Curious to know more about what we do? We’re more active over on our Instagram page @endo1000project, and you can always see updates and sign up to our newsletter on our website endo1000.com🩸

When did you last have to plan months ahead for work? ☝️ More of our ambassadors, Ffion, Lynsey and Rebecca, have shared their workspace stories. Starting a conversation can make a difference. It's time to #TALKEndo.

#Endometriosis doesn't just affect personal life. Here are some of our ambassadors, Candice, Phoebe and Neroli, talking about their journeys through work and education. It isn't just work, it's a challenge, which is why we need to #TALKEndo - it can end careers.

Retrograde menstruation - what's it got to do with #endometriosis? ⬇️

What does an ideal #endometriosis diagnosis look like, and what can we do now? ✍️ At the end of August we joined Lucy Whittaker, Nicola Boydell and Marie Larsson for the 'Diagnostic Futures in Endometriosis' workshop. A huge thank you to everyone who gave their time to this event! ❤️

Need something to read in the sunshine this weekend? How about taking a look at these 3 books about women's health? ☀️🩸 Which of these are you picking up? 👇

What is the ideal future of endometriosis diagnosis? You can take part in this creative and interactive workshop, ran by the EXPPECT research team. Link in our bio to sign up ✍️

Did you catch our ambassador Rajini Vaidyanathan on BBC Radio 2 talking about her experience with endometriosis? We were delighted for the shout out and hope that the open conversation educates and raises awareness for endometriosis💛 You can catch up on the conversation now on BBC sounds!

ENDO1000 supporters come in all shapes and sizes 🐾 Want to make our day paw-fect? You can pop us a little donation at the link in our bio. Every penny will help us recruit more participants for our research into #endometriosis 🩸

Have you got your tickets yet? 🎟️

Welcome to our new series 'What's that?' Wednesday! Every Wednesday we're going to #TALKendo by answering and de-mystifying questions you might have about endometriosis. First up, what are the three different types of #endometriosis?

Going to be in Edinburgh this August? Come to see Jessica Knappet on the 19th, in support of the amazing @endo1000.bsky.social www.eventbrite.co.uk/e/perfect-da... #Comedy #Endometriosis #Research

Looking for shows this festival season? Comedian Jessica Knappett is collaborating with IRR's @endo1000.bsky.social and performing a live recording of her podcast Perfect Day on Tues 19 Aug! All ticket sales support our endometriosis research. Get yours today: www.eventbrite.co.uk/e/perfect-da...

Our Co-Director Andrew Horne recently visited Professor René Wenzl at the University of Vienna, delivering a lecture on innovative approaches to managing endometriosis as part of his Adjunct Professor appointment. 🤝

We’re so excited to announce that we are collaborating with Jessica Knappett for her live recording of the Perfect Day podcast, and you can get tickets RIGHT NOW from the link in our bio 🎟️ Join Jessica and her special guest at this live recording, with all ticket sales supporting ENDO1000.🩸

Did you know we take donations big and small? The price of your morning takeaway drink could make all the difference! Those regular, small donations are helping us to reach our target. Find out more about how to donate at the link in our bio ❤️

Did you know we have a newsletter? 📨 If you want all your updates in one place (and exclusive first-looks at things we have coming up) make sure to head to our website and sign up (link in our bio)! Our first edition is coming soon.

Meet the ENDO1000 team! Doug Gibson, Lead in Discover Science, explains what is happening in some of our research behind the scenes 🔬 Interested in staying up to date with research like this? Sign up to our mailing list and keep an eye on our website (links in our bio!)

We thought we should probably re-introduce ourselves 👋 We're ENDO1000, and here is a run down of who we are and what we want to do. You can always find more information about what stage the project is in on our website, or follow us if you haven't already to keep up to date!

Ever had people ask 'what is endometriosis anyway?' because we definitely have! 🩸 We're hear to #TALKendo and breakdown a bit more about endometriosis and why we're researching it. If you want to read more about endometriosis, or our project, head over to our website (link in bio)

It's been a week since the Edinburgh Marathon Festival! 🏃 Dayna, who professes herself as 'not a natural runner', speaks about why she chose to join the marathon relay for ENDO1000, despite the tough training. Head to our website for more about fundraising, or donate at the link in our bio!

“Women with endometriosis can lose between 1.9 and 15.8 work hours per week managing painful and fluctuating symptoms” Could the new UK employment rights bill make an impact on working with endometriosis? We hope so 🤞 Read the article 👇

Yesterday our runners took on the Edinburgh Marathon Festival relay, tackling rain, wind, hail, before finishing with sunshine as they crossed the finish line and collected their medals 🏅 So far they have raised an incredible £1,580, donate at the link in our bio!

Fantastic talk from Dr Lucy Whitaker from Centre for Reproductive Health at University of Edinburgh at #wce2025 presenting work from our PhD student Katherine Edgley on the use of wearable technology in #endometriosis @edinuni-irr.bsky.social @endo1000.bsky.social

When co-head, Andrew Horne, took to the stage he shared the importance behind our project, and the disparity of research in to women's health. We have already made an amazing amount of progress, but we still need your support. Find out more at www.endo1000.com/...

Priscilla took the stage at our charity dinner to talk about how ENDO1000 will be the key to better diagnosis times so that less women have to spend years in pain. We raised an incredible £22,000 from our dinner but we still need your help to reach our goal, link in our bio!

