Content warning: this blog touches on life expectancy, transplant and death "Transplant is an incredible and precious gift. It has given me time, health, opportunities to make memories, and moments I once thought I would never have." Read Rosie's story ➡️ https://ow.ly/GHgh50YGufi

Prof James Chalmers talks about bronchiectasis and a clinical trial he is leading called AIRTIVITY® that is looking at a new treatment, for people with or without CF. Read our blog to find out more. ➡️ https://ow.ly/iqcP50YFwrw #ResearchWednesday #CFTrust #CysticFibrosis #Bronchiectasis

We're wishing everyone celebrating a very happy and peaceful Easter. 💛 Our social media and helpline will be closed over the long weekend from 4pm today and will reopen on Tuesday 7 April at 10am. For immediate support please contact your CF team, the Samaritans or CALM.

We’re currently recruiting for a skilled high‑value fundraiser to help deliver our major donor programme. ⭐ Philanthropy Manager (12 months FTC) 🗓️ Closes midnight on 13 April. ➡️ https://ow.ly/9uny50YB8AX #CharityJobs #cysticfibrosis

We’re funding research at the University of Cambridge to understand more about why the bacteria Pseudomonas causes repeat lung infections in people with #cysticfibrosis. Visit our website to find out more about the research and how it can make a difference. ➡️ https://ow.ly/7TCX50YzQhx

As part of our work to improve diversity in clinical trials, we have translated some of our clinical trial resources into Arabic, Urdu, Polish and Welsh. Read more about our resources and our work to make sure everyone with CF is represented in #clinicaltrials. ➡️ https://ow.ly/urVV50YxXPZ

Developing a therapy that could work in CF? Exploring rare or respiratory diseases? Have an asset that could be repurposed? Let's connect at #BIOEuropeSpring! Cystic Fibrosis Trust's CF Accelerate offer is built to help industry partners design and deliver trials — faster and smarter. Come find us!

We’ve just added two studies to the Trials Tracker that are both looking for people with CF who are unable to benefit from modulators to take part. Head to our Trials Tracker to find out more! ➡️ https://www.cysticfibrosis.org.uk/get-involved/clinical-trials/trialstracker

Our spring research funding calls are now open! Find out more about our Strategic Research Centres, Development Awards, our Summer Studentship placements and how to apply on our website now! 🔬 https://ow.ly/2QB250YveBZ

We’re highlighting how people with CF and their loved ones are shaping the direction of the CF Lung Health Network, co-funded by #CFTrust and LifeArc. Rebecca shares her passion for ensuring the views of people with CF are incorporated into research studies. ➡️ https://ow.ly/YJJG50YtrqG

This week we’re highlighting how people with CF and their loved ones are shaping the direction of the CF Lung Health Network, co-funded by #CFTrust and LifeArc. ➡️ https://ow.ly/NqBi50YseGq#CFTrust

We are looking for someone to join our Trustee Board as our new Treasurer, overseeing the financial affairs of the charity and ensuring that they are conducted legally, transparently, and in line with the charity’s governing document. ➡️ https://ow.ly/qPLb50YrGe4 #cysticfibrosis #cftrust

This week we’ve been visiting researchers within our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc. Find out more about our Trailfinder-CF and Pulse-CF Innovation hubs on our website. ➡️ https://ow.ly/iERe50Yp1g7 #cysticfibrosis #cftrust

This Rare Disease Day, we're highlighting some of the studies we're funding to achieve our goal of developing effective treatments for everyone with CF. We caught up with Mark at our UK CF Conference to hear more about his research and the difference it could make. ➡️ https://ow.ly/nWgg50YmSHi

We’re currently recruiting for two roles in our Research and Healthcare Data Directorate! ⭐ Registry Data Manager (12 months FTC) 🗓️ Closes midnight on 2 March. Head to our website to find out more. ➡️ https://ow.ly/32v750XSo7E #CharityJobs #cysticfibrosis

It's Helplines Awareness Day! ☎️ What better day to highlight our amazing Helpline team, who are here to offer confidential support and a listening ear to the CF community. 💛 📅 Monday–Friday, 10am–4pm. 📞 0300 373 1000 ✉️ [email protected] 📱 WhatsApp on 07361 582053

