medConfidential
@medconfidential.bsky.social
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📥 22
📝 114
medConfidential.org
Will people arrested at a protest for human rights action on Palestine have to unlock their phones to show their ID to the police?
bsky.app/profile/arts...
add a skeleton here at some point
1 day ago
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It’s Labour’s conference week, so the Government is announcing digital ID cards and re-announcing its politically-controlled centralised database of all of your medical notes.
medconfidential.org/2025/single-...
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Single Patient Record (and ID cards…) | medConfidential
https://medconfidential.org/2025/single-patient-record-and-id-cards/
2 days ago
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Blair’s institute wants your ID card to link to the NHS. When the report says “the PM should lead”, the report authors seem to mean TBI
institute.global/insights/pub...
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The NHS at a Crossroads: The App That Can Transform Britain’s Health
The NHS at a Crossroads: The App That Can Transform Britain’s Health
https://institute.global/insights/public-services/the-nhs-at-a-crossroads-the-app-that-can-transform-britains-health
about 2 months ago
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reposted by
medConfidential
Marcus Baw
about 2 months ago
A new episode of Everything Digital Health just dropped: The NHS Single Patient Record - with Sam Smith of MedConfidential
https://www.youtube.com/watch?v=Knp8bQJ47xg
Sam Smith from MedConfidential once again joins me on Everything Digital Health to discuss the pr...
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The NHS Single Patient Record - with Sam Smith of MedConfidential
Sam Smith from MedConfidential once again joins me on Everything Digital Health to discuss the pr...
https://www.youtube.com/watch?v=Knp8bQJ47xg
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medConfidential
Sam
2 months ago
This might get noisy - US threatening to ban Peter Kyle and ofcom from US travel over OSA heavy handedness against Americans
x.com/prestonjbyrn...
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Preston Byrne on X: "Ofcom has been sending several American clients pretty stupid letters over the last six months. Pinged the White House about it this morning. Got a callback 20 minutes later asking for recommendations for visa bans. What a time to be alive." / X
Ofcom has been sending several American clients pretty stupid letters over the last six months. Pinged the White House about it this morning. Got a callback 20 minutes later asking for recommendations for visa bans. What a time to be alive.
https://x.com/prestonjbyrne/status/1948816765040890086
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This pod by
@taylorlorenz.bsky.social
is about the US, but similar data linkage is happening in the UK for different political purposes - but political purposes are entirely dependent upon the interests of the politicians
overcast.fm/+ABHI4Ur24Mg
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ICE Is Building a Nationwide Tracking System (and Your Data is In It) — Taylor Lorenz’s Power User
Buy a subscription to my Tech and Online Culture newsletter, User Magazine to support my work!!!! 🙏 https://www.usermag.co The U.S. government is quietly building the largest surveillance system in mo...
https://overcast.fm/+ABHI4Ur24Mg
2 months ago
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tools Gov is encouraging / mandating your doctors to use...
bsky.app/profile/jxf....
add a skeleton here at some point
2 months ago
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NHS England will let Palantir and others develop algorithms to do this test this on NHS patient data, and Palantir's interoperability will allow "drag and drop" to the data mining tools that their US customers use against US women:
appleinsider.com/articles/25/...
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Apple Watch sensors are so good, it could provide the first pregnancy indicators
Apple's latest research shows that using a combination of Apple Watch sensors and all Apple Health data, results in a remarkably accurate pregnancy detector.
https://appleinsider.com/articles/25/07/15/apple-watch-sensors-are-so-good-it-could-provide-the-first-pregnancy-indicators
2 months ago
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Data always leaks - centralising your GP notes under the control of Secretary of State will mean someone can do something like this (and they can’t relocate your medical history)
www.bbc.co.uk/news/article...
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Secret Afghan relocation scheme set up after major data breach
The existence of the scheme could not be reported until now because of a court injunction.
https://www.bbc.co.uk/news/articles/cvg8zy78787o
2 months ago
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Starting to see how often access to patient notes is abused
www.cambridge-news.co.uk/news/cambrid...
