💧 Missed Wednesday's webinar on urological aspects in paediatric kidney transplantation? 📺 Watch: youtu.be/z1R_jOSVGgk 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg @espu.bsky.social

Join us for a joint webinar on prenatal & anatomical studies in ARM 💡 📅 Wed 15 Oct @ 18:00 CEST 👶 Featuring speakers from NL & Japan 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN15Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧 📅 Wed 8 Oct @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN08Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧 📅 Wed 8 Oct @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN08Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧 📅 Wed 8 Oct @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN08Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours 👨‍⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care 📅 Wed 1 Oct @ 17:00 CEST 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN01Oct25 #EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe

Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours 💥 👨‍⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care 📅 Wed 1 Oct @ 17:00 CEST 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN01Oct25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe

💬 Don’t miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?🌟 Tell us about it in the new @eurordis.bsky.social‬ #RareBarometer survey! Survey available in 25 languages. 👉 Take the survey here: tiny.cc/RB-MH

It’s #UrologyWeek! 🚻 Know the signs. For patients with rare & complex urogenital conditions, UTIs can escalate fast. Collaboration across Europe helps deliver expert care. 🌍 es. 🔬 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #HealthUnion #HealthierTogether #RareDisease #ERNs

Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours 💥 👨‍⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care 📅 Wed 1 Oct @ 17:00 CEST 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN01Oct25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe

It’s #UrologyWeek! 🚻 Cancer patients face higher infection risks during treatment & recovery. Preventing & managing UTIs is critical to outcomes. 🔬 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #UroOnc #EUCancerPlan #EUCancerMission #RareDisease #ERNs

It’s #UrologyWeek! 🚻 A pill isn’t always the answer. 💊 For adults with IC or complex reconstructions, misdiagnosed “UTIs” mean delayed treatment. Specialised care is vital. ves lives. 💡 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #FPMRS #RareDisease #ERNs

It’s #UrologyWeek! 🚻 Children with anomalies such as bladder exstrophy or posterior urethral valves face recurrent UTIs that can damage kidneys. Awareness saves lives. 💡 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #PedUro #SoMe4PedSurg #RareDisease #ERNs

It’s #UrologyWeek! 🚻 A new European survey shows 1 in 3 people don’t know what cystitis is. UTIs are common, but in rare uro-recto-genital conditions, they can be complex & life-threatening. 🔗 Read More: eurogen-ern.eu/urology-week... #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

🚨 TONIGHT! Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

💬 Don’t miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?🌟 Tell us about it in the new @eurordis.bsky.social‬ #RareBarometer survey! Survey available in 25 languages. 👉 Take the survey here: tiny.cc/RB-MH

Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

Missed our webinar on fluorescence in paediatric surgery? Now on YouTube! 💡 With Carlos Giné, Willemieke Tummers & Jetske Ruiterkamp 📺 youtu.be/Ww0geCrtVdA 📰 bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

👏 Prof. Hans Langenhuijsen has been appointed Professor of Adrenal Surgery at Radboudumc! Hans leads our work on adrenal tumours, and this is a well-deserved recognition of his leadership. 🔗 eurogen-ern.eu/hans-langenh... #EUfunded #EU4Health #RareDisease #ERNs #Urology

Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

🗂️ Missed the latest ERN eUROGEN Registry update? Lotte Boormans walks us through current progress and plans. 📺 Watch on YouTube: youtu.be/umCo2wLbEt8 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology #UroSoMe @ec.europa.eu @jardinjointaction.bsky.social

Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net: 📅 Wed 10 Sep @ 18:00 CEST 🎓 EACCME accredited 🔗 bit.ly/eUROGEN10Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! 📊 Join us for a live update on the ERN eUROGEN Registry with Lotte Boormans & Loes van der Zanden. 🗓 Tuesday 9 Sept @ 18:00 CEST 💬 Includes Q&A 🔗 bit.ly/eUROGEN09Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroSoMe #Urology

ERN eUROGEN is featured in the Journal of Pediatric Urology! 📰 The article reflects on our origins, achievements, and future. 🔗 Read more: eurogen-ern.eu/ern-eurogen-... #EUfunded #EU4Health #RareDisease #ERNs @ec.europa.eu @jardinjointaction.bsky.social

Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net: 📅 Wed 10 Sep @ 18:00 CEST 🎓 EACCME accredited 🔗 bit.ly/eUROGEN10Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

📊 Join us for a live update on the ERN eUROGEN Registry with Lotte Boormans & Loes van der Zanden. 🗓 Tuesday 9 Sept @ 18:00 CEST 💬 Includes Q&A 🔗 bit.ly/eUROGEN09Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroSoMe #Urology

Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net: 📅 Wed 10 Sep @ 18:00 CEST 🎓 EACCME accredited 🔗 bit.ly/eUROGEN10Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

📊 Join us for a live update on the ERN eUROGEN Registry with Lotte Boormans & Loes van der Zanden. 🗓 Tuesday 9 Sept @ 18:00 CEST 💬 Includes Q&A 🔗 bit.ly/eUROGEN09Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroSoMe #Urology

Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net: 📅 Wed 10 Sep @ 18:00 CEST 🎓 EACCME accredited 🔗 bit.ly/eUROGEN10Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

📊 Join us for a live update on the ERN eUROGEN Registry with Lotte Boormans & Loes van der Zanden. 🗓 Tuesday 9 Sept @ 18:00 CEST 💬 Includes Q&A 🔗 bit.ly/eUROGEN09Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroSoMe #Urology

🎓 ERN eUROGEN Sept webinars: 📍09/09: Registry Update 📍10/09: Fluorescence in Paeds Surgery 📍17/09: Cystinuria MDT Register here: eurogen-ern.eu/webinars/upc... #EUfunded #HealthUnion #EU4Health #HealthierTogether #StrongerTogether #RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

Sexuality, intimacy & rare cancers. In this powerful @uroweb.org UROwebinar, ERN eUROGEN ePAG reps Rob Cornes & John Osborne share lived experiences after surgery. 🎥 Watch: www.youtube.com/watch?v=BayC... #EUfunded #EU4Health #UroSoMe #UroOnc #EUCancerPlan #EUCancerMission #PenileCancer

Did you see that our July newsletter published last week? 🤔 Read about: 💬 patient empowerment, 📚 updates to rare disease classifications, 💡 funding calls, events, and more... HERE ➡️ bit.ly/45vTTKH #EUfunded #EU4Health #RareDisease #UroSoMe #Urology

🚨 25 new ORPHAcodes for spinal dysraphisms! New Orphanet update led by ERN eUROGEN & ITHACA includes a decision tree to improve care. 🧠 Clinicians + researchers, take note: eurogen-ern.eu/revised-orph... #RareDisease #SpinaBifida #ERN

“From Isolation to Advocacy” – adult patients shared powerful stories at the 2025 VACTERL meeting. Supported by ERN eUROGEN, they also created a new flyer 💪 📖 Read: eurogen-ern.eu/patients-tak... 📽️ Watch: youtu.be/bl6vyLXXUg4?... #EUfunded #EU4Health #RareDisease #UroSoMe #SoMe4PedSurg

🚨 Don’t miss our next webinar! “State of the Art: Management of Anterior Urethral Strictures in 2025” with Malte Vetterlein & Tim Ludwig 🩺 📅 Wed 23 July, 18:00 CEST 🔗 Register: bit.ly/eUROGEN23Jul25 #EUfunded #EU4Health #RareDisease #Urology @ec.europa.eu @jardinjointaction.bsky.social @uroweb.org

🚨 Don’t miss our next webinar! “State of the Art: Management of Anterior Urethral Strictures in 2025” with Malte Vetterlein & Tim Ludwig 🩺 📅 Wed 23 July, 18:00 CEST 🔗 Register: bit.ly/eUROGEN23Jul25 #EUfunded #EU4Health #RareDisease #Urology @ec.europa.eu @jardinjointaction.bsky.social @uroweb.org

Missed Prof. Dr. Atsuyuki Yamataka’s webinar on MIS techniques for male imperforate anus & recto-urethral fistula? 📺 Watch now: youtu.be/VqLz7Ofanwo 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg #UroSoMe

