#survey: Public consultation on Rare Diseases by the Public Health Committee of the #EuropeanParliament - directly related to the work of #ERNs, so take some time and fill it in! t1p.de/3ieqb @erneurogen.bsky.social @erknet.bsky.social @vascern.bsky.social @ernmetabern.bsky.social

🚨 When the right doctor is in another country, how do rare disease patients get care? European Reference Networks (ERNs) are virtual networks connecting experts across the EU, ensuring patients get the right treatment no matter where they live. Learn more ➡️ bit.ly/3D5yYE0 #RareDiseaseDay

🌍 Today is #RareDiseaseDay 2025! We stand with the 300 million people worldwide living with rare diseases. By coming together, we can raise awareness, drive change, and work toward a more inclusive and equitable future! 🔗 Read more: metab.ern-net.eu/rare-disease... #RareDiseaseDay2025

Fancy a chat? Get ready for this terrific set of “Dialogues on Neurometabolim”, chaired by the fabulous A. Garcia-Cazorla and supported by MetabERN. 1st webinar: 10th March 2025 at 17.00 CET. Register here: us06web.zoom.us/webinar/regi... or using the QR code on the image below.