Prof Peter Mulders and Michelle Battye are in Brussels for the High-Level Meeting on building a European rare disease research & innovation ecosystem. 📸 Signing the Declaration, at the Parliament, and speaking on newborn screening. #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

📅🐧 Day 8 of #JARDIN's Advent Calendar ✨ @erneurogen.bsky.social is the ERN for rare uro-recto-genital diseases and complex conditions. It unites experts to improve diagnosis, treatment and outcomes, drive innovation, and ensure equitable access for patients across Europe. 🔗 https://eurogen-ern.eu

📢 ERDERA’s 2026 Joint Transnational Call is OPEN! The call “Resolving unsolved cases in rare genetic and non-genetic diseases” supports global research efforts to speed up diagnosis & improve outcomes. 🔗All the info is now available: https://loom.ly/YzdmNGY #ERDERA #RareDisease

👶 Join the Online Paediatric Colorectal Course, 5–6 Feb 2026! Hands-on training on ARM & Hirschsprung’s disease with interactive sessions, expert debates & model exercises 💻 🔗 pediatriccolorectalcourse.com #EUfunded #EU4Health #RareDisease #PedUro #SoMe4PedSurg #ERNs

ERKsperience is coming soon 🎉 Our new ERKNet case-based webinar series kicks off with: “The Hyperoxalurias – genetic, rare & acquired forms” Find out more ⬇️ 🗓 22 January 2026 | 🕔 17:00–18:00 CET 🔗 Register here & send us your hyperoxaluria cases to be featured! https://tinyurl.com/3knkkyn3

🚨 TONIGHT! Join a webinar on laparoscopic ureteral reimplantation for VUR in children 🎥👶 🗣 Gander & Pérez-Bertólez 📅 Wed 19 Nov @ 18:00 CET 🎓 EACCME accredited & supported by @espu.bsky.social 🔗 bit.ly/eUROGEN19Nov25 @ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.social

Join a webinar on laparoscopic ureteral reimplantation for VUR in children 🎥👶 🗣 Gander & Pérez-Bertólez 📅 Wed 19 Nov @ 18:00 CET 🎓 EACCME accredited & supported by @espu.bsky.social 🔗 bit.ly/eUROGEN19Nov25 @ec.europa.eu @jardinjointaction.bsky.social @eupsaofficial.bsky.social

New, updated & existing resources for Anorectal Malformations! 🩺 Combined Guideline: eurogen-ern.eu/our-work/gui... 📘 Patient Journey (+ new audio version): eurogen-ern.eu/patient-info... 💙 Sexual Support Website: sexualsupport.eu #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

👶 Join the Online Paediatric Colorectal Course, 5–6 Feb 2026! Hands-on training on ARM & Hirschsprung’s disease with interactive sessions, expert debates & model exercises 💻 🔗 pediatriccolorectalcourse.com #EUfunded #EU4Health #RareDisease #PedUro #SoMe4PedSurg #ERNs

👶 The 16th European Paediatric Colorectal & Pelvic Reconstruction Meeting brought 250+ delegates from 40 countries to Stockholm 🇸🇪. 🔗 www.karolinskahospital.com/news/world-l... #EUfunded #EU4Health #HealthUnion #RareDisease #PedUro #ERNs

🧠 A new Orphanet Journal of Rare Diseases paper, led by Dr Rosanne Smits and supported by @erneurogen.bsky.social & funded by EJP RD, calls for stronger psychosocial care for people with rare conditions. 🔗 eurogen-ern.eu/addressing-p... #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

A look back at the ESSIC–CONVPP Congress 2025 🇮🇹 including presentations on ERN eUROGEN’s collaboration with ESSIC and our Rare Bladder Inflammatory Disease guidelines. 🔗 eurogen-ern.eu/ern-eurogen-... #EUfunded #EU4Health #RareDisease #ERNs #FPMRS @ec.europa.eu @jardinjointaction.bsky.social

🗣️ Rare diseases & ERNs are missing from the EU’s draft 2028–2034 budget! Help keep them visible & funded. Give feedback by 12 Nov 🕛 👉 eurogen-ern.eu/rare-disease... #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs @ec.europa.eu @jardinjointaction.bsky.social

Now on YouTube! ERN eUROGEN Guidelines for Anorectal Malformations With Jan Gosemann, Ramon Gorter & Willemijn Irvine: 🎥 Watch: youtu.be/KBHFZsYsJ3g 📝 ARM resources: eurogen-ern.eu/updated-ern-... 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘 📅 Wed 5 Nov @ 18:00 CET 🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine 🎓 EACCME accredited 🔗 bit.ly/eUROGEN05Nov25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘 📅 Wed 5 Nov @ 18:00 CET 🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine 🎓 EACCME accredited 🔗 bit.ly/eUROGEN05Nov25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join @erneurogen.bsky.social & ERNICA for a deep dive into the ERN eUROGEN Guidelines for ARM 📘 📅 Wed 5 Nov @ 18:00 CET 🗣 Jan Gosemann, Ramon Gorter & Willemijn Irvine 🎓 EACCME accredited 🔗 bit.ly/eUROGEN05Nov25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Every #ECRD poster tells a story of research, collaboration & action for people living with a rare disease. Share yours at #ECRD2026 and help shape the future of rare disease care in Europe. 📅 Deadline: 6 March 2026 👉 Submit: https://go.eurordis.org/ECRD2026Posters

Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net 🖥️ Motility of the Rectum in ARMs 🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱 📅 Wed 29 Oct @ 18:00 CET 🎓 EACCME accredited 🔗 bit.ly/eUROGEN29Oct25 #EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg

🧠 Missed our webinar on Interstitial Cystitis & Complex Bladder Pain Syndrome? Dr. Lisa Moris shares a multidisciplinary approach. 📺 youtu.be/C9yFFx06I24 📰 bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #FPMRS #UroSoMe

Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net 🖥️ Motility of the Rectum in ARMs 🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱 📅 Wed 29 Oct @ 18:00 CET 🎓 EACCME accredited 🔗 bit.ly/eUROGEN29Oct25 #EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg

💙 On #WSBHD25 we stand with @ifsbh.bsky.social & partners to accelerate #Action4SBH. We developed guidelines on spinal dysraphism in children/adolescents with IFSBH, @uroweb.org, @espu.bsky.social, @erknet.bsky.social & ERN ITHACA 👉 bit.ly/4npuWZ3 #SpinaBifida #Hydrocephalus #EUfunded #ERNs

Join a @erneurogen.bsky.social & ERNICA webinar supported by @eupsaofficial.bsky.social & ARM-Net 🖥️ Motility of the Rectum in ARMs 🗣️ Sebastian King 🇦🇺 & Marc Benninga 🇳🇱 📅 Wed 29 Oct @ 18:00 CET 🎓 EACCME accredited 🔗 bit.ly/eUROGEN29Oct25 #EUfunded #EU4Health #ERNs #RareDisease #PedUro #SoMe4PedSurg

👶 Missed our webinar on anatomical & prenatal studies in anorectal malformations? Dr Sloots, Dr Peters, Dr Schepens-Franke & Dr Miyake present new insights. 📺 youtu.be/rlutK0fzUtE 📰 bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join us for a webinar on Interstitial Cystitis and the multidisciplinary management of complex BPS 💡 📅 Wed 22 Oct @ 18:00 CEST 👶 Speaker: Lisa Moris from Leuven University Hospitals 🎓 EACCME-accredited 🔗 bit.ly/ERNeUROGEN22... #EUfunded #EU4Health #RareDisease #ERNs #FPMRS #InterstitialCystitis

🚨 TONIGHT! Join us for a joint webinar on prenatal & anatomical studies in ARM 💡 📅 Wed 15 Oct @ 18:00 CEST 👶 Featuring speakers from NL & Japan 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN15Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join us for a joint webinar on prenatal & anatomical studies in ARM 💡 📅 Wed 15 Oct @ 18:00 CEST 👶 Featuring speakers from NL & Japan 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN15Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

💧 Missed Wednesday's webinar on urological aspects in paediatric kidney transplantation? 📺 Watch: youtu.be/z1R_jOSVGgk 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg @espu.bsky.social

Join us for a joint webinar on prenatal & anatomical studies in ARM 💡 📅 Wed 15 Oct @ 18:00 CEST 👶 Featuring speakers from NL & Japan 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN15Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧 📅 Wed 8 Oct @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN08Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧 📅 Wed 8 Oct @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN08Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

Join ERN eUROGEN & @espu.bsky.social for a webinar on Urological Aspects in Paediatric Kidney Transplantation 🧒💧 📅 Wed 8 Oct @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN08Oct25 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg

🚨 TONIGHT! Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours 👨‍⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care 📅 Wed 1 Oct @ 17:00 CEST 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN01Oct25 #EUfunded #EU4Health #RareDisease #ERNs #UroOnc #UroSoMe

Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours 💥 👨‍⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care 📅 Wed 1 Oct @ 17:00 CEST 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN01Oct25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe

💬 Don’t miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?🌟 Tell us about it in the new @eurordis.bsky.social‬ #RareBarometer survey! Survey available in 25 languages. 👉 Take the survey here: tiny.cc/RB-MH

It’s #UrologyWeek! 🚻 Know the signs. For patients with rare & complex urogenital conditions, UTIs can escalate fast. Collaboration across Europe helps deliver expert care. 🌍 es. 🔬 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #HealthUnion #HealthierTogether #RareDisease #ERNs

Join us for a cutting-edge webinar on Stage II Testicular Germ Cell Tumours 💥 👨‍⚕️Dr Arnout Alberts shares the latest in personalised, multidisciplinary care 📅 Wed 1 Oct @ 17:00 CEST 🎓 EACCME-accredited 🔗 bit.ly/eUROGEN01Oct25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #UroOnc #UroSoMe

It’s #UrologyWeek! 🚻 Cancer patients face higher infection risks during treatment & recovery. Preventing & managing UTIs is critical to outcomes. 🔬 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #UroOnc #EUCancerPlan #EUCancerMission #RareDisease #ERNs

It’s #UrologyWeek! 🚻 A pill isn’t always the answer. 💊 For adults with IC or complex reconstructions, misdiagnosed “UTIs” mean delayed treatment. Specialised care is vital. ves lives. 💡 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #FPMRS #RareDisease #ERNs

It’s #UrologyWeek! 🚻 Children with anomalies such as bladder exstrophy or posterior urethral valves face recurrent UTIs that can damage kidneys. Awareness saves lives. 💡 🔗 eurogen-ern.eu/urology-week... #EUfunded #EU4Health #PedUro #SoMe4PedSurg #RareDisease #ERNs

It’s #UrologyWeek! 🚻 A new European survey shows 1 in 3 people don’t know what cystitis is. UTIs are common, but in rare uro-recto-genital conditions, they can be complex & life-threatening. 🔗 Read More: eurogen-ern.eu/urology-week... #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs

🚨 TONIGHT! Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

💬 Don’t miss the chance to make your voice heard! What helps you live with a rare or undiagnosed condition?🌟 Tell us about it in the new @eurordis.bsky.social‬ #RareBarometer survey! Survey available in 25 languages. 👉 Take the survey here: tiny.cc/RB-MH

Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

Missed our webinar on fluorescence in paediatric surgery? Now on YouTube! 💡 With Carlos Giné, Willemieke Tummers & Jetske Ruiterkamp 📺 youtu.be/Ww0geCrtVdA 📰 bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg

👏 Prof. Hans Langenhuijsen has been appointed Professor of Adrenal Surgery at Radboudumc! Hans leads our work on adrenal tumours, and this is a well-deserved recognition of his leadership. 🔗 eurogen-ern.eu/hans-langenh... #EUfunded #EU4Health #RareDisease #ERNs #Urology

Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

🗂️ Missed the latest ERN eUROGEN Registry update? Lotte Boormans walks us through current progress and plans. 📺 Watch on YouTube: youtu.be/umCo2wLbEt8 📰 Subscribe: bit.ly/4j7MaHU #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology #UroSoMe @ec.europa.eu @jardinjointaction.bsky.social

Join us for a webinar on Multi-Disciplinary Management of Cystinuria, with Kay Thomas & Matthew Bultitude 🧬 Supported by @espu.bsky.social 📅 Wed 17 Sept @ 18:00 CEST 🎓 EACCME accredited 🔗 Register: bit.ly/eUROGEN17Sep25 #EUfunded #EU4Health #RareDisease #ERNs #UroSoMe #PedUro

Join ERN eUROGEN & ERNICA for a webinar on Fluorescence in Paediatric Colorectal Surgery, supported by @eupsaofficial.bsky.social & ARM-Net: 📅 Wed 10 Sep @ 18:00 CEST 🎓 EACCME accredited 🔗 bit.ly/eUROGEN10Sep25 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg