic24-WEB.pdf
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
🇮🇹 🌺 Il 2° Giornata per pazienti dedicata a
#NMOSD
e
#MOGAD
a Verona di TSF Italia è in corso 🩷🧡💛
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
T 💚 S 🤍 F ❤️
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What a gift to work with people you love 💗 congratulations
@saramariotto.bsky.social
on another successful meeting! 🧪 🇮🇹 🧬 🧫
#NeuroSky
#NMOSD
#MOGAD
about 1 year ago
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#NeuroSky
/
#MedSky
follow
@amykunchok.bsky.social
; she has entered the chat! Dr. Kunchok is a neuroimmunologist at the Cleveland Clinic Mellen Center focusing on
#NMOSD
and
#MOGAD
. I also did my first CME with Amy 🤗 Welcome to Bluesky, Amy! 🦋
about 1 year ago
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
We’re thrilled to be in📍 Verona, Italy 🇮🇹 for the Update on Neuroimmunological Disorders meeting organized by
@saramariotto.bsky.social
& Dr. Sergio Ferrrari! As expected, a packed auditorium for a great program with a fantastic lineup of international speakers 👏🏽 👏🏽
#NeuroSky
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
Sumaira's 10-year journey living with
#NMOSD
is featured in
@iheartradio.bsky.social
's "Symptomatic: A Medical Mystery Podcast" newest episode - Case #24: Sumaira. Check it out:
podcasts.apple.com/us/podcast/c...
#NeuroSky
#neuromyelitisoptica
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Case #24: Sumaira
Podcast Episode · Symptomatic: A Medical Mystery Podcast · S3 E6 · 44m
https://podcasts.apple.com/us/podcast/case-24-sumaira/id1648107550?i=1000679063949
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
🏃🏿♀️ This
#Thanksgiving
, we're spotlighting Marion,
#NMOSD
patient, TSF Ambassador of Illinois, marathoner & believer. Read "One Diagnosis, Three Marathons, Infinite Strength" - Marion's testimonial about how she will NEVER let
#NMO
defeat her:
sumairafoundation.org/one-diagnosi...
#NeuroSky
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Leaving Paris feeling proud of
@thesumairafdn.bsky.social
France 🇫🇷 for organizing another impactful weekend for the
#NMOSD
/
#MOGAD
community. Grateful for TSF’s French team, MIRCEM & the doctors, ECTRIMS and our sponsors 🙏🏾 May we continue to listen & learn to improve health outcomes & QoL 🩷🧡💛
about 1 year ago
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#MedSky
/
#NeuroSky
, follow
@drsaljarallah.bsky.social
! 🇸🇦Dr. Aljarallah is a neuroimmunologist (trained at Hopkins) + an Assistant Professor at King Saud University in Riyadh in the Kingdom of Saudi Arabia focused on
#NMOSD
,
#MOGAD
,
#AE
,
#MS
& other rare neuroimmune conditions. مرحبا سلمان! 🙌🏽
about 1 year ago
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#MedSky
/
#NeuroSky
, follow
@antojm.bsky.social
! 🇫🇷Antony is the Head of Association Management (Congrex) &
#ECTRIMS
Executive Manager. ECTRIMS is the largest global annual meeting dedicated to
#MS
,
#NMOSD
,
#MOGAD
& other demyelinating conditions. See you in Barcelona 🇪🇸 September 24-26, 2025 🧠
about 1 year ago
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#MedSky
/
#NeuroSky
, follow
@saramariotto.bsky.social
! 🇮🇹Dr. Sara Mariotto is an internationally-recognized neuroimmunologist + researcher, leading the most prominent research lab in Italy dedicated to diagnosing
#NMOSD
,
#MOGAD
,
#AE
& other rare neuroimmune disorders at the University of Verona 🧪 🧫 🥼
about 1 year ago
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#MedSky
/
#NeuroSky
, follow
@marignierro.bsky.social
! 🇫🇷Prof. Marignier is a globally-recognized neuroimmunologist, specializing in
#MOGAD
&
#NMOSD
, and head of the French adult referral center for rare inflammatory diseases of the spinal cord & brain 🧠 Welcome to the bright (and right) side, Romain!
about 1 year ago
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
🌺 Merci à tous ceux qui ont soutenu et participé au 2ème week-end des patients et aidants de la
#NMOSD
& de la
#MOGAD
à Paris. Ce fut un week-end magnifique, marquantet émouvant, d'apprentissage et de connexion. A l'année prochaine à Lyon !
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reposted by
Sumaira 🤍
about 1 year ago
I’m so happy to find you on here! I’ve followed your story since my own diagnosis in January. ♥️
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reposted by
Sumaira 🤍
Stacey L. Clardy
about 1 year ago
Time to strike the label “Lupus Myelitis” … Forever ✅ What say you,
#MedSky
#RheumSky
#NeuroSky
? 🧠🎙️ Neurology Podcast: Dr.
@esotirchos.bsky.social
discusses the underlying etiologies of myelitis in patients with rheumatologic disease. Listen now:
bit.ly/48VRPwC
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Myelitis Associated With Rheumatologic Disease
Dr. Stacey Clardy talks with Dr. Elias Sotirchos about the underlying etiologies of myelitis in patients with rheumatologic disease. Read the related article in . Disclosures can be found at Neurology...
https://bit.ly/48VRPwC
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reposted by
Sumaira 🤍
The Sumaira Foundation (TSF)
about 1 year ago
It's great to be on
#Bluesky
. We're The Sumaira Foundation aka TSF🌺 dedicated to
#NMOSD
,
#MOGAD
and related conditions. We raise awareness, build community, support research/fellowships/publications and advocate on behalf of patients. Looking forward to illuminating our diseases with you all!
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reposted by
Sumaira 🤍
Stacey L. Clardy
about 1 year ago
Ever wonder how to set your home assistant (Alexa, Echo, etc) or car to automatically play the Neurology Podcast 🧠🎙️or the Neurology Minute Daily Briefing 🧠⏱️? Wonder no more 👇 Practical, Useful, Relevant - and what you learn may just save a patient’s life 🧪🩺💊❤️
youtu.be/sH8jmp0dt6M?...
add a skeleton here at some point
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reposted by
Sumaira 🤍
Stacey L. Clardy
about 1 year ago
We need the science-medicine-patient communicators/liaisons to complete the translational science circle - Essential! 🧬 💃🏻🕺🏼👩🏽🦼➡️👨🦼🏃🏽♀️➡️🪢
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Hi
#MedSky
/
#NeuroSky
! 👋🏾 My name is Sumaira and I have been living with
#NMOSD
/
#neuromyelitisoptica
for 10 years. I started The Sumaira Foundation (TSF) 2 months after my DX & really excited to connect and collaborate with while learning from experts around the world on this platform! 🌏 🌎 🌍
about 1 year ago
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reposted by
Sumaira 🤍
Stacey L. Clardy
about 1 year ago
#Medsky
It must be official - Patient Advocate Extraordinaire
@sumairaflower.bsky.social
is here… Bring the Patients to this better place, Sumaira - Make it so! ❤️🧠💪
#Neurology
#NMOSD
#MOGAD
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