It’s Injection Practice Day⬇️ 🍊Grab your training kit & add an orange. 📝Follow the step-by-step instructions or visit our Training page. 💡Learn together! ☑️Check your emergency hydrocortisone kit contents are in date. 🔗 https://www.addisonsdisease.org.uk/injection-training | #ShareYourKit

💡 Did you know that 3.5 million people in the UK live with a rare condition? Today is #RareDiseaseDay - a chance for the rare disease community to raise awareness and highlight the impact on people's lives. Join us as we shine a light on our rare conditions, Addison's and adrenal insufficiency ⬇️

✨ Only 1 month until our Member Get-Together! Hear from medical speakers, join breakout groups to discuss the topics affecting you, and meet others in the community. 📆 Saturday 21 March 1-6pm 📍 Reading 🎟️ RSVP ⬇️ https://www.addisonsdisease.org.uk/Event/reading-member-get-together-21-march-2026

🎉 Our Injection Training Kits are back in stock! Inject with confidence. Your life-saving skill. Put 1 March in your diary as an Injection Practice Day! Twice a year we’ll remind you to check your kit and practise the emergency injection. 👉 https://www.addisonsdisease.org.uk/injection-training

100 Days to Go! #AddisonsDiseaseDay 2026 is Friday 29 May ✨ 💡 Feeling inspired? Host an awareness stand at your hospital or plan your own activity! Get in touch ⤵️ https://www.addisonsdisease.org.uk/Event/addisons-disease-day-2026#AddisonsDiseaseDay@socendocrinology.bsky.social

Not sure how to get involved in #RareDiseaseDay2026 next Saturday? Use Genetic Alliance UK’s Advocacy Pack & write to your MP to urge them to support the 3.5 million people in the UK living with a rare condition. 📝 Use the ready-made templates & make your voice heard 👉 https://loom.ly/d7TridA

💗 How's your relationship with your health this #ValentinesDay? Feelings towards Addison's or adrenal insufficiency can be complicated. The ins and outs of a rare condition can be difficult to understand. Check out our free publications ⬇️ https://www.addisonsdisease.org.uk/publications

This #FundraiserFriday, we’re celebrating Kirsty and her team of 9, who took on the Edinburgh 10K Winter Warmer Run dressed in Lord of the Rings inspired costumes🧝‍♂️🧙‍♀️ A huge thank you for their commitment, creativity and support 💜 👉 Donate here 🔗 www.justgiving.com/page/the-fellowship-10k

Going away this #HalfTerm? Whether you're travelling abroad or staying in the UK, pack a copy of the adrenal crisis guidelines in the language of your destination. Visit our website for more tips, including on injection kits and airport security ⬇️ https://www.addisonsdisease.org.uk/travelling

Inject with confidence. Your life-saving skill. Put 1 March in your diary as an Injection Practice Day! Twice a year we’ll remind you to check your kit & practise the emergency hydrocortisone injection with those close to you. 💉Learn more👉 https://www.addisonsdisease.org.uk/injection-training

If you live with Addison’s or adrenal insufficiency and celebrate Ramadan, you may be wondering how to participate in the holy month. Be #RamadanReady and download our leaflet for tips on managing your steroid dependency ⬇️ https://www.addisonsdisease.org.uk/fasting-with-adrenal-insufficiency

Join us for our Injection Training & Sick Day Rules Refresher and learn how to use your emergency injection kit - a life-saving skill for preventing or treating an adrenal crisis 💉 📆 Sat 28 Mar 2026, 2-4pm 📍 Newcastle 🎟️ RSVP 👉 www.addisonsdisease.org.uk/Event/injection-training-newcastle-2026

It’s day 1 of the 'Steps for Addison’s Awareness' fundraising challenge 👣 Not signed up yet? There’s still time to join us! 👉 Join here 🔗 https://www.justgiving.com/campaign/stepsforaddisons26 Together, we can make a difference – one step at a time 💜

Recently diagnosed with Addison's or adrenal insufficiency? We've summarised the key points that you need to know in our booklet, 'Managing Your Addison's Disease or Adrenal Insufficiency'. 🛒 Order yours or download your free digital copy ⬇️ www.addisonsdisease.org.uk/managing-your-addisons

⚠️ Following reports of Accord 10mg hydrocortisone tablets crumbling when split, Accord-UK Ltd have now issued a statement. Read the full article and download our one-page document to share with your healthcare team ➡️ www.addisonsdisease.org.uk/News/tablet-prices-smaller-doses

Early Bird Tickets for our first 2026 Member Get-Together are available 🎉 If you're affected by Addison's or adrenal insufficiency, or support someone who is, come along! 📆 Sat 21 Mar 2026, 1-6pm 📍 Reading 🎟️ RSVP 🔗‍️ www.addisonsdisease.org.uk/Event/reading-member-get-together-21-march-2026

You've got mail! Our Winter Magazine is here! 📬 Perfect weekend reading, it’s packed with news, personal stories & expert, trusted articles. Paper copies are in the post! To read online, ADSHG members, please check your emails or visit our website ⤵️ https://loom.ly/GLuEPvY

Addison’s disease and adrenal insufficiency are rare life-threatening endocrine conditions. The adrenal glands cease to function, no longer producing sufficient steroid hormones which are essential for the functioning of the body. Learn more ⬇️ www.addisonsdisease.org.uk/what-is-addisons-disease

Meet members in Perth this Saturday 💜 Join our wonderful volunteer host, Louise, for a warm and welcoming ADSHG Members' Social Meeting in Scotland. 📅 Saturday 24 January, 11am - 1pm 📍 Perth, Scotland 👥 ADSHG Members Only 👉 RSVP here 🔗 https://www.addisonsdisease.org.uk/perth-24-jan

Last chance to sign up for our next free online Paramedic Training session ⏰ Learn more about Addison's, adrenal insufficiency, and the emergency management of adrenal crisis. 📅 Mon 26 Jan 2026, 1-2.15pm ⬇️ Register now www.addisonsdisease.org.uk/Event/paramedic-training-26-january-2026 #ParaCPD

There’s still time to join our Steps for Addison’s Awareness fundraising challenge this February 👣 ✅ Sign up now 🔗 www.justgiving.com/campaign/stepsforaddisons26 Together, we can make a difference - one step at a time.

We want to say thank you to Thrive Fulfilment for their professionalism and support with our online shop 🛒 In 2025, they processed 3,010 orders on our behalf - with items varying from leaflets and keyrings, to injection kits and welcome packs! 🛍️ Visit our shop 👉 www.addisonsdisease.org.uk/shop

. @aace.org.uk is supporting further excellent, free #adrenalinsufficiency information and training sessions hosted by @addisonsdisease.bsky.social UK - available for all #paramedics and clinical #ambulance personnel. Register for the next one (Jan 26) at addisonsdisease.org.uk/Event/parame...

Get social in Shoreham-by-Sea 🤗 Join our wonderful volunteer host, Wendy, for a warm & welcoming ADSHG Members' Social Meeting by the sea. 📅 Saturday 17 January, 10.30am - 12.30pm 📍 Shoreham-by-Sea 👥 ADSHG Members Only 💫 RSVP 🔗 https://www.addisonsdisease.org.uk/Event/shoreham-by-sea-jan26

Our membership is open to all affected by Addison’s or adrenal insufficiency and includes key benefits to support you 🤝 📬 Welcome pack 💬 Online forum 📖 Magazine & newsletters 📨 Members-only emails 🔬 Take part in research ⏰ Early access to events Join us 🔗 www.addisonsdisease.org.uk/join-us

Happy New Year! Start 2026 with a meaningful goal by joining our Steps for Addison’s Awareness fundraising challenge this February 👣 ✅ Sign up today and make a difference, one step at a time 🔗 https://www.justgiving.com/campaign/stepsforaddisons26

No one likes being unwell, but if you live with Addison’s or adrenal insufficiency & are unwell, you need more than just a duvet day! It's important to follow the Sick Day Rules. Refresh your memory & share, so if you become unwell, you know what to do ⤵️ https://loom.ly/0Xz-ICY

🧵1 of 3 | We can hardly believe we’re at the end of the year! Before we move into 2026, we want to celebrate our amazing community. Thank you for engaging with our content - you make everything we do worthwhile💜 Enjoy this special edition of the ADSHG Wrapped ✨ www.addisonsdisease.org.uk/join-us

Here's our Christmas card to you. Spreading joy, wellbeing, & awareness this festive season❄️ From the Addison's Disease Self-Help Group (ADSHG) 💜 Help us raise awareness of #AdrenalInsufficiency, a rare, life-threatening condition. Learn more & share➡️ www.addisonsdisease.org.uk/festive-wishes

The ADSHG Connection, our newsletter for healthcare professionals, is out! 🚑 @rcem.ac.uk & Time Critical Meds 📊ADSHG impact 🎯Our 2026 focus & how to help 🔗Easy patient signposting Read online ➡️ https://loom.ly/-93fPww | Please share to help spread the word!

