British Dupuytren's Society
@british-dupuytrens.bsky.social
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Raising awaresness of Dupuytren's, Ledderhose and Peyronie's. Supporting patients and research.
Many people don't let Dupuytren contracture rule their life. Here are some more famous people who took Dupuytren in their stride
dupuytrensuk.com/famous-peopl...
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Famous People With Dupuytren's Disease
From Bill Nighy to Margaret Thatcher, discover famous people with Dupuytren's disease and how they managed it.
https://dupuytrensuk.com/famous-people-dupuytrens-disease/
5 days ago
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Two more blogposts by Dr Shaffer
dupuytrensuk.com/what-if-dupu...
dupuytrensuk.com/why-is-radio...
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What if Dupuytren's Treatment Isn't Available Locally?
Live far from a Dupuytrenās UK centre? Learn how consultation, radiotherapy planning, and treatment closer to home make specialist care accessible nationwide.
https://dupuytrensuk.com/what-if-dupuytrens-treatment-isnt-available-locally/
15 days ago
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Free webinars for hand therapists. Worth checking out!
openhandtherapy.org/webinars/#re...
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Webinars ā Open Hand Therapy Initiative
https://openhandtherapy.org/webinars/#register-now
18 days ago
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TourtiĆØre Dupuytren. Don't mind if we do.
26 days ago
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New blogposts from Dr Richard Shaffer
dupuytrensuk.com/dupuytrens-d...
And
dupuytrensuk.com/does-playing...
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Dupuytrenās Disease in Musicians: Why Timing Matters
Musicians feel the effects of Dupuytrenās disease earlier than most. Learn why hand span, precision, and early treatment timing are critical for preserving performance.
https://dupuytrensuk.com/dupuytrens-disease-in-musicians-why-timing-matters/
26 days ago
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Timing is important when deciding what treatment you want
dupuytrensuk.com/surgery-vs-r...
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Surgery vs Radiotherapy for Dupuytrenās Contracture
Surgery and radiotherapy treat Dupuytrenās contracture at different stages of the disease. Surgery corrects established finger contractures, while radiotherapy is most effective early, helping slow pr...
https://dupuytrensuk.com/surgery-vs-radiotherapy-for-dupuytrens-contracture/
about 1 month ago
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dupuytrensuk.com/what-makes-d...
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What Makes Dupuytrenās Worse?
Discover what makes Dupuytrenās contracture worse, from genetics and health conditions to smoking, alcohol and hand stress, and learn steps that may slow progression.
https://dupuytrensuk.com/what-makes-dupuytrens-worse/
about 1 month ago
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reposted by
British Dupuytren's Society
North West Bylines
about 1 month ago
Adam, a boy born with fused fingers, dreams of getting the surgery that could change everything, but thatās hard when growing up in GazaĀ |Ā Jennie Kermode
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āI want to be like the other childrenā ā Adam dreams of having surgery
Adam, a boy born with fused fingers, dreams of getting the surgery that could change everything, but thatās hard when growing up in Gaza
https://northwestbylines.co.uk/news/health/i-want-to-be-like-the-other-children-adam-dreams-of-having-surgery/?fsp_sid=2396
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We are arranging a Google Meet on Sunday 1 Feb at 3pm GMT (winter time,) This will be the link:
meet.google.com/zeb-nuoq-zkf
It will be open for an hour, feel free to pop in!
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Meet
Real-time meetings by Google. Using your browser, share your video, desktop, and presentations with teammates and customers.
https://meet.google.com/zeb-nuoq-zkf
about 2 months ago
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dupuytrensuk.com/dupuytrens-r...
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Dupuytrenās Radiotherapy: What to Expect at Your First Appointment
Learn what happens at a Dupuytrenās disease consultation, when radiotherapy is helpful, who benefits most, and what to expect from treatment and follow-up.
https://dupuytrensuk.com/dupuytrens-radiotherapy-what-to-expect-at-your-first-appointment/
3 months ago
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Protect your hands (and eyes) when handling fireworks! And keep fireworks away from children and pets at ALL times.
add a skeleton here at some point
3 months ago
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Wishing everyone happy holidays, season's greetings, merry Christmas, happy Hanukkah... Wishing you a happy peaceful time with family, friends or on you own.
3 months ago
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I need four more replies to get to 100! Anyone? Here is a survey to keep you busy for a few minutes! (results will be shared anonymously with a group of trainee hand surgeons next year)
dupuytrens-society.us13.list-manage.com/track/click?...
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Dupuytren survey December 2025
https://dupuytrens-society.us13.list-manage.com/track/click?u=4c0d7a84aa391b602b86826df&id=3dbf2c0f80&e=68444c690d
3 months ago
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Dr Richard Shaffer's latest blogpost
dupuytrensuk.com/guide-to-dup...
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Guide to Dupuytren's Disease Treatments
Comprehensive guide to all Dupuytrenās disease treatments, from early-stage options like radiotherapy to minimally invasive and surgical procedures. Learn how each treatment works, who itās suitable f...
https://dupuytrensuk.com/guide-to-dupuytrens-disease-treatments/
3 months ago
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For anyone who's had surgery for Dupuytrens, there's this app to help you:
myrecovery.app/bds
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http://myrecovery.app/bds
5 months ago
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@dupuytren.bsky.social
welcome on the blue site!
5 months ago
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Some UK Dupuytren patients worry about travelling to Europe once ETIAS has started. We approached the relevant authorities, who assured us hand and finger disabilities will not prevent travel.
5 months ago
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Another big step towards understanding the condition and maybe a cure.
www.prnewswire.com/news-release...
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Ventoux Biosciences Secures U.S. Patent for Novel Therapy Targeting Dupuytren's Disease and Immune-Fibrotic Disorders
/PRNewswire/ -- Ventoux Biosciences, a biotechnology company developing disease-modifying therapies for fibrotic conditions, today announced the issuance of a...
https://www.prnewswire.com/news-releases/ventoux-biosciences-secures-us-patent-for-novel-therapy-targeting-dupuytrens-disease-and-immune-fibrotic-disorders-302563893.html
6 months ago
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The DISC trial compared fasciectomy with collagenase. Now the team is presents the trial and the results in a two-part podcast. Listen to the Podcasts by The Research Room on Spotify, Apple Podcasts, Amazon Music or
www.youtube.com/playlist?lis...
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The Research Room - YouTube
Discover the groundbreaking clinical trials happening at the York Trials Unit at the University of York! Join us each week in The Research Room where we sit ...
https://www.youtube.com/playlist?list=PLsyjxg2XOn-TpUsmx39QvjkdT2fEvC6xJ
6 months ago
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FESSH has a new SIG - specialised subject Dupuytren's Disease
fessh.com/dupuytren-di...
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Dupuytren Disease Group
https://fessh.com/dupuytren-disease-group/
6 months ago
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dupuytrensuk.com/dupuytrens-d...
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Dupuytrenās Disease and Rock Climbing: What Climbers Need to Know
Learn how rock climbing increases Dupuytren's disease risk by 20% in climbers. Discover early treatment options including radiotherapy, symptoms to watch for, and how climbers can continue their sport...
https://dupuytrensuk.com/dupuytrens-disease-and-rock-climbing-what-climbers-need-to-know/
6 months ago
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dupuytrensuk.com/dupuytrens-c...
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Dupuytrenās Contracture and Trigger Finger: Are They Connected?
Discover the surprising connection between Dupuytren's contracture and trigger finger. Learn how these hand conditions interact, share risk factors, and affect treatment planning. Expert insights from...
https://dupuytrensuk.com/dupuytrens-contracture-and-trigger-finger-are-they-connected/
6 months ago
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For Dupuytren patients in NW England: a new (private) hand clinic has opened in Warrington with several surgeons who are very experienced treating Dupuytren's. They offer a good range of treatments.
www.iishealth.com
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IIS Health
https://www.iishealth.com/
7 months ago
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Astro put out a call for papers on radiation for benign diseases. See this pdf for more information.
www.advancesradonc.org/pb-assets/He...
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https://www.advancesradonc.org/pb-assets/Health%20Advance/journals/adro/non_malignant_disease_CFP_Final-1744201544167.pdf
8 months ago
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There's no stopping Dr Shaffer! Here is his latest video on 'surface anatomy of the hand' Informative! Enjoy and learn
youtu.be/fw2lF6_9te8?...
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Surface Anatomy of the Hand: A patient guide
YouTube video by British Dupuytrens-Society
https://youtu.be/fw2lF6_9te8?si=PEni5VeqKrO8ZOgm
8 months ago
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Good news! The videos of the 2025 Conference presentations are now online. Check them out!
#Dupuytren
#Ledderhose
#Peyronie
dupuytrensymposium.org/scientific-p...
