Epilepsy Ireland
@epilepsyireland.bsky.social
📤 209
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📝 27
Working to achieve a society where no person’s life is limited by epilepsy. www.epilepsy.ie
reposted by
Epilepsy Ireland
FutureNeuro Centre
23 days ago
🎉 A brilliant night at the
@chambersireland.bsky.social
Sustainable Business Impact Awards. No win this time, but a great chance to celebrate our
#MyMovingBrain
community connect series—and to recognise everyone who’s helped shape it so far.
@epilepsyireland.bsky.social
@researchireland.ie
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reposted by
Epilepsy Ireland
FutureNeuro Centre
26 days ago
Thank you to the FutureNeuro researchers who hosted our stand at the National
@epilepsyireland.bsky.social
Conference on Saturday! Great to connect with the
#Epilepsy
community and share updates on our current research and Centre activities 🙌
@researchireland.ie
@chrisgreene.bsky.social
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reposted by
Epilepsy Ireland
FutureNeuro Centre
about 1 month ago
👏 Great to see so many FutureNeuro researchers at the recent International Epilepsy Congress! Thanks to the clinicians who support our work & to
@epilepsyireland.bsky.social
& Irish Epilepsy League for nominating our Director,
@dchenshall.bsky.social
, for the 2025 Ambassador for Epilepsy Award.
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Attending a session on SUDEP communication at
#IEC2025
- interesting to hear clinical attitudes from other countries which we can use in our ongoing campaign to introduce a national strategy to reduce SUDEP and epilepsy-related deaths in Ireland.
about 2 months ago
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Congrats Professor Henshall! Delighted to see your incredible work recognised - and to be here in Lisbon to congratulate you in-person!
#IEC2025
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about 2 months ago
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We have published our Annual Report for 2024! Read about how we continued our journey towards a society where no person's life is limited by epilepsy by visiting our website below!
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Epilepsy Ireland publish 2024 Annual Report
Look back on how we continued our journey towards a society where no person's life is limited by epilepsy in 2024.
https://www.epilepsy.ie/content/epilepsy-ireland-publish-2024-annual-report
about 2 months ago
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Researchers and research institutions - this online event on our latest research call may be for you! Find out more on our website below. Delighted to have colleagues from the
@hrci.bsky.social
joining us as part of the session as well.
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Information Session for Researchers on Epilepsy Ireland Research Funding Call 28.8.25
Epilepsy Ireland were delighted to recently launch our 9th Research Funding Call, which is run in conjunction with the Health Research Board/Health Research Charities Ireland Joint Funding Scheme (HRB...
https://www.epilepsy.ie/content/information-session-researchers-epilepsy-ireland-research-funding-call-28825
2 months ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
3 months ago
📢
@epilepsyireland.bsky.social
has launched their 9th Research Funding Call, focusing on priority areas identified to drive innovation and improve the lives of people with epilepsy. 🔗 Learn more and submit your Expression of Interest by September 26:
www.epilepsy.ie/content/appl...
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Apply for funding
Researchers and research institutions - we have launched our 9th Research Funding Call! Find out more about how to apply and the process involved.
https://www.epilepsy.ie/content/apply-funding
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reposted by
Epilepsy Ireland
Health Research Charities Ireland
3 months ago
@epilepsyireland.bsky.social
have launched a call for Expressions of Interest as part of the HRCI
hrbireland.bsky.social
(HRB) Joint Funding Scheme. Find more information on the call by visiting the Open Calls page on our websit
e https://hrci.ie/joint-funding-open-call
s
#HealthResearchMatters
rs
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Good news earlier this week with the official commencement of the Sodium Valproate Inquiry in Ireland. Find out more on our website below.
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Sodium Valproate Inquiry Officially Begins
The inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim) in Ireland has officially begun its work.
https://www.epilepsy.ie/content/sodium-valproate-inquiry-officially-begins
3 months ago
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Want to learn more about what Life with Epilepsy can be like? Check out the new section of our website, which features some incredible personal testimonies from our volunteers from all across Ireland.
#EpilepsyAwareness
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Life with Epilepsy
Ever wondered what it is like to live with epilepsy? Read the perspectives from people across Ireland.
https://www.epilepsy.ie/content/life-epilepsy
3 months ago
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Looking forward to Saturday for the latest event of the
#MyMovingBrain
series! Fancy joining us? See below! 👇 👇
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4 months ago
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Really powerful story shared with us by Laura - charting her experience with epilepsy and the challenges that can come with the condition - and how she has overcome them! Well worth a few minutes of your day!
#EpilepsyAwareness
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Laura's Story
To help raise awareness of epilepsy and support others living with the condition, Laura has shared her experiences of living with epilepsy…. When I was 13, I had an intense headache for 2 days. On the...
https://www.epilepsy.ie/content/lauras-story
4 months ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
4 months ago
🏃♂️ Paralympian Michael McKillop MBE returns as host and keynote speaker for our
#MyMovingBrain
event in Maynooth on June 28! Hear his powerful story of navigating epilepsy, cerebral palsy, and elite sport. Don’t miss it—register now:
www.eventbrite.ie/e/1374602566...
@epilepsyireland.bsky.social
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Looking forward to teaming up with
@futureneuro.bsky.social
once again for the third edition of the My Moving Brain series - this time from Co. Kildare. More details on our website below!
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My Moving Brain Community Event, Kildare 28.6.25
The My Moving Brain initiative is being led by our colleagues in FutureNeuro - Ireland’s Centre for Translational Brain Science, funded by Research Ireland. The initiative as whole aims to highlight w...
https://www.epilepsy.ie/content/my-moving-brain-community-event-kildare-28625
4 months ago
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This week is
#EpilepsyWeek
and on our site, we have some fantastic stories on the lived experience of epilepsy - such as Grace's, linked below. Be sure to visit, learn more and raise awareness!
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#EpilepsyWeek - Grace's Story
"A week later I had multiple seizures in the space of a few minutes. That was a really heartbreaking time as I have wanted to drive for as long as I can remember. It was the closest I had ever gotten ...
https://www.epilepsy.ie/content/epilepsyweek-graces-story
5 months ago
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If you witnessed a person having a seizure, would you know what to do? If the answer is no, visit our website below to learn all about Time, Safe, Stay.
#epilepsyawareness
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Seizure First Aid
Visiting our site for key information on what to do in the event of a person having a seizure? Find what you're looking for in this section.
https://www.epilepsy.ie/content/seizure-first-aid
5 months ago
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Looking forward to hosting this event next week in University College Cork - which will focus on one of our key advocacy campaigns around having epilepsy added to the Chronic Disease Management Programme. Fancy joining us? Visit our website to find out how.
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Epilepsy - Who Cares?
Join us for a special event in Cork on May 9th which will explore why epilepsy should be added to the Chronic Disease Management Programme.
https://www.epilepsy.ie/content/epilepsy-who-cares
6 months ago
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We're excited to be recruiting for the new position of Research Officer in EI - would you like to enhance and expand our presence in the important world of epilepsy research? Find out more on our website below!
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We're Hiring - Research Officer
Title Research Officer Location Epilepsy Ireland Head Office, Crumlin, Dublin 12. Hybrid working policy in place. Hours of Work 28 – 35 hours per week. Occasional evening/ weekend work requi...
https://www.epilepsy.ie/content/were-hiring-research-officer
6 months ago
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reposted by
Epilepsy Ireland
Sarah Delaney
6 months ago
@epilepsyireland.bsky.social
are recruiting a Research Officer! For more details, check out the info here:
www.epilepsy.ie/content/were...
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We're Hiring - Research Officer
Title Research Officer Location Epilepsy Ireland Head Office, Crumlin, Dublin 12. Hybrid working policy in place. Hours of Work 28 – 35 hours per week. Occasional evening/ weekend work requi...
https://www.epilepsy.ie/content/were-hiring-research-officer
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reposted by
Epilepsy Ireland
Gary Brennan
7 months ago
Very proud of the lab who put together a bake sale for Epilepsy awareness Day yesterday. Together they raised over €1000 for
@epilepsyireland.bsky.social
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reposted by
Epilepsy Ireland
Hesma Lomax
7 months ago
#PurpleDay
2025 Raising awareness of
#Epilepsy
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reposted by
Epilepsy Ireland
Rick O'Shea
7 months ago
This is immensely important because charities still need money, and so few people have change on them that bucket shaking is going out of fashion. If you had anything to donate, and a share to give this post, I'd be hugely grateful.
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Today is Purple Day® - our biggest fundraising day of the year. Can you help continue our vital services and supports in communities across Ireland? Learn about our work and make a donation via our website below. Together, we can achieve a society where no person's life is limited by epilepsy.
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Purple Day®
Can you help support our fundraising activities for Purple Day® on March 26th? Find out how you can get involved today!
https://www.epilepsy.ie/content/purple-dayr
7 months ago
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reposted by
Epilepsy Ireland
FutureNeuro Centre
7 months ago
✨Last night, with
@epilepsyireland.bsky.social
, we hosted an Epilepsy
#ResearchMatters
event for
#BrainAwarenessWeek
! Experts shared insights on seizure monitoring, genetics, women’s health & innovative therapies. Huge thanks to our speakers & host
@rickoshea.bsky.social
a for an inspiring evening!
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reposted by
Epilepsy Ireland
Rick O'Shea
7 months ago
And we are off here at the
@rcsi.bsky.social
for our
@epilepsyireland.bsky.social
@futureneuro.bsky.social
event...
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reposted by
Epilepsy Ireland
FutureNeuro Centre
7 months ago
🧠 Brain Awareness Week 2025 starts today With 1 in 3 developing a neurological condition, research is more vital than ever. Join us &
@epilepsyireland.bsky.social
on March 12 at RCSI for Epilepsy
#ResearchMatters
, highlighting Ireland’s cutting-edge research.
futureneurocentre.ie/epilepsy-res...
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reposted by
Epilepsy Ireland
Andrew Parle
8 months ago
Anyone fancy a 24 hour squat challenge in aid of
@epilepsyireland.bsky.social
Let's help support those Epilepsy..
fundraising.epilepsy.ie/event/squat-...
#Epilepsy
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Home
https://fundraising.epilepsy.ie/event/squat-challenge/home
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We’ve a big fundraising day coming up - will you lend us a hand? Oh great - more info below:
www.epilepsy.ie/content/purp...
8 months ago
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Wanna learn about epilepsy research? Wanna see
@rickoshea.bsky.social
expertly MC an event? Of course you do! Conveniently we have just the event for you….👇👇
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Brain Awareness Week 2025 – Epilepsy Research Matters 12.3.25
To celebrate Brain Awareness Week, we are delighted to be teaming up with our colleagues in FutureNeuro for the latest iteration of our Epilepsy Research Matters event!
https://www.epilepsy.ie/content/brain-awareness-week-2025-epilepsy-research-matters-12325
8 months ago
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Check out our review of some of the coverage from
#EpilespyDay
- every day is an awareness day and you can learn loads more about a condition which affects 45,000 people in Ireland by viewing any of these pieces!
#TimeSafeStay
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#EpilepsyDay 2025 in the news!
Miss any of the coverage of #EpilepsyDay? This article has you covered so be sure to catch up now!
https://www.epilepsy.ie/content/epilepsyday-2025-news
8 months ago
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reposted by
Epilepsy Ireland
Rick O'Shea
8 months ago
It's
#EpilepsyDay
todya here in Ireland. I'm proud to be
@epilepsyireland.bsky.social
's ambassador and the voice of our campaign again this year. Do drop a visit to the site to learn more about what you can do to better understand the lives of those of us who have epilepsy.
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Today is
#EpilepsyDay
and we'd like to introduce you to our feature video. Epilepsy. It all becomes clearer when you know what to do. Learn about
#TimeSafeStay
by visiting
www.epilepsy.ie
today!
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8 months ago
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reposted by
Epilepsy Ireland
Rick O'Shea
9 months ago
#EpilepsyDay
2025 is next Monday, this is a brilliant interview with Emma Beamish - another public figure who, like me, has the condition. I think I might even have used the very same phrase a few times over the years...
www.irishtimes.com/health/your-...
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Epilepsy: ‘It’s like having the sword of Damocles above your head’
Former international cricketer Emma Beamish on living with the anxiety of never knowing when it might strike again, and her decision not to have children
https://www.irishtimes.com/health/your-wellness/2025/02/04/epilepsy-its-like-having-the-sword-of-damocles-above-your-head/
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A temporary new logo for a a very special reason…👀
#EpilepsyDay
Find out more at
www.epilepsy.ie
.
9 months ago
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We approve of your approval.
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9 months ago
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Do you like to learn? Do you? Well,
#EpilepsyDay
is coming up on February 10th so it’s a perfect opportunity to head to
www.epilepsy.ie
and learn more about a condition that affects over 45,000 people in Ireland.
9 months ago
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reposted by
Epilepsy Ireland
Sandy Gallagher Meath West 🌹
11 months ago
@epilepsyireland.bsky.social
With over 900 people living with epilepsy in Meath West, @epilepsyireland have been in touch about some of the key issues that they are seeking to progress. If elected in
#GE2024
, I will work with EI to advance these issues within the 34th Dáil.
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Us when someone says they don’t know how to respond to a seizure when the link is literally right there 👇👇👇
www.epilepsy.ie/content/seiz...
11 months ago
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We're new here but we've been around since 1966 - supporting people with epilepsy and their families across Ireland. Want to find out more about who we are, what we do, and why? There's a website for that -
www.epilepsy.ie
.
11 months ago
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The sky is quite blue and social over here…
11 months ago
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