Shoutout to Mackenzie Prater for promoting dystonia awareness on the local Channel 21 Alive News broadcast ahead of the Fort Wayne Dystonia Zoo Day on Sept. 27. #dystonia #dmrf #dystoniafoundation

Thank you to everyone who participated in the Indianapolis Dystonia Zoo Day this weekend. The DMRF is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online. #dystonia #dmrf #dystoniafoundation flic.kr/s/aHBqjCia2A

Thank you to everyone who participated in the Lansing Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online. #dystonia #dmrf #dystoniafoundation flic.kr/s/aHBqjCia2A

Tuesday, Sept. 30, DMRF will host our first Virtual "YOU" Day, with expert-led informational sessions, mental health check-ins, self-care tools, and open Q&A discussions, all geared toward uplifting members of the dystonia community. letszoothis.swell.gives #dystonia #dmrf #dystoniafoundation

September is Dystonia Awareness Month. The Dystonia Medical Research Foundation invites everyone in the dystonia community to educate others about this little-known movement disorder, by inviting people to “Ask Me About Dystonia.” #dystonia #dmrf #dystoniafoundation

Thank you to everyone who participated in the Pittsburgh Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. #dystonia #dmrf #dystoniafoundation

Thank you to everyone who participated in the Long Island Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. #dystonia #dmrf #dystoniafoundation

Toledo Dystonia Zoo Day is this Saturday, Aug. 23. Read the Toledo Blade's coverage about this upcoming event and the local volunteers who are promoting dystonia awareness in their community: www.toledoblade.com/local/commun...

Do you know all the new insights for diagnosing and treating dystonia in 2025? There is a new issue of Continuum hot off the press. Do you know the acquired and genetic causes? Do you now the combined dystonia monogenetic causes? Do you know the dystonia mimics? @dystoniafoundation.bsky.social

We are grateful to everyone who participated in last month's Portland Dystonia Zoo Day, and we are looking forward to the Toledo Dystonia Zoo Day on Aug. 23! Visit our Events page for upcoming Zoo Day events. #dmrf #dystonia dystonia-foundation.org/get-involved...

Did you know that you don't have to live in a particular geographic area to join a virtual support group? If you see a meeting on the website calendar that you'd like to attend, reach out to the group leaders for more details. dystonia-foundation.org/calendar-3/ #dmrf #dystonia #dystoniafoundation

DMRF organized a scientific workshop on the Mechanisms of Reduced Penetrance in Dystonia in Helsinki on June 19-21.The meeting faculty will assemble a position paper regarding the most challenging aspects of the reduced penetrance phenomena in #dystonia. dystonia-foundation.org/dmrf-hosts-w...

July is Disability Pride Month. People with “invisible” disabilities may face challenges in daily life, such as difficulty with communication, mobility, or cognitive tasks. It's crucial to show empathy & understanding towards individuals with invisible disabilities. #dmrf #dystonia #DisabilityPride

The Dystonia Medical Research Foundation is welcoming six new members to the Medical and Scientific Advisory Council (MSAC) this year. We look forward to working with them and having them as part of the DMRF! dystonia-foundation.org/dmrf-welcome...

Thank you to everyone who participated in the New England Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is grateful for the support of our volunteers and sponsors. Photos from the event will be available online at flic.kr/s/aHBqjCia2A #dystonia #dmrf #dystoniafoundation

DMRF awarded a Clinical Fellowship to Karen Ibarra, MD, under the mentorship of Dr. Jill Ostrem. Dr. Ibarra will begin her fellowship at UCSF in July 2025 and spend Year 1 receiving clinical training & Year 2 will focus on clinical research. #dystonia #dmrf dystonia-foundation.org/research/fel...

The Dystonia Medical Research Foundation Auction for Action ends tomorrow! This is your chance to bid on a variety of items and experiences while supporting dystonia research. bidding ends May 22 at 7:00 pm ET. onecau.se/dystonia-fou... #dmrf #dystonia

DMRF has awarded a 2-year Clinical Fellowship to Monica Ferrer Socorro, MD, (Boston Children's Hospital) under the mentorship of Darius Ebrahimi-Fakhari, MD, PhD. 1st year focus is clinical training & 2nd year focus is clinical research. #dystonia #dmrf dystonia-foundation.org/research/fel...

DMRF has awarded a research grant to Mariangela Scarduzio, PhD, (UAB) for “A Role for Striatal Somatostatin Interneurons in Hyperkinetic Movement Disorders.” Dr. Scarduzio will study somatostatin-expressing interneurons (SOMs) found in certain brain circuits. youtu.be/5ajVz8q69eA #dystonia #dmrf

Dystonia is a rare neurological movement disorder that causes excessive, involuntary muscle contractions. Now through May 22, the DMRF is hosting an online Auction for Action to support dystonia research. Proceeds will help us realize a future without dystonia! onecau.se/dystonia-fou...

The DMRF has awarded a Postdoctoral Research Fellowship to Alexander Hodge, PhD, (University of Michigan) for “Determining a mechanism of symptom severity in DYT1 dystonia.” Dr. Hodge will explore how changes in neurotransmitters contribute to dystonia severity. youtu.be/3Q0aJgPT4cM #dystonia #dmrf

The Dystonia Medical Research Foundation has awarded a research grant to Joaquim Alves da Silva, MD, PhD (Champalimaud Foundation, Portugal) for “Striatal Neural Correlates of Overuse Dystonia.” Dr. Silva will study the brain circuits involved in dystonia. youtu.be/bv17hshwIM8 #dystonia #dmrf

The DMRF has awarded a grant to Martin Piazza, MD, University of Pittsburgh, for “Neurosurgery in Pediatric Dystonia: A multimodal analysis of complex decisions” to research how families make informed decisions about DBS surgery for children with dystonia. youtu.be/op1sLD5yY74 #dystonia #dmrf

The Dystonia Medical Research Foundation is proud to announce its 2025 grant and fellowship recipients, which will support scientists investigating the underlying causes and mechanisms of dystonia and developing new treatment strategies. dystonia-foundation.org/dystonia-med... #dystonia #dmrf