Novel gene therapies, funding for promising projects, earlier diagnosis through biopsy, ways to accelerate research, addressing heartbreaking trial failures, communications, frustrations with government agencies - all discussed at @lifearc.bsky.social summit united2endmnd.org/2025/04/09/l...

For obvious reasons, we are, sadly, part of an ever-changing community. See our post to find out more about our aims/who we work with/what we've done together/what we're doing to help accelerate progress @mndresearch.bsky.social @ukmndri.bsky.social #United2EndMND united2endmnd.org/2025/03/31/m...

@ukmndri.bsky.social post on ellorarxine. "There is currently no evidence that (it) is safe in humans. However, if… evidence becomes available, we would be delighted to work with the company…to advise on…fastest way to assess it in clinical trials" ukmndri.org/2025/02/07/a...