More than one in four adults with #CF are receiving treatment for CF diabetes. Trust-funded researchers have found chemicals in the blood that could be used as markers for the development of CF diabetes. ➡️ https://ow.ly/xnQr50Yi4Rx

Some people may not have a #cysticfibrosis diagnosis confirmed until later in life. We're funding research to introduce mini-gut (or ‘organoid’) tests to improve how this diagnosis is made. Read about a recent progress meeting of our ADVANCE-CFTR Development Award. ➡️ https://ow.ly/Nj0750Yh0Br#cysticfibrosis

We'd like to say a huge thank you to everyone who has responded to our PIP survey so far, over 300 of you have shared your views which is absolutely amazing! The survey will be closing soon but there is still time to get involved. ➡️ www.surveymonkey.com/r/SKW8KM6

We’re currently recruiting for two roles in our Fundraising team! ⭐ Trusts Fundraising Manager ⭐ Senior Philanthropy Manager – Major Donors (12 months FTC) 🗓️ Closes midnight on 22 February. ➡️ https://ow.ly/32v750XSo7E #cftrust #CharityJobs #cysticfibrosis

On International Day of Women and Girls in Science, we spoke to Bethinn, a CF researcher who also has CF, about her work, diagnosis, and the unique perspective she brings to her field. 🔬 ➡️ https://ow.ly/s4Jy50YcJIy

The UKHSA and the MHRA have issued a reminder to the public to stop using, and dispose of any non-sterile, alcohol-free wipes they may have at home. Read more in the post below, as well as on our website. ➡ www.cysticfibrosis.org.uk/alcohol-free...

Share your views on PIP! 🗣️ The UK Government is reviewing disability benefit Personal Independence Payment (PIP), and we need your input to advocate for the CF community. Take part via the link below. ➡️ https://www.surveymonkey.com/r/SKW8KM6

Researchers want to find out the chances of people with CF developing diseases of older age. This includes understanding more about cardiovascular disease (CVD), commonly known as heart disease. 🟡 CVD is a group of conditions relating to the heart and to blood vessels. 1/4

This week’s #ResearchWednesday is all about research to develop treatments for people with rare CF variants. The HIT-CF programme did personalised screening in the lab, before testing the new treatments in the CHOICES clinical trial. ➡️ www.cysticfibrosis.org.uk/news/results...

Got questions about your research career? Join our Coffee and Careers webinar tomorrow, Jan 28, with Dr Guy Moss! 🔬 ➡️ https://ow.ly/O7bq50Y4smr

Did you know we have an online forum? 💬 Join the conversation and discover a whole community of people who understand the ups and downs of living with cystic fibrosis. Whatever you're going through, we've got you. 💛 ➡️ forum.cysticfibrosis.org.uk

Want to learn more tips and ideas about #earlycareerresearch? Join our next Coffee and Careers webinar series on 28 January, where ECRs can hear insights from more senior researchers who reflect on their careers and what they've learnt along the way. ➡️ https://ow.ly/n3s450XXhs9#earlycareerresearch? #cysticfibrosis

It's #ResearchWednesday – and this week is all about supporting early career researchers (ECRs). Last year at #UKCFC, Dr Becky Dobra was a panellist at our workshop on tips for writing up research findings. Click the link to read more about what we discussed. ➡️ https://ow.ly/pw0S50XXhsa

What do you think about your child’s CF care? Together with CF teams across the UK, we are looking at experiences of CF care in paediatric settings. Take the survey today! ➡️ www.surveymonkey.co.uk/r/ParentCarer25 #cysticfibrosis #CFcare

The new season of our podcast, CForYourself, is here! 🎙️ Join Lucy as she chats with #TeamCF supporters Colleen, on raising over £70,000 as part of Team Ewan, and Jamie, who has CF, on his incredible endurance challenges. ➡️ https://ow.ly/Vbnr50XZzOv

