No one can be secured from being chronically ill and /or disabled person . No one can be safe form living under difficult circumstances,due to human-made tragedies, natural catastrophies,etc . No safety can be guaranteed in our life at all . #chronicillness #Disability

It never came into my mind I would be chronically ill,disabled and house-bound in the moment I felt abnormal two decades ago. #chronicillness #Disability

Just a reminder (and I speak from experience here) that food pantries usually do not have anything for people with food allergies or other dietary needs -- medical, cultural, spiritual, etc. They do not deliver, either, so if someone is homebound or cannot drive ... they cannot get to them.

$460 to milestone! Need annual scan for aortic aneurysm caused by EDS & $ for HRT + procedures I had Monday! Donations = tax deductible+NO funds released w/out receipt! About to lose healthcare. helphopelive.org/campaign/159... Venmo: KARRIE-HIGGINS-2 www.paypal.com/paypalme/kar...

Something I haven't written about, but should. A few years ago I got a loop recorder implant after a dangerous tachycardia developed. The battery is now dead on it and I can't afford to see a cardiologist with my marketplace plan. So it just sits inside of me. If I suck in my stomach, it pokes out.

No one can be secured from being chronically ill and /or disabled person . No one can be safe form living under difficult circumstances,due to human-made tragedies, natural catastrophies,etc . No safety can be guaranteed in our life at all . #chronicillness #Disability

It never came into my mind I would be chronically ill,disabled and house-bound in the moment I felt abnormal two decades ago. #chronicillness #Disability

Books by authors with #MEcfs Please share #Booksky #DisabledAuthors #Disability #Writing #Comics chronic.market/chronic-illn...

Personally ,my chronic illness deprived me of my normal life and taught me how simple things changed to be so dear when they were lost . So I simply wish I could stand up again,walk,get out of house and do something for living . #chronicillness #Disability #LGMD

I don't know what you wish you could do,if you are chronically ill and /or disabled people. #chronicillness #Disability #LGMD

I don't know what you wish you could do,if you are chronically ill and /or disabled people. #chronicillness #Disability #LGMD

unrequited food craving of the day big fat stack of thick & fluffy American pancakes, smothered in salted butter & drowned in real maple syrup

...controversy - and ME has plenty of it - but no one wants to go near it. #MyalgicEncephalomyelitis #pwME #MillionsMissing #GreatestMEdicalScandal

A couple of years ago I was in touch with a journalist and I tried to pitch to her the story of Alem Matthees, the work he had contributed to uncovering the PACE trial fraud and how he had become more devastatingly ill in the process. I also said we needed someone asking the hard questions to...

How can we get people to become conscious of the fact that there is a disease that they don't know exists that will absolutely destroy your life, help is nonexistent and you'll be screaming into an abyss for the rest of your torturous life if it takes you down by a roll of the dice. #MEcfs

I am so grateful for the honesty and vulnerability of #pwME who share their personal stories. It gives others the courage to speak and reminds us that we are not alone in this reduced and often painful experience of life. #MyalgicEncephalomyelitis #MillionsMissing

September Crip Arts Gathering www.tixtree.com/e/september-...

Once you've disappeared by means of chronic illness, disability, lack of access, and general ostracization due to your situation, nobody will hear you because who listens out for those missing from the table? Inclusion is a decision, and so is exclusion. #Writing #Comics #Art #Disability #EDI

New design available as stickers, badges, magnets etc. Say The Word: Disabled. #Disability #DisabledArtists #DisabilityPride www.redbubble.com/i/sticker/Di...

Just discovered an old review from 2023 of my graphic memoir. The Facts Of Life by Paula Knight www.thefrumiousconsortium.net/2023/07/06/t... #BookSky #Comics #GraphicMedicine #Books

A reel of digitally illustrated disability-focused designs available in my Redbubble shop as stickers, T-shirts, magnets and other household and clothing products. #Disability #DisabledArtists #Illustration #Design

Writing doesn't always mean the physical act. It requires time to think. Thinking time is writing time, but it's something not everyone has the brain space for. Writing is missing those experiences that mean no time to think freely e.g. caring responsibilities, fighting for rights etc. #Writing

Starting a thread of online/ virtual art and writing events happening this autumn. Drop them below and I'll share! #writing #art #Comics #Disability #VirtualEvents #DisabledArtists #DisabledWriters #ChronicIlness

Es braucht auch Platz für etwas Schönes

In DE ist einheimisches Obst häufig unter den bezahlbarsten Obstsorten im Supermarkt. In Spanien kostet das Obst, das vor Ort angebaut wird, mehr, als es später hier in DE kostet. Keine Ahnung, wer (außer vielleicht deutschen Tourist*innen) sich das leisten kann.

