Important British Heart Foundation reception tonight; 6/10 people waiting over a year for cardiology treatment. Kevin’s story was so powerful & highlights the need for urgent NHS reform, including community health and social care services

Like many of us I spent the break thinking about my 2025 goals. I realised I’d often put high expectations on myself&others always with a destination. So now I’m going to enjoy& be challenged by the journey too. I’ve started my 1% diary to strengthen my connection with my authentic Self a bit a day!

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It’s been a privilege to work with experts by experience and a range of disability organisations across Scotland including @mariecurieuk.bsky.social and other amazing Scottish charities.

📢✨Absolutely delighted this report has been published. It’s felt like a very personal research project for me as a disabled person myself! The report looks at how best to design energy support for disabled people. Please do take a read and reshare!

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I'm looking forward to speaking at the International Bereavement Education Conference 2024 on the role of bereavement support in a proposed right to palliative care bit.ly/3OzvnjP We'll be getting into: - Rehumanising bereavement after Covid - Bereavement in human rights - Agile services & approach

Insightful report by @consumerscotland.bsky.social; very welcome to see additional, targeted energy affordability support for terminally ill people in its recommendations. 1 in 5 people die in fuel poverty at EOL in Scotland, @johnswinney.bsky.social & Scot Gov have an opportunity to change that.

On #FuelPovertyAwarenessDay Marie Curie figures show 44,000 pensioners living with terminal illness across the UK will be denied Winter Fuel Payment this year: bit.ly/4fL4ANk @scottishgovernment.bsky.social must take the opportunity to support terminally ill people with energy bills in #ScotBudget

1) Really insightful day at @cruk-si.bsky.social conference exploring system innovations which will improve health outcomes. Theo’s openness about living with terminal brain cancer was inspirational. Her approach to the uncertainty which lies ahead is something we could all learn from 👇

Two great groups to engage with for folks interested in all things related to end of life experience & palliative care in the UK & internationally👇 Thanks @catherinewalshe.bsky.social for setting up & including me!

For anyone new to BlueSky looking to connect with third sector colleagues across different sectors 👇 Thanks for setting up @talatyaqoob.bsky.social

Hey everyone I’m Ellie - finally made the move across 🦋 I’m based in Edinburgh & passionate about ensuring everyone has the best possible end of life experience 🌼 Trekking to Everest Base Camp 🗻 in 2025 & bagging as many munros as I can in the meantime!