It was indeed a great ReVAMP LEDUCQ meeting in Orford. We have a great network.

Are you working to advance research in rare diseases or rare cancers? This is for you! Apply to ERDERA’s Networking Support Scheme by 7 Oct 2025 ⏰ 🔗 Find more information on applying here: https://loom.ly/CwIvcvM #ERDERA #ResearchFunding

Thank you to everyone who joined the #WRISymposium for a day of exciting #VascularBiology research and great discussions—see you next year!

It was again a great Lymphatic Forum, this time in Chicago. From basic lymphatic endothelial cell biology to clinical trials on lymphatic diseases. Looking forward to the 2027 one.

It was great to be able to add a small human bit to the story. # VASCAPA #vascern #cmtc #Hevas #vascapa #evbo #navbo

If you are interested in the clinical aspects of lymphatic diseases, don't miss the 30th ISL World Congress of Lymphology. #lymph @vascern.bsky.social #issva #theralymph

Join us! Abstract submissions due in one week

It was absolutely fantastic Li-Kun. Great organisation. And thought provoking discussions. Thank you for all.

Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN

Great First European #Lymphatic Forum in Toulouse by #theralymph. Active participation by our group as well. Looking forward to the second edition in 2027 in #Budapest. #vascern #lymph #hevas #cmtc #le&rn #ESL #ISL #welbio

#VASCERN participating in discussions on lymphatic diseases at the biannual Polish Lymphatic Meeting in Wroclaw. VASCERN has been referred to by several Polish speakers as well. 🤩 #vascapa #hevas #lymph #cmtc

The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing

The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing

Great First European #Lymphatic Forum in Toulouse by #theralymph. Active participation by our group as well. Looking forward to the second edition in 2027 in #Budapest. #vascern #lymph #hevas #cmtc #le&rn #ESL #ISL #welbio

✨Excited to share our work revisiting the developmental origins of mammalian lymphatic endothelial cells.✨ A summary of our key findings using scRNA-seq, snMultiome-seq and imaging to show the direct specification of mesenchymal progenitors to LECs🧵 #blutorial #blabstract tinyurl.com/LECspec

And that is a wrap! Great success of the first European #Lymphatic Symposium Next one: Budapest 2027

#VASCERN participating in discussions on lymphatic diseases at the biannual Polish Lymphatic Meeting in Wroclaw. VASCERN has been referred to by several Polish speakers as well. 🤩 #vascapa #hevas #lymph #cmtc

It was absolutely fantastic Li-Kun. Great organisation. And thought provoking discussions. Thank you for all.

Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN

Happening this Thurs Apr 10th at 1pm ET!! Join us for the #InFocusSession on Exploring Therapeutic Approaches in the Vasculature!! Speakers were selected from Abstracts submitted to VB2024! These sessions are NOT recorded so be sure to attend!! Register👉 shorturl.at/LkITp

Interested in #vascular #biology and #diseases related to abnormal development. Our #review on #arteriovenous malformations and their therapeutic management was just published in JCI ! Extracranial arteriovenous malformations: towards etiology-based therapeutic management www.jci.org/articles/vie...

Meet 8 year old Alejandro who has lymphoedema in his right leg. This #WorldLymphoedemaDay, his story shows that life doesn’t stop with lymphoedema. 💙 Watch his inspiring testimony 👇 youtu.be/Il6EGQ-xrU4?... #LymphoedemaAwareness #RareDisease #PatientStory

There is only one week left to submit your oral abstract for the 19th IZFC! If you choose to submit an Oral Abstract, and your abstract is not selected for an oral presentation you will be offered a poster presentation. Submit here today: www.izfs.org/education/19...

HAPPENING TODAY!! #EVBOSeminarSeries Moderated by Thomas Juan. Speakers: @miguel-torres-1963.bsky.social and @ivanbassi.bsky.social. ⏰When: 5th March 2025, EU time (2PM UK). Place: online. See you there! For registration www.evbo.org

Read this latest study on the 'Protection of liver sinusoidal endothelial cells using different preservation solutions' by Julia H E Houtzager et al. 👀 https://doi.org/10.1530/VB-24-0004 #organtransplant #liver

Today VASCA@Berlin… next: ISSVA@Paris www.issva.org/2025

Check out our paper on AVM and hemorrhagic telangiectasia type 2 published in Circulation today! www.ahajournals.org/doi/10.1161/...

