Happy Holidays from all of us at Youth Cancer Europe! We wish you a joyful holiday season, filled with peace, warmth, laughter, happiness and joyful moments with your loved ones! 🎁❄️🎄✨ Thank you for being part of our journey! #YouthChangingEurope #StrongerTogether

Today we kicked off the first in-person General Assembly of YARN in Bucharest, Romania, hosted by YCE, welcoming partners from 🇪🇺 11 EU Member States + Ukraine for 2 days of focused discussions and collaborative planning. #EUCancerPlan #EU4Health

🗣️ “When developing cancer care, equity should be taken into account from the start” said Nienke Alberts, Assistant Professor & Researcher at Cancer Radar during the Equity, Diversity & Inclusion in Cancer Care Stakeholder Forum, organised by Youth Cancer Europe.

🗣️ “It’s important to educate professionals and cancer nurses on Equity, Diversity and Inclusion (EDI), because the education they receive, is what they implement” said Dimitrios Protogiros, Board Member at the European Oncology Nursing Society. Read more about it here 👉 youthcancereurope.bio.link

“Equity, diversity and inclusion (EDI) in cancer care is extremely important because it ensures we are delivering healthcare for all, not just for some” said Alexandra Eni from @europeancancer.bsky.social during the EDI Stakeholder Forum organised by @youthcancereurope.bsky.social

What does meaningful patient engagement look like? Tomaž Deželak, member of our Patient Advisory Board (PAB) and @youthcancereurope.bsky.social patient advocate, shares his experience with patient co-creation in the project. 👉 Read the article on our website: strongaya.eu/news/patient...

YARN’s coordinator @youthcancereurope.bsky.social , together with partners SIOPE and CCI Europe participated in the @jane2project.bsky.social meeting, presenting our work, our patient communities, and the ongoing activities within YARN.

Throwback to June, when YCE organised the EDI in Cancer Care Stakeholder Forum and brought together representatives from 15 EU-funded projects, and experts from 26 European and international organisations to share their work 🇪🇺 #EUCancerPlan #EU4Health #StrongerTogether

Happening today at #ESMO25 — our workshop “Building the Framework for Inclusion Practices in EU Healthcare Settings”, organised together with EONS and UBB! @myesmo.bsky.social #EU4Health #EUCancerPlan #YARN #StrongerTogether

Today, at #ESMO25, Urška Košir and Tanja Spanic spotlighted YCE’s ongoing collaboration with Europa Donna on oncofertility. A partnership that will keep propelling YARN project’s AYA advocacy work across Europe. 🇪🇺 #EU4Health

Today YCE Urška Košir is presenting a session on Cancer and Fertility at @myesmo.bsky.social #ESMO25

YCE is super excited to be in Berlin for @myesmo.bsky.social 2025, representing the European Youth Cancer Network! ⚡️ Come say hi and check us out! 👋 #ESMO25 #EU4Health #EUCancerPlan #YARN #StrongerTogether

Have you ever attended an event related to cancer? Were they inclusive enough? We’d love to learn from your experience! 📌Fill in the survey now: docs.google.com/forms/d/e/1F...

Urška, Nicola, Erik and Tomaž brought YCE to Paris 🇫🇷 for the STRONG AYA General Assembly Meeting, bringing the lived experience perspective to the table and making sure that young people affected by cancer remain at the heart of every discussion and decision from day one.

You can still sign up for our workshop “Building the Framework for Inclusion Practices in EU Healthcare Settings”, taking place during EONS18 at the ESMO 2025 Congress! Secure your place before it’s too late! 🔗 Register now: docs.google.com/forms/d/e/1F... @myesmo.bsky.social

Urska, Nikola, Erik, and Tomaz are representing YCE in Paris at the STRONG AYA General Assembly Meeting, bringing the lived experience perspective to the table, ensuring that young people affected by cancer remain at the heart of every discussion and decision. 🔥

Getting excited and ready for #ESMO2025, where we’ll be representing the European Youth Cancer Network 🧶 @myesmo.bsky.social

The Minimum Standards for AYA Cancer Care Units has just been published in ScienceDirect 👉 www.sciencedirect.com/science/arti... This milestone sets the first pan-European benchmark for age-appropriate, high-quality cancer care for young people. #EU4Health #EUCancerPlan

Music blasting 🎶 Lights flashing Singing at the top of our lungs. Rocking our beautiful blue and yellow flag with a whole lotta attitude and yes… the wildest dance moves you’ve ever seen. This is what being unstoppable looks like. 💃🕺 #UNTOLD2025 #StrongerTogether

This year at UNTOLD, we brought YARN to life.✨ Dozens of messages — bursting with colour, woven 🧶 with emotion — filled our installation, each one carrying a voice, a story, a show of support for young people affected by cancer. #EU4Health #StrongerTogether #EUCancerPlan #YARN

INNA, DJ BLISS, Irina Rimes and TUJAMO — what a night! ​​💥 INNA spent real time with us, DJ Bliss turned up the heat, Irina Rimes brought the words that hit straight to the heart, and Tujamo kept us moving with pure beat energy. #UNTOLD2025

Designed by Atelier MASS, brought to life by YCE and Asociatia Little People, this installation marks the public debut of the YARN project — a bold, EU co-funded initiative weaving together the voices, experiences, and actions of young people affected by cancer.

Thank you to the brilliant Atelier MASS for designing our installation at UNTOLD — a space that stands for connection, visibility, and solidarity. #StrongerTogether #YARNproject #YouthChangingEurope #EUCancerPlan #UNTOLD2025

We are at UNTOLD with the amazing YCE team, repping the newly launched, EU co-funded YARN 🧶 project! 🇪🇺 Right now? We’re somewhere between an IKEA manual and a minor engineering feat. 🔩All in the name of building something that turns heads and gets people talking. #UNTOLD2025 #YouthChangingEurope

The exciting #YARN 🧶 project has officially kicked off! 🎉 🇪🇺The European Youth Cancer Network is the largest multi-stakeholder, lived experience driven effort of its kind in Europe to improve quality of life for , adolescents, and young adults affected by cancer. #EUCancerPlan

What happens when you take everything we’ve learned, built, and worked toward… and weave it 🧶 into something stronger? Keep an eye 👀 on our socials for some exciting updates soon!

We’ve had some electric days lately… ⚡ After INNA donated 💯% of her Electric Castle merch to Youth Cancer Europe, Stil Diamonds stepped in and doubled the amount! We’re so incredibly grateful! 💕 Thank you for standing with us! Thank you for helping us #BreakTheSilence!

Merch with meaning! Thank you INNA for donating 100% of your Electric Castle merch proceeds to Youth Cancer Europe, supporting the rights of young people with cancer across Europe. Queen ☔️💙🎗️ #INNAforYCE #YouthCancerEurope #ElectricCastle

🆕 Just out this week: the latest FORTEe #Newsletter! 🔗 mailchi.mp/f70e149b594e... The highlights? 📣 #PEOCxFORTEe - Call for Abstracts open now! 📘 New Exercise Training Booklet 🩵 Layman summary of the FORTEe project 📖 Recent publications 🤸‍♂️ Conference highlights @youthcancereurope.bsky.social

“More specific data is needed to better understand barriers to cancer prevention and care for LGBTIQ communities in Europe to ensure equitable health access" Alexandra Eni, @europeancancer.bsky.social #EUCancerPlan #CancerMission #EU4Health #HealthUnion

“45% of LGBTIQ people in the EU report difficulties accessing healthcare, especially trans women, men, and intersex persons” Alexandra Eni, @europeancancer.bsky.social #EUCancerPlan #CancerMission #EU4Health #HealthUnion

“LGBTIQ individuals in Europe face discrimination and barriers in healthcare due to inadequate training, non-inclusive policies, and a lack of safe spaces” Alexandra Eni, @europeancancer.bsky.social #EUCancerPlan #CancerMission #EU4Health #HealthUnion

“The inclusion of boys to national vaccination programs has been more gradual. As of 2022 the full vaccination coverage in Europe is 29% for women and 14% for men”, Andrea Manzano, The Swedish Institute for Health Economics (IHE) #EUCancerPlan #CancerMission #EU4Health #HealthUnion

