For people with Addison's salt, is a hot topic in this weather ☀️ So why do people with Addison’s crave salty foods at diagnosis & remains a “pick me up” when diagnosed? 🧂 @simonhspearce.bsky.social explains ⤵️ https://www.addisonsdisease.org.uk/blog/why-salt

Suns out, stay safe 😎 Temperatures are set to rise this week 🔥 If you have Addison's disease or adrenal insufficiency, there are some extra precautions to take in hot weather to help you stay well. Here are our top tips for handling the heat ➡️ https://loom.ly/Y-q7c7I

Efmody® (modified-release hydrocortisone) receives MHRA approval for adrenal insufficiency in the UK ✅ On our website, we tell you about the newly licensed medication, how it works, the research supporting it, and how it's prescribed. Read more ⬇️ www.addisonsdisease.org.uk/news/efmody-approved-uk

Meet Liv 👋 a yoga teacher living with Addison's disease, who shares her journey from a life-threatening adrenal crisis at age 17, to discovering a passion and career in yoga 🧘‍♀️ Read Liv's story on our blog ⬇️ https://www.addisonsdisease.org.uk/blog/livs-story-yoga

Can you help us receive £5,000? 💜 The Addison’s Disease Self-Help Group has the chance to receive a £5,000 donation through the Benefact Group’s #MovementForGood Health and Wellbeing Draw - but we need your help to make it happen. 🤝 Please nominate us today 🔗 https://loom.ly/BiALIJc

Going away this #HalfTerm? Whether you're travelling abroad or staying in the UK, pack a copy of our adrenal crisis guidelines in the language of your destination. Visit our website for more tips, including on injection kits and airport security ⬇️ https://www.addisonsdisease.org.uk/travelling

ADSHG Advocacy Update 📢 We’ve been working hard on our campaign following the discontinuation of liquid hydrocortisone in the UK & have encouraging updates to share. 📨ADSHG charity members, check your inbox for our latest email or read our 🧵 summary to learn more.

☕ You’re warmly invited to Alison’s Addison’s Afternoon Tea in Sudbury! 📅 Saturday 30 May 2026, 10am - 1pm 📍 Clare URC Church Hall, Sudbury, CO10 8NP 👉 RSVP here 🔗 https://www.addisonsdisease.org.uk/afternoon-tea-sudbury

This @rcn.org.uk #InternationalNursesDay, we want to say thank you to every nurse for their support and care 💙 We have 2️⃣ nursing leaflets: 🩺 Notes for Primary Care and A&E Nurses 🩺 Notes for Ward Nurses ➡️ https://www.addisonsdisease.org.uk/notes-for-nurses

This #MentalHealthAwarenessWeek, we're highlighting the challenges of managing a long-term condition, like Addison's or adrenal insufficiency, and how emotional stress impacts our steroid replacement dosing 💊 Learn more on our website 🔗 www.addisonsdisease.org.uk/coping-with-psychological-stress

Join our wonderful volunteer, Louise, for a warm and welcoming local meet-up in Morpeth! 📅 Tuesday 26 May, 12 - 3pm 📍 Morpeth, Northumberland 👥 ADSHG Members Only 👉 RSVP here 🔗https://www.addisonsdisease.org.uk/Event/morpeth-may-26

We’re excited to share a special charity fundraising night hosted by Stacey in aid of ADSHG in Warrington! 📅 Friday 15 May, 7pm - late 📍 Alford Sports & Social Club 🎟️ Tickets: £20 👉 For more information & booking, please visit 🔗 https://www.addisonsdisease.org.uk/fundraising-warrington-26

📝 We're launching our new survey on the prevention and management of adrenal crisis and we need you to take part! For too long the real story of how people experience and manage adrenal crisis has been missing from research, but we're working to change that. Take part ➡️ https://loom.ly/YaPyAug

Chelmsford Local Meet-Up 💜 Join our wonderful volunteer hosts, Debbie and Zöe, for a warm and welcoming local meet-up in Chelmsford! 📅 Sunday 5 July, 12 - 3pm 📍 Chelmsford, Essex 👥 ADSHG Members Only ✨ RSVP here 🔗https://www.addisonsdisease.org.uk/Event/chelmsford-5-july

📽️ Watch our 2026 London Landmarks Half Marathon runners in action! We’re incredibly proud of them and everything they’ve achieved for our charity 💜 Feeling inspired? Register your interest for the 2027 race today 🔗 www.addisonsdisease.org.uk/Event/llhm2027 We’d love to hear from you! 🤝

May is here! #AddisonsDiseaseDay is just 29 days away. This year’s theme is 'Turn Awareness into Action'. Whether you live with primary (Addison's), secondary, or tertiary #AdrenalInsufficiency, this day is for you. Get involved 👉 https://www.addisonsdisease.org.uk/Event/addisons-disease-day-2026

Last chance reminder that the London Marathon 2027 Public Ballot Closes Tomorrow! ⏰ If you’re interested in taking part, please make sure you enter the ballot today 🔗 https://www.londonmarathonevents.co.uk/ballot Good luck to everyone entering! 🏃‍♂️

Join us in wishing our founder, Deana Kenward MBE, a very happy birthday 🎉 In celebration of your birthday Deana, we want to share your chosen poem from 25 years ago in Newsletter No. 57. Support our charity by donating in honour of Deana's birthday 🎁 www.addisonsdisease.org.uk/ways-to-donate

Could you spare an afternoon to make a real difference this May? 💜☕ It’s easy to get started! Simply choose a date, create your JustGiving page and we’ll send you a FREE fundraising pack to help you host your party. 🤝 Sign up today 🔗 www.addisonsdisease.org.uk/afternoon-tea-2026

Over 400 rare diseases are linked to the endocrine system and many, like Addison's and adrenal insufficiency, have no cure. This #WorldHormoneDay, we're joining @esendocrinology.bsky.social to raise awareness. #BecauseHormonesMatter 👉 www.worldhormoneday.org

(1/2) When liquid hydrocortisone was discontinued, we took action. We contacted the DHSC, the MHRA, Pfizer regarding the availability of ACT-O-VIAL®, & asked you to write to your MPs. 90 of you responded🙌 📩Our member email (sent this evening - check your inbox!) shares a behind-the-scenes update.

❓ "Should I take extra medication for exams?" We all deal with stress differently, but students who are steroid-dependent and unable to mount a normal physiological stress response may need extra hydrocortisone medication. ➡️ https://www.addisonsdisease.org.uk/young-adults-addisons

Thank you to our team of 13 runners who took on the LLHM for us 💜 Together, they’ve raised almost £26,000 - the most we’ve ever raised from this event! We’re so grateful for every mile run and every donation given. ✨ Register your interest for 2027 🔗 www.addisonsdisease.org.uk/Event/llhm2027

The Spring issue of Keeping You Posted is here! 🌷Spring clean your injection kit 🚀The future of emergency injections 💉Bring Injection Training to your area 🚦New: Action Plan & 3-month prescriptions 🏆@socendocrinology.bsky.social round-up & research awards

Host an Addison’s Afternoon Tea this May! ☕🍰 It’s easy to get started! Simply choose a date, create your JustGiving page and use our FREE afternoon tea fundraising pack to host a fun and meaningful tea party. 💜 Sign up today 🔗 https://www.addisonsdisease.org.uk/afternoon-tea-2026

“Why isn’t there an ‘epi-pen’–style option for a quick and easy emergency injection?” With hydrocortisone sodium phosphate discontinued, this issue is more urgent than ever. For answers to your questions, visit our new webpage ⬇️ https://www.addisonsdisease.org.uk/future-hydrocortisone-injections

To mark #StressAwarenessMonth, we want to share some reminders that can help ease the stress & anxiety that can be experienced when living with a chronic condition like Addison's & adrenal insufficiency. More support ➡️https://www.addisonsdisease.org.uk/reducing-the-stress-of-a-long-term-condition

Good luck to our amazing London Landmarks Half Marathon (LLHM) runners hitting the streets of London a week from today! 🏃 Support our team 🔗 https://www.justgiving.com/campaign/adshg2026llhm We’ll be cheering you on every step of the way! Good luck team 👏

Happy Easter from the ADSHG 🐣 We hope you have a lovely time, but don't forget we're still here to support you: 💬 Chat on our online forum ➡️ www.addisonsdisease.org.uk/online-forum 📮 Become a member so you don't miss news updates and our summer magazine ➡️ www.addisonsdisease.org.uk/magazine

📣 Make your voice matter - write to your MP! The discontinuation of hydrocortisone sodium phosphate is a serious patient safety issue that puts people at risk. We've created letter templates for you to write to your MP to support our actions for change. 📝 Download here ⬇️ https://loom.ly/yR0adyk

Feedback like this means so much to our small charity & we're so pleased to hear how our resources have helped when it matters most. Thank you to our member for sharing 💜 📥 Explore our range of free downloadable publications or order from our shop🔗 https://www.addisonsdisease.org.uk/publications

Catch up on our Injection Training & Sick Day Rules event last Saturday! Supported by Endocrine Nurse Specialists, people living with adrenal insufficiency came together for hands-on practice & refresher on Sick Day Rules, building confidence to act in an adrenal crisis. ➡️https://loom.ly/UmUT4bM

Join our wonderful volunteer host, Jan, for a warm and welcoming local meet-up in Beckenham! 💜 📅 Saturday 9 May, 2 - 5pm 📍 Beckenham, South London 👥 ADSHG Members Only ✨ RSVP here 🔗https://www.addisonsdisease.org.uk/beckenham-9-may

Tomorrow at 1am the #ClocksGoForward ⏰ Here are some reminders for those with Addison's & adrenal insufficiency: 🌙 Change your clocks before bed so your morning dose matches the new time. 💊 On Sunday, make sure the clocks in your house are correct. 🔔 Check alarms you have for remembering doses.