On Friday 16 January, Labour MP for Cambridge, Daniel Zeichner, visited Professor Martin Welch’s lab at the University of Cambridge to learn more about research improving treatment options for lung infections in people with cystic fibrosis. Read more on our website now! ➡️ https://ow.ly/XMyp50XZz1Q

Could 2026 be the year you take part in a CF research study? (1/4) ➡️ cysticfibrosis.org.uk/trialstracker

"Should I go somewhere else for my post-doc? I wonder if anyone has any tips?" 🤔🔬 Calling all early career researchers! Join us for our Coffee and Careers webinar on 28 January and hear from researchers as they share advice about following a career in research. ➡️ https://ow.ly/SE0h50XT12P

Aaaand we're back! 👋🏻 Our helpline and social media has re-opened today, Friday 2 January, and are available to chat about any of your questions or queries. If you have contacted us over the festive period we will get back to you as soon as possible.

The helpline will close today, Tues 23 December, at 12pm, and reopen on Fri 2 January at 10am. If you get in touch with us between these dates, we'll get back to you as possible on our return. We want to wish you a happy and safe festive break, and look forward to seeing you in the new year. ⭐

After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round. 💛 Head to our website to read Emma's story. ❄️ https://ow.ly/IkEF50XKLZ3

Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF have now been released. Dr Gwyneth Davies, co-Chief Investigator of the study, explains what we know so far. ➡️ https://ow.ly/bJmZ50XKj1L

Last month, over 200 scientists and clinical teams joined us to hear the latest news on lab-based and clinical research. From cutting edge research in the lab, to using UK CF Registry data in clinical trials, it was a packed two days. At the heart of the conference were your research priorities. 1/2

Have you got your tickets yet? ❄️ Play our Christmas Raffle today for the chance to win up to £2,000! Every £1 ticket helps fund life-changing research and provides vital support. 💛 ✨ Tickets are just £1 and the closing date is 12 January 2026. 🎟️ https://ow.ly/oWVc50WVJuZ

The Exercise as an Airway Clearance Technique in people with cystic fibrosis preliminary study looked at whether exercise can safely replace traditional chest physiotherapy in people with CF as an airway clearance method. Visit the ExACT-CF post on our Trials Tracker. ➡️ ow.ly/tKkm50Xy2JI

Today, Lilian Greenwood, Labour MP for Nottingham South, visited Dr Rian Griffiths at the University of Nottingham, to find out more about her work in infection detection for people with CF during world AMR awareness week. 🔬 Read more ➡️ https://ow.ly/lVQ250XvXoJ

Thanks for having us! @youthvoice.ncb.org.uk

This week is World Antimicrobial Resistance Awareness Week and this #ResearchWednesday we wanted to explain why preventing and tackling antimicrobial resistance is so important to people with #cysticfibrosis. ➡️ www.cysticfibrosis.org.uk/news/improvi...

Patient voices have been involved at every stage of establishing a UK-wide network of research hubs improving how lung infections are managed. Read more about how we work with patients: https://www.lifearc.org/work-with-us/patients-community/ @cysticfibrosis.org.uk

Have you got your tickets yet? ❄️ Play our Christmas Raffle today for the chance to win up to £2,000! Every £1 ticket helps fund life-changing research and provides vital support. 💛 ✨ Tickets are just £1 and the closing date is 12 January 2026. 🎟️ https://ow.ly/oWVc50WVJuZ

Through the research we fund, we want to prevent #cysticfibrosis complications from developing and improve how they are treated and managed. Visit our website to find out more #ResearchWednesdays ➡️ ow.ly/kNa950Xmn2V

This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health. ➡️ ow.ly/HW7g50XlCJQ #cysticfibrosis #cftrust #notjustlungs

Following approval for its use in England, Alyftrek (vanza triple) is now available in Northern Ireland and Wales Head to our website to find out more about this news, as well as FAQs about Alyftrek. ➡️ https://ow.ly/Mfym50XlBoM #cysticfibrosis #alyftrek

Scientists in our MAGNIFY SRC are exploring how new types of lung MRI scans might be used in CF research and for CF care in the future. It involves researchers around the country coming together to apply their different expertise. ➡️ ow.ly/6ZvL50XjCCu