Why was Pink Pony Club the song stuck in my head all throughout my oncology appointment yesterday?

The SHARON clinical trial is stem cell rescue for metastatic pancreatic & HER2-negative breast cancers w/ BRCA1/2 or PALB2 mutations. My stem cell rescue in 1999 is looking like it was worth it. Maybe it has been my “secret” all along #BRCA #MetastaticCancer #ClinicalTrials #StemCellRescue #mbc

In other news, my tumor markers are slowly dropping, PET scan looks okay to my layman’s eyes, but I’ll get the Dr view on Tuesday. Which happens to be my last appointment with her bcuz she is effing leaving! 😩 I’m a sad oddity

More GrokAi summary of clinical trials: ”DESTINY-Breast06 trial results are in! Trastuzumab deruxtecan (Enhertu) outperformed chemo in HR+, HER2-low metastatic breast cancer, delaying growth by 13.2 vs. 8.1 months. Final data expected 2025.” #breastcancer #mbc #stage4 #clinicaltrials

Asked GROKai for a BlueSky post on MBC tings “TROPION-Breast01 trial just wrapped up! Datopotamab deruxtecan (IV ADC) beat chemo in HR+, HER2- metastatic breast cancer, delaying growth by 6.9 vs. 4.9 months. Better quality of life too! Final survival data coming in 2025.Big step for MBC treatment!”

I’m having a salad for lunch. Wish me luck 😳 (For reference I’m on Verzenio, main side effect diarrhea proceeded by intense abdominal cramps, the kind that make you rock and uncontrollably say “ow ow ow fucking ow” out loud. This happens approximately 4-5 days a week. Sometimes at 2am.)

Here there be arting

“Shingles doesn’t care” was my fave public health messaging until Ashley coined: “Mumps makes your ball shrivel.”⭐️

I can’t TELL you how much I LOVE being told how lucky I am to have lived this long because so many others die from breast cancer. bESt peP TaLk eVeR 😐

I started Verzenio on January 1st, and was encouraged that I wasn’t having too many side effects. Fast forward and starting this week I have been plagued with the worst GI gut cramping, 2am bathroom sprints, eating Imodium like they’re Pez candies side effects. The timing makes me go hmmmmm 🤨

Because it is needed right now. #lgbtq

If they think this stunt is going to endear him to us…they made a big mistake. Big. Huge. This has stirred up a deeper and wider level of disgust in me than ever before.

At least I’m stable 😏 . . . . As per latest PET scan, at least 👍

Jimmy refused to put one toe in 2025. Can you blame him?

Does anyone else resist getting out of bed in the morning because they don’t want to acknowledge what their life has in store for them? Or is that just me? It can’t be just me.

Random reminder while I was flying on muscle relaxants for back spasms (and hopefully not new spinal mets) Music by Ummet Ozcan #breastcancer #mastectomy #flatclosure #stage4 #cansky #knowledgeispower #brca

Back to the grind

The life of a MBC patient: it looks like my liver can’t tolerate Kisqali. This is the first time my body has said “nope” with its full chest (pun intended) While other treatments have been difficult, none of them have been a serious threat to my well being/life if continued. TBC tomorrow…

Elacestrant (Orserdu) monotherapy has people with ESR1 mutation who do really well and some who have rapid progression. Why?? IDK but we need biomarkers to figure this out!! #SABCS24

Apparently some people have no issue with other people removing *some* healthy breast tissue (breast reduction) but removing the entire breast is tsk-tsked over. Key phrase: OTHER PEOPLE The point? You are not the one living in that meat suit, *they* are.

Managed to get thru last week with minimal stress and moderate fatigue. Here’s the question: is it the actual social interaction or my anxiety leading up to it that is the most fatigue inducing? Or just a fine mixture of both… 🥺

For the people who get upset that I post pictures of my chest…Chew on this: I’m showing nothing but scars, *you* are the ones imagining what used to be there. 😏 #sassypants #breastcancer #flatclosure #mastectomy #brca #flattiesky #cansky

Ummmmmm if you’re into vintage books and want your money to go to getting a random guy and his 3 dogs out of homelessness, you might like this thing I’m selling. 💙📚 www.ebay.com/itm/25672755...

You know that song that goes “Horrified looks from everyone in the room”? I swear that that’s how it feels sometimes when I say I’m Stage 4. I get it, it’s scary. But I’ve had to sit with so many awkward silences afterwards 🫥

Blue Sky asks “What’s up?” again. And my answer hasn’t changed. My liver enzymes went up more in the past 5 days. Livers are so high maintenance, sheesh! 🤨 #kisqali #mbc #stage4 #breastcancer #cansky

If House Republicans really wanted to protect women, they'd release the Ethics Committee report on Matt Gaetz' alleged sex trafficking - not try to ban their colleagues from using the bathroom. Stop the bigotry and release the report.

When you get turned away from getting labs done bcuz you’re a walk-in & don’t have a drs or infusion appt but you’re not mad bcuz it’s due to a nurses strike going on. It’s an inconvenience for me personally, but nurses keep this whole thing working. They deserve the best #ucsf #ucsfnurses #cansky

Educating, supporting, entertaining, and general shenanigans for the past 5 ish years on the clock app. Cancer takes so much away from us, but not the core of who we are #flatclosure #breastcancer #afc #cansky #darkhumor #mastectomy

Chemotherapy: too dangerous to touch, but fine to inject. #cansky

If someone is behaving horribly, please do not use their looks as an insult. 1. It's probably not going to reach or hurt them. 2. It will reach or hurt somebody lovely who looks like them. It's hard to socially de-condition but upholding "beauty = goodness" and vice versa helps no one.

This is how the past year has been for me. How has your year been? 😬 Oh this a graph of my CA27.29, a tumor marker. When cancer is active the number goes up. Disclaimer: everyone’s tumor markers are different, for some ppl they never change. Mine happen to be v reactive. #breastcancer #stage4 #mbc

That time in NYC, when Flat Out Love was in Times Square & TheeBooblessBabe & I finally met. She’s BRCA2+ & was facing risk reducing surgery.She didn’t know flat closure was a thing until she saw me on TikTok& knew that was what she wanted.She now has a platform far beyond mine. I’m so proud of her🥰

Are you thinking “What is she on about?” “What’s the big deal?” “Why is she even talking about it?” I invite you to visit this website: notputtingonashirt.org/mission/

PSA when I say I advocate for Flat Closure it absolutely does NOT mean I advocate against other forms of post mastectomy reconstruction. I advocate for informed decisions.

The many faces of me. Did I mention I like to dress up?

I suppose this is the test. I was dxed with breastcancer 26 yr ago. I am a Flat Closure advocate. I’ve posted for abt 5 yrs on on other apps. Will BlueSky support the breast cancer community when we work on normalizing all post mastectomy bodies?

My first post and Blue Sky has the prompt “What’s Up?” Oh the irony 😆 My liver enzymes, THAT’S what’s up! “Blue skies, smiling’ at me…”