New paper in @jidr-wiley.bsky.social from Amanda Gillooly et al on the Mental Health & Well-Being of Adults With Intellectual Disabilities During the COVID-19 Pandemic Across the UK: A Four-Wave Longitudinal Analysis #learningdisabilities #healthinequalities onlinelibrary.wiley.com/doi/10.1111/...

This is fantastic - academic community coming together to celebrate learning disability week!

To coincide with Learning Disability Week 2025, @mencap.org.uk have prepared a Virtual Special Issue containing 7 articles from the recent back-issues of @jidr-wiley.bsky.social. 6/7 articles are #OpenAccess You can access the Virtual Special Issue here: onlinelibrary.wiley.com/doi/toc/10.1...

Predictive Validity of the Brøset Violence Checklist in a Secured Institution for Offenders With Intellectual Disabilities onlinelibrary.wiley.com/doi/10.1111/... "findings underscore the need for population-specific adaptations to the BVC, particularly to address contextual & demographic factors"

Impact of Obesity on Hypoxemia During Deep Dental Sedation for Paediatric and Adult Patients With Intellectual Disabilities: CT90 as an Outcome onlinelibrary.wiley.com/doi/10.1111/... "Severe hypoxemia frequently occurred during intravenous sedation, particularly in obese patients..."

Understanding Music Participation for Adults With Down Syndrome onlinelibrary.wiley.com/doi/10.1111/... "Knowing that multiracial adults with Down syndrome had a higher frequency in playing music, a potent future research direction is better understanding [their] musical needs and preferences..."

Factors Associated With Alzheimer's Dementia Diagnosis and Survival in Down Syndrome onlinelibrary.wiley.com/doi/10.1111/... Researchers from @royalholloway.bsky.social "Earlier age at first assessment and living with family predicted earlier age at diagnosis, which led to longer survival..."

‘Mind the Gap’—A Survey on Care Gaps and Priorities for the Transition to Adult Healthcare According to Caregivers of Young People With Rare Conditions Associated With Intellectual Disability onlinelibrary.wiley.com/doi/10.1111/... Researchers from @amsterdamumc.bsky.social

Prospective Characterisation of Age-Related Changes in Self-Injurious Behaviour in a Sample of Children With Global Developmental Delay Aged 2–12 Years onlinelibrary.wiley.com/doi/10.1111/...

Mortality in Tuberous Sclerosis Complex in the United Kingdom, 2016–2022 onlinelibrary.wiley.com/doi/10.1111/... "Most causes of mortality in this Tuberous Sclerosis Complex cohort are potentially prevented with suitable interventions earlier."

Borderline Intellectual Functioning: A Scoping Review onlinelibrary.wiley.com/doi/10.1111/... "Very few addressed adaptive functioning explicitly, a crucial area for diagnosing and supporting individuals with BIF, though many covered its domains (conceptual, social and practical)." @ucm.es

Our June issue was published recently, and 7/9 articles are #OpenAccess. We will be posting about each of the nine articles over the next few weeks, but in the meantime, you can find them all here: onlinelibrary.wiley.com

A Comparison of Commonly Used Prediction Equations for Estimating Resting Metabolic Rate in Adults With Down Syndrome onlinelibrary.wiley.com/doi/10.1111/... @bchelsel.bsky.social

Anxiety, Depression and Stress in Parents and Siblings of People Who Have Prader-Willi Syndrome: Morbidity Prevalence and Mitigating Factors #OpenAccess onlinelibrary.wiley.com/doi/10.1111/... "Strategies to enhance family cohesion should be employed to help diminish adverse outcomes..."

Access to Oral Healthcare in Individuals With Rett Syndrome: A Qualitative Study of Parent Perspectives onlinelibrary.wiley.com/doi/10.1111/... "frequently cited barriers to professional dental care were dentist-related, while caregiver related financial barriers were cited by a minority..."

‘Smiling and Talking Slowly’: A Qualitative Study on the Ideal Ophthalmologist From the Perspective of Adults With Intellectual Disabilities #OpenAccess onlinelibrary.wiley.com/doi/10.1111/... "For people with intellectual disabilities, an ideal ophthalmologist is patient-centred..."

Investigation of Gait Characteristics and Kinematic Deviations in Rare Genetic Disorders with Instrumented Gait Analysis #OpenAccess onlinelibrary.wiley.com/doi/10.1111/... "variability of clinical and genetic features might explain heterogeneity in gait deviations and should be further explored."

Eye Tracking as a Tool for Detecting Alzheimer's Disease in People With Down Syndrome #OpenAccess onlinelibrary.wiley.com/doi/10.1111/... "The VPC task is a potentially useful method for assessing AD-related cognitive impairments in adults with DS across varying ID levels."