“Socioeconomic inequalities in cancer are large, exist everywhere in Europe, and for most cancer types, with the most disadvantaged paying the highest price” Valentina Lorenzoni #EUCancerPlan #CancerMission #EU4Health #HealthUnion

Key challenges for Ukrainian cancer patients displaced abroad: ●Language barriers prevent effective communication with doctors ●Interrupted treatment and delayed diagnoses ●Limited access to specialized care or clinical trials #EUCancerPlan #CancerMission #EU4Health

● Studies show delayed diagnoses and worse outcomes for displaced Ukrainians ● Many patients report being excluded from psycho-social support due to language ● 85% of surveyed hospitals in Europe report receiving Ukrainian cancer patients #EUCancerPlan #EU4Health

“Living with Low-SES or being a migrant are among other factors which can result in inequities in prevention – e.g. Gender, ethnicity, age, refugee status, sexuality” Fleur Braddick, PEACHD (Piloting European Action on Cancer Health Determinants) #EUCancerPlan #CancerMission #EU4Health #HealthUnion

Impacts of the Toolkit so far: 🔴 41% increase in understanding of the importance of EDI in cancer care 🔴 34% increase in confidence to challenge discrimination in their role 🔴 45% increase in confidence to push for systematic change #EUCancerPlan #CancerMission #EU4Health #HealthUnion

Emily Pattinson from Inclusive Employers is presenting how the Train the Trainers Toolkit can be used to advance health equity and improve the quality of cancer care 📚 #EUCancerPlan #CancerMission #EU4Health #HealthUnion

💭 Erik shared his experience of navigating the healthcare system as a neurodivergent patient #EUCancerPlan #CancerMission #EU4Health #HealthUnion

“I’m particularly inspired that this event is driven by young survivors. Your voices are powerful! Your experiences are expertise! Continue to demand a seat at the table! Thank you for your courage, your advocacy and your vision for a more inclusive Europe” MEP Katrin Langensiepen

“I know firsthand how critical is that we make our health system inclusive for everyone, especially for those who are often forgotten in mainstream policy” MEP Katrin Langensiepen, Co-Chair of Intergroup on Disability #EUCancerPlan #CancerMission #EU4Health

🗣️“Cancer care must not be one size fits all” MEP Katrin Langensiepen, Co-Chair of Intergroup on Disability #EUCancerPlan #CancerMission #EU4Health #HealthUnion

Not to mention the fantastic numbers from our latest EDI Webinar Series! 🤩

@katierizvi.bsky.social is sharing key highlights from our Equity, Diversity, and Inclusion (EDI) work 💪🏻 #EUCancerPlan #CancerMission #EU4Health #HealthUnion

We’ve officially kicked off the Stakeholder Forum on Equity, Diversity & Inclusion in Cancer Care here, in Brussels! 🌐🤩

Today, at the Equity, Diversity & Inclusion in Cancer Care Stakeholder Forum we host together with @CancerEurope, we bring together one of the most diverse and powerful lineups in cancer policy and advocacy. Stay tuned and keep an eye on our socials! 👀📲 #EUCancerPlan

It's @weekagainstcancer.bsky.social! Today's focus: 𝘆𝗼𝘂𝗻𝗴 𝗽𝗲𝗼𝗽𝗹𝗲 𝗹𝗶𝘃𝗶𝗻𝗴 𝘄𝗶𝘁𝗵 & 𝗯𝗲𝘆𝗼𝗻𝗱 𝗰𝗮𝗻𝗰𝗲𝗿  At FORTEe we are proud to collaborate with @youthcancereurope.bsky.social to ensure that young people remain at the centre of everything we do.🩵 Read more: https://f.mtr.cool/yjjzxlrwnf #EWAC2025

“The differences in experiences between immigrants and non-immigrants play a big role in how their cancer is diagnosed”, Adam Sullivan, GP registrar & National Medical Director's Clinical Fellow in Primary Care at NHS England

“It's important to remember that different types of cancer have different paths to diagnosis.This is because of various factors related to the cancer itself, the patient, the doctor, and the healthcare system”, Adam Sullivan, National Medical Director's Clinical Fellow in Primary Care at NHS England