🧵 Interview with @bi-ta.bsky.social - medical sociologist & author of "Contested & neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome" chroniclivingtherapy.com/nezamdoust-m... Screenshot from @chronicliving123.bsky.social newsletter #MEcfs #SevereME #CFS #PwME 1/

Thank you very much @chronicliving123.bsky.social for giving me the opportunity to share this research with therapists as well as patients. I appreciate your platform's work in making research accessible and greatly enjoyed speaking with you.

1) New sociology paper on severe ME/CFS. The authors analyzed 342 messages on Twitter/X to get insights into the daily reality of people with severe ME/CFS. They highlight the feeling of being trapped by the illness, profound isolation and longing for the outside world.

Thank you @tomkindlon.bsky.social for sharing our article. This was such an emotional work to do and I poured every bit of my heart in there for this amazing community of #MECFS. Special thanks to those with #severeME whose experiences we have had the privilege of reflecting.