A book reading + discussion of certain rare genes which allowed survival of epic catastrophic conditions in the past... a positive spin on #raredisease ... www.youtube.com/live/QAIXPuF... From "When the Baby Is Not OK: Hopes and Genes", my mom #memoir published this year. #Booksky #Momsky #genetics

Sadly the #eugenics and #racism Watson erroneously attributed to DNA + genes are very much alive today. Watson ran Cold Spring Harbor Laboratory when I worked there... back in my genetics research days with Barbara McClintock, with his unkind, harmful views on full display.

Did you know that 90% of textbook references to Native people stop before 1900? If a country convinces itself that we've already disappeared, then it can keep taking our land, poisoning our water, & pretend no one real is being hurt. Pls read & share my latest: open.substack.com/pub/juliefra...

Delighted to share that these stories are now also up in ebook editions at B&N, Kobo, Apple books, Everand, Fable + more. Here's the books2read link showing all the distributors: books2read.com/u/47BGOA #writerscommunity #writesky #booksky #fiction #indiepub

The arc of the moral universe is long, but it bends towards justice. Except it doesn’t bend on its own—it bends because we pull it in the direction of justice. What keeps me hopeful during times like these is being surrounded by people who are doing just that.

1 of many things I love about Zohran Mamdani, his inclusion of factual history + realism in his views - a great reminder in his clip below! Proud to vote for him + finally have a choice of someone I believe in, know + trust as Mayor. #vote #nyc #zohranmamdani

Happy Halloween! Be safe... I'm heading to our local library for Edgar Allan Poe stories. Watched "The Fall of the House of Usher" on Nflx last PM, so Poe. www.imdb.com/title/tt1556... If you've ever worked in pharma, as I have, it may twist a nerve or two. #Halloween #Fiction #EdgarAllanPoe

Scary Stories for Halloween Reads ~ sharing a few of my books touching on the macabre and psychological horrors and a bit about the reality behind the writing, in my new online journal post: jjbrownauthor.com/scary-storie... #Booksky #Writingcommunity #shortstories #Halloween #books

Some cats simply radiate calm... happy National Cat Day! Neighborhood cat amid fallen leaves - a peaceful NYC moment from my daughter's work at: Sophia Alma Art & Photography www.artpal.com/sophiaalmaar... #NationalCatDay #catsky #photography

Loving the serene nature photos up at SophiaAlma's new site: www.artpal.com/sophiaalmaart #photography #birdsky #catsky

Agreed! Voting early today felt so so good. I wasn't anticipating the rush of positivity I experienced, just after I voted for Zohran. Dopamine I guess, or just plain old hope. My family's known him for 20 years here in NYC. I trust him! #ZohranMamdani

“We make up horrors to help us cope with the real ones.”― Stephen King This #Halloween I do need some make believe! A few of my stories touching on the macabre or dark psychological – and the realities behind the writing - in a new post here today: jjbrownauthor.com/scary-storie... #booksky #horror

A geneticist’s memoir of pregnancy + birth of babies with a rare disease ~ in "When the Baby Is Not OK: Hopes & Genes". For my family, it's #PKU. Our challenges are shared by many with rare conditions. Book details: jjbrownauthor.com/books/when-t... #newbornscreening #raredisease #booksky #Scicomm

Grateful to stand with wonderful people in the "rare" community at NYC's "Lifting the Limits" NPKUA benefit last night with my daughter Lillian, @lillianisabella.com, a #PKUAdvocate. A huge limit right now is access to care. #PKU #Raredisease #LTLFORPKU #phenylketonuria #LiftingtheLimits #healthcare

A heartbreaking, inspiring memoir to read, showed me how important her story is in our world today. Storytelling lives forever and cannot be killed or silenced. #Booksky #Nobody'sGirl #Memoir

In case you need a smile... lovely photos from the Guardian gallery on humor in nature. www.theguardian.com/environment/... #Nature #photography

Julian Brave NoiseCat's New Book Explores Indigenous Life, Death, and Survival

Storytelling never dies and can't be killed.... will be reading this memoir tomorrow like so many others will be. A story to be heard. Here's the link to the Bookshop site that supports local indie book sellers: bookshop.org/p/books/unti... #memoir #booksky #VirginiaGiuffre

Lovely clip below reminds me to hope. Thanks Ramin! And that... “I don't think of all the misery, but of the beauty that still remains.” ― Anne Frank, The Diary of a Young Girl

I'm giving away a signed copy of The Swallows of Lunetto, my novel about fascism in Italy, because I think we need to understand how the madness can happen anywhere. Just leave a like/comment so I see you, and I'll drop your name in the hat. I hope this book holds its little 🕯️.

Good News for plants and the planet... encouraging start to the week.

📚"Smartly plotted set of shorts reflecting on 'death' and how it's an inescapable part of life....short, sharp, snappy with good pacing and strong character development" - Wishing Shelf, UK. Gratitude for the editorial review of my 2nd Ed "Death & the Dream" stories! www.amazon.com/Death-Dream-...

Truth telling from those who know... a must read for all of us in the US:

"We're Still Here with Simon and Julie" isn't just about history, but also the here and now. Loving it and learning from it, storytelling that's truth telling we all need today. #HappyIndigenousPeoplesDay

In "The Finest Mask" a speculative fiction, I reimagine history with Europeans susceptible to epidemics, needing masks, looking for "perfect genes" of beautiful Indigenous Peoples to save them... a horror collection "The Doctor's Dreams" 2nd edition now out: www.amazon.com/Doctors-Drea...

We start with 🧬, healthcare gaps + advocacy in our @matthewzachary.bsky.social interview, "Genes of Wrath," but end with a (true) nerdy #horror story. 🎧 His inspiring series, "Out of Patients" verifies truth is stranger than fiction + we have so much to fix! www.outofpatients.com/the-genes-of...

🌎“What you do makes a difference, and you have to decide what kind of difference you want to make.” - Jane Goodall. Our challenge isn't always in making a choice, but in noticing we had one in the 1st place. @wildhopetv.bsky.social is a shining example of brilliant choices: see www.wildhope.tv

35 stories, 12 countries, one global mission: to bring biodiversity back from the brink. Explore all our episodes, deep-dives into the science of conservation, educational guides and much, much more at WildHope.tv.

🧬The Genes of Wrath ~ 🎧podcast episode's up! On "Out of Patients" ~ about disconnects between medical knowledge + human connection, rare disease parenting, trauma + survival while flipping the script. www.outofpatients.com/the-genes-of... #raredisease #memoir #PKU #books @matthewzachary.bsky.social

Why we need to support the Digital Equity Act ~ we all need internet access, including those of us who are elderly, vets, people with disabilities... story from KFF kffhealthnews.org/news/article... #healthcare #health

Grateful to @matthewzachary.bsky.social for his deeply probing questions + shared dark humor during our live, unscripted conversation in his famous "Out of Patients" health podcast ~ at: www.outofpatients.com/the-genes-of... #Scicomm #Genetics #Memoir #Raredisease #Newbornscreening #healthcarereform

“Courage is Contagious” in this inspiring piece by Jeremy Berg... have a look. We don't need to be immunized against action. #Scicomm #Hope #Science

How the body can tell "friend from foe" #NobelPrize award... when could this have been more needed in our world? Contratulations to Drs Brunkow, Ramsdell and Sakaguchi. Now let's keep everyone safe and well, as all people are our collective body.🌎

Why do we keep getting sucked into the game of politics? Governing is not a game. Governing is about representation, finding compromises, and balance. Finding a way for us to thrive. Are farmer’s needs being met? Are the iron ore worker’s feel secure? Do the healthcare provider’s feel heard?

