🇵🇱 Czy Ciebie lub kogoś bliskiego dotknęła plaga MOGAD? Dołącz do nas 14 października o godz. 18:00 CET na ekspercką recenzję #MOGAD z udziałem dr. Robert Bonek i dr. Pawel Wrona. us02web.zoom.us/webinar/regi...

🇮🇹 Siete tutti invitati al webinar - Salute femminile e NMOSD/MOGAD: dialogo su gravidanza, allattamento e sessualità - esclusivo di TSF Italia dedicato alle donne che vivono con #NMOSD o #MOGAD! 📆 15 ottobre 👩‍⚕️ Dott.ssa Sara Carta 🔗https://us02web.zoom.us/webinar/register/WN_I2EUzRCMR9Gdtm92DG6WOA

Have you or someone close to you been affected by #MOGAD? We were joined by Dr. Saif Huda, Dr. Silvia Messina and Dr. Katharina Fink who discussed MOG antibody disease and the importance of patient participation in clinical trials. www.youtube.com/watch?v=4aB1...

🩷🧡💛 It’s been one month since our SLC Patient Day + we're still smiling! Read the summary, view the photo gallery and relive our most impactful day yet here: www.sumairafoundation.org/event-recap-... Thank you @staceylclardy.bsky.social, @uofuneuronews.bsky.social for your collaboration 🌺

You're invited! The University of Miami is hosting a free education program led by clinician experts on Saturday, October 25th for people living with #MS, #NMOSD, and #MOGAD, and their loved ones. To register, visit Https://cvent.me/WA2Dvy?rt=yA5lXw7YgEuZ6FVQM-NlYQ

Descubre por que el Yoga es para todos y puede ayudarte. El yoga no es esa idea que se tiene de una disciplina física. El Yoga es mas que físico, es celular, mental, intelectual y espiritual: te afecta en todo tu ser. us02web.zoom.us/webinar/regi...

Del 15 de septiembre al 15 de octubre de 2025 es el Mes de la Herencia Hispana. Explore nuestro sitio web en español para conectarse con un embajador de TSF, ver seminarios web de educación para pacientes, aprender sobre #NMOSD y #MOGAD y leer historias inspiradoras

🇫🇷 Vous ou l’un de vos proches est concerné par la #MOGAD ? Nous avons été rejoints par le professeur Jérôme de Seze et le Dr Sophie Elands, qui ont présenté MOGAD, la prise en charge de la maladie et les essais cliniques. www.youtube.com/watch?v=Xw0P...

Meet the experts at TSF's Seattle Patient Day for Rare Neuroinflammatory Disorders (AE, CNS vasculitis, MOGAD, neurosarcoidosis, NMOSD and SPS) on October 18th! www.tinyurl.com/TSFSeattle We invite patients, caregivers, clinicians and advocates to join us! @shuvroroy.bsky.social

🇪🇸 When Rafaela, his unbreakable sister, began losing her vision over Christmas 2024, Roberto rushed her to the hospital, unprepared for the diagnosis that followed. What started as eye strain turned into a terrifying descent into #NMOSD www.sumairafoundation.org/robertos-nmo...

Você ou alguém próximo a você foi afetado pelo #MOGAD? Este programa conta com a presença do Dr. Douglas Sato 🇧🇷 e da Dra. Ernestina Santos 🇵🇹, que forneceram uma visão geral do MOGAD e da importância da participação do paciente em ensaios clínicos. youtu.be/Wg18jsKeQIo

🏆 Honoring visionary leaders in rare disease, TSF’s 2025 Global Rare Trailblazer Award goes to Dr. Vanda A. Lennon of @mayoclinic.org Join us on September 24 for the award ceremony, research updates & networking: www.eventbrite.com/e/1364334644...

🇫🇷 Vous êtes invité ! MIRCEM organise une journée spéciale pour les patients pédiatriques de #MOGAD et leurs proches. Rejoignez-nous le samedi 4 octobre à Disneyland Paris pour une journée d'éducation et de communauté. Pour vous inscrire: docs.google.com/forms/d/e/1F...

🇮🇹 Benvenuta alla Dott.ssa Gloria Dalla Costa, nuova Ambasciatrice TSF per l’Italia! Neurologa ad Harvard, porterà la sua esperienza per unire pazienti, clinici e ricerca, promuovendo eventi, supporto e innovazione su #NMOSD e #MOGAD.

#iykyk Meet Sumaira and Michael from the leadership team at TSF 🩷🧡💛 We are looking forward to seeing you all at ECTRIMS in Barcelona 🔜 Join us on the 24th for our Research Update & Award Ceremony 🥂 www.sumairafoundation.org/event/tsf-re...