Sexual Health Literacy Among Adults With Intellectual Disabilities: A Scoping Review #OpenAccess onlinelibrary.wiley.com/doi/10.1111/... @ot-ireland.bsky.social "The availability of sexual knowledge and sexual autonomy is threatened by several factors in the social environment: (1/2)

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation #OpenAccess onlinelibrary.wiley.com/doi/10.1111/...

There are 8 articles in our May issue: onlinelibrary.wiley.com/toc/13652788... 6/8 are Open Access We will be posting about all eight articles over the coming weeks, so keep checking back 👀

It is important that we understand how healthcare continued to evolve for folks with intellectual disabilities during the pandemic. Our @jidr-wiley.bsky.social study looked at health services pre-pandemic and then over the first two years of COVID across Ontario. Open Access

Brief Report: Community and Hospital Healthcare Use by Adults With and Without Intellectual and Developmental Disabilities in Ontario, Canada, During the First 2 Years of the COVID-19 Pandemic onlinelibrary.wiley.com/doi/10.1111/...

Examining the Relation Between Sleep Problems and Behavioural Challenges in Youth With Down Syndrome onlinelibrary.wiley.com/doi/10.1111/... "...while chronic sleep issues impact long-term behaviours, nightly variations do not predict immediate behavioural changes."

Proprioceptive Training Induced Adaptations of Static Balance Control: An RCT Study in Adults With Intellectual Disability onlinelibrary.wiley.com/doi/10.1111/... "...this could have a positive, significant impact in their daily life, as it may reduce the incidence of falls and relative injuries."

Unlocking Vision Care Accessibility: Evaluating Caregivers' Willingness to Pay in Specialised Eye Clinics for Family Members With Intellectual Disabilities onlinelibrary.wiley.com/doi/10.1111/... "public funding to support such clinics and ensure that they can address the vision health disparity"

Contraceptive and Pregnancy Decision-Making Autonomy and Health Care Experiences Among Women With Intellectual Disabilities onlinelibrary.wiley.com/doi/10.1111/...

Social Internet Use by People With Intellectual Disabilities: A Systematic Review and Thematic Synthesis of Qualitative Studies onlinelibrary.wiley.com/doi/10.1111/... "4 themes emerged: a feeling of fitting in, maintaining connections, making new connections & enhancing autonomy and empowerment"

Wellbeing of Family Carers of Adults With Intellectual Disabilities During the COVID-19 Pandemic in the UK: Longitudinal Study

In our April issue, 6/7 papers are Open Access. We will be sharing the papers from the April issue of JIDR over the next couple of weeks. You can see the full issue here: onlinelibrary.wiley.com/toc/13652788...

Brief Report: Factors Associated With Depression in Caregivers of Adults With Down Syndrome onlinelibrary.wiley.com/doi/10.1111/... "Intervening to improve caregiving appraisal and functional strength of the care recipient may positively impact caregiver mental health."

Digit-in-Noise Test as a Hearing Screening Test for Individuals With Intellectual Disability onlinelibrary.wiley.com/doi/10.1111/... "...first step towards developing a hearing screening test for individuals with ID who are at elevated risk of impairment & who have insufficient evaluation access."

👋 We're new here. We want to tag authors in our posts about their published research, but we don't always find everyone's profiles. 🙏 If you know authors, please help us to let them know that we are spotlighting their research by tagging them, or their place of work/study, in a reply.

Association Between Intellectual Disability and Hair Cortisol Concentration in Adolescents in a Brazilian Population-Based Birth Cohort onlinelibrary.wiley.com/doi/10.1111/... "Children with ID, particularly those with idiopathic ID, might...experience heightened stress levels during adolescence."

Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities onlinelibrary.wiley.com/doi/10.1111/...

Comparative Analysis of Early Caregiver–Child Interaction Patterns in Infants and Toddlers: Evaluating Down Syndrome vs. Typical Development onlinelibrary.wiley.com/doi/10.1111/... "findings include lower scores in parental sensitivity & non-directiveness in dyads with children with Down syndrome"

Real-Life Functioning in 22q11.2 Deletion Syndrome in Relation to Neurocognitive Abilities and Psychotic Symptoms: A Comparison With Idiopathic Schizophrenia onlinelibrary.wiley.com/doi/10.1111/... "...with 22q11.2DS display a similar real-life functioning to patients with chronic schizophrenia."

Hello again! We will be sharing the papers from the March issue of JIDR over the next couple of weeks. You can view the full March issue of JIDR here: onlinelibrary.wiley.com/toc/13652788...

Original research submissions are welcome for a Special Edition celebrating the upcoming European Association of Mental Health in Intellectual Disability (EAMHID) congress “Unleashing talent embracing diversity” Deadline: Sunday, 16 February 2025 🔗More info: onlinelibrary.wiley.com/page/journal...

Hi! We will be starting to post content about the Journal of Intellectual Disability Research (JIDR) over the coming weeks. Please follow us for updates about the latest research published in JIDR, calls for Special Issues, and other journal-related news.