📍 #Rarediseaseday at @hopitalbichat.bsky.social, AP-HP with the Filière de santé maladies rares FAVA-Multi, engaging healthcare professionals on rare vascular diseases & the power of 👉ERNs in specialised care 👉Strengthening collaboration 👉Awareness & access for better patient outcomes #RareDiseases

#ResearchHighlight: Our Vascular Anomalies Working Group has published a new paper detailing the patient pathway for diagnosing & managing capillary malformations (CMs). Read more 👉 bit.ly/4bpNP8V #CapillaryMalformations #RareDiseases #VascularHealth

Circulation Research. 2021;129:136–154. DOI: 10.1161/CIRCRESAHA.121.318142 CLA: Complex lymphatic anomalies Not clear yet if / how these malformations in RASopathies impact cancer predisposition or immune function

🚨 When the right doctor is in another country, how do rare disease patients get care? European Reference Networks (ERNs) are virtual networks connecting experts across the EU, ensuring patients get the right treatment no matter where they live. Learn more ➡️ bit.ly/3D5yYE0 #RareDiseaseDay

Way to go Europe! #rarediseases

A new tool from Tel Aviv University enables precise measurement of PTEN gene activity, enhancing understanding of its role in cellular growth and its links to conditions like cancer and autism. doi.org/g86c25

💜 It’s #RareDiseaseDay! 300 million people live with a rare disease. Today, we honour their strength, raise awareness, & advocate for better care. 🎙️ Hear our members share one word for Rare Disease Day➡️ youtu.be/iV-jgYSyOEQ Which word speaks to you? Reply below! ⬇️

Hello! Newly diagnosed with a #RASopathy syndrome? (#Noonan, #Costello, #Cardiofaciocutaneous #CFCsyndrome, #Neurofibromatosis 1, #Legius, and others) ⬇️ Here's a helpful whiteboard video to explain more youtu.be/-ZbyIWLVTds?...

Thank you #EURORDIS for the 2025 Black Pearl Scientific Award. It is so gratifying to witness the vigour exhibited by the rare disease community. Congratulations EURORDIS for your commitment to providing support to those affected by a rare disease. #VASCAPA #HEVAS VASCERN, @vascern.bsky.social ERN

Congrats to @mvikkula.bsky.social on receiving the 2025 EURORDIS Black Pearl Scientific Award! 🏆 Science advances thanks to passionate researchers like Prof. Mikka Vikkula, whose work in #rarediseases brings hope to patients & families. Thank you! 💙 #Research #RareDiseaseResearch

✨ Today is #RareDiseaseDay! ✨ Shining a light on the 300+ million people worldwide living with a rare disease. We raise awareness of their challenges and advocate for more research, care, and better policies. 🔬💪 Join us in spreading the word! 💫🗣️ #StrongerTogether @ec.europa.eu

Today is #RareDisease Day! Did you know that around 36 million people living in the EU suffer from a rare disease? Since 2000, EMA has helped authorise over 260 new treatments for rare diseases. Learn more from our latest infographic: www.ema.europa.eu/en/documents...

📢 Today at the European Parliament, VASCERN's Coordinator, Prof. Guillaume Jondeau, & Project Manager participated in the Workshop on Patients' Rights & Rare Diseases in Strasbourg. #RareDiseases #PatientRights

Rare diseases affect 300 million people worldwide. But did you know that: 🟣There are 6,000+ rare diseases 🟣 72% are genetic 🟣 70% start in childhood 📊 Swipe through to learn more! Which fact surprised you the most? Tell us below! ⬇️ #RareDiseaseDay #RareDiseases

Thank you #EURORDIS for the 2025 Black Pearl Scientific Award. It is so gratifying to witness the vigour exhibited by the rare disease community. Congratulations EURORDIS for your commitment to providing support to those affected by a rare disease. #VASCAPA #HEVAS VASCERN, @vascern.bsky.social ERN

Three other interesting meetings in 2025 in Europe on vascular anomalies and lymphedema: #ISSVA debates and Updates,Paris (www.issva.org/2025); 1st European #Lymphatic Symposium,Toulouse (european-lymphatic-symposium.com), and the ISL World Congress of Lymphology, Antalya(www.isl2025lymphology.org).

Three other interesting meetings in 2025 in Europe on vascular anomalies and lymphedema: #ISSVA debates and Updates,Paris (www.issva.org/2025); 1st European #Lymphatic Symposium,Toulouse (european-lymphatic-symposium.com), & the ISL World Congress of Lymphology,Antalya (www.isl2025lymphology.org).

Illumina will enter the Spatial-Omics market in 2026 with Connected Multiomics (ICM) open.substack.com/pub/albertvi...

“ERC succeeds because it’s different. Its simple, tailored procedures allow Europe’s best researchers to thrive. Bureaucratic processes designed for other programmes should not be imposed on it.” @marialep.bsky.social spoke up for an independent ERC with a doubled budget today @europarl.europa.eu

What is VASCERN & how do we improve rare vascular disease care? 💙 This #ResearchHighlight explores our network’s impact. While we've expanded, our mission stays the same: better care for rare vascular diseases. 📖 Read more: bit.ly/3CJuiDL #RareDiseases #Rarediseaseawareness

#VAC2025 is now over. Fantastic presentations with lively discussions from basic science to clinical applications. Congratulations to the poster award winners: Antonio Queiro Palou, Maya Alvared-Harmon, Apeksha Shapeti and Favour Onyeogaziri! See you in Barcelona 2027! #VASCERN #vascapa #HEVAS #cmtc

👩‍🔬 Today, we celebrate the women transforming rare disease research & care! On this International Day of Women and Girls in Science, we honour the female scientists, researchers & healthcare professionals advancing research & care for rare vascular diseases. #WomenInScience #IDWGIS #RareDisease

It is fantastic to work with you all 🤩