I just wanted to publicly thank my neighbor whose muffler is so loud that five separate car alarms are now simultaneously going off in the parking garage.

Chapter 5 of the continuing adventures of Tam & Irene is now posted on Patreon. Chapter 1 is still FREE for everyone (www.patreon.com/EDSisSUCHaME...). If you enjoy my work, please share this widely. Feedback and constructive criticism is always welcome.

You know you have a #chronicillness when you’re on a first name basis with the phlebotomist.

I made the mistake of reading the news in my doctor’s waiting room. It’s been really, really hard not to scream out loud, repeatedly. #FDT and every single one of the sycophantic traitors who are supporting this nightmare.

Please help us get through this rough patch by donating and/or sharing. I hate to have to post this again and thank you once again to everyone who was able to donate. If you’d prefer to support my work directly, my Patreon is: www.patreon.com/EDSisSUCHaME... gofund.me/598fe24c9

I’ve been trying to work on my next chapter. But I’m still struggling with heightened pain from overdoing it yesterday, not to mention angry, frustrated, and depressed by *gestures at everything*, so really just want to curl up in a ball and go back to sleep. Sigh….

I just posted Chapter 4 of my work-in-progress fantasy novel about two princesses who live in interesting times on Patreon. My totally unbiased editor (my dad 😂) called this my “best chapter yet”. Chapter 1 is still free for everyone. (www.patreon.com/posts/158370...) #booksky

This is real folks. It’s part of the “Media Offenders” section (www.whitehouse.gov/media-bias-p...). 🤬 Alt text for original post: “The click-obsessed cuckolds at TMZ published a misleading caption that demonized our heroic ICE agents while omitting crucial context about an illegal alien scumbag.”

So instead of being 30 mins early to my MRI, I was apparently 2 hours early. And since I was already at the sweating & shaking portion of my leaving the apartment experience, I knew there was no way I was going to last that long, so rescheduled. Why the hell does that makes me feel like a failure?

There’s a woman next me in the waiting room at my doctor’s who is watching a video (with the volume up, of course) on one phone, while scrolling social media on a second phone. And I thought I was on my devices too much 🙄😂

I have a doctor’s appointment and that stupid MRI today and I also desperately need to go grocery shopping. So of course my pain levels are ridiculously high and I barely slept. Today is not going to be a fun day. 😓

I found this old essay I wrote a couple of years ago about the “joys” of living with an invisible chronic illness and thought I’d share it here. It made me chuckle, at least 😂 medium.com/@edsissucham...

I think this clip perfectly encapsulates how unhinged Trump has become. And kudos to Welker for not backing down and for continuing to ask for evidence to support his lies.

I was struggling to find something to distract me from a bad pain day, but then I found this old game I loved from the 90s for free online: Castle of the Winds (both parts I & II!) I’m so excited to play it again! Does anyone else have fond memories of this game?

So I have to get a breast MRI on Monday, but I usually change my pain med patch on Fridays (and you can’t wear them in MRIs because they have metallic components). So I get to eke out the weekend on my current patch, which will be easier than trying to save and reuse a new one. Life is stupid….

I just posted Chapter 4 of my work-in-progress fantasy novel about two princesses who live in interesting times on Patreon. My totally unbiased editor (my dad 😂) called this my “best chapter yet”. Chapter 1 is still free for everyone. (www.patreon.com/posts/158370...) #booksky

Great piece breaking down the insane and corrupt SpaceX IPO. If you have a 401k, you really need to read this.

I once worked as a financial analyst for a natural gas pipeline company, helping to create valuations for potential pipeline builds. These things don’t just get built overnight. They’re massive, multi-billion dollar projects. So please forgive me if I don’t find this at all reassuring.

My bananas were looking about how I feel today, but I managed to drag myself off the couch long enough to turn them into some delicious banana bread. I still have so much cake left too, so I’m saving half for that guy.

This is not getting enough attention. Nor are the smoke and mirrors the IPO valuation is based on.

My cat Freya (with her entire face inside my water glass): Mom, there’s not enough water for me to drink from this! Me: *gets up and fills glass with water* Freya: *walks away*

The humidity is down here, but apparently my body didn’t get the message, because she’s being a total bitch today pain-wise. And while I obviously don’t enjoy being in pain, the more frustrating part is how much being in pain seems to fuck up the rest of my system. Stupid #hEDS and #POTS 🙄🤬

I just found out today that May was #EDS Awareness Month. So happy belated EDS Awareness Month to all my fellow zebras! 💜🦓

So I’m currently at the “screaming at my phone in outrage” portion of the day. The obfuscation and disingenuousness of Bessent and Rubio at their hearings today is beyond disgusting. I know I just took a mental health break from the news a few weeks ago, but it might be time for another break.

So which part of the US Constitution says you don’t have to follow court orders if you don’t like them? Because for some reason, I can’t seem to find that section in my copy.

I only did two things today: going to a doctor’s appointment and picking up a few groceries. Now please excuse me while I try to recover from these exertions for the rest of the day (thanks #hEDS and #POTS). 🙄 Also, to my fellow Californians, don’t forget to vote!!

Yes, that’s exactly why I’m always going to the doctor too. It’s definitely not because I have a degenerative genetic condition. And is he saying they’re giving Trump daily dementia tests at this point? How rapidly is his condition progressing FFS? I am so sick of their constant bullshit.

In any other presidency, this would be a hilarious satire piece. But no, this is reality. 🙄🤬

Anyone need a distraction today? Why not read the FREE first chapter of my work-in-progress fantasy novel? And if you like what you read, Chapters 2 & 3 are also available for my paid supporters. New chapters are posted every Friday. Thanks for reading #booksky! www.patreon.com/posts/158370...

Happy Pride Month! It’s more important than ever to stand up with and fight for the rights of the entire LGBTQIA2s+ community.

Remember, CA ballots are due this Tuesday, June 2nd. Please vote! California deserves politicians who work for the people and not corporations. We deserve change! So please, choose @tomsteyerhq.bsky.social for CA Governor.

It’s telling that his only concern is for the credit card companies and their CEOs, not everyday Americans.

Woke up from a dream about being in pain, so I’m pretty sure today is not going to be a fun day. Sigh….

Here’s for anyone who needs a chuckle today. My favorite line, “The more cats you have, the more chances you have to be loved by them.” 🤣

Cake won 🍰

I did it! I finished the chapter of doom that’s been hanging over me for months. Ch. 1-3 are posted on my Patreon for anyone interested — Ch. 1 is free for everyone (link in bio). Time to bake, though trying to decide between a cake and cookies will probably waste the next hour of my life. 🙄😂

If you’re looking for something to read this weekend, why not check out the free first chapter of my work-in-progress fantasy novel. It’s about two sisters, both princesses, who are living in interesting times — something I think we can all relate to these days. www.patreon.com/posts/158370...

WTAF? It’s almost impressive how much bigotry Miller can fit into three sentences. Can we please bring back calling them weird?

So I’m not allowed to do anything fun tomorrow until I finish my chapter (that I’ve been struggling with for months). But as a reward, I’m either going to make myself a cake (box mix, canned frosting, not exciting but still decently delicious) or oatmeal chocolate chip cookies (from scratch).

But sure, tell us again how amazing everything is.

I was scrolling the news in bed, with the Freya cat on my lap and the Luna cat lying on her pile of toys next to me. Freya decided that Luna’s lashing tail was a fun new game and swiped at it. Luna let it go the first time. So Freya swiped at her tail again. Now I’m bleeding 🙄😂

They don’t even try to hide their fascist bullshit any more. 🤬

I don’t want to be too optimistic yet, but the voter turnout numbers speak for themselves.

Always follow the money. California, we deserve better! It’s time to take our power back. Please vote for @tomsteyerhq.bsky.social

I miss that guy. Two or three 15-minute phone conversations a day isn’t enough!

JFC, can we just secede already?

Yeah, so that’s actually not how things work. People are spending more because Trump & Co. have increased prices on almost everything, not because they’re “optimistic about the state of the economy.” But sure, tell me again about how credit card spending (and the resulting debt) is a good thing. 🤬

Best summary of Bluesky for me right now. Love y’all!

Another great meme by @chronicillness.bsky.social that exactly sums up my life. Today I ran two errands, so now my body will punish me for the next six hours.

Having a bad pain day — LA’s June gloom came early, so the humidity here has been high lately. I decided to let myself play video games instead of stressing about not getting enough writing done. Restarting Breath of the Wild, so you might not hear from me for the foreseeable future. 😂