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'My sister died without justice': Hospital staff violate patients' privacy
A Freedom of Information request found that 59 members of staff at an NHS trust had wrongfully accessed patient records between 2020 and 2024
https://www.cambridge-news.co.uk/news/cambridge-news/my-sister-died-without-justice-31918550
3 months ago
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reposted by
medConfidential
Marcus Baw
3 months ago
In the latest episode of Everything Digital Health I chat to Sam Smith of
@medconfidential.bsky.social
about the NHS Federated Data Platform what is it for? what does it do? why is it so unclear what its purposes are? why are we using
#Palantir
to build it?
www.youtube.com/watch?v=Rs4B...
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The NHS Federated Data Platform Part 1: What Is It? with Sam Smith of MedConfidential
YouTube video by Everything Digital Health
https://www.youtube.com/watch?v=Rs4B53anJFw
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reposted by
medConfidential
Marcus Baw
3 months ago
But the following section included this great question from the Chair: "Do you commit to this Committee that the Single Patient Record will be built on open standards, open source, and will not be proprietary"
parliamentlive.tv/event/index/...
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Parliamentlive.tv
Science, Innovation and Technology Committee
https://parliamentlive.tv/event/index/1b90adcc-914a-467d-afc0-ac71aab79ec6?in=11:38:25
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reposted by
medConfidential
Marcus Baw
3 months ago
The Parliamentary Science, Innovation and Technology Committee was super interesting this week - not only did it have a section on NHS England's
#Palantir
Federated Data Platform with Louis Mosley:
parliamentlive.tv/event/index/...
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Parliamentlive.tv
Science, Innovation and Technology Committee
https://parliamentlive.tv/event/index/1b90adcc-914a-467d-afc0-ac71aab79ec6?in=09:43:08
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Five rights and no more
bsky.app/profile/mike...
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3 months ago
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This scathing assessment of the former leadership of ONS could equally apply to the unreformed leadership of HDR
www.ft.com/content/a342...
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Former ONS head was allowed to act ‘without check or balance’, says senior MP
Committee probes UK Statistics Authority’s role in overseeing Sir Ian Diamond, who resigned as national statistician in May
https://www.ft.com/content/a342f058-1b20-4706-8b62-d408bbf88c22
3 months ago
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reposted by
medConfidential
Maria Farrell
3 months ago
Each time the Labour government takes its tech policy from the Tony Blair Institute (every time Labour talks about tech "innovation") we need to remind them their "tech experts" are employed by the "Let's blockchain the genocide" organisation. This is how shiny, banal evil looks, sounds, and is.
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Looks like the 10yp confirms that the single patient record will be in FDP/Palantir (bottom right, page 84)
3 months ago
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It’s not helpful to laugh at the faceplant, but this is very funny
www.hsj.co.uk/policy-and-r...
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Exclusive: 10-Year Plan published without delivery chapter
The government's 10-Year Health Plan has been published without a planned chapter on how the changes it proposes will be delivered.
https://www.hsj.co.uk/policy-and-regulation/exclusive-10-year-plan-published-without-delivery-chapter/7039607.article
3 months ago
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10 year plan: say goodbye to your data (and say goodbye to your GP)
medconfidential.org/2025/goodbye...
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10 year plan: say goodbye to your data (and say goodbye to your GP) | medConfidential
https://medconfidential.org/2025/goodbye-to-data-and-gp/
3 months ago
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We’ll have a blog post when the embargo drops
3 months ago
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George Freeman says: "I have always understood the need to be transparent in the work I have done for and with commercial clients and charities and am always willing to answer any criticism." Really?
3 months ago
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reposted by
medConfidential
Marcus Baw
3 months ago
@england.nhs.uk
decided that its own Privacy Enhancing Technology was "not initially processing Personal Identifiable Data" so didn't need a DPIA. Weak, weaselling out of their duty. It's like saying a car doesn't need safety features if it's currently empty.
www.whatdotheyknow.com/request/publ...
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The UK Biobank sign in the background is very on brand…
bsky.app/profile/rory...
add a skeleton here at some point
3 months ago
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The Department of Health in England can be responsible and coherent, but not this time
x.com/samcoatessky...
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Sam Coates Sky on X: "Exclusive - Row over doctors using AI recording and transcription software Ministers told to do more to help work out which AI companies to trust and which could be sharks NHS England warning some doctors using software which risks "clinical safety" https://t.co/XzP57jebTG" / X
Exclusive - Row over doctors using AI recording and transcription software Ministers told to do more to help work out which AI companies to trust and which could be sharks NHS England warning some doctors using software which risks "clinical safety" https://t.co/XzP57jebTG
https://x.com/samcoatessky/status/1937397099118620929?s=
3 months ago
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Government’s plan to genome sequence every baby at birth from 2035
medconfidential.org/2025/governm...
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Government’s plan to genome sequence every baby at birth from 2035 | medConfidential
https://medconfidential.org/2025/governments-plan-to-genome-sequence-every-baby-at-birth-from-2035/
3 months ago
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Every baby’s DNA to be stored in databases run by Palantir…
www.theguardian.com/science/2025...
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All babies in England to get DNA test to assess risk of diseases within 10 years
Newborns will have whole genome sequencing to enable personalised healthcare that predicts and prevents illness
https://www.theguardian.com/science/2025/jun/20/all-babies-in-england-to-get-dna-test-to-assess-risk-of-diseases-within-10-years
3 months ago
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reposted by
medConfidential
CarolineJMolloy
3 months ago
Why scrapping / making it difficult to access procedures on the NHS and instead having them done by poorly trained private sector workers is a bad idea, part #2624184
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reposted by
medConfidential
peterkwells
3 months ago
Up to £200k to join "new elite team of engineers, developers and data scientists" in 10 Downing Street to "help us fundamentally rewire the state" as part of 10 Data Science which has remarkably little transparency & democratic scrutiny given its claims...
sotaletters.substack.com/p/a-message-...
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A Message from 10 Downing Street
Assembling an elite team of engineers, developers and data scientists to rewire the state.
https://sotaletters.substack.com/p/a-message-from-number-10
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Time for some scrutiny of his decisions in his last job…
bsky.app/profile/shau...
add a skeleton here at some point
4 months ago
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DH/E saying a use of data that doesn’t appear in a data use register or publicly is entirely fine…
www.politico.eu/article/doct...
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Doctors to refer NHS to data watchdog over feeding patient data to AI
Patient data that was only supposed to be used for Covid-19 research got plugged into an all-purpose AI model, doctors say.
https://www.politico.eu/article/doctors-nhs-data-watchdog-patient-data-ai-uk-england-covid-pandemic-labour/
4 months ago
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reposted by
medConfidential
Indy
4 months ago
Someone really needs to get on to investigating how much effort has gone into influencing police and CPS thinking about the importance of investigating every pregnancy loss in "catch a terrorist" level surveillance depth. And who put that effort together?
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HDR copied the Michelle Mone approach to national emergencies… longer blog post coming
4 months ago
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It’s not that the entire ai industry is built on thievery, it’s just there’s a first mover PR advantage from such thievery
bsky.app/profile/thev...
add a skeleton here at some point
4 months ago
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do any members of the
@ukbiobank.bsky.social
PPIE group happen to follow us? DMs are open…
4 months ago
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Ahead of the 10 year plan
medconfidential.org/2025/ahead-o...
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Ahead of the 10 year plan | medConfidential
https://medconfidential.org/2025/ahead-of-the-10-year-plan/
4 months ago
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reposted by
medConfidential
Sam
4 months ago
there are people (and members of the House of Lords) who think it's big tech's job to raise their kids:
bsky.app/profile/saml...
add a skeleton here at some point
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reposted by
medConfidential
Ruth Callaghan
4 months ago
People treat health apps with the same trust as their diaries or their GP and that trust is willingly abused by authorities. This is chilling.