Last chance to sign up for our next Paramedic Training session ⏰ Learn more about Addison's, adrenal insufficiency & the emergency management of adrenal crisis. 📅 Thurs 2 April 2026, 12-1.15pm ⬇️ Free! Register now https://www.addisonsdisease.org.uk/Event/paramedic-training-2-april-2026 #ParaCPD

@aace.org.uk org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by @addisonsdisease.bsky.social UK - available for ALL #paramedics & clinical #ambulance personnel. Register for the next one (2 April) at addisonsdisease.org.uk/adshg-parame...

The Adrenal Insufficiency Action Plan w/ @pituitaryorg.bsky.social inc key guidance using a traffic light system🚦 ✅ Daily meds ⚠️ Sick Day Rules 🚨 Adrenal crisis ➡️https://www.addisonsdisease.org.uk/adrenal-insufficiency-action-plan-3-month-prescription-letter

Advanz Pharma has confirmed that hydrocortisone sodium phosphate has been permanently discontinued in the UK. 💉If you have adrenal insufficiency, including Addison’s, you'll need to order the alternative, hydrocortisone sodium succinate, for emergency injection kits. ➡️ https://loom.ly/1l2GmG0

⏰ In preparation for the Easter weekend, make sure you have enough of your essential medication. This includes extra steroid medicine in case you become unwell and an emergency injection kit. For more Addison's admin tips, read our magazine 🔗 https://www.addisonsdisease.org.uk/magazine-winter-2026

Shoreham-by-Sea Meet-Up 🤗 Join our wonderful volunteer host, Wendy, for a warm and welcoming local meet-up in Shoreham-by-Sea. 📅 Saturday 18 April, 11am - 1pm 📍 Shoreham-by-Sea, West Sussex 👥 ADSHG Members Only 👉 RSVP here 🔗 https://www.addisonsdisease.org.uk/shoreham-by-sea-apr-26

This #FundraiserFriday, please join us in thanking Gareth, Harvey and Emer, who ran the Eastbourne Half Marathon to raise funds for our charity – raising over £1,500 (and counting!) 🎉 ✨ Donate here 🔗 www.justgiving.com/page/gareth-morgans-2

📄 New! Share with your GP our 3-Month Prescription Request Letter explaining why you need a 3-month supply of steroid medication. 👉 https://www.addisonsdisease.org.uk/adrenal-insufficiency-action-plan-3-month-prescription-letter | @socendocrinology.bsky.social

Read our roundup of @socendocrinology.bsky.social BES Conference 2026! From receiving a ‘Highly Commended’ award to presenting two research grants & vital conversations with clinicians - all to represent people with adrenal insufficiency. https://loom.ly/05mDzso

💬 "My steroids are my life force. If I want to live, it is my responsibility to give my body what it needs so I can do the things I want to do." In 2023, Mauve was diagnosed with Addison's at the age of 29. Read her story ⬇️ https://www.addisonsdisease.org.uk/blog/mauves-story-my-addisons-story

Ramadan Mubarak to everyone in our community who is observing 🌙 As Ramadan continues, our "Fasting with Adrenal Insufficiency" patient guidance leaflet is here to help you manage your health. 📥 Download your free copy ⬇️ https://www.addisonsdisease.org.uk/fasting-with-adrenal-insufficiency

Meet Our 2026 LLHM Runners! 🏃‍♂️🏃‍♀️ We’re beyond excited to introduce our amazing fundraisers who are taking on the LLHM this April in aid of our charity! 👉 Support the team here 🔗 www.justgiving.com/campaign/adshg2026llhm Show your support today - every donation makes a difference! 💜

It's #NationalNappingDay - a day those with adrenal insufficiency can relate to! Pre diagnosis, 94% of people report overwhelming exhaustion which we describe as tired in a way no amount of sleep will fix 💤 www.addisonsdisease.org.uk/diagnosis-infographic-with-comics 📸 @thisthingblog.bsky.social

🎉 Only 2 weeks to go! Our Member Get-Together is fast approaching and we can’t wait to welcome you for a day of connection, support, and talks from Endocrinology experts. 📆 Sat 21 Mar 1-6pm 📍 Reading 🎟️ RSVP ⬇️ https://www.addisonsdisease.org.uk/Event/reading-member-get-together-21-march-2026

📚 On #WorldBookDay, we catch up with @thattillyrose.bsky.social. In her blog, she shares the double life of Addison's, celebrating major life moments while managing symptoms & dealing with emergencies. https://www.addisonsdisease.org.uk/blog/tilly-the-double-life

#RareDiseaseDay 2026 may be over but raising awareness never stops 💜 Every day is an opportunity to highlight rare conditions like Addison's disease and adrenal insufficiency and keep the conversation going. Catch up on our post below to learn more ⬇️