New #podcast ep, #Hope Is Tricky Business open.spotify.com/show/0oNLwzI... The Atlantic article link expired so here's a new one for you to be able to read (Or listen cuz it has a audio version at the top) www.theatlantic.com/magazine/arc... #disability #myalgicE #myalgicencephalomyelitis #Canada

@TheAtlantic article link expired so here's a new one for you to be able to read(Or listen to-has a audio version at the top) & share. Link's in GFM update In case you want to share for you can't post news articles on FB/Insta gofund.me/6d981312 #disability #myalgicE #Canada #mecfs #longcovid

I'm struggling right now with what feels like disability hate & of course knowing I'm about a month away from running out of $ always does my head in. So it's a bit of a one to punch. I talk about it in this mini podcast ep open.spotify.com/show/0oNLwzI... #myalgicE #Disability #Canada

LongCovid is "not rare...In addition to its health burden...economic estimates show...longCOVID could result in billions...in productivity losses. The FDA should consider policies that adequately embrace this new reality&allay the legitimate concerns of the American people." doi.org/10.1016/j.va...

New Atlantic article link(gift link expired). I'm only a small part in it, But I am hoping it might precipitate some legacy media coverage that really focuses in the illogic & human rights atrocity of what's happening to me Twitter link that has it x.com/Madelinenerd... #disability #MyalgicE

Still fighting! petition really needs to get 2000 signatures before we present➡️ bit.ly/Marcia_petit... below is the Atlantic article. This is the @Canaryuk article that came out with the petition www.thecanary.co/global/world... #MyalgicEncephalomyelitis #disability #MyalgicE #Canada

No s*** Sherlock Le sigh *Bangs head softly against wall that we are still even having conversations and or studies around the psychosomatizing of what has already clearly been proven to be a biochemical and biomechanical disease* #myalgicE #myalgicencephalomyelitis

Still fighting! petition really needs to get 2000 signatures before we present➡️ bit.ly/Marcia_petit... below is the Atlantic article. This is the @Canaryuk article that came out with the petition www.thecanary.co/global/world... #MyalgicEncephalomyelitis #disability #MyalgicE #Canada

#theAtlantic article just came out that includes me www.theatlantic.com/magazine/arc... by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers open.spotify.com/show/0oNLwzI... #myalgicE #MyalgicEncephalomyelitis #Canada #canpoli #bcpoli #disability #disabilityawareness

"Dr Jayadeva, who co-authored the study, added: 'We found that people with #longCovid are often led to fend for themselves in a system that isn't adequately informed about their condition and doesn't offer them appropriate medical support.'"

into school or work you are at increased risk again of #Longcovid by not resting. Somehow this research is just not filtering through or being ignored by our government. Here it is for those who would like to take a look. www.thelancet.com/journals/lan...

#theAtlantic article just came out that includes me www.theatlantic.com/magazine/arc... by @elainaplott I'm so grateful that they linked to my podcast. For Atlantic readers open.spotify.com/show/0oNLwzI... #myalgicE #MyalgicEncephalomyelitis #Canada #canpoli #bcpoli #disability #disabilityawareness

Not sure why I'm surprised, but same neighbour tried to do it to me again today as I was exiting my apt. I was so tired, my body was in such pain. What the heck. When are we going to start accessibility training so people understand that vomiting #disability prejudice is not ok #myalgicE

Petition needs to get 2000 signatures. It currently has 1300. we welcome signatures from around the world! bit.ly/Marcia_petit... pls share! hopefully enough gfm donations will help give me the time I need to see petition presented to BC gov #myalgicE #pwd gofund.me/6d981312

Petition needs to get 2000 signatures. It currently has 1300. we welcome signatures from around the world! bit.ly/Marcia_petit... pls share! hopefully enough gfm donations will help give me the time I need to see petition presented to BC gov #myalgicE #pwd gofund.me/6d981312

“not knowing how we will feel from hr to hr or day to day is a huge #emotional burden..physical #symptoms are forever present & on our mind almost constantly because we never know when..symptoms will rear their ugly head.”: buff.ly/og0eUID by @coachtom12.bsky.social #ChronicPain #dystonia #spoonie

New podcast ep open.spotify.com/episode/6cMs... re finding a balance between the things that buoy my spirit & the things that need to get done but are also to Herculean & are destroying me #disability #MyalgicE #longcovid #MEAction #mcas #mcs #disautonomia

New podcast ep open.spotify.com/episode/6cMs... re finding a balance between the things that buoy my spirit & the things that need to get done but are also to Herculean & are destroying me #disability #MyalgicE #longcovid #MEAction #mcas #mcs #disautonomia

Feeling so poorly that I'm not able to make it to treatment. I feel bad canceling at the last minute. Eating breakfast collapsed me so I don't see how I navigate a shower let alone physically make it to treatment. I'm not well enough to get dressed #MyalgicE #mecfs #disability

This Thursday, The Sick Times is hosting a virtual town hall to share updates and take your questions. Join @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social as they chat about our current summer fundraiser, upcoming stories, and our editorial process! bit.ly/46mpSyX

Great starter pack for people seeking responsible, informed reporting on the ongoing pandemic and its catastrophic effects. #COVID #pandemic #healthcare #disability #chronicillness #MECFS

The title pretty much sums it up "disability prejudice vomited on me by a neighbor" youtu.be/lHaw1OOujNY?... #disability #disabilitybias #disabilityprejudice #disabilitypride #ableism #ableismawareness #MyalgicE #pwME #MECFS #fibromyalgia #humanrights #mcas #mcs #disautonomia #heatwave #heat

#Goodnews-have a functioning #airconditioner! Bad news: minute I step out my door my heart rate goes insane in this heat. #Dysautonomia sucks. Attempting limited fest volunteering as purpose is emotionally good for me. Antidote to running out of gfm$ fear open.spotify.com/episode/1Wtd...