🎄 Before we sign off until the new year, we want to leave you with all the information you need on our festive closures, as well as where to find support if you need it. We also want to say thank you for being part of the ADSHG, and we wish you and your loved ones a peaceful festive season 💜

On our blog, we share the findings of vital research, which explores the experiences of people with adrenal insufficiency in managing adrenal crisis. Read more and find out what this means ⬇️ www.addisonsdisease.org.uk/blog/behind-the-research-factors-influencing-self-management-of-adrenal-crisis

Our online forum is here to support you 🤝 Find your people in our community and connect with those who think and feel the same as you when it comes to adrenal insufficiency! Share experiences, make new friends and get help and advice. Join the forum here ➡️ www.addisonsdisease.org.uk/online-forum

🧵1/3: Members have reported that Accord 10mg hydrocortisone tablets can crumble when split, raising concerns that they are not receiving the right dose. Not everyone uses this brand, so it may not affect you. If you are having issues raise a Yellow Card report via 🔗 https://loom.ly/AkLdeC0

Does your Christmas tree promote steroid-dependent patient safety?! We love this tree by the Endocrine Specialist Nurses at @sth.nhs.uk, with homemade NHS Steroid Emergency Card decorations🎄 Learn more ➡️ www.addisonsdisease.org.uk/steroid-emergency-cards

Cases of flu in hospitals are still rising, so get your free NHS flu jab to reduce your risk of going to hospital whilst it's so busy. Dr Prete explains the importance for people with steroid dependency to reduce the risk of adrenal crisis 👉https://www.addisonsdisease.org.uk/news/flu-vaccine-2025

Our ‘Buy a bauble’ campaign is in full swing 🎄 Thanks to everyone who has already donated. If you haven’t had a chance yet, there’s still time! Every donation adds a virtual bauble to our tree & brings us closer to our goal. 💫 Buy a bauble today: https://www.justgiving.com/campaign/buyabauble25

On #NobelPrizeDay we’re celebrating the amazing things that happen when we work together. 🧬 The work of Reichstein, Kendall & Hench continues to inspire our commitment to fund endocrinology research. Learn more about our grants & how to apply 👉 www.addisonsdisease.org.uk/research

The festive season can feel overwhelming, especially when you’re also dealing with adrenal insufficiency. For support, watch our Wellbeing Webinar, in collaboration with @raremindsuk.bsky.social ⬇️ www.addisonsdisease.org.uk/news/wellbeing-webinar-with-rareminds

💡 Did you know that many inspiring people live with (or have lived with) Addison's or adrenal insufficiency? On our Famous Lives page, we share some of their stories, from athletes to world leaders. Take a look and see if you recognise any names ⬇️ www.addisonsdisease.org.uk/famous-lives

Genetic Alliance UK is exploring what equity means for people living with rare conditions as part of their #RareDiseaseDay 2026 campaign. 💭 To show the stories behind the statistics, they want to hear your experiences. Click to take part ⤵️ https://loom.ly/yKiNx2Q

Do you work in physical health? We’re improving our exercise resources for people with adrenal insufficiency & want to hear from physios, personal trainers, occupational therapists & other professionals who can help us shape them. Please sign up via 👉https://addisons.beaconforms.com/form/047010a5

🌍 Let's raise awareness this #InternationalDayOfPersonsWithDisabilities! It's essential that those with Addison's or adrenal insufficiency carry an emergency injection kit. 💉 Learn more about injection kits 👉 www.addisonsdisease.org.uk/the-emergency-injection-for-the-treatment-of-adrenal-crisis

Living with Addison's or adrenal insufficiency? Don't forget to add these to your December to-do list 📝 Always be prepared for an adrenal crisis by checking that you and your loved ones know how to administer your emergency injection. Watch our life-saving videos here 👉 https://loom.ly/lknivTo

Buy a bauble. Light up our tree. Make a difference 🎄 This Christmas, help our virtual tree shine brighter with every bauble. Each one represents your support for people living with adrenal insufficiency, including Addison’s 💫 ✨ Buy a bauble 🔗 https://www.justgiving.com/campaign/buyabauble25

For November @thattillyrose.bsky.social bestselling memoir 'Be Patient' is 99p on Kindle & Audiobook! Grab a copy to read more about her journey with Addison's, inc using our emergency hydrocortisone injection kit to save her life! 📖 👉 https://shorturl.at/s7QLI

We're giving you 10% off the ADSHG shop this #BlackFriday! 🛒 Use code 'BFriday10' (Friday 28 November only) 🛍️ No minimum spend - one use per customer ⏳ Hurry! Stock is limited and many items are selling fast 👉 Shop here: www.addisonsdisease.org.uk/shop Thank you for supporting our charity 💜

📣 Have your say on the Rare Disease Framework in England! RareCare have launched a survey to better understand the real-life experiences of people affected by rare conditions, such as Addison's and adrenal insufficiency. Complete the survey to take part 👉 form.jotform.com/252324831142044

📝 Our GP leaflets are now in one updated guide, so you can support your GP in the diagnosis and management of your Addison's or adrenal insufficiency. Order or download yours to read as the expert patient, or pass on a copy to your GP 🔗 www.addisonsdisease.org.uk/caring-for-the-addisons-patient

Back by Popular Demand! 📣 Our two most popular Christmas card designs are back - but hurry, stock is very limited! Once they’re gone, they’re gone. 🎁 Grab yours today 🔗 www.addisonsdisease.org.uk/shop