Epilepsy Ireland
@epilepsyireland.bsky.social
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Working to achieve a society where no personโs life is limited by epilepsy. www.epilepsy.ie
pinned post!
We have released a new song to help the public remember those very important words of TIME, SAFE, STAY! Listen now. Remember Later. Visit
epilepsy.ie
to learn more and listen to the full song. ๐โ๐๐
#๐ธ๐๐๐๐๐๐ ๐ฆ๐ท๐๐ฆ
๐๐๐๐๐๐๐๐ โ๐๐ ๐๐๐๐ ๐ ๐ข๐๐๐๐๐ก๐๐ ๐๐ฆ ๐๐ ๐ข๐๐๐๐ ๐ก๐๐๐๐ก๐๐ ๐๐๐๐๐ก ๐๐๐๐ ๐ฝ๐๐ง๐ง ๐โ๐๐๐๐๐๐๐ข๐ก๐๐๐๐๐ .
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4 months ago
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Looking forward to another collaboration with
@futureneuro.bsky.social
through this new study. Find out more below. โฌ๏ธ
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9 days ago
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Good to see one of our key advocacy priorities being supported in the Dรกil recently! Find out more and learn about this ongoing campaign on our website below!
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Dรกil รireann Approves Motion Incorporating Key Epilepsy Ireland Advocacy Campaign
We were pleased to see a recent motion on improving access to GP care in Ireland was supported across all sides of the Oireachtas.
https://www.epilepsy.ie/content/dail-eireann-approves-motion-incorporating-key-epilepsy-ireland-advocacy-campaign
3 months ago
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Step up to to make a difference and continue our journey towards a society where no personโs life is limited by epilepsy by taking on our March Walking challenge! Find out more๐๐
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March Walking Challenge
Step up to support our work by getting your steps in through our March Walking Challenge!
https://www.epilepsy.ie/content/march-walking-challenge
4 months ago
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Delighted to be attending the official launch of Irelandโs first postgraduate diploma in Neurology Nursing in the
@rcsi.bsky.social
. An important development for the entire neurological community in Ireland which will benefit people with epilepsy in the future.
4 months ago
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Step up to take on our March Walking Challenge and help us continue our journey towards a society where no personโs life is limited by epilepsy. Find out more on our website below.
#fundraising
#community
#support
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March Walking Challenge
Step up to support our work by getting your steps in through our March Walking Challenge!
https://www.epilepsy.ie/content/march-walking-challenge
4 months ago
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Brilliant piece with Zianโs comments on living with epilepsy undoubtedly resonating with so many others living with the condition. Well done to all involved.
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4 months ago
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reposted by
Epilepsy Ireland
Ivana Bacik
4 months ago
Today we support
#InternationalEpilepsyDay
#EpilepsyDay
#TimeSafeStay
Well done for the great awareness raising work!
@epilepsyireland.bsky.social
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reposted by
Epilepsy Ireland
Roderic OโGorman TD
4 months ago
Happy to support International Epilepsy Day and the amazing work
@epilepsyireland.bsky.social
do.
#TimeSafeStay
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We have released a new song to help the public remember those very important words of TIME, SAFE, STAY! Listen now. Remember Later. Visit
epilepsy.ie
to learn more and listen to the full song. ๐โ๐๐
#๐ธ๐๐๐๐๐๐ ๐ฆ๐ท๐๐ฆ
๐๐๐๐๐๐๐๐ โ๐๐ ๐๐๐๐ ๐ ๐ข๐๐๐๐๐ก๐๐ ๐๐ฆ ๐๐ ๐ข๐๐๐๐ ๐ก๐๐๐๐ก๐๐ ๐๐๐๐๐ก ๐๐๐๐ ๐ฝ๐๐ง๐ง ๐โ๐๐๐๐๐๐๐ข๐ก๐๐๐๐๐ .
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4 months ago
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Join us on our journey towards a society where no personโs life is limited by epilepsy by becoming a member of EI today!
#epilepsy
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Epilepsy Ireland launches new membership structure
Join us as we continue our journey towards a society where no person's life is limited by epilepsy by becoming a member of Epilepsy Ireland today for just โฌ10!
https://www.epilepsy.ie/content/epilepsy-ireland-launches-new-membership-structure
4 months ago
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We need Seizure Safe Schools in Ireland. Find out how you can support our campaign below!
#EpilepsyAwareness
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Sponsorship support received to amplify EI Seizure Safe Schools campaign
With thanks to support from UCB Pharma, we have provided key information on epilepsy to every school in the country. Read how we have used this exercise to amplify our Seizure Safe Schools campaign!
https://www.epilepsy.ie/content/sponsorship-support-received-amplify-ei-seizure-safe-schools-campaign
5 months ago
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Fantastic story and message shared by Dylan in advance of
#EpilepsyDay
2026. Well worth a few moments of your time this evening. ๐๐
#EpilepsyAwareness
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Dylan's Story - #EpilepsyDay 2026
Dylan Gavin reflects on his experience living with epilepsy and how that has affected his life as a professional footballer.
https://www.epilepsy.ie/content/dylans-story-epilepsyday-2026
5 months ago
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Didnโt get to join us at our National Conference in September? We have good news - recordings are now available on our website.
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Epilepsy Ireland National Conference 2025
Look back on the recordings from our 2025 National Conference - with talks featuring epilepsy experts and researchers.
https://www.epilepsy.ie/content/epilepsy-ireland-national-conference-2025
7 months ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
9 months ago
๐ A brilliant night at the
@chambersireland.bsky.social
Sustainable Business Impact Awards. No win this time, but a great chance to celebrate our
#MyMovingBrain
community connect seriesโand to recognise everyone whoโs helped shape it so far.
@epilepsyireland.bsky.social
@researchireland.ie
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reposted by
Epilepsy Ireland
FutureNeuro Centre
9 months ago
Thank you to the FutureNeuro researchers who hosted our stand at the National
@epilepsyireland.bsky.social
Conference on Saturday! Great to connect with the
#Epilepsy
community and share updates on our current research and Centre activities ๐
@researchireland.ie
@chrisgreene.bsky.social
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reposted by
Epilepsy Ireland
FutureNeuro Centre
10 months ago
๐ Great to see so many FutureNeuro researchers at the recent International Epilepsy Congress! Thanks to the clinicians who support our work & to
@epilepsyireland.bsky.social
& Irish Epilepsy League for nominating our Director,
@dchenshall.bsky.social
, for the 2025 Ambassador for Epilepsy Award.
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Attending a session on SUDEP communication at
#IEC2025
- interesting to hear clinical attitudes from other countries which we can use in our ongoing campaign to introduce a national strategy to reduce SUDEP and epilepsy-related deaths in Ireland.
10 months ago
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Congrats Professor Henshall! Delighted to see your incredible work recognised - and to be here in Lisbon to congratulate you in-person!
#IEC2025
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10 months ago
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We have published our Annual Report for 2024! Read about how we continued our journey towards a society where no person's life is limited by epilepsy by visiting our website below!
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Epilepsy Ireland publish 2024 Annual Report
Look back on how we continued our journey towards a society where no person's life is limited by epilepsy in 2024.
https://www.epilepsy.ie/content/epilepsy-ireland-publish-2024-annual-report
10 months ago
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Researchers and research institutions - this online event on our latest research call may be for you! Find out more on our website below. Delighted to have colleagues from the
@hrci.bsky.social
joining us as part of the session as well.
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Information Session for Researchers on Epilepsy Ireland Research Funding Call 28.8.25
Epilepsy Ireland were delighted to recently launch our 9th Research Funding Call, which is run in conjunction with the Health Research Board/Health Research Charities Ireland Joint Funding Scheme (HRB...
https://www.epilepsy.ie/content/information-session-researchers-epilepsy-ireland-research-funding-call-28825
10 months ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
11 months ago
๐ข
@epilepsyireland.bsky.social
has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy. ๐ Learn more and submit your Expression of Interest by September 26:
www.epilepsy.ie/content/appl...
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Apply for funding
Researchers and research institutions - we have launched our 9th Research Funding Call! Find out more about how to apply and the process involved.
https://www.epilepsy.ie/content/apply-funding
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reposted by
Epilepsy Ireland
Health Research Charities Ireland
11 months ago
@epilepsyireland.bsky.social
have launched a call for Expressions of Interest as part of the HRCI
hrbireland.bsky.socialโฌ
(HRB) Joint Funding Scheme. Find more information on the call by visiting the Open Calls page on our websit
e https://hrci.ie/joint-funding-open-call
s
#HealthResearchMatters
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Good news earlier this week with the official commencement of the Sodium Valproate Inquiry in Ireland. Find out more on our website below.
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Sodium Valproate Inquiry Officially Begins
The inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim) in Ireland has officially begun its work.
https://www.epilepsy.ie/content/sodium-valproate-inquiry-officially-begins
11 months ago
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Want to learn more about what Life with Epilepsy can be like? Check out the new section of our website, which features some incredible personal testimonies from our volunteers from all across Ireland.
