Aaaand we're back! 👋🏻 Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries. If you have contacted us over the festive period we will get back to you as soon as possible.

The helpline will close today, Tues 23 December, at 12pm, and reopen on Fri 2 January at 10am. If you get in touch with us between these dates, we'll get back to you as possible on our return. We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐

After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round. 💛 Head to our website to read Emma's story. ❄️ https://ow.ly/IkEF50XKLZ3

Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF have now been released. Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far. ➡️ https://ow.ly/bJmZ50XKj1L

Last month, over 200 scientists and clinical teams joined us to hear the latest news on lab-based and clinical research. From cutting edge research in the lab, to using UK CF Registry data in clinical trials, it was a packed two days. At the heart of the conference were your research priorities. 1/2

Have you got your tickets yet? ❄️ Play our Christmas Raffle today for the chance to win up to £2,000! Every £1 ticket helps fund life-changing research and provides vital support. 💛 ✨ Tickets are just £1 and the closing date is 12 January 2026. 🎟️ https://ow.ly/oWVc50WVJuZ

The Exercise as an Airway Clearance Technique in people with cystic fibrosis preliminary study looked at whether exercise can safely replace traditional chest physiotherapy in people with CF as an airway clearance method. Visit the ExACT-CF post on our Trials Tracker. ➡️ ow.ly/tKkm50Xy2JI

Today, Lilian Greenwood, Labour MP for Nottingham South, visited Dr Rian Griffiths at the University of Nottingham, to find out more about her work in infection detection for people with CF during world AMR awareness week. 🔬 Read more ➡️ https://ow.ly/lVQ250XvXoJ

Thanks for having us! @youthvoice.ncb.org.uk

This week is World Antimicrobial Resistance Awareness Week and this #ResearchWednesday we wanted to explain why preventing and tackling antimicrobial resistance is so important to people with #cysticfibrosis. ➡️ www.cysticfibrosis.org.uk/news/improvi...

Patient voices have been involved at every stage of establishing a UK-wide network of research hubs improving how lung infections are managed. Read more about how we work with patients: https://www.lifearc.org/work-with-us/patients-community/ @cysticfibrosis.org.uk

Have you got your tickets yet? ❄️ Play our Christmas Raffle today for the chance to win up to £2,000! Every £1 ticket helps fund life-changing research and provides vital support. 💛 ✨ Tickets are just £1 and the closing date is 12 January 2026. 🎟️ https://ow.ly/oWVc50WVJuZ

Through the research we fund, we want to prevent #cysticfibrosis complications from developing and improve how they are treated and managed. Visit our website to find out more #ResearchWednesdays ➡️ ow.ly/kNa950Xmn2V

This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health. ➡️ ow.ly/HW7g50XlCJQ #cysticfibrosis #cftrust #notjustlungs

Following approval for its use in England, Alyftrek (vanza triple) is now available in Northern Ireland and Wales Head to our website to find out more about this news, as well as FAQs about Alyftrek. ➡️ https://ow.ly/Mfym50XlBoM #cysticfibrosis #alyftrek

Scientists in our MAGNIFY SRC are exploring how new types of lung MRI scans might be used in CF research and for CF care in the future. It involves researchers around the country coming together to apply their different expertise. ➡️ ow.ly/6ZvL50XjCCu

Have you used the Trust's Clinical Trials Tracker to find information about trials you or your child could take part in? Would you be willing to share your experiences to help others learn more about CF clinical trials? If you’re interested please email at [email protected]

We’re excited to see Dr Gwyneth Davies present early date from CF STORM, a much anticipated research study, at #NACFC tomorrow. This study was shaped by people with CF, using CF Registry data, to find ways to help reduce treatment burden. ➡️ https://ow.ly/M48150Xhr3w#NACFC

If you are an innovator, our support can accelerate the design and delivery of your clinical trials. We’ll be at the North American CF Conference #NACFC this week. Please come and find us to talk about our research support offer or email [email protected] to find out more.

We’re attending Health Data Research UK conference this week in Glasgow, where we have a poster on embedding clinical trials into the UK CF Registry, gaining e-consent and collecting patient reported outcome measures. Visit us at poster number 1 to find out more. #HDRUKConference #cysticfibrosis

How many healthy cells are needed to tip the balance in favor of recovery through hashtag#genetherapy? PhD-student Jari Bulkens is tackling this question and his innovative approach just earned him a poster prize at the #UKCFC in London!

Last week saw scientists and clinicians come together for #UKCFC, the UK's biggest conference dedicated to CF research, from biomedical science to improving clinical care. 🔬 It was inspiring to see the research community uniting to bring us closer to a life unlimited for everyone with CF. 💛

Are you looking for a rewarding new role, where you can work hard, have fun and really see the impact of your work? We're currently recruiting for a new vacancy on a part time basis: ⭐ Information Officer ➡️ https://ow.ly/iNFM50W1vsg

"Even with the huge advancements in recent decades with Kaftrio, it is reassuring to know that researchers are not stopping; if anything, they're pushing on faster and with more determination." Lucy Baxter shares some of her key takeaways from day 1 of #UKCFC. ➡️ https://ow.ly/xRGI50X5KLS

Dr Jamie Duckers shares his insights from day 1 of #UKCFC! We’ll be back here and over on our Instagram stories tomorrow to cover day 2! 🔬 #cysticfibrosis

An insight from Professor Daniel Peckham on conference highlights so far! #UKCFC #cysticfibrosis

"There's a clear call for CF-specific pregnancy guidance." Dr Imogen Felton delivers a powerful presentation on the Matriarch study, which is answering questions on pregnancy, maternal and infant health for people with CF. You can hear more in our CForYourself podcast episode on pregnancy and CF

PhD student Jonathan, a researcher at our MAGNIFY Strategic Research Centre with his poster at #UKCFC, exploring the use of lung MRI in the management and monitoring of CF

This morning we caught up with Lorna Allen, our Community Involvement and Engagement Manager, to find out about some of the research she’s most excited to hear about at #UKCFC this year!

