See you at #HDPalooza? I'll be the one with my #pinksocks on.

Once again we see the truism: very few people understand the interaction of clinical and health data and national security.

Youtube is still allowing Deepfake Tom Hanks Diabetes ads. Tom Hanks himself called them out on this in the middle of 2024. This is dangerous stuff and apparently it is going to get worse before it gets better.

A new kind of malware to understand: OCR malware which scans the photos on your phone to find crypto keys https://buff.ly/3WMB1Dq Mark my words this will be extended to using your photos to extract and blackmail healthcare data.

Some chinese patient monitors contain back-doors, according to:

Here is the whole set. They are amazing! And yes I do where my #pinksocks pretty much all the time …

Got my new RWJF t-shirt !!

HIPAA rules are getting updated for the age of AI and to protect reproductive health. Learn more in our interview with Melanie Fontes Rainer and Tim Noonan from the HHS Office of Civil Rights! youtu.be/GkvsINdeSv0 @fredtrotter.bsky.social #hdpalooza #hipaa

We had the privilege to chat with Dr. Jennifer Layden, Director of Office of Public Health Data, Science, Technology at CDC in our second-to-last #hdpalooza interview!

🧵 𝐓𝐡𝐞 𝐃𝐞𝐟𝐢𝐧𝐢𝐭𝐢𝐯𝐞 (?) 𝐋𝐢𝐬𝐭 𝐨𝐟 𝐄𝐯𝐞𝐫𝐲 𝐂𝐚𝐫𝐝 𝐭𝐡𝐚𝐭 𝐒𝐩𝐞𝐜𝐢𝐟𝐢𝐞𝐬 𝐭𝐡𝐞 𝐂𝐫𝐞𝐚𝐭𝐢𝐨𝐧 𝐨𝐟 𝐓𝐡𝐫𝐞𝐞 𝐃𝐢𝐬𝐭𝐢𝐧𝐜𝐭 𝐓𝐨𝐤𝐞𝐧𝐬 I've put them into categories, starting with the classic artifact trio: Clue, Food, Treasure

Once patient data is de-identified, there are few constraints on how the data can be used. The Joint Commission is looking to fill that regulatory gap by offering a new certification for orgs. Listen to our interview with Kathryn Spates for more. youtu.be/YVRuAWkYbKA

Fascinating read courtesy of Ted Cruz, alleging improprieties on the road to disadvantaging the U.S. in an #innovation race with China. Hard to know where to begin …. #AI 🤦🏻‍♂️ www.commerce.senate.gov/services/fil...

For “some reason” everyone is joining here recently. If you know we interact on the place be sure to send me a note to also follow you here….

Like more and more old friends @halle.blue

Hey… all my old friends are here @claudia-williams.bsky.social

I am not a puzzler, but this looks pretty cool.

At #pinksockslife meetup in Boston w @pinksocks.bsky.social

Just heard about this content sponsored by RWJF on different kinds of research: Unscripted: Candid Conversations about the Future of Research

This post about how to control what Apple Ipod Headphones do when they connect incorrectly to a Mac has become a pile-on that details Apples problematic approach to their product suite.

Curious about AWS’s role in healthcare? In this interview, we discuss how AWS technology is shaping public health, interoperability, and patient-centered care with Dr. Abdul Shaikh. youtu.be/vGcluY4FyhE #HealthcareData #AWS #PublicHealth #HealthData

Sometimes healthcare innovation requires unique funding that can't be found anywhere else. We interviewed Sara Holoubek, founder of Luminary Labs, who uses a creative prize model to drive change. youtu.be/katGBUj3Eak @fredtrotter.bsky.social

Crowdsourcing 3D map content: pretty cool idea!!

People were sick of antivaxxers in freaking 1875!! They would be appalled that we still haven't learned 150 years later.

6/12/20, NPR - Short Wave: “Coronavirus 'Long-Haulers' Have Been Sick For Months. Why?” “Maybe this is finally the thing that is going to make the world pay attention to a much broader suite of illnesses that are manifesting in very similar ways.” t.co/HVC9sZDjMP

Software that are in fact “healthcare software” but called something else are a juicy way for evil ppl to attack patients. Like removing peanut warnings from menus:

Once again we see the truism: very few people understand the interaction of clinical and health data and national security.

Bill Gates now celebrates Open Source and its role in Digital Public Infrastructure: https://www.gatesnotes.com/Digital-public-infrastructure but I do recall when Microsoft called anything GPL a "virus". But I am happy the thinking has changed!!!

Early in 2020 someone on Twitter literally laughed at me and mocked my scientific credibility because I said it’s human behaviour that drives viral spread 🙄

Learn where the exchange of patient data stands today and what's on the horizon. Hint - we're taking lessons from how the internet works. https://buff.ly/3BH0vup @ekivemark @fredtrotter

GLP-1 compounding may be ending soon: www.wired.com/story/crackd...

Patients create massive amounts of data about themselves, through social media, wearables, and engaging with the healthcare system. The privacy risks are daunting, esp with AI. These advocates are here to help. @BeLikeLight @lightcollective.bsky.social

At Health Datapalooza 2024, Judy Monroe, Lina Walker, and Stedman Stevens discuss the role of public-private collaboration and healthcare data in enhancing public health systems. https://buff.ly/3TZVsf1 #hdpalooza #healthdata #publichealth

Have prior auths for medical treatment ever made you feel like you are banging your head against a wall of red tape? You're not alone! We spoke with Eric Ellsworth, who works to make it all transparent - and better for patients. https://buff.ly/4eKgfv0 #hdpalooza #transparency #patients

We interviewed the storyteller epidemiologist Dr. Katelyn Jetelina at Health Datapalooza! Learn about the power of wastewater data surveillance and get the lowdown on why public health is so fragmented. https://buff.ly/3ZQkJfr @dr_kkjetelina #hdpalooza

I joined @thefireorg and Jon Rauch, to talk ab free speech & content moderation. I’ve wanted to do this for a while -particularly bc of our mutual concern ab jawboning, but what seemed to be some disagreement ab whose speech was under attack (targets of Jim Jordan!) www.thefire.org/news/podcast...

still the most beautiful landing approach in America

How data standards combat data silos - our Health Datapalooza chats continue! An interview with Sean Mooney at NIH Center for Information Technology. https://buff.ly/3XF6xmA #hdpalooza #healthdata #opendata

It looks like the new Fair Source licensing model includes the “Open Source Eventually” model that Monty (MySQL/MariaDB) and I promoted at OSCON so long ago!!!

KFF always has the best summaries of critical Medicare topics like the Inflation Reduction Act drug negotiations:

This is a brilliant data analysis on a critical problem: Small pharmacies closing up across the country... The punchline: 2275 pharmacies have closed so far in 2024 https://benjaminjolley.substack.com/p/2275-pharmacies-have-closed-so-far

NPR covering the “fake network” problem. Insurance providers need “networks” of providers to comply with contracts with government and employers. But when patients seek care they find that the networks are a mirage. https://www.npr.org/sections/shots-health-news/2024/09/21/nx-s1-5120543/mental-hea…

Busy week in DC.

Any Facebook-derived media platform will always devolve until a conflict-festival. Because they favor algorithms that prioritize engagement over everything else. This will always devolve: Why Threads Is All the Rage Bait | WIRED

In the opioid crisis, patients are up against more than just drug companies - drug enforcement, health IT, AI, policies, and providers are part of a system that requires a wholistic examination. An interview with Dr. Chiarello about her book, Policing Patients. https://buff.ly/3B6X7Zv #hdpalooza

One theme at #hdpalooza was that health equity gets a lot of talk, but not enough follow-through. @fredtrotter talked with Vindell Washington at Verily about his work on data flows to improve public health, and his unwavering health equity focus.

It is not a good look that all of the independent BOD members resigned from 23andMe.

Our Health Datapalooza streaming adventure is almost here! Warm up with our interview with Dr. Aaron Carroll at Academy Health who chats with us about why #hdpalooza is such an important event for healthcare data and policy.

Interviewing begins at #hdpalooza! With Dr. Vindell Washington - Chief Clinical Officer & Head of Health Equity at Verily! Videos from Health Datapalooza will be uploaded here today and through the week: