Here is an article about being a moderator on Mastodon, an independent social media network: markwrites.io/being-a-mast... There are some difficult topics touched upon (guess what generally gets reported!) but it's a good window into what social media moderators deal with.

Lilya has until end of day today to get $600 for June and July's storage fees or all items they own go to auction. Between medical emergency and a hotel for a medical trip canceling and delaying refund, they are out of money until their next SSI payment. venmo: @WHolifield paypal.me/WHolifield

Potential study for those with pre-Covid #MECFS and cognitive impairment. They’re looking for feedback on the study design. Took me less than 3 mins to fill out. #pwME

(Fern:) Another few pictures from Sunday's photoshoot! This is Anna the mouse. Her birthday is July 8, 2025 (we finished her pretty recently). She can be adopted here (US shipping only for now): rainbowravels.mayhem.my/store/detail... #Amigurumi #Mouse #Knitting

I laughed out loud 😆 (This is mayhem.my )

Ugh. Bodily functions should be exempt from causing crashes. #MEcfs

REMINDER! Tomorrow, March 12, #MEAction has two virtual Defend Medicaid Call Parties that you are welcome to join! There are two calls- one at 3 pm & one at 6 pm. RSVP 3 pm ET: us06web.zoom.us/meeting/regi... RSVP 6 pm ET: us06web.zoom.us/meeting/regi... #pwME #ProtectMedicaid #MECFS

For whoever needs to hear this: Use that cane. Get that rollator or walker. Take the elevator. Use the electric scooter carts in grocery stores. You are ‘disabled enough’ for it. (And yes, I needed to hear this a few years ago. It has made things SO much better for me.) #NEISVoid #DisabledSky

(Fern:) I'm posting this on behalf of a friend, who needs help with meds and masks. I'm hoping Bluesky can step up and help! $0/28.66 USD #MutualAid #MutualAidRequest #DisabledMutualAid #EugeneOR

(Fern:) Are there #Salem #SalemOregon people on here? We got an email asking us to send in comments for the livability levy to save the library! Tl;dr: 1. Send in comments before January 21 2. Send your email to [email protected] with a CC to [email protected] (1/3)

Whoa, this quality of life study comparing ME/CFS to other illnesses... Source: journals.plos.org/plosone/arti... #MEcfs

People with #MEcfs have a very low quality of life. It leaves your health and life in pieces on every level. It breaks you. So this piece I call ‘Fragmented’. Quality of Life Study- tinyurl.com/ybnfwvg3 #pwME #pwLC #MyalgicEncephalomyelitis #longcovid #MEawareness #art #BMS #BrentMichaelStudios

Currently running a 15% HOLIDAY DISCOUNT on all shop items! Use this link or the code HAPPYHOLIDAYS. Expires 12/31. ko-fi.com/crippledcomm...

I'm finally in a good position to RE-OPEN MY KNITTING COMMS! #CommsOpen #CommissionsOpen #BSNM 🧶 In this thread I'll show all the options you can choose from! ko-fi.com/crippledcomm...

Does anyone know if it's possible to get #Covid and flu vaccinations in your home in #SalemOregon? I'm 98% bedbound with Very Severe ME/CFS and definitely can't get to a pharmacy without a bad crash. My case manager said she couldn't find any mobile vaccine places here. I've also tried googling.

Clothing sizes should be standardized. 😭

#MEAction is sending an urgent letter to NIH Director Dr. Monica Bertagnolli, urging the NIH to fund the ME/CFS Research Roadmap. If you are in the US, sign onto the letter here: win.newmode.net/fundmeroadmap All other countries, sign here: airtable.com/appls0UcwWjm... #FundMERoadmap #pwME

6/ Simon McGrath, a close friend of mine who has lived with ME & written about it for 20 years, tells me I never know how much it is safe for me to do. It’s like I’m surrounded by an electric fence that will trigger a bad day if I touch it. But the fence is invisible, & moves every day. #PwME #mecfs

Our Bluesky following has doubled in a week! 🔥 1st 55 weeks: +282 followers (we were active: 475 posts plus lots of reposts) Last 7 days: +282 followers (3 posts) Bluesky looks like it is finally taking off in a substantial way 🔥 #MEcfs #CFS #PwME #LongCovid

Hello! I'm trying out Bluesky. Name: Indigo. Pronouns: they/them. I'm here to post about my life as a #disabled person ( #MEcfs, #POTS, #PTSD, and assorted other issues), make friends, and learn from other disabled people. I'm part of a system - our shared account is @rainbowravels.bsky.social.