Btw I'm currently at ...so break, new things, slowly rework core values, plan. Go slow 👍

#Autistic 🧵...number I dunno. Few years back I worked with my therapist at the time.* Yes zero shame more should go* To work on how I could manage success and projects. They had proved hard, cliff edge i fall off. So I read up on summit syndrome felt applicable so did this one for me with my team

Monday the 11th May is our next open evening at #HitchinHackpace. Why not come along and see what the hackspace is all about? From 19:30. Free tea or coffee and biccies 🫖☕🍪🙂 #make #craft #invent #learn #Hitchin #Stevenage #Letchworth #Baldock

Ok Just worked out what this is like during PhD bit....

On a sofa ryan gosling binge doing zero for now. So next I'll also be sorting out the previous health/body regime. I look like a truck hit me doing this PhD. They don't tell you that..... become part fraggle held together by speed tape at this point. Research goblin....

Yep celebrating #PhD I chilled at #Ikea, got actually a Nacho Dog ( I know no meatballs.. wild) then got a milkshake at Tim's and got some donuts, then finally got myself sone new sensory lighting. That's what I wanted to do. Its a been epic day. #Audhd celebrating my viva passing for my #PhD

If you wondering what I'm doing to celebrate #Viva for #PhD. I sat in a dark room all yesterday and today I'm going IKEA sit in rooms and eat meatball....that's it. #Autistic #Adhd 🤣

My start didn't point toward a PhD.... To go from a council house and being a young #CSASurvivor undiagnosed #Disabled #Audhd under #SocialCare & In #CouncilHousing to where I am today, some very specific things had to happen. it was a series of survival steps and essential supports ⬇️

My start didn't point toward a PhD.... To go from a council house and being a young #CSASurvivor undiagnosed #Disabled #Audhd under #SocialCare & In #CouncilHousing to where I am today, some very specific things had to happen. it was a series of survival steps and essential supports ⬇️

First pages of my thesis is important for you ❤️🙏

I’m so happy to share that I passed my #PhD viva yesterday with a few 'minor corrections' before it’s 100% official, so I’m officially a soon-to-be-Dr Caroline Keep in computing and engineering with a focus on education. So first up HERE thanks to everyone who supported me 🙏 Yes I'm very pleased

In Halton 13 out of the 15 wards would have been won by the left if labour and greens had united. Thats in this heartland of the reform rebellion. The left united outnumbered the right. Now we've got reform in 😑 Either move left or proportional representation pls.

Love the chart but have no idea what data, what axis mean, whats going on. From a purely #datasci I've got lots of questions what's going on with this plot.

Got to the point in unmasking my autism that my parents are starting to call my flat look (because it isn't quite flat) my Cillian Murphy face I'm not even mad at it, it's kinda accurate.

Reform this morning ... "blackmail" is an acceptable political tool.

Reminder we have 2000+ autistics and learning disabled people locked up often being abused. Terrible cases, we have failed to fund their freedom for a decade now. Some for up to 45 years, some die in care, some never leave. Zero funding, zero interest. www.bbc.co.uk/news/article...

What I just woke up ? #Adhd

We know autistics are more likely to have hypermobility/Ehlers-Danlos. We know these lifelong conditions require complex care. Now we need more research into autistic experiences, so we can know which treatments and supports help. By @cjcrompton.bsky.social et al: link.springer.com/article/10.1...

Found typo in my thesis and my new take about is ..yep that's because I am human and I'm dyslexic Audhd (and you don't change the timeline for us at all!)

Update on Trigeminal Neuralgia. Through a weird combination of beta blockers and TN drugs we got a handle on it....finally. Note to #EDS crowd this can cause your #Pots go off when your lying down. So yeah if your feeling potsy horizontal...worth a check. 🙄

This makes celebrating anything tricky as obvs my audhd and disability are part of me. But ... kinda want to celebrate the actual thing I did. The grit, expertise and commitment. Whilst recognising its tough. Fine line there @clearautism.bsky.social. Also never say "considering" to me. Ever.

Every #autistic and person with learning disabilities should know this one. 38.8% of our deaths were considered ‘avoidable’ by LeDeR report. We are dying alot younger. www.england.nhs.uk/long-read/up...

Apprently this time it was in everything the king straight up said 🤣🤣 Just with the level of subtle shade of a master drag queen on a good day. Impressive.

No. Autism is not my superpower. Neither is my ADHD. Welcome to Stella Youngs Ted Talk. www.ted.com/talks/stella...

(CSEW) 2024-2025 est 176,000 #disability hate crimes, 10,224 reported, 25% of these seriously violence... only 214 convictions. In 2026 Inclusion London is saying its basically decriminalised. www.disabilitynewsservice.com/police-chief...

A chunk of today has been dedicated to making sure my viva outfit is in the right material. #SensoryHell. #AutisticProblems

Good morning! Here is a three-day old sea-otter pup, snoozing on their Mama. The image is by one my favourite wildlife photographers, Suzi Eszterhas, who runs girlswhoclick.org - an organisation that mentors girls and young women interested in nature photography. Feel free to share.

This is the political mastermind of the Labour we've all heard was critical ? #McSweeney

Here who is funding your MPs, parties, lords...etc www.consolidate.org.uk?ref=opendemo...

Catching at lunch a bit of the #MorganMcSweeney inquiry interview. Is this box schrödinger's box ? Cause noone seen it but everyone had it ? And noone knows who did see it. Unreal. #Mandelson

DH just pointed out hilariously "he just does book. Not reading just book. My main job is living in your reflected glory" I'm on the floor 🤣 Tbh any other uni he would be a 10... #Kenenough #AcademicKen

Having near all of these having eds, pots, mcas, tn, adhd and autism. Currently ironically looking into gasto to do with my nerve pain. So tracks ...I feel seen here.

Important thread about consent and harms. Also should include all those special diets and supplements. #INSAR2026

Last session I am attending at #INSAR2026 is "Expanding Partnerships: Community-Engaged Autism Research with Historically Underrepresented and Marginalised Groups. This panel has presentations by Hannah Morton, Teal Benevides, Micah Mazurek and Gala Morozova.

Now: Last #INSAR2026 session: All about communication. How do autistic and non-autistic people navigate gaps in communication, including non-speaking autistics?

Interested to watch this visit from King Charles...it will no doubt be a masterclass in diplomatic shade (which I'm not sure rest of world can read sometimes ) but wait for that tie colour, limited time, and talking in a way only the UK would know he's annoyed. Lesson in queen's brooches with trump.

This has happened everywhere the spree of spending on random buildings was insane and seemed stupid.

Wishing everyone at #Makefest and #Oggcamp a wicked day today having to crack on with viva prep and recovery ( light still tricky with TN) so have a great day ♥️♥️🙏🙏

This morning inspired mostly by #INSAR2026 and @seedsignal.bsky.social actually commenting on how helpful it is. I wanted to write a thread on how I get help with my healthcare as a #autistic #adhder . I often write a tip or two but I haven't really explained how I managed it ⬇️ So healthcare

#EDS tip 35684 maybe... Use bone broth in your gravy. Its gorgeous and helps generally.

Ok loving these posts #INSAR2026 Thank you so much for posting ♥️ keep them coming 🙏🙏

Contributing factor: neuronormative education, bullying, no agency & institutional gaslighting Protective factor: adult autonomy, more control but can be a challenge transitioning away from school routine. #INSAR2026

Patrick Dwyer at #INSAR2026 The history of autism is dominated by the non-autistic. 1992 - ANI with Sinclair, Williams and Grant. Autistic communities online - Th satire of ‘neurotypic disorder’. Resistance with great humour.

Laura is sharing examples of 2 autistic people's stories that shows their worsening health experiences using quotes, each show the same steps: - self-dismissal - communication barriers - provider dismissal - ineffective treatment - "difficult Patient" - self-removal from healthcare system #INSAR2026

Conclusions from this research: - masks are socially reinforced - presentation depends on social context - masking leads to poor mental health consequences Reflection: how are we allowing this to happen? What would timely intervention look like? How do we improve support? #INSAR2026

Though important to note that @drmbothapsych.bsky.social says a huge problem is that autistic people are never allowed to just be. And one of the most profound things we can do is provide autistic people space to just be, so they can follow their internal compass, and live well. #INSAR2026

If we don't improve medical care for autistic people, and believe and accommodate them, we will be doing nothing to decrease diminished autistic life expectancy. #INSAR2026

Given my newly sorted trigeminal neuralgia and EDS. I don't even want to go into how much of a entire mess healthcare is for many autistics. We still have healthcare underestimating and not believing us regularly. Esp in complex co occurring conditions. 🙄

I often mask when needed it's not always a bad choice is think too. I think of it as neurotypical accommodations I use for them sometimes. That's a two way street.