Hi all! My partner put together a fundraiser to help me get a power wheelchair so I can have some independence back! Our insurance barely covers a fraction and we exhausted all other options Even $5 will help! gofund.me/770cc8093 #mutualaid #disability #mecfs

Hi all! My partner put together a fundraiser to help me get a power wheelchair so I can have some independence back! Our insurance barely covers a fraction and we exhausted all other options Even $5 will help! gofund.me/770cc8093 #mutualaid #disability #mecfs

Has anyone with #severeME #MEcfs had to move? How did it go for you? Do you have any advice? How did you mage the day when you moved your bed? It’s me and my partner caretaker doing it ourselves with no moving company. I’m really nervous. #longcovid

Has anyone with #severeME #MEcfs had to move? How did it go for you? Do you have any advice? How did you mage the day when you moved your bed? It’s me and my partner caretaker doing it ourselves with no moving company. I’m really nervous. #longcovid

Need more covid conscious people and pw/ ME to follow on here. Like this and I’ll give you a follow! Transitioning here from twt #MEcfs #longcovid #covidconscious

I spoke too soon on the BB. Should have knocked on wood The nausea! Oh god the nausea. Happens every time I start a new med. going to give it a couple weeks first and then reevaluate

Here’s some good personal news! I started on a new medication and I’m seeing benefits from it! Super stoked going on three years of these illnesses. Finally making significant dent in things Never expected to get relief with beta blockers but here we are! #pwME #MCAS #severeME #POTS

I wonder if my dad knows I see all his transphobic tweets 🤔

Kind of tired of seeing previous covid conscious friends who get covid, and then drop all precautions afterwards.

Rhe lead singer of Chumbawumba is married to a champion breakdancer. She had to give up dancing when she fell pregnant but, only three months after giving birth, successfully defended her title at the World Championship. She got knocked up, but she got down again.

It lives rent free in my head. Pro publica did a longer piece on it but I can say personally it fundamentally shifted my worldview. It's beyond indifference

I wish I wasn’t as sick so I could participate in more activism

At this point it’s been said in a hundred different ways, so I think people are being intentional about not getting it.

At BCCH for 5’s procedure. Wild that there is no masking in BC hospitals considering covid is everywhere & the same hospital has a teen in critical condition with H5N1 Patients shouldn’t get hospital-acquired infections when accessing health care Where is the precautionary principle? Do no harm?

It's ok to take care of yourself. It's ok to get some rest. It's ok to become a lonely lighthouse keeper and spend your days cursing the sea and your nights gently going mad as you write an unending novel about ghost cats.

watching old episodes of docu-series that aired on tlc and honestly i miss that whole vibe, half-assed green-screening, stilted recreations. we lost something as a society the moment all projects become high-budget hyper professionalism stuff that has to look clean and neat

Finally moving properly from xitter onto bluesky!

Rockin’ the early 2000’s Apple ‘Pro’ experience~

👋