Wer zur Erholung seltsame Tiere braucht, die sie*er vermutlich nicht persönlich treffen wird (Plankton ausgenommen): Hier entlang. Die Doku hat eine gute sprachliche Begleitung, finde ich. Mensch muss nicht permanent hingucken und kriegt trotzdem was mit. www.ardmediathek.de/video/terra-...

Die wahren Probleme der Wissenschaft: Wenn deine Hochschule ein Corporate Design von einem anderen Stern hat und dein Sinn für Ästhetik einen permanenten Krampf kriegt. Diese erzwungene Bildaufteilung. Diese Farben. Diese Formen. Das tut weh. (Synästhesie machts nicht besser.)

So true

Nach 5,5 Jahren verabschiedet sich jetzt mein Mann ebenfalls aus der Kontrollgruppe. Trotz weitgehender Isolation und allen Schutzmaßnahmen während kurzer Besuche von außen hat er sich irgendwie infiziert. Ich hoffe so sehr, er erholt sich wieder auf seinen Stand von vor der Infektion. 🙏🏼

Wenn Leute bei wichtigen Themen seltsam rumeiern und man nie wirklich versteht warum: Vermutlich haben sie gerade noch Einsicht genug um zu wissen, dass sie sich durch Offenheit als komplette Widerlinge outen würden.

A super early night because a super early morning (a long story but all good) so some natural beauty captured by those I follow 🙏 👇 Good night lovelies. xxx

So I was gonna leave Bsky cuz of age veri & also it's been a sad experience of utter crickets for me as someone who mostly reposts. Then today, for the 1st time, it started showing me who liked or reposted my reposts (& all historical likes/reposts). Who knew? People have been engaging with me.

I lost the most of my life and what was left is not enough for me to keep going, to be honest. I hope I can collect, maintain ,renovate the remnants of myself and go forward the way that fits the status quo I am living in . #chronicillness #LGMD #Disability

Looks like we figured out this lingering infection. I had a root canal in 2020 thats never stopped hurting. Turns out there's infection at the bone that gets worse every time I take steroids, then keeps getting worse till I get on antibiotics again. On amoxicillin now, and see oral surgeon Friday.

Thus , you may find yourself alone in your ferocious battle against your chronic illness at the end and that the worst thing to expect. #chronicillness #Disability

What's bad and sad is that the things and circumstances around us,as chronically ill and/disabled people are changing continuously, so what's possible today won't be so tomorrow. #chronicillness #Disability

What's bad and sad is that the things and circumstances around us,as chronically ill and/disabled people are changing continuously, so what's possible today won't be so tomorrow. #chronicillness #Disability

Find SO komisch, grundsätzlich zu verkünden, Kinder MÜSSTEN nach Kita/Schule noch in ~den Sportverein~, zur Musikstunde oder was weiß der Geier wohin, am ~Besten~ mehrmals pro Woche. Nach vielen Stunden hoher Anstrengung?😭& dann noch: „Wir erleben GARNIX zusammen, ich fahr sie nur rum!😭“. Why tho.😬

I believe chronically ill and /or disabled people have right to get what they need to live a decent life as human beings. Is that too much ask for ? #chronicillness #Disability

There's no certainty about the future as far as I am concerned . I still need to feel safe . #chronicillness #LGMD #Disability

There's no certainty about the future as far as I am concerned . I still need to feel safe . #chronicillness #LGMD #Disability

Who robbed the Louvre? Right answers only.

I lost the most of my life and what was left is not enough for me to keep going, to be honest. I hope I can collect, maintain ,renovate the remnants of myself and go forward the way that fits the status quo I am living in . #chronicillness #LGMD #Disability

VENTING Being fully aware you are losing your physical abilities one by one silently,without being able to do anything to stop that loss is like being sentenced to receiving high doses of torture in jail,while your hands shackled for the rest of your life. #chronicillness #LGMD

VENTING Being fully aware you are losing your physical abilities one by one silently,without being able to do anything to stop that loss is like being sentenced to receiving high doses of torture in jail,while your hands shackled for the rest of your life. #chronicillness #LGMD

Help a deported family survive! My friend is in touch with this family and has been raising funds for them. Thx for shares!

Auf der Draussenveranstaltung, die ich mit Oma besucht hab, lobten sich Verantwortliche dafür, zB nen Becher Sprudel für 1€ anzubieten. Was ja vergleichsweise echt moderat is, leider. Der „Joke“: pro Becher wurde immer 5€ Pfand verlangt. „Kriegste ja zurück!😌“-ja, haben MUSS ich’s aber erstmal.🤦