🚨 Don’t miss our next webinar! “State of the Art: Management of Anterior Urethral Strictures in 2025” with Malte Vetterlein & Tim Ludwig 🩺 📅 Wed 23 July, 18:00 CEST 🔗 Register: bit.ly/eUROGEN23Jul25 #EUfunded #EU4Health #RareDisease #Urology @ec.europa.eu @jardinjointaction.bsky.social @uroweb.org

🚨 Don’t miss our next webinar! “State of the Art: Management of Anterior Urethral Strictures in 2025” with Malte Vetterlein & Tim Ludwig 🩺 📅 Wed 23 July, 18:00 CEST 🔗 Register: bit.ly/eUROGEN23Jul25 #EUfunded #EU4Health #RareDisease #Urology @ec.europa.eu @jardinjointaction.bsky.social @uroweb.org

🚨 TONIGHT! Don’t miss our webinar on MIS for anorectal malformation (ARM) 👨‍⚕️ Prof. Atsuyuki Yamataka will explore fistula prevention in male imperforate anus & recto-urethral fistula 📅 16 July | 🕕 18:00 CEST 🔗 bit.ly/eUROGEN16Jul25 #EUfunded #RareDisease #PedUro #SoMe4PedSurg #EU4Health #ERNs

🩺 Don’t miss our webinar on MIS for anorectal malformation (ARM) 👨‍⚕️ Prof. Atsuyuki Yamataka will explore fistula prevention in male imperforate anus & recto-urethral fistula 📅 16 July | 🕕 18:00 CEST 🔗 bit.ly/eUROGEN16Jul25 #EUfunded #RareDisease #PedUro #SoMe4PedSurg #EU4Health #ERNs

🩺 Don’t miss our webinar on MIS for anorectal malformation (ARM) 👨‍⚕️ Prof. Atsuyuki Yamataka will explore fistula prevention in male imperforate anus & recto-urethral fistula 📅 16 July | 🕕 18:00 CEST 🔗 bit.ly/eUROGEN16Jul25 #EUfunded #RareDisease #PedUro #SoMe4PedSurg #EU4Health #ERNs

🩺 Don’t miss our webinar on MIS for anorectal malformation (ARM) 👨‍⚕️ Prof. Atsuyuki Yamataka will explore fistula prevention in male imperforate anus & recto-urethral fistula 📅 16 July | 🕕 18:00 CEST 🔗 bit.ly/eUROGEN16Jul25 #EUfunded #RareDisease #PedUro #SoMe4PedSurg #EU4Health #ERNs

Missed our webinar on anal lipofilling – when, why, how, outcomes & ethics? 📺 Catch up now on YouTube: youtu.be/gYeuNYtcPsc?... 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg #UroSoMe

🚀 CPMS 2.0 is now MOBILE! Allowing clinicians to collaborate on rare disease cases from anywhere. 📲 Android: play.google.com/store/apps/d... 📲 iOS: apps.apple.com/gb/app/eu-cp... #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs @ec.europa.eu @jardinjointaction.bsky.social

🚨 TONIGHT! Join us for a Joint EU–Ukraine #webinar on Bowel Management in #Spina Bifida 🗓️ 19 June | 18:00 CEST 🎓 Prof. Rolle & Dr. Masnata 🎤 Moderated by Prof. Mosiello 🔗 bit.ly/eUROGEN19Jun25 Supported by ‪@ifsbh.bsky.social‬ & OMNI-Net #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

🚨 TONIGHT! Join ERN eUROGEN and ERNICA for a webinar on Anal Lipofilling: When-Why-How, Outcomes & Ethical Considerations 📅 18 June | 🕕 18:00 CEST 🔗 bit.ly/eUROGEN18Jun25 Supported by @eupsaofficial.bsky.social & ARM-Net #EUfunded #RareDisease #PedUro ‪@ec.europa.eu‬ @jardinjointaction.bsky.social‬

🧠 Join us for a Joint EU–Ukraine #webinar on Bowel Management in #Spina Bifida 🗓️ 19 June | 18:00 CEST 🎓 Prof. Rolle & Dr. Masnata 🎤 Moderated by Prof. Mosiello 🔗 bit.ly/eUROGEN19Jun25 Supported by ‪@ifsbh.bsky.social‬ & OMNI-Net #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs