SHARE CTD
@sharectd.bsky.social
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A European research network on "Sharing and Re-using clinical trial data to maximise impact."
#PeerOnSky
Article 2! "Meta-analysis of individual participant data: rationale, conduct, and reporting" by Riley et al. (2010). IPD boosts power for subgroups and adjusts for confounders. Read:
doi.org/10.1136/bmj....
What challenges do you face in IPD meta-analyses?
#OpenScience
#MetaAnalysis
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Meta-analysis of individual participant data: rationale, conduct, and reporting
The use of individual participant data instead of aggregate data in meta-analyses has many potential advantages, both statistically and clinically. Richard D Riley and colleagues describe the rational...
https://doi.org/10.1136/bmj.c221
2 months ago
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A must read work from our network. đź‘Ť
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2 months ago
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#PeerOnSky
starts! “Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing” by Mello et al. (2018). They found participants value data sharing for science, but worry about privacy breaches. A 2018 perspective still relevant today! Does this reflect current views?
#DataEthics
4 months ago
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🎉 Hello all! Welcome to
#PeerOnSky
! It stands as 'Peer discussion on the Sky'. We will dive into cutting-edge research, sparking discussion on BlueSky using the articles discussed within our network. We’ll kick off with a 2018 gem on clinical trial data sharing.
#OpenScience
#Research
#JournalClub
4 months ago
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a must read article for the week!
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4 months ago
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🌧️ Just wrapped Datathon1 at UMC Göttingen, from 07 to 11 July! Part of SHARE-CTD, this in-person event brought doctoral students, PIs, and lecturers together for clinical trials, biostats, and data mgmt. Check the Vibes!
#SHARECTD
#Datathon
#Research
#biostatistics
5 months ago
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đź’¬ Participants deserve to know! This Trials paper (
doi.org/10.1186/s130...
) pushes for sharing clinical trial results with participants—because their contributions matter. From a patient’s view, it’s about respect & transparency. Let’s dive in!
#ClinicalTrials
#Transparency
#ShareCTD
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Sharing clinical trial results with participants: important, expected and possible - Trials
Participants in clinical trials should be pro-actively offered the results of trials in which they have participated. This should be done in a way that is accessible and understandable for all partici...
https://doi.org/10.1186/s13063-025-08802-0
6 months ago
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🔬 New paper alert! BMC study (
doi.org/10.1186/s128...
) proposes 6 solutions target ethics, registries, & governance to tackles Germany’s clinical data sharing crisis. Only 2% of medical research shares data—time for change! Read on!
#OpenScience
#DataSharing
#ShareCTD
6 months ago
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🔍 Fascinating read! This PLOS Biology paper uncovers misuse of the NHANES dataset by potential paper mills—raising red flags on shared data integrity. Not about trials, but a must-discuss for research ethics. Check it:
journals.plos.org/plosbiology/...
#ResearchEthics
#DataIntegrity
#OpenScience
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Explosion of formulaic research articles, including inappropriate study designs and false discoveries, based on the NHANES US national health database
The combination of AI and national health databases offers opportunities, but may also be exploited by unethical agents. This study shows that there has been an explosion of formulaic research article...
https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.3003152
7 months ago
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🎉 Today’s the day! ICTD 2025 - Rethinking Clinical Trials: Inclusivity in Practice, co-hosted by ECRIN
@ecrin.bsky.social
& SCReN in Madrid. How do we turn talk into action for inclusive study design? Tune in online—registration & waitlist are full!
ecrin.org/ictd-2025
#ICTD2025
#ClinicalTrials
7 months ago
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🎉 Big news for clinical research! SPIRIT2025 just dropped, adding an Open Science section & a new Item No. 6 on data sharing. This pushes transparency in trials—where & how de-identified data, code, & materials will be accessible. Check it:
www.consort-spirit.org
#OpenScience
#ClinicalTrials
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Home | consort-spirit.org
https://www.consort-spirit.org/
7 months ago
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🎉 Kudos to Giulia
@giulia-varvar.bsky.social
for her speed talk at "Printemps de la Recherche" last Tuesday! She presented about SHARE-CTD, and her project on re-analysis of pivotal trials in Oncology, to Irset’s 350+ pros. A great moment to showcase open science in medicine!🔬
#SHARECTD
#OpenScience
7 months ago
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🙌 Big props to our SHARE-CTD scientist featured in STAT News! His insights on boosting clinical trial transparency in France (only 57% results shared, 2012-2022) are key to open science. 🔬
#SHARECTD
#OpenScience
#ClinicalTrials
#DataSharing
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7 months ago
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For those of you who are interesed, please join and register
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7 months ago
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💬 We want to hear from YOU. Are you a: 👨‍🔬 Researcher? 👩‍⚕️ Clinician? 🧑‍💼 Policymaker? 🤔 Just curious? This space is for discussing how data sharing can shape better healthcare. We’ll keep you posted right here on Bluesky. Follow us to stay involved. Let’s share!
#ScienceCommunication
#DataSharing
7 months ago
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🔍 What is SHARE-CTD? We’re a Marie Skłodowska-Curie Action (MSCA) doctoral network funded by the EU. Our mission? To train future experts in clinical trial data sharing, from regulation to ethics to advanced data science.
#ClinicalTrials
#ResearchTraining
#DoctoralNetwork
7 months ago
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Welcome to the official Bluesky account of SHARE-CTD! We're a European research network dedicated to enhancing clinical trial data sharing to advance medical research and the betterment of society. Learn more:
share-ctd.eu
#SHARECTD
#OpenScience
#DataSharing
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NEWS
New article "The validation of prediction models deserves more recognition" published in BMC Medicine 2025.03.24 Begüm Irmak Ön and Ulrich M…
https://share-ctd.eu/
7 months ago
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