The title pretty much sums it up "disability prejudice vomited on me by a neighbor" youtu.be/lHaw1OOujNY?... #disability #disabilitybias #disabilityprejudice #disabilitypride #ableism #ableismawareness #MyalgicE #pwME #MECFS #fibromyalgia #humanrights #mcas #mcs #disautonomia #heatwave #heat

open.spotify.com/show/0oNLwzI... tempgoing to 30° c + crisis division at min of SDPR currently working on requests from April isn't survivable for me. downstairs ductwork still venting into my walls mine & no properly functional air conditioner slamming into my heat #dysautonomia & #myalgicE😳

thesicktimes.org/2025/07/08/e... from @thesicktimes.bsky.social #longcovid #longviral #COVID #COVID19

New podcast ep: Trauma Response open.spotify.com/show/0oNLwzI... #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #mcas #mcs #trauma #traumatized #traumaresponse

New #podcast ep: Volunteering open.spotify.com/episode/5IVi... purpose helps me navigate difficulty #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #Fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #humanrights #mcas #mcs #eye #cataract

New #podcast ep: Volunteering open.spotify.com/episode/5IVi... purpose helps me navigate difficulty #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #Fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #humanrights #mcas #mcs #eye #cataract

New podcast ep: Trauma Response open.spotify.com/show/0oNLwzI... #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #mcas #mcs #trauma #traumatized #traumaresponse

New podcast ep: Under Pressure open.spotify.com/episode/5IVi... #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #mcas #mcs

@avisfavaro.bsky.social Heat/air/PESE update open.spotify.com/show/0oNLwzI... #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #mcas #mcs

new podcast ep: Everyone Breaks Under Torture Eventually open.spotify.com/episode/0mpF... #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #mcas #mcs

It feels like the government is quietly pushing people toward MAID instead of improving support. And with COVID increasing chronic illness numbers, this crisis is only growing. We urgently need systemic change, more funding, and real support to keep people living with dignity.

This is heartbreaking but sadly the norm. Our system fails people with chronic illness. Access to proper medical care is limited, research funding is a pittance, and disability support doesn’t cover basics. CPP disability denies people who’ve suffered for years, even if housebound or bedbound.

I’m very disabled. I’m not gonna list it. The UK government are trying to force disabled people like me back into work. I had a call from a ‘work coach’ who told me ‘it’s not about my disabilities it’s what I can do for my country’ I recorded it. Transcribed. And have a national newspaper printing.

new podcast ep: Everyone Breaks Under Torture Eventually open.spotify.com/episode/0mpF... #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #fibromyalgia #MEAction #Canada #Vancouver #genderbias #medicalbias #healthcare #humanrights #mcas #mcs

It feels like that to me too. Not logical as it costs the system more to allowed to #disabled people to deteriorate. Tried to communicate that to #BCbudget Text docs.google.com/document/d/1... Audio open.spotify.com/show/0oNLwzI... #myalgicencephalomyelitis #mecfs #myalgicE #longcovid

#Canaryuk article www.thecanary.co/long-read/20... I think it's very within the auspice of all of your advocacy @meactionuk.bsky.social @meactionscotland.bsky.social @meactnet.bsky.social #mecfs #myalgicE #myalgicencephalomyelitis as is my presentation BC budget (Links to text/audio below)

#Canaryuk article www.thecanary.co/long-read/20... I think it's very within the auspice of all of your advocacy @meactionuk.bsky.social @meactionscotland.bsky.social @meactnet.bsky.social #mecfs #myalgicE #myalgicencephalomyelitis as is my presentation BC budget (Links to text/audio below)

transcript that I worked from in the #BCbudget proposal presentation that I just did docs.google.com/document/d/1... audio recording of it that posted on my podcast open.spotify.com/show/0oNLwzI... Petition bit.ly/Marcia_petit... #mecfs #myalgicE #myalgicencephalomyelitis

My #BCbudget presentation is June 17 1:50pm. Links to be able to listen live in #podcast ep description open.spotify.com/episode/08pU... #bcpoli #BritishColumbia #myalgicE #myalgicE #disability #DisabilityRights #disabilitybenefit #canadadisabilitybenefit #Canada #LongCovid #derb

Just a few moments that stuck out to me from today's #MillionsMissing rally in Vancouver: Dr. Susan Kuo from @protectbc.bsky.social, describing how the burden of disease & disability for #LongCovid has surpassed cancer & heart disease, without any commensurate investment in research or care. 1/8

Marcia (@madelinenerd.bsky.social), who's lived with ME for decades, describing how she entered the system with nine (I think?) conditions but now has nearly thirty, due to preventable health deterioration caused by a lack of appropriate care and supports. 4/8

Why can't landlords just do right by their tenants?

New podcast ep open.spotify.com/show/0oNLwzI... about #millionsmissingbc protest today. Also despair, hope, ongoing air quality issues (pics gfm update gofund.me/6d981312 ) approval to speak to 2026 BC budget committee via zoom June 17th! #bcpoli #disability #MyalgicE #pwME #MECFS #MEAction

Finally my apt building management(#bchousing)is sending someone with a scope Mon to look at ductwork of apt downstairs to see why it's venting into my apt. 9 months I've suffered & hemorrhaged$(AKA time to stay alive)on mitigations vs them doing that in the 1st place #mcas #mcs #myalgicE #mecfs