if you'd like to help me purchase more masks, some gloves, and some mould remover, please donate here and/or share the link. it will cost me around £20. ko-fi.com/hanslabyrinth

Unless you've got close family members and friends who believe you and will fight for you, you are FUCKED with this condition #MECFS

I have moderate-severe ME/CFS & instead of getting to rest, which my body NEEDS, I am forced to permanently make my symptoms worse doing things like sorting through boxes of clothes, cleaning floors & windows & removing mould. Look at what I breathe in by my head 24/7. Now have to remove with BLEACH

oh my god I'm so ill I don't think this is just PEM I've got a proper fever and cough tested and not COVID trying not to throw up again had super heavy nosebleed after I did the test too. must be dry up there needed to tidy and sort things today but there's no way send healing vibes please 🙏🏻

you know what's so funny about being chronically ill, is you are always ultra prepared & can get shit together SO fast

no energy can't look a t phone

Noooo my lovely cup started leaking out of nowhere. Just leaked hot chocolate all over the floor so now I have to try and clean it up. Why is everything rubbish now? My cup :(

truly AWFUL experiences today. having any kind of visible difference/disability is apparently the key to unlocking the absolute worst in humanity

I'm also completely locked out of my paypal again with seemingly no way to sign in. it's been going on for a week so haven't been able to pay for anything. I just want to give up. what is the point?

had texts come through. I've been booked appointments and they're all via telephone (which I can't do, and explained I can't do). what is the point? there is literally no point.

just checking in again to say things are not great but very up in the air. having a hard time getting back to previous baseline as I've been told to do things around the house which I just don't have the energy for. really struggling.

not sure what's going to happen now btw. living situation-wise. all completely up in the air and very uncertain. just focusing on doctor's stuff this week. one thing at a time. ears in a very bad way. at least I've got migraine meds now.

had to make do with what I had, dinner-wise, so ended up with chickpeas, pasta, eggs. that was basically it. and had the sudden realisation that I was mark before the "dinner party" in that episode of peep show

feels very odd and incredibly lonely to have absolutely no friends irl. not one.

She is up for auction!! I’m taking part in @skullsandsheets.bsky.social ‘s charity auction again! All proceeds are going to @lovingmeuk.bsky.social Link to my piece: ebay.us/m/4yuFoY Link to auction page: www.ebay.co.uk/usr/skullsns...

phone back btw! obviously it's still shitty and needs to be replaced but it's here! which is much better than not having it at all.

A little crumb holds cake toy

watching my phone travel round. surprised it hasn't been binned yet. it's not technically worth anything. though I would've liked the pop socket back.

look i talk to some lovely men on here but why won't the men in these spider groups just shut the fuck up. i'm so tired of it. if it's not this, it's weird sexual stuff about female spiders. get some help.

why the hell do people seek out disabled and chronically ill folks on here just to insult them? what is going on there, psychologically? this place is getting as bad as the other one

trying to figure out a way to get across the severity of my symptoms without triggering sexism from the male doctor. so far the advice has been: be nice and smile, take a man with you, only see female GPs, do not mention mental health or medication, tell them you want to get pregnant 😐 #MECFS

The crested auklet is so cheeky. 😆

right. got it. no mental dualities, whatever that means. thank you, cryptic tea.

not safe to talk about latest developments here. I honestly don't think I can trust anybody at all. 9/10 times it backfires horribly.

I feel like I'm trapped in a horror movie

it's advent you know what that means

thank you so much to people who have sent donations. thank you ♥️ it's not wise for me to share too much info in a public space as I have been doing. if anybody has any questions about anything please DM me. again, thank you x

nobody is going to help

I'm so fucking tired. I'm so so tired it's unreal. I slept so long and I feel like I didn't sleep at all.

disabled, chronically ill queer person in abusive house being made homeless. please, please share. I am really desperate. need to get new phone, waterproof case for travel, and money for food and transport. please share or donate if able. #mutualaid

toothbrush smeared with feces again.

yeah she's refusing to write the letter she promised to write, and is even refusing to acknowledge promising she would write it. So I'm just going to have to leave without it.

had to come downstairs to wash my coffee cup so it doesn't go mouldy again. pretty sky. getting migraine aura AGAIN. no confirmation text from health centre about GP appointment. was supposed to get a lift but the person isn't responding either. same old.

suddenly crashed and slept for about 15 hours. do not feel good. she didn't leave the letter, as promised, but that's not exactly surprising. if I had proof of being made homeless I could at least give that to the council. just another way to make things as difficult for me as possible.

I feel so fucking ill now holy shit. Worst case scenario, it gets back enough I have to go to hospital where I will at least get food and a bed.

I can't get over her saying she has to make me homeless so she can financially support my brother, who hasn't lived here since his teens, has his own house and family, works and receives benefits, able-bodied with no health issues. and my grandmother who has a lot of money??

it's really hard to explain to everybody because they just go "well why would your mum kick you out and make you homeless when you're too ill to work and have no money?" and the answer is that she doesn't want me here. the end. that's literally it. there's no other explanation.

my mum has agreed to write a letter explicitly saying that she's making me homeless and by a certain time. so at least I can give this to the council. let's pray she actually does it. got a big thing about how hard it's been for *her*, how this has traumatising for *her*

made it home stepdad sprayed deodorant everywhere which they know I'm allergic to so nstantly started coughing &wheezing. used inhaler which thankfully helped. I literally got down on my knees & begged him to buy a different one. being kicked out of here isn't so bad. it's just having nowhere to go

guess who just made it all the way to the corner shop on top of the hill to get snacks?? I feel like my legs are going to give out. I literally don't know how I'll get back. I bought a bacon croissant, cup noodle, chocolate bar and apple juice. it cost 13 quid!!

I don't know what to do. Should I just end it?

Now being told I have to have a "meeting" with my mother at 7pm and that I am not allowed to wear hearing protection as I need to hear everything she has to say. She is being deliberately ominous to cause fear.

What do you do if you have #MECFS and are being made homeless? I am in England. I don't know what to do.

I cannot believe this day. it doesn't even feel real. I'm about to crash really bad. Can't read messages on desktop, even with a VPN, so I cannot check or reply to anything sent via chat, sorry. I can only use my laptop right now to access bluesky.

my phone has broken. completely. won't turn on. I don't know what to do. I can't take it to a repair place & it's 7 years old anyway. I desperately need money to buy a new phone. I'm about to be made homeless so I NEED a phone. please, please share this. please. ko-fi.com/hanslabyrinth

anyway I'm glad I was able to do all I did today without falling flat on my arse. I can't believe it. it was sunny and I got a sandwich. there's a citizens advice thing at the library next Thursday, will try to get to it 🤞🏻🤞🏻🤞🏻 crashing BADLY & storm rolling in now

messaged the few support groups I'm in. nothing.

I've come to the library as too tired to go home just yet. hopefully won't be too noisy.

well that was awful! the reception area is fully behind plastic with a loud speaker. she refused to speak to me unless I took my ear protection off, then literally shouted through the speaker and mae me shout too. severe pain in ears, ringing. awful. where are the accommodations for deaf people then

going to try and walk now. I am exhausted. I can barely move my body, heart pounding and feel flu-y just from getting ready. so so dizzy. I don't know if this will achieve anything. aunt got back to me. said she's willing to help me write a letter to GP telling them I want to get better?? pointless