We show #endometriosis treatments are failing to address fatigue, a key quality-of-life issue 🔹 2,907 responses 🔹 54% say GnRH agonists worsened fatigue 🔹 Most treatments showed little benefit 📄 Read the research: raf.bioscientifica.com/view/journal... @endo1000.bsky.social @edinuni-irr.bsky.social

What a night! With £22,000 raised at our charity dinner, we can now recruit another 22 participants to our life-changing research. A HUGE thank you to everyone who bought tables, donated prizes, and bid at the auction, particularly @lloydsbankinggroup Donate at eendo1000.com/...

At our fundraising dinner on Tuesday, Kayleigh shared her experience living with endometriosis, and how ENDO1000 can change lives. Her voice and story are an inspiration to our work. Learn more about Endo1000 and donate to support our cause at www.endo1000.com/...

We’re at The Mound tonight for our charity auction, fingers crossed we raise a lot of money! 🤞

Ambassador Lynsey has successfully raised over £1000 for ENDO1000! To find out how you can raise money for us and help us include as many participants as possible, head to endo1000.com Thank you Lynsey!

Can a change in diet reduce the pain symptoms of endometriosis? ☕🧀 CRH researchers Andrew Horne, Phillipa Saunders and Francesca Hearn-Yeates share the results from their study into endometriosis pain management with @uk.theconversation.com Read the article: theconversation.com/endometriosi...

Meet the team! Say hello to Thanasis, lead for digital health 👋 Thanasis is working on the data collection for ENDO1000, including our custom app and smartwatches. Head to our website for more info about the team and sign up to our mailing list! #womenshealth #talkendo#endometriosis

Help us do our part to reduce this suffering www.theguardian.com/society/2025... Donate to our research via link in bio

Do you have endometriosis or suspected endometriosis? Take part in our research that explores the prevalence of brain fog in people with endometriosis 🧠 Complete the 15-20 minute survey at the following link: crh-redcap.igmm.ed.ac.uk/surveys/?s=E...

Research from the EXPPECT team at @edinuni-irr.bsky.social: A survey of over 2500 individuals has indicated multiple dietary modifications, including reducing alcohol and caffeine, may have a positive effect on pain. As featured in @theguardian.com on Saturday www.theguardian.com/society/2025...

This survey study examines which dietary modifications or supplements were perceived as beneficial for pain management by individuals with endometriosis. #rndometriosis. Delighted to share our latest findings. @endo1000.bsky.social @horne-research.bsky.social

To wrap up #EndometriosisActionMonth, we wanted to share our visit to ScotParl last week. Ann & Priscilla represented ENDO1000 as honored guests of Endometriosis UK. Speakers were optimistic that Scotland could siginficantly reduce diagnosis time by 2030 - down to under a year 🤞

Next up in our #EndometriosisAwarenessMonth series, Professor Andrew Horne talks about his team's current endometriosis research. Interested in finding out more about ENDO1000 and ESpriT2? Visit www.exppectedinburgh.co.uk/ #Endome#Endometriosiss#WomensHealth

Watch the more in-depth STV Scotland Tonight piece on the tragic story of Nicola and the reality of endometriosis care in Scotland and across the UK, featuring some of the science from ENDO1000's AndrewHorne (starting at 09:07) player.stv.tv/episode/4poz/scotland-tonight

ENDO1000 Clinical lead Lucy Whitaker talking about her other research into non-hormonal treatments!

While this new treatment option in England is positive news for giving people options, it’s import to note it’s not a ‘magic bullet’. It’s vital we continue to look for non-hormonal treatments like with the Edinburgh EXPPECT team and whole-body and lifestyle studies like ours! #1in10 #endometriosis

Continuing on with our #EndometriosisAwarenessMonth campaign, we asked three of our researchers to explain their research in 15 words or less. Find out more about their research on the EXPPECT website: www.exppectedinburgh.co.uk/

ENDO1000 co-director @horne-research.bsky.social was in Spain last week, presenting at a conference about endometriosis diagnosis. Also speaking was patient advocate Kristy Penrose. It's great to see patient perspectives included at conferences like this! #TalkEndo #endometriosisawarenessmonth

Last week co-director Andrew Horne presented the ENDO1000 project at the international Endometriosis 2025: Your Mother Should Know, Your Doctor Should Know Better conference in New York. Great to see so many international colleagues committed to expanding understanding and tackling this condition!

It's Endometriosis Action Month coming up in just a couple of days. The theme for 2025 is #EndometriosisExplained Here are some ways you can be a part of it this year, from our friends at EndometriosisUK buff.ly/3QBv5tN #1in10 #ENDO1000

We've got some runners! A team of clinicians and researchers from the NHS Lothian and Edinburgh University's EXPPECT Team and research department will be running in the EDINBURGH MARATHON RELAY to raise money for ENDO1000! Support if you can! https://buff.ly/4h4dyVI

The ENDO1000 lab team welcomed our colleagues in Development and Alumni, (who help us out with fundraising and donations) to the lab yesterday! It's great to be able to share what each team is doing and stay connected for our cause! Thanks for coming by! #1in10 #TalkEndo #Endometriosis

1 in 10 women have endometriosis. Even this might be an underestimate due to the delay in diagnosis. It's no surprise that more women are speaking out about their experience with it. It's vital that we continue to #TalkEndo https://buff.ly/3CXAAj2 #1in10 #Traitors #Endometriosis

Exciting news! 🎉 We have secured the funds to kick off our study and recruit the first 250 participants! 🙌 We still have a way to go to reach our goal of 1000 participants. Help us keep the momentum going - click the link to learn more and support us on this incredible journey! www.endo1000.com