#EpilepsyAwareness
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Life with Epilepsy
Ever wondered what it is like to live with epilepsy? Read the perspectives from people across Ireland.
https://www.epilepsy.ie/content/life-epilepsy
11 months ago
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Looking forward to Saturday for the latest event of the
#MyMovingBrain
series! Fancy joining us? See below! ๐ ๐
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12 months ago
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Really powerful story shared with us by Laura - charting her experience with epilepsy and the challenges that can come with the condition - and how she has overcome them! Well worth a few minutes of your day!
#EpilepsyAwareness
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Laura's Story
To help raise awareness of epilepsy and support others living with the condition, Laura has shared her experiences of living with epilepsyโฆ. When I was 13, I had an intense headache for 2 days. On the...
https://www.epilepsy.ie/content/lauras-story
about 1 year ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
about 1 year ago
๐โโ๏ธ Paralympian Michael McKillop MBE returns as host and keynote speaker for our
#MyMovingBrain
event in Maynooth on June 28! Hear his powerful story of navigating epilepsy, cerebral palsy, and elite sport. Donโt miss itโregister now:
www.eventbrite.ie/e/1374602566...
@epilepsyireland.bsky.social
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Looking forward to teaming up with
@futureneuro.bsky.social
once again for the third edition of the My Moving Brain series - this time from Co. Kildare. More details on our website below!
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My Moving Brain Community Event, Kildare 28.6.25
The My Moving Brain initiative is being led by our colleagues in FutureNeuro - Irelandโs Centre for Translational Brain Science, funded by Research Ireland. The initiative as whole aims to highlight w...
https://www.epilepsy.ie/content/my-moving-brain-community-event-kildare-28625
about 1 year ago
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This week is
#EpilepsyWeek
and on our site, we have some fantastic stories on the lived experience of epilepsy - such as Grace's, linked below. Be sure to visit, learn more and raise awareness!
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#EpilepsyWeek - Grace's Story
"A week later I had multiple seizures in the space of a few minutes. That was a really heartbreaking time as I have wanted to drive for as long as I can remember. It was the closest I had ever gotten ...
https://www.epilepsy.ie/content/epilepsyweek-graces-story
about 1 year ago
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If you witnessed a person having a seizure, would you know what to do? If the answer is no, visit our website below to learn all about Time, Safe, Stay.
#epilepsyawareness
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Seizure First Aid
Visiting our site for key information on what to do in the event of a person having a seizure? Find what you're looking for in this section.
https://www.epilepsy.ie/content/seizure-first-aid
about 1 year ago
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Looking forward to hosting this event next week in University College Cork - which will focus on one of our key advocacy campaigns around having epilepsy added to the Chronic Disease Management Programme. Fancy joining us? Visit our website to find out how.
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Epilepsy - Who Cares?
Join us for a special event in Cork on May 9th which will explore why epilepsy should be added to the Chronic Disease Management Programme.
https://www.epilepsy.ie/content/epilepsy-who-cares
about 1 year ago
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We're excited to be recruiting for the new position of Research Officer in EI - would you like to enhance and expand our presence in the important world of epilepsy research? Find out more on our website below!
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We're Hiring - Research Officer
Title ย ย ย ย ย ย ย Research Officer Locationย Epilepsy Ireland Head Office, Crumlin, Dublin 12. Hybrid working policy in place. Hours of Workย ย ย 28 โ 35 hours per week. Occasional evening/ weekend work requi...
https://www.epilepsy.ie/content/were-hiring-research-officer
about 1 year ago
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reposted by
Epilepsy Ireland
Sarah Delaney
about 1 year ago
@epilepsyireland.bsky.social
are recruiting a Research Officer! For more details, check out the info here:
www.epilepsy.ie/content/were...
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We're Hiring - Research Officer
Title ย ย ย ย ย ย ย Research Officer Locationย Epilepsy Ireland Head Office, Crumlin, Dublin 12. Hybrid working policy in place. Hours of Workย ย ย 28 โ 35 hours per week. Occasional evening/ weekend work requi...
https://www.epilepsy.ie/content/were-hiring-research-officer
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reposted by
Epilepsy Ireland
Gary Brennan
about 1 year ago
Very proud of the lab who put together a bake sale for Epilepsy awareness Day yesterday. Together they raised over โฌ1000 for
@epilepsyireland.bsky.social
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reposted by
Epilepsy Ireland
Hesma Lomax
about 1 year ago
#PurpleDay
2025 Raising awareness of
#Epilepsy
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reposted by
Epilepsy Ireland
Rick O'Shea
about 1 year ago
This is immensely important because charities still need money, and so few people have change on them that bucket shaking is going out of fashion. If you had anything to donate, and a share to give this post, I'd be hugely grateful.
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Today is Purple Dayยฎ - our biggest fundraising day of the year. Can you help continue our vital services and supports in communities across Ireland? Learn about our work and make a donation via our website below. Together, we can achieve a society where no person's life is limited by epilepsy.
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Purple Dayยฎ
Can you help support our fundraising activities for Purple Dayยฎ on March 26th? Find out how you can get involved today!
https://www.epilepsy.ie/content/purple-dayr
about 1 year ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
over 1 year ago
โจLast night, with
@epilepsyireland.bsky.social
, we hosted an Epilepsy
#ResearchMatters
event for
#BrainAwarenessWeek
! Experts shared insights on seizure monitoring, genetics, womenโs health & innovative therapies. Huge thanks to our speakers & host
@rickoshea.bsky.social
a for an inspiring evening!
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reposted by
Epilepsy Ireland
Rick O'Shea
over 1 year ago
And we are off here at the
@rcsi.bsky.social
for our
@epilepsyireland.bsky.social
@futureneuro.bsky.social
event...
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reposted by
Epilepsy Ireland
FutureNeuro Centre
over 1 year ago
๐ง Brain Awareness Week 2025 starts today With 1 in 3 developing a neurological condition, research is more vital than ever. Join us &
@epilepsyireland.bsky.social
on March 12 at RCSI for Epilepsy
#ResearchMatters
, highlighting Irelandโs cutting-edge research.
futureneurocentre.ie/epilepsy-res...
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reposted by
Epilepsy Ireland
Andrew Parle
over 1 year ago
Anyone fancy a 24 hour squat challenge in aid of
@epilepsyireland.bsky.social
Let's help support those Epilepsy..
fundraising.epilepsy.ie/event/squat-...
#Epilepsy
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Home
https://fundraising.epilepsy.ie/event/squat-challenge/home
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Weโve a big fundraising day coming up - will you lend us a hand? Oh great - more info below:
www.epilepsy.ie/content/purp...
over 1 year ago
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Wanna learn about epilepsy research? Wanna see
@rickoshea.bsky.social
expertly MC an event? Of course you do! Conveniently we have just the event for youโฆ.๐๐
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Brain Awareness Week 2025 โ Epilepsy Research Matters 12.3.25
To celebrate Brain Awareness Week, we are delighted to be teaming up with our colleagues in FutureNeuro for the latest iteration of our Epilepsy Research Matters event!
https://www.epilepsy.ie/content/brain-awareness-week-2025-epilepsy-research-matters-12325
over 1 year ago
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Check out our review of some of the coverage from
#EpilespyDay
- every day is an awareness day and you can learn loads more about a condition which affects 45,000 people in Ireland by viewing any of these pieces!
#TimeSafeStay
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#EpilepsyDay 2025 in the news!
Miss any of the coverage of #EpilepsyDay? This article has you covered so be sure to catch up now!
https://www.epilepsy.ie/content/epilepsyday-2025-news
over 1 year ago
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reposted by
Epilepsy Ireland
Rick O'Shea
over 1 year ago
It's
#EpilepsyDay
todya here in Ireland. I'm proud to be
@epilepsyireland.bsky.social
's ambassador and the voice of our campaign again this year. Do drop a visit to the site to learn more about what you can do to better understand the lives of those of us who have epilepsy.
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Today is
#EpilepsyDay
and we'd like to introduce you to our feature video. Epilepsy. It all becomes clearer when you know what to do. Learn about
#TimeSafeStay
by visiting
www.epilepsy.ie
today!
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over 1 year ago
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reposted by
Epilepsy Ireland
Rick O'Shea
over 1 year ago
#EpilepsyDay
2025 is next Monday, this is a brilliant interview with Emma Beamish - another public figure who, like me, has the condition. I think I might even have used the very same phrase a few times over the years...
www.irishtimes.com/health/your-...
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Epilepsy: โItโs like having the sword of Damocles above your headโ
Former international cricketer Emma Beamish on living with the anxiety of never knowing when it might strike again, and her decision not to have children
https://www.irishtimes.com/health/your-wellness/2025/02/04/epilepsy-its-like-having-the-sword-of-damocles-above-your-head/
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A temporary new logo for a a very special reasonโฆ๐
#EpilepsyDay
Find out more at
www.epilepsy.ie
.
over 1 year ago
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We approve of your approval.
add a skeleton here at some point
over 1 year ago
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Do you like to learn? Do you? Well,
#EpilepsyDay
is coming up on February 10th so itโs a perfect opportunity to head to
www.epilepsy.ie
and learn more about a condition that affects over 45,000 people in Ireland.
over 1 year ago
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