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With a politically-controlled central medical record they could ask the Government who would be obliged to hand the data over
bsky.app/profile/pete...
add a skeleton here at some point
4 months ago
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reposted by
medConfidential
peterkwells
4 months ago
"Police have been issued guidance on how to search women’s homes for abortion drugs and check their phones for menstrual cycle tracking apps after unexpected pregnancy loss" "...police could bypass legal requirements for a court order to obtain medical records..."
observer.co.uk/news/nationa...
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Police could search homes and phones after pregnancy loss | The Observer
New national guidance suggests officers look for menstrual tracking apps or abortion drugs
https://observer.co.uk/news/national/article/police-could-search-homes-and-seize-phones-after-sudden-pregnancy-loss
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medConfidential
Eliot Higgins
5 months ago
Again, this isn't an issue of left vs right, Republican vs Democrat, but authoritarianism vs democracy. You have to decide what side you're on, and fight.
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The Government's has issued a Request for Ideas on the Politically Controlled health record you'll be forced to have It’s long, contradictory, and we get into the detail in the link in the next tweet
5 months ago
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The Government's Request for Ideas on the Politically Controlled health record you'll be forced to have
medconfidential.org/2025/the-spr...
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Lots of (contradictory) information on the politically-controlled Central Health Record (and some questions for suppliers, DH/E, and probably you) | medConfidential
https://medconfidential.org/2025/the-spr-rfi/
5 months ago
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Mandating anything for one group requires every other group to have it as well to prove they’re not in the targeted group
bsky.app/profile/caro...
add a skeleton here at some point
5 months ago
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reposted by
medConfidential
Owen Boswarva
5 months ago
Tory peer Lord Camrose is proposing new anti-trans language on collection of sex data, in two clauses of the UK's Data (Use and Access) Bill: ● DVS trust framework
bills.parliament.uk/bills/3825/s...
● Data dictionary
bills.parliament.uk/bills/3825/s...
#DUABill
#DataBill
#digitalID
#transrights
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A building block…
medconfidential.org/2025/the-sel...
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The selfish fiction of “Safe Return” is reckless and unsafe | medConfidential
https://medconfidential.org/2025/the-selfish-fiction-of-safe-return-is-reckless-and-unsafe/
5 months ago
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DSIT is running a consultation on data brokers and data intermediaries, as if they were different things.
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On Data Brokers and Data Intermediaries | medConfidential
https://medconfidential.org/2025/on-data-brokers-and-data-intermediaries/
5 months ago
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What’s oddly missing from NHSE’s press release today about Palantir’s Cancer360 product being mandated on Trusts is who made it and whether there can be competitors on NHSE’s FDP platform (both from Palantir). Here’s a good talk about the tech itself
youtu.be/XcIsSHFplPo?...
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Data Bites #39: Getting things done with data in government
YouTube video by Institute for Government
https://youtu.be/XcIsSHFplPo?feature=shared&t=563
5 months ago
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This will take a lot of work because it’s little more than a word document of typed up postit notes from a workshop wish list. Magical pony dinosaur astronauts - let’s procure that!
www.hsj.co.uk/technology-a...
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Suppliers to help design Streeting’s ‘single patient record’
NHS England is asking suppliers for advice on designing the "single patient record" (SPR), which is seeking to create a "single version of the truth" across the NHS and social care.
https://www.hsj.co.uk/technology-and-innovation/suppliers-to-help-design-streetings-single-patient-record/7039230.article
5 months ago
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reposted by
medConfidential
your #3 source for absurdist true crime 🔨
5 months ago
Doctors personally liable if mandatory NHS AI transcriber gets it wrong
pivot-to-ai.com/2025/04/30/d...
- text
www.youtube.com/watch?v=9RWd...
- video
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Doctors personally liable if mandatory NHS AI transcriber gets it wrong
AccurX Scribe is a medical transcription tool. It listens in on your consultation and gives the doctor a transcript. Surely poor acoustics and the range of accents in the UK won’t cause problems? […
https://pivot-to-ai.com/2025/04/30/doctors-personally-liable-if-mandatory-nhs-ai-transcriber-gets-it-wrong/
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