Great opening talk by Prof Gwyneth Davies of GOSH at #UKCFC highlighting the research goals and challenges for CF

Welcome to day 1 of UKCFC 2025! 🔬 We have kicked off this year's conference with a Welcome an Introduction from conference chair, Dr Gwyneth Davies. If you're attending in person or online, we'd love to hear from you! Tag us in your stories on Instagram or here on Bluesky!

Today marks the one year anniversary of our CF Lung Health Network 🎉 Find out more about this area of research on our website now! ➡️ https://ow.ly/zlz250X4nka

Do you have a story about how antibiotics have made a difference in your lives or the lives of your loved ones? Your story and photo could be up in lights at #PiccadillyCircus in London during #WAAW25. Visit the Fleming Initiative to find out more. ➡️ www.fleminginitiative.org/thank-you-an...

Every time a #researcher applies to the Trust for money, or shares a report for a grant that is in progress, three or four other researchers working in a similar area review their applications or reports. It’s a process that is known as #peerreview. And it is all done on a voluntary basis. (1/3)

In 2017, we established the Clinical Trials Accelerator Platform to support the delivery of a wide range of CF clinical research studies across the UK. If you are curious to know more about how CTAP helps people to take part in research, check out our 2025 Impact Report. ➡️ ow.ly/yvZe50WU0Ox

Do you have questions about your career in research? Want tips and advice from others who work in this area? Why not sign up to attend the latest in our Coffee and Careers webinar series on Wednesday 10 September. ➡️ ow.ly/Zwze50WNHCp #cysticfibrosis #cftrust #researchwednesday #researcher

Our Coffee and Careers webinars are a chance to listen to conversations with researchers sharing tips, advice, and anecdotes about following a career in research. Join us on Wednesday 10 September for a conversation with Dr Guy Moss, Associate Professor in Neuroscience ➡️ ow.ly/b25w50WG1C8

Building effective research partnerships is vital to help us achieve a life unlimited for people with CF. This #ResearchWednesday we’re announcing a new partnership with The British Society for Research on Ageing @bsrageing.bsky.social

Want to find out what's new in #cysticfibrosis research? Join us and your peers at UK Cystic Fibrosis Conference in London on 1–2 October 2025. Our early bird rate ends soon, so make sure you book before 5pm on 31 July to secure your place! ➡️ www.cysticfibrosis.org.uk/about-us/con...

*Research opportunity* Are you an adult with cystic fibrosis who has had cancer? If so, please consider taking part in a research interview about your experiences of getting a cancer diagnosis and any cancer treatment that you had or are having. Thank you.

Over the next 5 years, our Translational Innovation Hub Network will address challenges around finding new lung infection treatment options, detecting and treating flare-ups, and developing new ways to diagnose infections. ➡️ cysticfibrosis.org.uk/innovation-hub-network #cysticfibrosis #cftrust

"I’m not thinking about where I could be limited by CF. For the first time, challenges are logistical, rather than health-based." We spoke to Declan about running an ultra-marathon, being a science teacher, and changes in his life since taking Kaftrio. ➡️ ow.ly/VshL50WfWf3 #cysticfibrosis #cftrust

Through our #worlkforwards programme, we want to empower everyone with #cysticfibrosis to live without limits by supporting the #CFcommunity with your career goals and aspirations. What do you wish your employer knew about CF? Drop your thoughts in the comments! ➡️ ow.ly/GscB50Wf5pw #cftrust

SAVE THE DATE: UK CF Conference 2025 is back this October! Join us for a two day hybrid event of cutting-edge updates on CF research, clinical trials, and insights from the UK CF Registry. Registration now open! ➡️ www.cysticfibrosis.org.uk/about-us/con...

Our project director Jo Fothergill, and co-investigator Philip Mitchelmore, will be taking part in the upcoming @cysticfibrosis.org.uk CF LIVE event about phage on Wednesday 25th June at 7pm. Find out more and register to attend here: www.cysticfibrosis.org.uk/about-us/con...

Today is wear yellow for CF (Cystic Fibrosis) day! Here we have some of our team ( and doggo's) wearing yellow in support of students who are in our schools at CCHS.  #CysticFibrosis #EduSky #disability #AcademicSky #EduSkyUK  @chelseacommunityhospitalschool @cftrustuk

Trailfinder-CF partner, Alder Hey Children's Hospital supporting Wear Yellow Day as part of Cystic Fibrosis week #alderhey #cysticfibrosistrust

🗣️ #cysticfibrosis AWARENESS WEEK 🗣️ Pls RT! 🔀 Happy Wear Yellow for Cystic Fibrosis Day! 💛 @cysticfibrosis.org.uk website: www.cysticfibrosis.org.uk #cfweek

And that's day 19 with a little helper today (Henry) who did keep correcting me on my dance moves 🤣 Wear Yellow Day tomorrow for #cysticfibrosis led by the @cysticfibrosis.org.uk Yes I have done my leg in, but determined to finish what I started! www.justgiving.com/crowdfunding...

Our team in Milan have been busy with symposiums, workshops, and plenty of conversations on day 1 of #ECFS Read on for some of the key takeaways #cysticfibrosis #cftrust