A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!

It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.

🗓 Date: 22 June 2025 🧠 Session: EFNA – Health literacy for patient and clinician communication 🎤 Presentation: Misdiagnosis and delays in diagnosis

Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference. #ean2025 #neurology #HomeOfNeurology #[email protected] @parkinsonseurope.bsky.social

Video 2: Part 2: Health Secretary Wes Streeting & The Baker🥊 @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social #Parkinsonsawareness in

Was great to have Health Secretary Wes Streeting not just turn up but joined in - spoke to fellow Parkies wasn't rushed at all thank you🥊 also thank you to Gillian ( Movers & Shakers) & Gaynor Edwards (Spotlight YOPD) turn up and join in🥊 @worldpdcongress.bsky.social @parkinsons.org.uk

Age of the AI - maybe this is the way forward? interesting paper on ML & DL and the possibilities @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social eurjmedres.biomedcentral.com/counter/pdf/...

@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @basbloemink.bsky.social #ParkinsonsAwreness

Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist: bmcneurol.biomedcentral.com/articles/10.....

What we eat is just as important as Exercise Long-Term Consumption of UPS Foods and Prodromal Features of Parkinson Disease | Neurology @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social www.neurology.org/doi/10.1212/...

This paper shows the importance and difference it makes for #Parkinsons people if a interdisciplinary gastrointestinal care is in place: @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net journals.sagepub.com/doi/epub/10....

Today the government of UK will be debating on #parkinsons in www.parliamentlive.tv/Commons @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net @worldpdcongress.bsky.social

What a great session today on #WorldParkinsonsDay @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social #Parkinsons

#parkinsonsawareness #parkinsons @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @efna.net

EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.

Just waiting for my friend Neil Russell on his epic 100mile run from Oxford to Cambridge in one go 😳, will join him just under halfway mark🥊 @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social Do show your support: www.neilstillcan.run

Delighted to be invited to the special screening’Worlds Toughest Drive’ by retd Col Guy Deacon - www.guydeacon.co.uk #Parkinsonsawareness @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk

Thank you to The Parliament for bringing us all together for such an inspiring session. 🙌 #Parkinsons #Parkinson #EUParliament 3/3

@worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net #parkinsons

www.prd-journal.com/article/S135... Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease. Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.

AI tech improves #parkinsons diagnosis @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @michaelokun.bsky.social www.sciencedaily.com/releases/202...

@worldpdcongress.bsky.social @parkinsonseurope.bsky.social #parkinsons

Parkinsonism & Related Disorders: Conclusions Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD. www.prd-journal.com/article/S135... @parkinsons.org.uk

Has your ability to work or maintain employment been affected by a neurological condition? Share your experience in the comments. @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social

According to a recent survey, 71% of people with a #neurologicalcondition have had to adjust their role or work schedule because of their condition, of which only 35% report that their employer was accommodating of this change. #BrainAwarenessWeek #BAW2025 #invisibleillness #neurology @efna.net

Meds in #Uganda extortionately expensive this is the case across #Africa #Parkinson @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social

Village health workers and medical professionals in Bududa area of #Uganda This one gets most of them PWP or not🤣 my boxing session wi testify🥊 @worldpdcongress.bsky.social @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk

Introducing little aids like sticks to help with walking and using arms, natural resource to help improve QOL for PWP in #Uganda @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net @worldpdcongress.bsky.social

Umpired a hockey match earlier met some friends hadn’t seen for long time, now awaiting flight to #Uganda to deliver an exercise program parkinsonssibuko.org @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net @worldpdcongress.bsky.social

Some facts🥊 #RareDiseaseDay #Neurology @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk

Today is #RareDiseaseDay #Neurology @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk

Survey held by @efna.net on the invisible issues faced by those of us that have a #neurology condition, do read give an insight into the many issues we face @parkinsonseurope.bsky.social @parkinsons.org.uk

What an emotional moment. ❤️ Birdie Belgium is releasing this beautiful song about her mum's journey with Parkinson's for #WorldParkinsonsDay. 🌷 www.youtube.com/watch?v=mp0D...

Delighted to be a CAB member for @efna.net and help advocate for all neurological conditions🙏🏽 @parkinsonseurope.bsky.social @parkinsons.org.uk www.efna.net/about-us/cab/

Show your support for EU policy change for rare neurological conditions www.EFNA.net/RNC-CTA @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk #parkinsons

@parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net

A MOOC created by @utas.edu.au more information on website🥊 #ParkinsonsSupportGroup #DBSSurgery #ParkinsonsPunjab #TogetherWeCan #NeurologyCare #DrJaslovleenSidhu @profsimonlewis @MichaelOkun @BasBloem @ParkinsonsEU @ParkinsonsUK @ParkinsonsEN mooc.utas.edu.au/course/20278

We love @parkinsons.org.uk's Race Equality in Research programme (our Strategic Dir. Amelia is a proud member of the steering group), so it was great to read their update about their 2024 achievements & hopes for the coming year. 👉 Read more: https://www.parkinsons.org.uk/research/research-blog/ou…

parkinsonssibuko.org #parkinsons @parkinsonseurope.bsky.social @parkinsons.org.uk