To honor Mother Teresa’s legacy, The UN has designated September 5th as International Charity Day. Let’s turn compassion into action. Every donation, no matter how big or small, brings us closer to illuminating the darkness of rare neuroimmune diseases: www.tinyurl.com/TSFDonation

🇮🇳 Clarinda & Rashmi, TSF India Ambassadors and #NMOSD patients, joined the 2025 Rare Diseases Conference in Delhi. Key topics: NPRD expansion, access, AI triage & inclusion. TSF hopes for better care for NMOSD/MOGAD in India. Full summary: www.sumairafoundation.org/tsf-india-am...

🇨🇴 Damos la bienvenida al Dr. Luis Zarco como nuevo Embajador Clínico de TSF en Colombia. Neurólogo especializado en EM y NMOSD, trabajará para aumentar la conciencia, educación y apoyo a pacientes y cuidadores en el país.

In 2021, following a long-term infection & COVID, Terry developed multiple health issues including pericarditis, Sjögren’s disease followed by an #NMOSD diagnosis after worsening symptoms. Read how Terry has gotten her groove back despite her challenges: www.sumairafoundation.org/terrys-nmo-s...

#MOGAD in the media: "Dad Has Headache That 'Would Not Go Away'—Diagnosis Shocks Young Family" Thank you Newsweek for covering this story and raising awareness of MOGAD. www.newsweek.com/dad-headache...

We can't believe it's already been one month since TSF's Chicago Patient Day! 🩷🧡💛 Read the event summary, view the photo gallery and relive our great day here: www.sumairafoundation.org/event-recap-... #AE #MG #MOGAD #NMOSD #SPS

💡🩷 A study published in MSARD revealed the impact of #NMOSD and #MOGAD on thinking abilities and emotional wellbeing. Read the plain-language summary here: www.sumairafoundation.org/summaries/co...

🇨🇦 🇨🇦 The Sumaira Foundation is pleased to welcome Dr. Dalia Rotstein, neurologist specialized in #MS, #NMOSD, #MOGAD and other demyelinating diseases to join TSF’s Medical Advisory Board as the first representative from Canada. Learn about Dr. Rotstein: www.sumairafoundation.org/welcome-dr-d...

We're coming to Seattle! We're inviting patients & caregivers impacted by #AE, #CNSvasculitis, #MOGAD, #neurosarcoidosis, #NMOSD and #SPS to join us in Seattle on 10/18! Join us for a day of education, community and fun www.eventbrite.com/e/tsfs-seatt...

Alexion, la division des maladies rares d'AstraZeneca, et l'Alliance pharmaceutique pancanadienne (APP) parviennent à un accord au sujet d'Ultomiris pour le traitement des adultes atteints de la NMOSD et des adultes atteints de gMG www.newswire.ca/fr/news-rele...

🇨🇦 Excellent news from Canadians living with #NMOSD & #MG! Alexion, AstraZeneca Rare Disease reaches an agreement with the pan-Canadian Pharmaceutical Alliance (pCPA) for Ultomiris for the treatment of adults with NMOSD and adults gMG www.newswire.ca/news-release...

You're invited to TSF's Research Update & Award Ceremony on September 24th in Barcelona! Join us for research updates & celebrate the achievements of our 3rd Global Rare Trailblazer Award recipient. 100% of proceeds will be used to fund research. www.eventbrite.com/e/2025-tsf-r...

When rare disease besties link up: Salt Lake City edition 🏔️ Thank you once again @staceylclardy.bsky.social and team - so many memories! 🩷🧡💛 Next stop:📍Seattle with @shuvroroy.bsky.social

Únase a nosotros para felicitar a Johanna de Colombia quien ha sido nombrada Coordinadora de Embajadores de TSF para América Latina. www.sumairafoundation.org/felicidades-...

🏔 As we make final preparations for our Intermountain West Patient Day for Rare Neuroinflammatory Disorders in Salt Lake City tomorrow, we'd like to take a moment to recognize and thank Dr @staceylclardy.bsky.social and @uofuneurology.bsky.social, our partners & sponsors We can't wait to see you!

🇮🇳 Happy Indian Independence Day! Meet our TSF’s Indian Ambassadors and join our private WhatsApp group, designed to create a network of support, education, resources and knowledge led and moderated by TSF Ambassadors. chat.whatsapp.com/DUgjjazs2jN1...

🇨🇴 Tomás, un joven de 20 años, enfrenta #MOGAD y #NMOSD, enfermedades raras que transformaron su vida. Su historia refleja la de muchas familias que luchan por visibilidad, acceso a tratamientos y apoyo real. No están solos. Es hora de alzar la voz. www.sumairafoundation.org/nuestra-hist...

“How wonderful it would be if every physician delivering a new & difficult diagnosis could also provide the patient receiving that news with one of these,” Patty, #NMOSD patient. Clinicians in the US can order TSF’s brochures free of charge. Visit www.sumairafoundation.org/understandin...

انضم إلينا في 9 سبتمبر لحضور محاضرة ومحادثة حول #NMOSD مع Dr. Seraj Makkawi & @drsaljarallah.bsky.social us02web.zoom.us/webinar/regi...

We're pleased to welcome Randi Griffin, TSF Research Associate! With 6+ years in global Phase II–IV trials in neurology, oncology & rare diseases, Randi brings deep expertise and a passion for advancing research for rare neuroimmune conditions like #NMOSD & #MOGAD.

"Diagnosis Day" refers to the date when a person receives a medical diagnosis. Do you remember the moment you first heard the name of your diagnosis? What did you feel? If that moment is clear in your mind, share the date you were diagnosed & what emotions you felt that day

🇫🇷🇧🇪 Vous ou l’un de vos proches est concerné par la #MOGAD? Rejoignez-nous le 2 septembre pour en savoir plus sur MOGAD auprès des experts : Prof. Jérôme de Sèze & Dr. Sophie Elands us02web.zoom.us/webinar/regi...

“What, like it’s hard?” Living with a rare disease is a balancing act; our diagnoses do not confine, limit or consume us! 🦄 #TBT to TSF’s Chicago Patient Day - we miss you all! 🩷🧡💛

Patients and caregivers are welcome from the Mountain West and beyond. We are 15 minutes from the SLC airport if you want to see beautiful Utah— including learning about our extensive outdoor accessibility options!— but please do first register below 👇 THANK YOU, patient & caregiver speakers! ❤️🤝🧠

T-9 days until TSF's SLC Patient Day for Rare Neuroinflammatory Disorders! Meet our patient & caregiver panelists representing #AE, #CNSVasculitis, #MOGAD, #neurosarcoidosis, #NMOSD or #SPS 🦄 Register: www.tinyurl.com/TSFSLC Shout out to @staceylclardy.bsky.social for helping us make this happen!

Join our friends at SRNA in Atlanta on October 4 for the 2025 Regional Rare Neuroimmune Disorders Symposium (RNDS)! This 1-day, in-person event is open to anyone impacted by #AFM, #ADEM, #MOGAD, #NMOSD, #ON or #TM. Learn more and register: wearesrna.org/2025-rnds/

Join us on Thursday, September 4th to learn about #MOGAD and the importance of patient participation in clinical trials. us02web.zoom.us/webinar/regi... This program will feature Dr. Saif Huda, Dr. Silvia Messina and Dr. Katharina Fink who will answer questions from our audience.

You're invited to participate in: “AQP4- and MOG-IgG: A Worldwide Survey on Accessibility & Laboratory Testing Strategies.” If you are a clinician requesting AQP4- and MOG-IgG testing, click on the Qualtrics Survey link for requesters: sydney.au1.qualtrics.com/jfe/form/SV_...

You're invited to participate in: “AQP4- and MOG-IgG: A Worldwide Survey on Accessibility & Laboratory Testing Strategies.” If you are a scientist/clinician providing AQP4- and MOG-IgG testing, click on the Qualtrics Survey link for providers: sydney.au1.qualtrics.com/jfe/form/SV_...

Join us Sept 26, 2025 for ECTRIMS Patient Community Day, free & open to those with #MOGAD, #MS, #NMOSD & related conditions. Learn from top experts & ask your questions! Register: www.ectrimspatientcommunity.eu/registration #ECTRIMS4me

We've got an all-star team of experts lined up for TSF's Intermountain West Patient Day for Rare Neuroinflammatory Disorders in SLC on August 16th 🏔️ If you or your loved one are impacted by #NMOSD, #MOGAD, #AE or #SPS, join us! To register, visit www.tinyurl.com/TSFSLC @staceylclardy.bsky.social

I lost my vision and became mute after developing a 'trifecta' of brain disorders www.dailymail.co.uk/health/artic...

Buenas noticias para la comunidad hispanohablante de TSF: ¡nuestro folleto #NMOSD y #MOGAD ahora está disponible en español en línea! ¡Visite nuestro sitio web para descargar una copia gratuita!: www.sumairafoundation.org/understandin...

For years, Rué faced unexplained symptoms - vomiting, fatigue, vision issues - while being misdiagnosed & not believed. Finally, she was DXed with #NMOSD Despite vision loss, Rue has completed her education and continues to live w/ purpose, faith & hope www.sumairafoundation.org/rues-nmosd-s...

Marion, VP of workforce development in solar energy & TSF Ambassador, is defined by far more than just her title. Behind her professional success is a story of strength, resilience + advocacy following a life-altering diagnosis of #NMOSD. Meet Marion: blackdoctor.org/running-thro...