Book signing at Brooklyn Book Festival in NY, nearly everyone had a story to share as they stopped by for my memoir "When the Baby Is Not OK: Hopes & Genes"... Sharing our journey is my activism. #booksky #scicomm #books #raredisease #pku #phenylketonuria #newbornscreening #publichealth

Did the US "govt" shut down so that certain individuals could go forward with their plans without senators' or representatives' interference + without accountability or transparency? Seems all too convenient somehow...as I watch more science + health colleagues lose their jobs. #Scicomm #shutdown

Finished "Caste: The Origins of Our Discontents" today, enlightening book by @isabelwilkerson.bsky.social - basis of "Origin" from @duvernay.bsky.social - both essentials for all in the US to read + view. They understand, witness, even predict the painful chaos we live in, yet offer hope. #Booksky

Our Malady: Lessons In Liberty From A Hospital Diary by Timothy Snyder — Review #BookReview📖 by @grrlscientist.bsky.social #MustRead #Books #BookSky💙📚 #healthcare⚕️ #HumanRights #Illness #fear grrlscientist.substack.com/p/our-malady...

Robert Redford was a brilliant actor, director, and dedicated activist. I'll remember him for so many vital roles, but most importantly at this time is for everyone to watch and re-watch, All the President's Men. A free press is essential to a free society.

Excited about being at Brooklyn Book Festival this Sunday, the City's largest free book fair! I'll have a table as an indie author / publisher with my newest book "When the Baby Is Not OK: Hopes & Genes" + more 2nd editions. See you there? @bkbookfest.bsky.social #writerscommunity #books #scicomm

Noticing what it is that causes us to take each actual in-breath, to create each actual heart beat inside our bodies, and then honoring that... is the pause we can promote and practice, no matter the season. #Spiritchat

If and when "two roads diverged in the woods..." what helps me is quiet, solitude, rest - but if the decision must be immediate then I rely on intuition, make it a practice to trust that what flows through me from the cosmos that we're all a part of, will be OK. #Spiritchat

Many of us are familiar with the kind of energy that comes from anger, like a volcano erupting inside us, but when we "allow the heart to converge towards peace + truth," honestly, the force and power of positive energy can be greater, stronger than even that. It's surprising, but true. #Spiritchat

To let the mind's attachments go is the real struggle in life, and yes, I agree, letting go helps us feel new - especially as we "get old" as people say, or "survive" as I see it. New... as in fresh, open, happy, awake. #Spiritchat

Convergence currently means noticing how historical tragedies repeat themselves in the present moment, and my path is how to attempt to accept these facts, while still hoping for and working toward peace and compassion in our world, where I live (NYC, US). #Spiritchat

🧬 for Newborn Screening Awareness Month ~ A geneticist’s memoir of pregnancy and birth of babies with rare disease ~ in "When the Baby Is Not OK: Hopes & Genes". In my family, it's #PKU. Book details at: jjbrownauthor.com/books/when-t... #2025NBS #newbornscreening #raredisease #booksky #genetics

Grateful to editor Nicola Miller for her review of my book in "Rare Revolution Magazine," latest edition! Here's a link to the nonprofit's hub, + magazine with her #bookreview: rarerevolutionmagazine.com with great resources, news + personal stories on #raredisease and #patientadvocacy #booksky

Read Kurt Vonnegut’s 1st novel, Player Piano last night ~ amazed, so relevant today #LaborDay (publ 1952). Machines replacing workers was the tragedy, echo to being displaced by AI now. Anti McCarthy focus burns, with job loss + witch hunting of US scientists + liberals now. #amreading #booksky #AI

🎉"The Doctor's Dreams" has come out today in 2nd edition! My 4 novellas (2 added) in this revised edition explore inner lives of scientists & docs when faced with sudden change, uncertainty & deaths. www.amazon.com/dp/B0FP9GH568/ #booklovers #writingcommunity #writesky #books #booknews #booksky

Read + sharing, Demetre's resignation letter. "Eugenics plays prominently in the rhetoric being generated" he reports, so alarming and true. We must revive policies of compassionate care in our US public health, guided by real #science. Facts matter. Public health matters. #Scicom #Scicomm #genetics