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Scientific Program | International Dupuytren Symposium
https://dupuytrensymposium.org/scientific-program/
8 months ago
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FESSH now has an official Dupuytren Disease Group! (Federation of European Societies for Surgery of the Hand)
fessh.com/dupuytren-di...
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Dupuytren Disease Group
https://fessh.com/dupuytren-disease-group/
8 months ago
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A new video on our YouTube channel, made by Dr Shaffer!
youtu.be/ILflvdbk72I?...
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What is the palmar fascia anyway?!
YouTube video by British Dupuytrens-Society
https://youtu.be/ILflvdbk72I?si=tVVtCCc6x25hPjGX
8 months ago
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At the recent Dupuytren Conference our charity was represented by Prof Furniss, Prof Ralph and Anna Schurer. Each of them gave a presentation. Anna's presentation can be read here:
dupuytrens-society.org.uk/patient-path...
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Patient Pathway Dupuytren Conference 2025 talk | The British Dupuytren's Society
The patient's first port of call will be either a general practitioner or Dr Google. If patients can't get a GP appointment or a definite diagnosis, Dr Google is a popular alternative. If the patient ...
https://dupuytrens-society.org.uk/patient-pathway-dupuytren-conference-2025-talk/
8 months ago
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Our website had 8,700 visitors over the last month. That tells you something about how many people want more information on these diseases!
dupuytrens-society.org.uk
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Homepage for the British Dupuytren's Society
Providing support and information About Us We provide support and information to people affected by Dupuytren's, Ledderhose, Peyronie's and related conditions. Read More Personal Stories Personal stor...
https://dupuytrens-society.org.uk/
8 months ago
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You can make a difference! I have spoken to Dr K Madhavan today. He is an oncologist in Mid and South Essex NHS (UK) and treats Dupuytren and Ledderhose. He would like to set up a group of patient advocates who live in the region. (1)
9 months ago
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www.ageuk.org.uk/discover/202...
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Roger in Oldenland | Discover | Age UK
https://www.ageuk.org.uk/discover/2025/june/roger-in-oldenland/
9 months ago
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For anyone in the UK: PD labs is hoping to make Verapamil gel more accessible
www.pdlabs.co.uk
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Home | PD LABS UK
https://www.pdlabs.co.uk/
9 months ago
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The next meeting is set for Saturday 21/06 at 3pm British time. It will last an hour, but if nobody shows up I will probably close it after 15-20 minutes. Here is the link:
meet.google.com/sej-cmyp-oxi
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Meet
Real-time meetings by Google. Using your browser, share your video, desktop, and presentations with teammates and customers.
https://meet.google.com/sej-cmyp-oxi
9 months ago
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reposted by
British Dupuytren's Society
Anna Schurer
9 months ago
Not meaning to advertise UK people, but this Thursday (19June) Lidl have cycling gear, and the padded gloves that I got last year and absolutely LOVE will be in store again. Means you can try them on for size. And at £4.99, I will be getting a few more pair.
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The first video of the 2025 Conference is online! Recorded talks will come later, this is a compilation of interviews done at the event. Thanks to Yente Giegas for making this great memento.
youtube.com/watch?v=Y3_b...
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Internationale Dupuytren Conferentie Brussel 2025
YouTube video by KU Leuven videos
https://youtube.com/watch?v=Y3_bCRLCIGA&si=XkGh_Fr2__e7aUwV
10 months ago
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Some of us in England were in the PPI group for Liz Laird's research in Liverpool. This article was just published as a result of the study she was doing.
insight.jci.org/articles/vie...
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JCI Insight - Active synthesis of type I collagen homotrimer in Dupuytrenās fibrosis is unaffected by antiāTNF-α treatment
https://insight.jci.org/articles/view/175188
10 months ago
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Kurt Harrington of Ventoux Biosciences has started a GoFundMe to raise money to allow him to continue his Dupuytren research. Small donations can add up to big things! Here is the link (picture: Kurt and his dad)
www.gofundme.com/f/join-the-f...
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Donate to Join the Fight: Advancing Dupuytren's Treatment, organized by Kurt Harrington
Join Me in Advancing Dupuytrenās Disease Research My name is Ku⦠Kurt Harrington needs your support for Join the Fight: Advancing Dupuytren's Treatment
https://www.gofundme.com/f/join-the-fight-advancing-dupuytrens-disease-solutions
10 months ago
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Number two of the really good articles to read about the relationship between Peyronieās and other fibromatoses, giving risk factors and percentages of overlap in patients. One is by Angelo Orsini and coworkers, the other by Valantine Lethuillier and coworkers.
www.sciencedirect.com/science/arti...
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When fibrosis intersect: Association and risk factors between Peyronie's and Dupuytren's diseases
Peyronie's and Dupuytren's diseases are benign but are source of significant functional impairment leading to considerable suffering. In this study, tā¦
https://www.sciencedirect.com/science/article/pii/S295039302400216X
11 months ago
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There are two really good articles to read. Both articles we recommend today investigate the relationship between Peyronieās and other fibromatoses, giving risk factors and percentages of overlap in patients. The first:
onlinelibrary.wiley.com/doi/10.1111/...
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Peyronie's disease in the United States: A realāworld, 13āyear nationwide analysis of demographics, clinical characteristics, and treatment trends
Background Real-world data on Peyronie's disease remains limited. Objectives Describe the demographics, clinical characteristics, and therapeutic management of Peyronie's disease patients in the U...
https://onlinelibrary.wiley.com/doi/10.1111/andr.70029
11 months ago
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Another little step forward. Seems an interesting article, although I will need to read it a few times before I an hope to fully understand it.
www.mdpi.com/1422-0067/26...
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https://www.mdpi.com/1422-0067/26/7/3146
12 months ago
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reposted by
British Dupuytren's Society
The Guardian
12 months ago
Richard Chamberlain, hero of Dr Kildare and āking of the miniseriesā, dies aged 90
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Richard Chamberlain, hero of Dr Kildare and āking of the miniseriesā, dies aged 90
The actor died on Saturday night in WaimÄnalo, Hawaii of complications after a stroke, his publicist says Richard Chamberlain, the hero of the 1960s television series Dr Kildare who found a second career as an award-winning āking of the miniseries,ā has died. He was 90. Chamberlain died on Saturday night in WaimÄnalo, Hawaii of complications after a stroke, according to his publicist, Harlan Boll. Continue reading...
https://www.theguardian.com/tv-and-radio/2025/mar/30/richard-chamberlain-hero-of-dr-kildare-and-king-of-the-miniseries-dies-aged-90?utm_source=dlvr.it&utm_medium=bluesky&CMP=bsky_gu
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12 months ago
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Dear Dupuytren, Ledderhose or Peyronie doctor or researcher. Did you miss our deadline? We have opened an opportunity to send in last minute abstracts for a poster presentation. For details and how to enter, visit this page:
dupuytrensymposium.org/submit-abstr...
12 months ago
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reposted by
British Dupuytren's Society
Anna Schurer
about 1 year ago
Shall we play guess the picture? I think it was obvious at this point, but of course I knew what it was going to be.. My friends struggled but managed at the next picture taken two days later
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Taken from LinkedIn. Hand therapist Tom LattrƩ would like his colleagues to take a quick questionnaire about using Virtual Reality during hand therapy.
forms.office.com/pages/respon...
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Microsoft Forms
https://forms.office.com/pages/responsepage.aspx?id=DQSIkWdsW0yxEjajBLZtrQAAAAAAAAAAAAFicWHzYThUQUlKTUU1MjA0SzRJQTQ3UDBDNUw1RzhZTi4u&route=shorturl
about 1 year ago
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reposted by
British Dupuytren's Society
North West Bylines
about 1 year ago
Rare Disease Day is being postponed. Not because funding to many health and government programs is in trouble in the US we hope.
www.fda.gov/news-events/...
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POSTPONED - FDA-NIH Rare Disease Day
FDA-NIH Rare Disease Day 2025 Information
https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/postponed-fda-nih-rare-disease-day-02272025
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Today is Thumb Appreciation Day! I hope you all have at least one good thumb you can appreciate, they are important for hand function. š«³ššš«±šš¤
nationaltoday.com/thumb-apprec...
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Thumb Appreciation Day
Thumb Appreciation Day is just what it sounds like: a day to appreciate your thumb and give it all the best care in the world.
https://nationaltoday.com/thumb-appreciation-day/
about 1 year ago
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Don't delay, book today! It only happens once every five years! Brussels, May 2025 The Dupuytrens Conference
about 1 year ago
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reposted by
British Dupuytren's Society
Anna Schurer
about 1 year ago
Steve Redgrave story and an interview with yours truly
www.bristolpost.co.uk/news/health/...
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Symptoms of Dupuytrenās contracture as Sir Steve Redgrave 'worries'
Research suggests that for 80% of patients it is hereditary and that for 20% it is environmental
https://www.bristolpost.co.uk/news/health/symptoms-dupuytrens-contracture-sir-steve-9843011
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